#londonconnect@londonconnect_

9 December 2013

Age UK Positive Ageing Workshop

#londonconnect@londonconnect_

Bringing people and information together to improve care

#londonconnect@londonconnect_

Information and technology are just tools

#londonconnect@londonconnect_

Words the London Connect Patient Forum used to describe the world if information was used in the best way possible for

delivering care

#londonconnect@londonconnect_

To focus our efforts, we’re working to improve culture in three areas:

Online recordsInformation governance

Benchmarking

#londonconnect@londonconnect_

Our Approach

#londonconnect@londonconnect_

Our ApproachPeople exist as they are

We work to increase: (3) Awareness (4) Understanding (5) Motivation (6) Action (7) Commitment

Potentially confused, fearful

#londonconnect@londonconnect_

Online record access: Jan 2013 survey• 318 people took part: 137 using paper

survey forms and 181 online.

said,they would look at their health and care records if they were available online.

#londonconnect@londonconnect_

Benefits• Feel more involved in care• Feel more in control• More aware of individual health issues• Able to make better decisions about care• Probably talk more about health• Would trust health professionals more

#londonconnect@londonconnect_

Biggest worries1. Security2. Confidentiality

However,

said,it would be acceptable to have their records online as long as there were secure systems and passwords in place, perhaps similar to online banking.

#londonconnect@londonconnect_

Most commonly identified solutionsPrivacy: ReassuranceUtility: No TLAs or jargon. Medical terms explainedSupport: an accessible telephone helpline Encouragement: from doctors and nurses

#londonconnect@londonconnect_

Online record access: March 2013 focus groups• Four 1.5 hour focus groups• The final sample included:– 16 participants living with HIV/AIDS

(mix of ages approx. 25 – 55)– 30 participants from Age UK

London (50+)Detailed discussions

Solutions

WorriesBenefits

#londonconnect@londonconnect_

Summary of findings• Many Age UK London participants enjoyed using

computers and were very competent • The level of security perceived to be appropriate by

participants is inversely proportional to their level of comfort with computers

• Potential issues: increasing discrimination and inequalities - computer access or more vulnerable groups

#londonconnect@londonconnect_

Next steps: online records access• Further focus groups and surveys:

patients with diabetes• Partnering with organisations

across London to raise awareness• Citizen events and roadshows

#londonconnect@londonconnect_

We’d love to have you involved in our work1. London Connect Patient Forum meetings2. Citizen events3. Surveys and focus groups4. Online Records Community meetings5. Information Governance Community meetings

#londonconnect@londonconnect_

Q&A and contact details

Samantha MeikleDirector, London Connect0207 099 6915 samantha.meikle@londonconnect.org www.londonconnect.org

Concentra, Thames House Level 1, 18 Park St, London SE1 9EQ