Word of Mouth Mammogram e-Network: a Social Media enabled client and practitioner collaboration
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Transcript of Word of Mouth Mammogram e-Network: a Social Media enabled client and practitioner collaboration
Word of Mouth Mammogram e-Network (WOMMeN) hub: a Social Media enabled client and practitioner collaboration
MammographersCathy Hill, Geraldine Shires, Shaheeda Shaikh, Julie Stein Hodgins, Bev Scragg
ClientsJo Taylor, Liz Morton
University AcademicsDr Leslie Robinson (PI), Dr Alex Fenton, Dr Marie Griffiths, Dr Julie Wray, Dr Adam Galpin, Dr Jo Meredith, Dr Claire Mercer, Cathy Ure (PhD student)
Word of Mouth Mammogram e-Network (WOMMeN) hub: Social Media enabled client and practitioner collaboration
89 women on a ‘private’ Facebook User Design Group
Why?
• Own work– Women feel poorly informed/prepared– Results in anxiety > increased perception of pain– Prefer Word of Mouth methods to printed materials
• Ofcom statistics on media use1
• NHS communication strategy2
1. Ofcom (2015) Adults’ Media Use and Attitudes Report 2. DoH (2012) The Power of Information: putting all of us in control of the health and care information we need
1. Initiate & collaborate
2. Explore
3. Recruit participants
4. On-line data collection
5. Data analysis
6. Write-up
7. Disseminate
‘Open’ publicity
‘Open’ publicity
‘Closed’ User Design Team (participants)
Project management
‘Closed’ User Design Team (participants)
89 participants service users and practitioners on Facebook
A ‘post’ is a the introduction of a
new thread
A ‘comment’ is a response to a post
206 Posts
1124 comments
570 likes
67 active members
Participants can join in as and when it is convenient to them...and they did!
Thematic Framework Analysis
Screening in general
Screening in breast
Mammogram procedure
Mammog’s
Other health professionals
Clients
Others
Themes (n =52)
Grou
ps
Thematic Framework Analysis
Features women want:• Communication with other women• Communication with health professionals• Personal experience balanced with evidence base• Key topics
– Screening in general (all)– Screening for breast cancer (all)– Risks, false positives, DCIS (health professionals mainly)– After the mammogram, results (clients mainly)– The mammogaphic examination (mammographers
mainly)– Breast health, self-examination (all)
www.wommen.co.uk
Features: patient and practitioner forums (47 members signed up so far)
Links to our Twitter and Facebook accounts
Features: Patient experience blogs
Information
Summary
• Patient information designed by users is fit for purpose
• Social Media effective and convenient for recruiting participants and collecting data
Acknowledgements:
89 women in the Facebook User Design Group