Transforming Patient-Centered

Research: Building Partnerships

and Promising Models

Breakout Session and Discussion Murals

October 27-28, 2012

Transforming Patient-Centered Research:

Building Partnerships and Promising Models

PCORI’s October 2012 workshop, Transforming Patient-Centered Research: Building Partnerships and Promising Models, included five breakout sessions to help PCORI implement a patient-centered research agenda through sustained and meaningful engagement.

Nearly 150 patients and other stakeholders participated in the workshop in person. Following small group breakout sessions on Oct. 27, all participants reconvened together on Oct. 28 to review and discuss the input and recommendations developed.

A mural was created for each breakout session topic to illustrate the ideas and concepts generated.

PCORI’s next step is the publication of report that summarizes the workshop’s findings, which will guide PCORI’s work.

Workshop Breakout Sessions

Identifying and Selecting Research Questions – How should PCORI identify

and select specific research questions for funding that are patient-centered?

Reviewing Research Proposals for Funding – How can PCORI effectively

engage and use the real-world experience of patients to help evaluate research

proposals we receive?

Matching Patients and Stakeholders with Researchers – How can PCORI

connect patients and stakeholders with researchers for collaborative work that

ensures studies reflect patient perspectives?

Disseminating Research to the Community – How do we ensure that

patients and those who care for them can access and use PCORI’s research to

make more-informed decisions?

Evaluating PCORI’s Patient and Stakeholder Engagement Programs –

How can PCORI measure the effectiveness of its programs to involve patients

and stakeholders throughout its work?

Identifying and Selecting Research

Questions

Reviewing Research Proposals for Funding

Matching Patients and Stakeholders with

Researchers

Disseminating Research to the Community

Evaluating PCORI Engagement Activities