B D D I A B E T E S C E N T E R FOR The Glucose … · Barbara Cerame, MD Daisy Chin, MD Frances M....

B D D I A B E T E S C E N T E R

F O R

C H I L D R E N

A N D A D O L E S C E N T S

The Glucose Monitor W I N T E R / S P R I N G 2 0 1 2 V O L U M E 1 , I S S U E 3 ,

Goryeb Children’s Hospital

Morristown Medical Center

100 Madison Ave.

Morristown, NJ 07960

Phone: (973) 971-4340

Fax: (973) 290-7367

The Team

Physicians:

Harold Starkman, MD, Director

Tymara Berry, MD

Barbara Cerame, MD

Daisy Chin, MD

Frances M. Guevarra, MD

Lawrence Silverman, MD

Nurses:

Frances Melchionne, EdD, RN, CDE

Clinical Coordinator

Laurie Ebner-Lyon, RN, APN, CDE

Elaine Nussbaum, RN, APN, CDE

Christine Wagner, RN, MS, CDE

Nutritionist:

Connie Shirtz, RD, MS, CDE

Social Worker:

Nicole L Pilek, MSW, LCSW

Administrative Staff:

Donna Parente, Office Manager

Debby Ace, Endocrine Coordinator

Cheryl Baldwin

Ashaki Graham

Sheryl Irons

Joann Millman

Christie Murillo

Medical Assistants:

Martha Ortiz

Pamela Solomon

Pierre the Pancreas

Cake donated by

In October of 2011, our 9 year old daughter, Jenna, was diagnosed with type 1 diabetes at the Goryeb Children’s Hospital in Morristown, NJ. After witnessing what so many children and their families go through, we have started the Jenna De Grazio Wish Foundation to help raise awareness and funds for the care before the cure.

We invite you to join us for the

First Annual Jenna De Grazio

Wish Foundation

Food and Wine Tasting

March 26, 2012 6-10pm

Held at the 4 Star

Route 10, Livingston, NJ

Come enjoy an evening of great food from many of the top restaurants in the area!

Wine tasting sponsored by the Wine Legend, Livingston, NJ

Just a “taste” of some of the fabulous prizes you can win! Full Length Mink Coat

Overnight stay w/dinner at Hotel Westminster

2 night stay, Leen’s Lodge, Maine

Diamond Earring—iPad—TV—Gift Cards

Overnight hotel/movie packages

& many, many more

Ticket Price: $100/person Proceeds donated to the BD Diabetes Center for Children and Adolescents,

Goryeb Children’s Hospital @ Morristown Medical Center

FOR INFORMATION and TICKETS PLEASE CALL 973.901.6296

P A G E 2

SWEET TALK with team member Laurie Ebner-Lyon Laurie Ebner-Lyon is

a pediatric nurse practitioner

and a certified diabetes educa-

tor. She lived in Wisconsin for

almost 20 years and received

her nursing degree from the

University of Wisconsin and

her master’s degree from Mar-

quette University in Milwau-

kee. Laurie worked in the field

of pediatric rheumatology for

about 18 years, taking care of

children with juvenile arthritis,

Lupus and other rheumatic

diseases. She worked In pedi-

atric rheumatology at the

Children’s Hospital of Wis-

consin and Hackensack Uni-

versity Medical Center. She

joined the team in pediatric

endocrinology at Morristown

almost five years ago. She

enjoys working with families

with chronic conditions and

auto-immune diseases, easing

the transition from rheumatol-

ogy to endocrinology. Laurie

also sees patients in the prac-

tice who have other endocrine

conditions such as short stat-

ure and thyroid disease.

Laurie has 3

daughters whom she is very

proud of, and a very spoiled

Cockapoo. Two of her

daughters are in graduate

school in social work and

physical therapy, and one is a

senior in high school

anxiously waiting to hear from

college admissions.

In her free time Laurie

enjoys yoga, walks with Gracie

(the Cockapoo), going to the

theatre, the beach, reading and

gourmet dining. She feels

fortunate to be part of such an

excellent diabetes team!

Holiday Stuffed Animal Drive by: Peter Custy, Age 11

I was diagnosed with Type 1 Diabetes on November 4, 2011. When I was admitted to the Goryeb Children’s Hospital, I felt over-whelmed and confused. I didn’t really un-derstand what was happening. All I knew

was that I was thirsty and tired.

To make me feel better, my mom and dad let me pick out a stuffed animal from the gift shop. I couldn’t decide between an Ugly Doll and a stuffed white tiger (my favorite animal), so they let me get both. The stuffed animals kept me company in the hospital and made me feel better as I learned all about how to manage having

diabetes.

I met a lot of really nice kids in the hospital, and I realized that some of them had to stay a long time. As the holidays got closer, I started thinking about those kids and what I could do to help kids who were in the hospi-tal for the holidays. I thought about my stuffed animals and had the idea of starting a stuffed animal drive and collecting stuffed animals that I could bring to kids at the holi-

days.

My mom helped me send an email to our family and friends. I even asked my mom to post it on her Facebook page, since I am not allowed to have my own Facebook page

yet. I told people about my experiences being diagnosed with diabetes and staying in the hospital. I asked them to donate a small, new stuffed animal that I could give to the patients at the holidays, and I set a

goal of collecting 36 toys.

I couldn’t believe how many animals people

donated to my toy drive. I received dona-

tions from family, friends, neighbors, my

Mom and Dad’s co-workers, teachers and

people I didn’t even know who had heard

about what I was trying to do. I collected

over 100 stuffed animals and small toys.

Since I collected so many, I was able to

T H E G L U C O S E M O N I T O R

THE INSPIRATIONAL TYPE: PETER CUSTY bring baskets to my local hospital’s pediat-ric floor and Goryeb Children’s Hospital on Christmas Eve with my parents, brother and sister. I even wore a Yankees Santa hat for good cheer. With the extra animals I col-lected, I also made a box of stuffed animals for the doctor’s office so that when a patient is newly diagnosed with type 1 diabetes and has to be admitted to the hospital, they can

pick a friend to take with them.

I am really thankful for all the people who

helped me with my toy drive. I hope that

the stuffed animals helped the children in

the hospital feel joy at the holidays.

WOW!! Proof of Peter’s super successful toy drive!!

P A G E 3 THE INSPIRATIONAL TYPE: Maddox Maiello

About 25 kids along with their families

and friends attended. My friend that I

met at the Diabetes Center Family

Picnic helped me learn to skate. By the

end of the afternoon I wasn’t doing too

badly!

It was a great time and everyone had

fun and learned to ice skate.


My name is Maddox and I am 9 years

old. On Sunday, December 18th, I

helped out at an ice-skating event for the

Diabetes Center. It was my community-

service project for my junior brown-belt

testing for my karate dojo. In order to

apply for testing on upper belts each

student is required to run an event or do

a project that serves their community. It

was held at the Mennen Arena. I assisted

Ms. Nicole Pilek in the planning of the

afternoon. It was my job to help design

the flyers, hand out name tags and give

ideas.

We still have openings in our advanced pumping

classes! “Making Your Pump Work Smarter Not Harder”

The BD Diabetes Center is offering an education program to help you get more from your insulin

pump. Come join other pumpers and together discover the tools and information you need to take insulin

pump therapy to the next level.

Class Dates:

Goryeb Children’s Hospital, 2nd Floor. Community Conference Room

Choose from the following dates:

Monday, February 13

Thursday, April 19

Thursday, May 31

7:00 to 9:00 P.M.

To Register call Fran Melchionne @ 973-971-4340

Or [email protected]

Maddox and Miss Nicole excitedly wait to welcome everyone to Mennen Arena for a fun

afternoon of ice skating

THE INSPIRATIONAL TYPE: RYAN QUINN

P A G E 4 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2

Ryan Quinn, age 9 and a patient of Dr.

Starkman's since her diagnosis in Feb-

ruary 2004 at 23 months, competed this past summer in three beach

events in Avalon, New Jersey. Ryan

raced in the Avalon NJ Island-

kids triathlon (100 meter swim/5k bike and 1k beach

run) on July 2nd, the Beach Classic

Duathlon (1k run/5k bike/1k run) on July 30th and the Splash n

Dash (100 meter swim/1k beach

run) on September 3rd. Tim Kerr

Charities of Avalon, New Jersey sponsored each race

and all of the proceeds of the

Beach Classic Duathlon benefited the

JDRF. Ryan is also a member of the Montclair

State Redhawks swim team, the West

Caldwell 3rd/4th grade girls lacrosse team and the Caldwell College

Childrens Choir. Ryan and her parents

believe that her active lifestyle

and her participation in

athletics will enable her to

better manage her diabe-

tes !

Ryan’s sister, Kate and her cousin, Quinn, both age 8 competed

with her in each race along with a few

friends from West Caldwell.

YOU GO GIRL!!!


Did You Know?? The BD Diabetes Center is a recognized ADA (American Diabetes Association) Center and the recommen-

dation is to schedule an appointment with the dietitian once a year. You can conveniently combine the visit

with your child’s next endocrinologist or nurse educator appointment.

And Speaking of Appointments… Remember to schedule your next 3 month follow-up appointment as you leave—

You are more likely to get an appointment on the day you want and at the time that you want!!

Ryan races for the finish line and for a good cause!


is a daunting opponent, but for the past 25

years I approached each day with excite-

ment in knowing that I had an opportunity

to win. I was diagnosed at the age of 9,

and every day since has been a competi-

tion to avoid the potential long-term side

effects that could come as a result of mis-

management. I, along with my family,

was dealt another challenge four months

ago when my four year old son was diag-

nosed with Type 1. In my eyes, another

opportunity to win.

A little about myself – I grew up

in NJ, played college baseball at The

Johns Hopkins University, started my

own business at the age of 23, sold it to a

publicly traded company at the age of 27,

and presently work as a General Manager

for the company that bought my business.

I am married for 10 years, have two

daughters and a son (with diabetes). And

I still live in NJ (the greatest state in the

U.S.). As an athlete, myself, I found Phil

Southerland’s book, “Not Dead Yet,” a

wonderful, refreshing read.

I love reading stories about com-

petitive athletes because there is some-

thing about the drive of a person

pushing him, or herself to the lim-

its of what is physically possible

that I find fascinating. When this

is done by someone living with

T1D it makes it that much more

inspirational, due to the personal

connection. Southerland is unique

in many respects. Diagnosed with

T1D at 7 months old, Southerland

should, according to statistics, not

be alive. But, he is. And not only

is he alive, he raced bikes competi-

tively for a number of years and

also participated in some amazing

cross-country endurance bike races

– all with T1D. Furthermore, he

won many events and has become

a leading advocate for Type 1 Dia-

betics, worldwide.

If you’re reading this arti-

cle, then undoubtedly you under-

stand that managing T1D is diffi-

cult. It’s a disease where little is

predictable, yet so much is within

your control. You

inject insulin, check

your blood sugar,

eat food, exercise,

breathe, live – and

all of this impacts

your blood glucose

at any given mo-

ment, and in turn

effects how you

feel. It’s exacerbat-

ing at times, espe-

cially when you

can’t get it right and

all you desire is to

go about your

day. In Phil

Southerland’s case, try to imagine doing all

of this in the midst of one of the most gru-

eling endurance races known to man –

biking across America.

Southerland’s book is about push-

ing limits. It is about demonstrating that

while diabetes can be difficult to manage,

it can be integrated into everyday life and

utilized as a tool for motivation; a sce-

nario that I hold near and dear to my heart.

In short – you can live with this disease

and thrive despite it.

I enjoyed and connected with “Not Dead

Yet.” In my opinion, it’s a book that every

person, especially teens, should read – but

for people with type 1 diabetes, it’s a

MUST. Southerland imparts the impor-

tance of control, but in a non-preachy, non

-judgmental manner. He simply reminds

us that type 1 is a race against disease – a

race we have no choice, but to win.

At this year’s 2012 College and Diabetes Pro-

gram, we had the pleasure of welcoming guest

speaker, Eric Weisholtz, to speak about life after

college and looking back. Well-educated, suc-

cessful, and happily married with 3 beautiful

children, Eric is a wonderful example for anyone

living with (or know someone intimately with)

type 1 diabetes, proving life is worth living

and living it to its fullest potential. He was able

to connect with the college hopefuls and their

families as well as the college students, knowing

what it is like to walk in their very shoes. Truly

an inspiration!! I wanted to devote my section

of the newsletter to someone that inspired me

and the College Night attendees; to help provide

motivation and encouragement. Below is Eric’s

story including a book review on someone that

inspires him... -Nicole

Life is full of challenges. At the end of

the day, those who are truly successful in

achieving happiness and a life of

fulfillment are the same who refuse to let

life’s trials box them in. Type 1 diabetes

The SOCIAL(Net)WORK(er) notes from Nicole


“What lies

behind us

and what

lies before

us are tiny

matters

compared

to what lies

within

us.”

Ralph

Waldo Emerson

Dad (Eric) and Jonah living life to its fullest!!

If Eric’s story has inspired you and you would like to contact him, please e-mail me:

[email protected].

THE INSPIRATIONAL TYPE: EZRA KEOUGH


STAY FIT AND TACKLE

IT!

By Ezra Keough

I’m a big New York Giants fan and this is

an exiting time for the New York Giants.

After a sudden death over time in the

playoffs, they beat the 49ers with a field

goal possible because of a fumble. The

New York Giants offensive and defensive

line demonstrated amazing talent and

skills. Then, they headed off to Super

Bowl 46. The rivalry between the Patriots

and Giants was reawakened. After an

intense game and a nail biting 4th quarter,

the Giants won!

Hi I’m Ezra Keough. I am a

healthy, fit junior (at Ridge High School)

that happens to have Juvenile Diabetes. I

was diagnosed at the end of my Fifth

Grade year. I just received my Varsity

Letter in Football from Ridge High

School. I play Center and Defensive

Guard.

As an athlete my schedule is

busy and challenging. Off-season, I work

out at least three times a week; preseason

training is rigorous, more like six times a

week. In season, we practice at least four

times a week with either one or two

games per week. So I barely have time for

anything more than schoolwork and foot-

ball.

My diet is balanced and in-

cludes a lot of vegetables and fruit. I do

have a sweet tooth so I do indulge with

that occasionally. Chocolate chip cookies

are one of my favorites. Balance is the

key with exercise and diet. My motto:

Stay Fit and tackle It!

I balance sports and diabetes

management by taking my blood sugar

often, before practice and before meals

and knowing how my body reacts to

foods and certain exercises, games and

scrimmages. I don’t skip testing my

blood sugar because that hinders me

from feeling my best and playing my

best.

I am in tune with my body and

make sure I stay hydrated and eat often

and healthy. Exercise, lifting weights

and running keeps me in shape and actu-

ally makes me feel really good. During

preseason, I work out at Test Perform-

ance Gym with Eric Dorsey, a former

New York Giant, who helps me improve

my skills and get ready for the football

season.

When I was a freshman and just

joining my football team at Ridge, I did-

n’t want to tell my coaches and team-

mates that I had juvenile diabetes. I was

just joining a new team and new school

and I just didn’t want to call attention to

myself. I then saw an inhaler in a team-

mate’s gym bag in the locker room. He

was a good athlete and friend, so I was

surprised that he never told me that he

had asthma and that he needed an in-

haler…Then I realized, everyone has

something that they have to deal with.

This encouraged me to tell my

coach and my teammates that I had dia-

betes. I came to the conclusion, that by

not saying anything to the coaches, the

trainers or my teammates, it was allow-

ing diabetes to control me! Not telling

them was standing in the way of my be-

ing my best for my team. So I made sure

they knew. The cool thing was that

my teammates and my coaches didn’t make

a big deal out of my having diabetes. They

just want me to play to my fullest potential.

We all want to play hard and work hard to

win games and do well at developing our

skills.

Last season, I was a starter for our Junior

Varsity team (with only one loss) and I

played on the defensive line for some of the

varsity games as well. I look forward to next

football season, meanwhile I am preparing

by getting in even better shape and working

on my football skills.

Check out my website:

www.tacklejuvenilediabetes.com. If you

want to talk about football; working out;

eating healthy or balancing sports and JD,

just email me and remember:

STAY FIT AND TACKLE IT!


Reminders for Insulin Storage: Insulin will only work properly for you if you store it properly.

Remember that once insulin is opened it is good for only 28 days, whether you are finished with the vial/pen or not. It does not matter if

you store it in the refrigerator or at room temperature. The clock starts counting down when it is opened.

For insulin that is not open or in use, remember to store it in the refrigerator and it will be good until the expiration date marked on it. Re-

frigerator temperature is 36 to 46 degrees. Room temperature is considered 59 to 86 degrees.

The only exception to the 28 day rule is Novolin (NPH) cartridges and pens which are only good for 7 to 14 days. Please check the package

insert for specifics

The general guidelines for insulin storage are to never freeze insulin, and if it is frozen or ever was frozen you need to discard it. Don’t use insulin past the expiration date stamped on it. Never expose insulin to direct heat or light, and avoid keeping your insulin in extremely hot or extremely cold temperatures. It’s best to keep your insulin with you in a carry-on bag with a cold pack when you are traveling by bus,

train or plane.

Never leave your insulin in the car and don’t use insulin that has developed any crystals or clumps.

http://www.tacklejuvenilediabetes.com/



CAMP WOB

A Day Camp for Children with Type 1 Diabetes By Camp WOB Director Deryl O’Brien

Camp WOB had its first session last summer in July of 2011. We had a

week filled with fun activities at the Sunrise Lake Picnic Area at Lewis Morris

Park in Mendham, NJ. Our Camp WOBers had days filled with swimming, tae

kwon do, theatre arts, arts and crafts, kickball, free play, massive water balloon

and water gun fights and much more! Camp WOBers were kept safe with

excellent nursing care and received help and mentoring from the most wonderful Camp Counselors

that anyone could hope for. Camp WOBers were guided towards a more independent life in managing

their diabetes in a fun, stress free, and loving environment. Our Camp WOBers and staff had such an

amazing time last year that we were all sad to see it end after only one week.

Camp WOB is back again this year! Due to the enormous success from last summer and the

camper’s and staff’s desire to have camp for a longer time, Camp WOB will run for two weeks during

July 2, 2012 to July 13, 2012 from 9:00 a.m. to 4:00 p.m. We will have the same fun activities as last

year, plus some new ones too! This year we are implementing a Sibling Camp, which will be open to

the siblings of children with diabetes. Both camps will operate independently with only a couple

shared activities like swimming and relay races. We are also offering before care this year beginning at

8:00 a.m., in addition to our aftercare which runs from 4:00 p.m. to 6 p.m. Among other fun new ac-

tivities, our last day of camp will be spent at Foster Fields Farm in Morristown. We will continue to

have a focus on safe fun at Camp WOB. We are currently working on developing a program schedule

that will provide our campers and staff with the best experience of their summer. For more informa-

tion on Camp WOB and how to become a Camp WOBer or staff member, please visit

www.campwob.org or contact Deryl O’Brien at [email protected]. We hope to have the opportu-

nity to share our camp experience with you and your child.

http://www.campwob.org/

mailto:[email protected]



FDR

P A G E 1 0

Dietitian Fact:

Did you know?

The food pyramid

is now considered

obsolete.

Check out

www.

choosemyplate.gov

to find out about

how to eat healthy.

A sweet treat every

once in awhile is

fine, but it is

important to have

a well balanced

diet.

CARB COUNTING WITH CONNIE, the dietitian

A double Valentine’s treat

with your Sweet...bake

these cookies together and

then

enjoy ‘em!

Chocolate

Kiss Cookies

Ingredients

1 cup margarine, softened

1/2 cup white sugar

1 teaspoon vanilla extract

1 3/4 cups all-purpose flour

1 cup finely chopped walnuts

1 (6 ounce) bag milk chocolate candy kisses

1/3 cup confectioners' sugar for decoration

Directions

1. In a large bowl, cream margarine with

sugar and vanilla until light and fluffy. Mix

in flour and walnuts, beating on low speed

of an electric mixer until well mixed.

Cover, and refrigerate dough for 2 hours,

or until firm enough to handle.

2. Preheat oven to 375 degrees F (190

degrees C).

3. Remove wrappers from chocolate

kisses. Shape approximately 1 table-

spoon of dough around each chocolate

kiss; be sure to cover chocolate com-

pletely. Place cookies on an ungreased

cookie sheet.

Bake for 10 to 12 minutes in the preheated

oven. While cookies are still warm, roll

them in confectioners' sugar.

Nutritional Information

Servings Per Recipe: 36

Amount Per Serving

Total Carbs: 12g

Sweetheart Cookies

Ingredients

3/4 cup butter (no substi-

tutes), softened

1/2 cup sugar

1 egg yolk

1 1/2 cups all-purpose flour

2 tablespoons raspberry or straw-

berry preserves

confectioners' sugar (optional)

Directions

1. In a mixing bowl, cream butter and

sugar. Add egg yolk; mix well. Stir in the

flour by hand. On a lightly floured surface,

gently knead dough for 2-3 minutes or

until thoroughly combined. Roll into 1-in.

balls. Place 2 in. apart on greased baking

sheets. Using the end of a wooden spoon

handle, make an indention in the center of

each. Fill each with 1/4 teaspoon pre-

serves.

Bake at 350 degrees for 13-15 minutes or

until edges are lightly browned. Remove

to wire racks. Dust warm cookies with

confectioners' sugar if desired. Cool.

Nutritional Information

Servings Per Recipe: 24

Amount Per Serving

Total Carbs: 11g

Both recipes courtesy of


http://allrecipes.com/

P A G E 1 1 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2


The maginative Site:

P A G E 1 2 V O L U M E 1 , I S S U E 3 , W I N T E R / S P R I N G 2 0 1 2

Wanna share your artistic talent with others? Submit your drawings, paintings, photography or poems to Nicole via E-mail: [email protected]

Mail: BD Diabetes Center, Morristown Medical Center, Box 53, Morristown, NJ 07962, Attn: Nicole Pilek or just drop it off at your next appointment. Let the

creative person inside you out!!

The section to inject your creativity!!


Goryeb Children’s Hospital at

Morristown Medical Center

Box 53

100 Madison Ave

Morristown, NJ 07962

Office Phone #: 973.971.4340

Fax #: 973.290.7367

Easier Prescription Refills!

There is a fast, and easy way to get your prescriptions refilled and it’s free!! Our office participates in Relay Health, a web-based secure service for requesting prescription refills. We strongly encourage patients to use Relay Health for efficient and timely renewals. Simply register online at www.relayhealth.com or provide your e-mail address

when you register for your next appointment.

Remember – After hours and weekends,

on-call physicians do not have access to your

child’s chart and cannot authorize

prescription refills.

A Pharmacist can dispense 3 days of diabetes related

supplies without a prescription; this may be an

out-of-pocket expense. It’s always best to request

your prescriptions at your scheduled diabetes

appointments, or by using Relay Health.

BD Diabetes Center for Children and

Adolescents

Think you know everything about diabetes? Check out

Pierre Pancreas and The Keytones at:

THINKLIKEAPANCREAS.COM


Happy Valentine’s Day!!

http://www.relayhealth.com

B D D I A B E T E S C E N T E R FOR The Glucose … · Barbara Cerame, MD Daisy Chin, MD Frances M....

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Transcript of B D D I A B E T E S C E N T E R FOR The Glucose … · Barbara Cerame, MD Daisy Chin, MD Frances M....