Social media 032415

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Diabetes and Social Media Kevin McMahon type 1 technology ventures, llc Marisa Hilliard PhD Baylor College of Medicine and Texas Children’s Hospital Houston, TX

Transcript of Social media 032415

Page 1: Social media 032415

Diabetes and Social MediaKevin McMahontype 1 technology ventures, llc

Marisa Hilliard PhDBaylor College of Medicine and Texas Children’s HospitalHouston, TX

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Support● Real-time access at your fingertips

● Blogs, community forums, online groups:

● www.childrenwithdiabetes.com

● www.SixUntilMe.com

● www.BigFootChildHaveDiabetes.com

● Check out their links to other blogs

● Twitter, tweet-chats

● Diabetes social media advocacy @DiabetesSocMed

● Wednesdays 9:00 pm Eastern

● Follow #dsma to observe, answer questions, join conversation

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Learning● Lots of access to educational content about diabetes

● Quality depends on source – be cautious

● Read disclosures, be aware of bias

● Look for Health on the Net logo (healthonthenet.org)

● Determine your trusted resources:

● Ask your diabetes team what sites they trust

● www.diabetes.org (ADA)

● www.ndep.nih.gov (NDEP)

● Talk about what you learn online with your care team!

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Giving Back and Helping Others● Share your story, it might help someone else!

● Take care to know your limits – sharing your experiences is better than giving advice

● Share links to resources you know, like, and trust

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Humor ● Everyone needs comic relief from diabetes sometimes

● Share a funny story online, laugh with someone else

● Humor websites:

● http://type1diabetesmemes.tumblr.com/

● http://www.diabetesmine.com/tag/sunday-funny

● http://www.textingmypancreas.com/search/label/cartoons

● http://www.childrenwithdiabetes.com/people/tidbits.htm

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Cautions and Considerations● Social media is a tool, careful not to make it your life!

● Your diabetes may vary (#ydmv):

● Personal opinions are not personal attacks

● Online information is not personal health advice

● What works for me may not work for you

● Bullies happen: ignore, block, and report.

● Safety first:

● Decide how much personal information to disclose

● An anonymous handle for you/your child is safer

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Pick your favorite platform(s)