B D D I A B E T E S C E N T E R
F O R
C H I L D R E N
A N D A D O L E S C E N T S
The Glucose Monitor W I N T E R / S P R I N G 2 0 1 2 V O L U M E 1 , I S S U E 3 ,
Goryeb Children’s Hospital
Morristown Medical Center
100 Madison Ave.
Morristown, NJ 07960
Phone: (973) 971-4340
Fax: (973) 290-7367
The Team
Physicians:
Harold Starkman, MD, Director
Tymara Berry, MD
Barbara Cerame, MD
Daisy Chin, MD
Frances M. Guevarra, MD
Lawrence Silverman, MD
Nurses:
Frances Melchionne, EdD, RN, CDE
Clinical Coordinator
Laurie Ebner-Lyon, RN, APN, CDE
Elaine Nussbaum, RN, APN, CDE
Christine Wagner, RN, MS, CDE
Nutritionist:
Connie Shirtz, RD, MS, CDE
Social Worker:
Nicole L Pilek, MSW, LCSW
Administrative Staff:
Donna Parente, Office Manager
Debby Ace, Endocrine Coordinator
Cheryl Baldwin
Ashaki Graham
Sheryl Irons
Joann Millman
Christie Murillo
Medical Assistants:
Martha Ortiz
Pamela Solomon
Pierre the Pancreas
Cake donated by
In October of 2011, our 9 year old daughter, Jenna, was diagnosed with type 1 diabetes at the Goryeb Children’s Hospital in Morristown, NJ. After witnessing what so many children and their families go through, we have started the Jenna De Grazio Wish Foundation to help raise awareness and funds for the care before the cure.
We invite you to join us for the
First Annual Jenna De Grazio
Wish Foundation
Food and Wine Tasting
March 26, 2012 6-10pm
Held at the 4 Star
Route 10, Livingston, NJ
Come enjoy an evening of great food from many of the top restaurants in the area!
Wine tasting sponsored by the Wine Legend, Livingston, NJ
Just a “taste” of some of the fabulous prizes you can win! Full Length Mink Coat
Overnight stay w/dinner at Hotel Westminster
2 night stay, Leen’s Lodge, Maine
Diamond Earring—iPad—TV—Gift Cards
Overnight hotel/movie packages
& many, many more
Ticket Price: $100/person Proceeds donated to the BD Diabetes Center for Children and Adolescents,
Goryeb Children’s Hospital @ Morristown Medical Center
FOR INFORMATION and TICKETS PLEASE CALL 973.901.6296
P A G E 2
SWEET TALK with team member Laurie Ebner-Lyon Laurie Ebner-Lyon is
a pediatric nurse practitioner
and a certified diabetes educa-
tor. She lived in Wisconsin for
almost 20 years and received
her nursing degree from the
University of Wisconsin and
her master’s degree from Mar-
quette University in Milwau-
kee. Laurie worked in the field
of pediatric rheumatology for
about 18 years, taking care of
children with juvenile arthritis,
Lupus and other rheumatic
diseases. She worked In pedi-
atric rheumatology at the
Children’s Hospital of Wis-
consin and Hackensack Uni-
versity Medical Center. She
joined the team in pediatric
endocrinology at Morristown
almost five years ago. She
enjoys working with families
with chronic conditions and
auto-immune diseases, easing
the transition from rheumatol-
ogy to endocrinology. Laurie
also sees patients in the prac-
tice who have other endocrine
conditions such as short stat-
ure and thyroid disease.
Laurie has 3
daughters whom she is very
proud of, and a very spoiled
Cockapoo. Two of her
daughters are in graduate
school in social work and
physical therapy, and one is a
senior in high school
anxiously waiting to hear from
college admissions.
In her free time Laurie
enjoys yoga, walks with Gracie
(the Cockapoo), going to the
theatre, the beach, reading and
gourmet dining. She feels
fortunate to be part of such an
excellent diabetes team!
Holiday Stuffed Animal Drive by: Peter Custy, Age 11
I was diagnosed with Type 1 Diabetes on November 4, 2011. When I was admitted to the Goryeb Children’s Hospital, I felt over-whelmed and confused. I didn’t really un-derstand what was happening. All I knew
was that I was thirsty and tired.
To make me feel better, my mom and dad let me pick out a stuffed animal from the gift shop. I couldn’t decide between an Ugly Doll and a stuffed white tiger (my favorite animal), so they let me get both. The stuffed animals kept me company in the hospital and made me feel better as I learned all about how to manage having
diabetes.
I met a lot of really nice kids in the hospital, and I realized that some of them had to stay a long time. As the holidays got closer, I started thinking about those kids and what I could do to help kids who were in the hospi-tal for the holidays. I thought about my stuffed animals and had the idea of starting a stuffed animal drive and collecting stuffed animals that I could bring to kids at the holi-
days.
My mom helped me send an email to our family and friends. I even asked my mom to post it on her Facebook page, since I am not allowed to have my own Facebook page
yet. I told people about my experiences being diagnosed with diabetes and staying in the hospital. I asked them to donate a small, new stuffed animal that I could give to the patients at the holidays, and I set a
goal of collecting 36 toys.
I couldn’t believe how many animals people
donated to my toy drive. I received dona-
tions from family, friends, neighbors, my
Mom and Dad’s co-workers, teachers and
people I didn’t even know who had heard
about what I was trying to do. I collected
over 100 stuffed animals and small toys.
Since I collected so many, I was able to
T H E G L U C O S E M O N I T O R
THE INSPIRATIONAL TYPE: PETER CUSTY bring baskets to my local hospital’s pediat-ric floor and Goryeb Children’s Hospital on Christmas Eve with my parents, brother and sister. I even wore a Yankees Santa hat for good cheer. With the extra animals I col-lected, I also made a box of stuffed animals for the doctor’s office so that when a patient is newly diagnosed with type 1 diabetes and has to be admitted to the hospital, they can
pick a friend to take with them.
I am really thankful for all the people who
helped me with my toy drive. I hope that
the stuffed animals helped the children in
the hospital feel joy at the holidays.
WOW!! Proof of Peter’s super successful toy drive!!
P A G E 3 THE INSPIRATIONAL TYPE: Maddox Maiello
About 25 kids along with their families
and friends attended. My friend that I
met at the Diabetes Center Family
Picnic helped me learn to skate. By the
end of the afternoon I wasn’t doing too
badly!
It was a great time and everyone had
fun and learned to ice skate.
T H E G L U C O S E M O N I T O R
My name is Maddox and I am 9 years
old. On Sunday, December 18th, I
helped out at an ice-skating event for the
Diabetes Center. It was my community-
service project for my junior brown-belt
testing for my karate dojo. In order to
apply for testing on upper belts each
student is required to run an event or do
a project that serves their community. It
was held at the Mennen Arena. I assisted
Ms. Nicole Pilek in the planning of the
afternoon. It was my job to help design
the flyers, hand out name tags and give
ideas.
We still have openings in our advanced pumping
classes! “Making Your Pump Work Smarter Not Harder”
The BD Diabetes Center is offering an education program to help you get more from your insulin
pump. Come join other pumpers and together discover the tools and information you need to take insulin
pump therapy to the next level.
Class Dates:
Goryeb Children’s Hospital, 2nd Floor. Community Conference Room
Choose from the following dates:
Monday, February 13
Thursday, April 19
Thursday, May 31
7:00 to 9:00 P.M.
To Register call Fran Melchionne @ 973-971-4340
Maddox and Miss Nicole excitedly wait to welcome everyone to Mennen Arena for a fun
afternoon of ice skating
THE INSPIRATIONAL TYPE: RYAN QUINN
P A G E 4 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
Ryan Quinn, age 9 and a patient of Dr.
Starkman's since her diagnosis in Feb-
ruary 2004 at 23 months, competed this past summer in three beach
events in Avalon, New Jersey. Ryan
raced in the Avalon NJ Island-
kids triathlon (100 meter swim/5k bike and 1k beach
run) on July 2nd, the Beach Classic
Duathlon (1k run/5k bike/1k run) on July 30th and the Splash n
Dash (100 meter swim/1k beach
run) on September 3rd. Tim Kerr
Charities of Avalon, New Jersey sponsored each race
and all of the proceeds of the
Beach Classic Duathlon benefited the
JDRF. Ryan is also a member of the Montclair
State Redhawks swim team, the West
Caldwell 3rd/4th grade girls lacrosse team and the Caldwell College
Childrens Choir. Ryan and her parents
believe that her active lifestyle
and her participation in
athletics will enable her to
better manage her diabe-
tes !
Ryan’s sister, Kate and her cousin, Quinn, both age 8 competed
with her in each race along with a few
friends from West Caldwell.
YOU GO GIRL!!!
T H E G L U C O S E M O N I T O R
Did You Know?? The BD Diabetes Center is a recognized ADA (American Diabetes Association) Center and the recommen-
dation is to schedule an appointment with the dietitian once a year. You can conveniently combine the visit
with your child’s next endocrinologist or nurse educator appointment.
And Speaking of Appointments… Remember to schedule your next 3 month follow-up appointment as you leave—
You are more likely to get an appointment on the day you want and at the time that you want!!
Ryan races for the finish line and for a good cause!
P A G E 5 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
T H E G L U C O S E M O N I T O R
P A G E 6 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
is a daunting opponent, but for the past 25
years I approached each day with excite-
ment in knowing that I had an opportunity
to win. I was diagnosed at the age of 9,
and every day since has been a competi-
tion to avoid the potential long-term side
effects that could come as a result of mis-
management. I, along with my family,
was dealt another challenge four months
ago when my four year old son was diag-
nosed with Type 1. In my eyes, another
opportunity to win.
A little about myself – I grew up
in NJ, played college baseball at The
Johns Hopkins University, started my
own business at the age of 23, sold it to a
publicly traded company at the age of 27,
and presently work as a General Manager
for the company that bought my business.
I am married for 10 years, have two
daughters and a son (with diabetes). And
I still live in NJ (the greatest state in the
U.S.). As an athlete, myself, I found Phil
Southerland’s book, “Not Dead Yet,” a
wonderful, refreshing read.
I love reading stories about com-
petitive athletes because there is some-
thing about the drive of a person
pushing him, or herself to the lim-
its of what is physically possible
that I find fascinating. When this
is done by someone living with
T1D it makes it that much more
inspirational, due to the personal
connection. Southerland is unique
in many respects. Diagnosed with
T1D at 7 months old, Southerland
should, according to statistics, not
be alive. But, he is. And not only
is he alive, he raced bikes competi-
tively for a number of years and
also participated in some amazing
cross-country endurance bike races
– all with T1D. Furthermore, he
won many events and has become
a leading advocate for Type 1 Dia-
betics, worldwide.
If you’re reading this arti-
cle, then undoubtedly you under-
stand that managing T1D is diffi-
cult. It’s a disease where little is
predictable, yet so much is within
your control. You
inject insulin, check
your blood sugar,
eat food, exercise,
breathe, live – and
all of this impacts
your blood glucose
at any given mo-
ment, and in turn
effects how you
feel. It’s exacerbat-
ing at times, espe-
cially when you
can’t get it right and
all you desire is to
go about your
day. In Phil
Southerland’s case, try to imagine doing all
of this in the midst of one of the most gru-
eling endurance races known to man –
biking across America.
Southerland’s book is about push-
ing limits. It is about demonstrating that
while diabetes can be difficult to manage,
it can be integrated into everyday life and
utilized as a tool for motivation; a sce-
nario that I hold near and dear to my heart.
In short – you can live with this disease
and thrive despite it.
I enjoyed and connected with “Not Dead
Yet.” In my opinion, it’s a book that every
person, especially teens, should read – but
for people with type 1 diabetes, it’s a
MUST. Southerland imparts the impor-
tance of control, but in a non-preachy, non
-judgmental manner. He simply reminds
us that type 1 is a race against disease – a
race we have no choice, but to win.
At this year’s 2012 College and Diabetes Pro-
gram, we had the pleasure of welcoming guest
speaker, Eric Weisholtz, to speak about life after
college and looking back. Well-educated, suc-
cessful, and happily married with 3 beautiful
children, Eric is a wonderful example for anyone
living with (or know someone intimately with)
type 1 diabetes, proving life is worth living
and living it to its fullest potential. He was able
to connect with the college hopefuls and their
families as well as the college students, knowing
what it is like to walk in their very shoes. Truly
an inspiration!! I wanted to devote my section
of the newsletter to someone that inspired me
and the College Night attendees; to help provide
motivation and encouragement. Below is Eric’s
story including a book review on someone that
inspires him... -Nicole
Life is full of challenges. At the end of
the day, those who are truly successful in
achieving happiness and a life of
fulfillment are the same who refuse to let
life’s trials box them in. Type 1 diabetes
The SOCIAL(Net)WORK(er) notes from Nicole
T H E G L U C O S E M O N I T O R
“What lies
behind us
and what
lies before
us are tiny
matters
compared
to what lies
within
us.”
Ralph
Waldo Emerson
Dad (Eric) and Jonah living life to its fullest!!
If Eric’s story has inspired you and you would like to contact him, please e-mail me:
THE INSPIRATIONAL TYPE: EZRA KEOUGH
P A G E 7 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
STAY FIT AND TACKLE
IT!
By Ezra Keough
I’m a big New York Giants fan and this is
an exiting time for the New York Giants.
After a sudden death over time in the
playoffs, they beat the 49ers with a field
goal possible because of a fumble. The
New York Giants offensive and defensive
line demonstrated amazing talent and
skills. Then, they headed off to Super
Bowl 46. The rivalry between the Patriots
and Giants was reawakened. After an
intense game and a nail biting 4th quarter,
the Giants won!
Hi I’m Ezra Keough. I am a
healthy, fit junior (at Ridge High School)
that happens to have Juvenile Diabetes. I
was diagnosed at the end of my Fifth
Grade year. I just received my Varsity
Letter in Football from Ridge High
School. I play Center and Defensive
Guard.
As an athlete my schedule is
busy and challenging. Off-season, I work
out at least three times a week; preseason
training is rigorous, more like six times a
week. In season, we practice at least four
times a week with either one or two
games per week. So I barely have time for
anything more than schoolwork and foot-
ball.
My diet is balanced and in-
cludes a lot of vegetables and fruit. I do
have a sweet tooth so I do indulge with
that occasionally. Chocolate chip cookies
are one of my favorites. Balance is the
key with exercise and diet. My motto:
Stay Fit and tackle It!
I balance sports and diabetes
management by taking my blood sugar
often, before practice and before meals
and knowing how my body reacts to
foods and certain exercises, games and
scrimmages. I don’t skip testing my
blood sugar because that hinders me
from feeling my best and playing my
best.
I am in tune with my body and
make sure I stay hydrated and eat often
and healthy. Exercise, lifting weights
and running keeps me in shape and actu-
ally makes me feel really good. During
preseason, I work out at Test Perform-
ance Gym with Eric Dorsey, a former
New York Giant, who helps me improve
my skills and get ready for the football
season.
When I was a freshman and just
joining my football team at Ridge, I did-
n’t want to tell my coaches and team-
mates that I had juvenile diabetes. I was
just joining a new team and new school
and I just didn’t want to call attention to
myself. I then saw an inhaler in a team-
mate’s gym bag in the locker room. He
was a good athlete and friend, so I was
surprised that he never told me that he
had asthma and that he needed an in-
haler…Then I realized, everyone has
something that they have to deal with.
This encouraged me to tell my
coach and my teammates that I had dia-
betes. I came to the conclusion, that by
not saying anything to the coaches, the
trainers or my teammates, it was allow-
ing diabetes to control me! Not telling
them was standing in the way of my be-
ing my best for my team. So I made sure
they knew. The cool thing was that
my teammates and my coaches didn’t make
a big deal out of my having diabetes. They
just want me to play to my fullest potential.
We all want to play hard and work hard to
win games and do well at developing our
skills.
Last season, I was a starter for our Junior
Varsity team (with only one loss) and I
played on the defensive line for some of the
varsity games as well. I look forward to next
football season, meanwhile I am preparing
by getting in even better shape and working
on my football skills.
Check out my website:
www.tacklejuvenilediabetes.com. If you
want to talk about football; working out;
eating healthy or balancing sports and JD,
just email me and remember:
STAY FIT AND TACKLE IT!
T H E G L U C O S E M O N I T O R
Reminders for Insulin Storage: Insulin will only work properly for you if you store it properly.
Remember that once insulin is opened it is good for only 28 days, whether you are finished with the vial/pen or not. It does not matter if
you store it in the refrigerator or at room temperature. The clock starts counting down when it is opened.
For insulin that is not open or in use, remember to store it in the refrigerator and it will be good until the expiration date marked on it. Re-
frigerator temperature is 36 to 46 degrees. Room temperature is considered 59 to 86 degrees.
The only exception to the 28 day rule is Novolin (NPH) cartridges and pens which are only good for 7 to 14 days. Please check the package
insert for specifics
The general guidelines for insulin storage are to never freeze insulin, and if it is frozen or ever was frozen you need to discard it. Don’t use insulin past the expiration date stamped on it. Never expose insulin to direct heat or light, and avoid keeping your insulin in extremely hot or extremely cold temperatures. It’s best to keep your insulin with you in a carry-on bag with a cold pack when you are traveling by bus,
train or plane.
Never leave your insulin in the car and don’t use insulin that has developed any crystals or clumps.
P A G E 8 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
T H E G L U C O S E M O N I T O R
CAMP WOB
A Day Camp for Children with Type 1 Diabetes By Camp WOB Director Deryl O’Brien
Camp WOB had its first session last summer in July of 2011. We had a
week filled with fun activities at the Sunrise Lake Picnic Area at Lewis Morris
Park in Mendham, NJ. Our Camp WOBers had days filled with swimming, tae
kwon do, theatre arts, arts and crafts, kickball, free play, massive water balloon
and water gun fights and much more! Camp WOBers were kept safe with
excellent nursing care and received help and mentoring from the most wonderful Camp Counselors
that anyone could hope for. Camp WOBers were guided towards a more independent life in managing
their diabetes in a fun, stress free, and loving environment. Our Camp WOBers and staff had such an
amazing time last year that we were all sad to see it end after only one week.
Camp WOB is back again this year! Due to the enormous success from last summer and the
camper’s and staff’s desire to have camp for a longer time, Camp WOB will run for two weeks during
July 2, 2012 to July 13, 2012 from 9:00 a.m. to 4:00 p.m. We will have the same fun activities as last
year, plus some new ones too! This year we are implementing a Sibling Camp, which will be open to
the siblings of children with diabetes. Both camps will operate independently with only a couple
shared activities like swimming and relay races. We are also offering before care this year beginning at
8:00 a.m., in addition to our aftercare which runs from 4:00 p.m. to 6 p.m. Among other fun new ac-
tivities, our last day of camp will be spent at Foster Fields Farm in Morristown. We will continue to
have a focus on safe fun at Camp WOB. We are currently working on developing a program schedule
that will provide our campers and staff with the best experience of their summer. For more informa-
tion on Camp WOB and how to become a Camp WOBer or staff member, please visit
www.campwob.org or contact Deryl O’Brien at [email protected]. We hope to have the opportu-
nity to share our camp experience with you and your child.
P A G E 9 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
T H E G L U C O S E M O N I T O R
FDR
P A G E 1 0
Dietitian Fact:
Did you know?
The food pyramid
is now considered
obsolete.
Check out
www.
choosemyplate.gov
to find out about
how to eat healthy.
A sweet treat every
once in awhile is
fine, but it is
important to have
a well balanced
diet.
CARB COUNTING WITH CONNIE, the dietitian
A double Valentine’s treat
with your Sweet...bake
these cookies together and
then
enjoy ‘em!
Chocolate
Kiss Cookies
Ingredients
1 cup margarine, softened
1/2 cup white sugar
1 teaspoon vanilla extract
1 3/4 cups all-purpose flour
1 cup finely chopped walnuts
1 (6 ounce) bag milk chocolate candy kisses
1/3 cup confectioners' sugar for decoration
Directions
1. In a large bowl, cream margarine with
sugar and vanilla until light and fluffy. Mix
in flour and walnuts, beating on low speed
of an electric mixer until well mixed.
Cover, and refrigerate dough for 2 hours,
or until firm enough to handle.
2. Preheat oven to 375 degrees F (190
degrees C).
3. Remove wrappers from chocolate
kisses. Shape approximately 1 table-
spoon of dough around each chocolate
kiss; be sure to cover chocolate com-
pletely. Place cookies on an ungreased
cookie sheet.
Bake for 10 to 12 minutes in the preheated
oven. While cookies are still warm, roll
them in confectioners' sugar.
Nutritional Information
Servings Per Recipe: 36
Amount Per Serving
Total Carbs: 12g
Sweetheart Cookies
Ingredients
3/4 cup butter (no substi-
tutes), softened
1/2 cup sugar
1 egg yolk
1 1/2 cups all-purpose flour
2 tablespoons raspberry or straw-
berry preserves
confectioners' sugar (optional)
Directions
1. In a mixing bowl, cream butter and
sugar. Add egg yolk; mix well. Stir in the
flour by hand. On a lightly floured surface,
gently knead dough for 2-3 minutes or
until thoroughly combined. Roll into 1-in.
balls. Place 2 in. apart on greased baking
sheets. Using the end of a wooden spoon
handle, make an indention in the center of
each. Fill each with 1/4 teaspoon pre-
serves.
Bake at 350 degrees for 13-15 minutes or
until edges are lightly browned. Remove
to wire racks. Dust warm cookies with
confectioners' sugar if desired. Cool.
Nutritional Information
Servings Per Recipe: 24
Amount Per Serving
Total Carbs: 11g
Both recipes courtesy of
T H E G L U C O S E M O N I T O R
P A G E 1 1 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
T H E G L U C O S E M O N I T O R
The maginative Site:
P A G E 1 2 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2
Wanna share your artistic talent with others? Submit your drawings, paintings, photography or poems to Nicole via E-mail: [email protected]
Mail: BD Diabetes Center, Morristown Medical Center, Box 53, Morristown, NJ 07962, Attn: Nicole Pilek or just drop it off at your next appointment. Let the
creative person inside you out!!
The section to inject your creativity!!
T H E G L U C O S E M O N I T O R
Goryeb Children’s Hospital at
Morristown Medical Center
Box 53
100 Madison Ave
Morristown, NJ 07962
Office Phone #: 973.971.4340
Fax #: 973.290.7367
Easier Prescription Refills!
There is a fast, and easy way to get your prescriptions refilled and it’s free!! Our office participates in Relay Health, a web-based secure service for requesting prescription refills. We strongly encourage patients to use Relay Health for efficient and timely renewals. Simply register online at www.relayhealth.com or provide your e-mail address
when you register for your next appointment.
Remember – After hours and weekends,
on-call physicians do not have access to your
child’s chart and cannot authorize
prescription refills.
A Pharmacist can dispense 3 days of diabetes related
supplies without a prescription; this may be an
out-of-pocket expense. It’s always best to request
your prescriptions at your scheduled diabetes
appointments, or by using Relay Health.
BD Diabetes Center for Children and
Adolescents
Think you know everything about diabetes? Check out
Pierre Pancreas and The Keytones at:
THINKLIKEAPANCREAS.COM
T H E G L U C O S E M O N I T O R
Happy Valentine’s Day!!
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