Word of Mouth Mammogram e-Network (WOMMeN) hub: a Social Media enabled client and practitioner collaboration

MammographersCathy Hill, Geraldine Shires, Shaheeda Shaikh, Julie Stein Hodgins, Bev Scragg

ClientsJo Taylor, Liz Morton

University AcademicsDr Leslie Robinson (PI), Dr Alex Fenton, Dr Marie Griffiths, Dr Julie Wray, Dr Adam Galpin, Dr Jo Meredith, Dr Claire Mercer, Cathy Ure (PhD student)

Word of Mouth Mammogram e-Network (WOMMeN) hub: Social Media enabled client and practitioner collaboration

89 women on a ‘private’ Facebook User Design Group

Why?

• Own work– Women feel poorly informed/prepared– Results in anxiety > increased perception of pain– Prefer Word of Mouth methods to printed materials

• Ofcom statistics on media use1

• NHS communication strategy2

1. Ofcom (2015) Adults’ Media Use and Attitudes Report 2. DoH (2012) The Power of Information: putting all of us in control of the health and care information we need

1. Initiate & collaborate

2. Explore

3. Recruit participants

4. On-line data collection

5. Data analysis

6. Write-up

7. Disseminate

‘Open’ publicity

‘Open’ publicity

‘Closed’ User Design Team (participants)

Project management

‘Closed’ User Design Team (participants)

89 participants service users and practitioners on Facebook

A ‘post’ is a the introduction of a

new thread

A ‘comment’ is a response to a post

206 Posts

1124 comments

570 likes

67 active members

Participants can join in as and when it is convenient to them...and they did!

Thematic Framework Analysis

Screening in general

Screening in breast

Mammogram procedure

Mammog’s

Other health professionals

Clients

Others

Themes (n =52)

Grou

ps

Thematic Framework Analysis

Features women want:• Communication with other women• Communication with health professionals• Personal experience balanced with evidence base• Key topics

– Screening in general (all)– Screening for breast cancer (all)– Risks, false positives, DCIS (health professionals mainly)– After the mammogram, results (clients mainly)– The mammogaphic examination (mammographers

mainly)– Breast health, self-examination (all)

www.wommen.co.uk

Features: patient and practitioner forums (47 members signed up so far)

Links to our Twitter and Facebook accounts

Features: Patient experience blogs

Information

Summary

• Patient information designed by users is fit for purpose

• Social Media effective and convenient for recruiting participants and collecting data

Acknowledgements:

89 women in the Facebook User Design Group