Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4...

32
Paediatric donation 1 April 2015 to 31 March 2017

Transcript of Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4...

Page 1: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Paediatric donation1 April 2015 to 31 March 2017

Page 2: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Paediatric patients

(aged 15 years or under)

2015/16 – 2016/17

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Paediatric patients (age<16 years)

Audited deaths in

2016/17 YTD (n=1028)

Met referral criteria

(n=261,25%)

Eligible donor

(n=223, 85%)

Family approached

(n=109, 49%)

Consent/ authorisation

given (n=43, 39%)

Actual solid organ

donors (n=34, 79%)

Flow of paediatric patients through

donation pathway (PDA data)

Audited deaths in

2015/16 YTD (n=1151)

Met referral criteria

(n=261, 23%)

Eligible donor

(n=197, 75%)

Family approached

(n=119, 60%)

Consent/ authorisation

given (n=50, 42%)

Actual solid organ

donors (n=38, 76%)

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618

515

485462

48 51

Paediatric ICU A+E Other units

Unit where patient died

0

50

100

150

200

250

300

350

400

450

500

550

600

650

700

750

800

Nu

mb

er

of

au

dit

ed

de

ath

s

1 April 2016 - 31 March 20171 April 2015 - 31 March 2016

Units of death for all audited deaths

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243 239

2 416 18

Paediatric ICU A+E Other units

Unit where patient died

0

50

100

150

200

250

300

350

400

450

500

550

600

Nu

mb

er

of

pa

tie

nts

me

eti

ng

re

ferr

al c

rite

ria

1 April 2016 - 31 March 20171 April 2015 - 31 March 2016

Units of death for patients meeting referral

criteria

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Units of death for eligible donors

182

205

1 114 17

Paediatric ICU A+E Other units

Unit where patient died

0

50

100

150

200

250

300

350

400

450

500

550

600

Nu

mb

er

of

elig

ible

do

no

rs

1 April 2016 - 31 March 20171 April 2015 - 31 March 2016

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Paediatric patients

(aged 15 years or under)

2016/17

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Unit where patient died, April 2016 – March 2017

515

239

205

101

40 32

462

4 1 0 0 0

51

18 17 8 3 2

Paediatric ICU A+E Other units

Unit where patient died

0

50

100

150

200

250

300

350

400

450

500

550

600

Nu

mb

er

of

de

ath

s

Eligible donors proceeding to organ donationEligible donors whose families consented to organ donation

Eligible donors whose families were approachedEligible donors

Meeting referral criteriaAudited deaths

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0

2

4

6

8

10

12

14

16

Age (

years

)

Audited deaths

criteria

Meeting referral Eligible donors

were approached

whose families

Eligible donors

organ donation

consented to

whose families

Eligible donors

organ donation

proceeding to

Eligible donors

Age distribution, April 2016 – March 2017

1

10

7

1

2

11

N 1028 261 223 109 43 34

Page 10: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Paediatric patients who

died in a paediatric ICU

2016/17

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Paediatric patients who died in a PICU

Audited deaths in

2016/17 YTD (n=515)

Audited deaths in

2015/16 YTD (n=618)

Met referral criteria

(n=243, 39%)

Eligible donor

(n=182, 75%)

Family approached

(n=111, 61 %)

Consent/ authorisation

given (n=45, 41 %)

Actual solid organ

donors (n=33, 73 %)

Met referral criteria

(n=239, 46%)

Eligible donor

(n=205, 86%)

Family approached

(n=101, 49%)

Consent/ authorisation

given (n=40, 40%)

Actual solid organ

donors (n=32, 80%)

Flow of paediatric patients who died in a

PICU through donation pathway (PDA data)

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0

2

4

6

8

10

12

14

16

Age (

years

)

Audited deaths

criteria

Meeting referral Eligible donors

were approached

whose families

Eligible donors

organ donation

consented to

whose families

Eligible donors

organ donation

proceeding to

Eligible donors

Age distribution, April 2016 – March 2017

1

10

7

22

10

N 515 239 205 101 40 32

Page 13: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

3734

30

19

5 5

136

8277

46

22

16 171412

72 2

51

109

3 3 25

1 1 1 1 1

40

5 40 0 0

66

1916

1 0 0

31

6 41 0 0

13

7

0 0 0 0

119

61

52

23

7 6

haemorrhage)

(Intracranial

CVA

damage

Hypoxic brain Trauma

failure

Respiratory Pneumonia Cardiothoracic

failure

Multi-organ Septiceamia Cancer Other

Grouped cause of death

0

50

100

150

Nu

mb

er

of

de

ath

s

Eligible donors proceeding to organ donationEligible donors whose families consented to organ donation

Eligible donors whose families were approachedEligible donors

Meeting referral criteriaAudited deaths

Grouped cause of death, April 2016 – March 2017

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10

69

27

23

1210

3

2422

12

7

58

32

20

12 12

19

4

34

6

14

1719

8

13

23

5

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

10

20

30

40

50

60

70

80

Au

dit

ed

de

ath

sAudited deaths by hospital,

April 2016 – March 2017

National: 515 deaths

2 hospitals with 35 or

more audited deaths

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3

10

6

3

2

1 1

4

5

0

1

9

7

3

0

4

1 1

5

1

4

1

4

3

0

2

1

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

1

2

3

4

5

6

7

8

9

10

Ne

uro

log

ica

l d

ea

th s

us

pe

cte

d p

ati

en

tsNeurological death suspected, by hospital,

April 2016 – March 2017

National: 82 deaths where neurological

death was suspected

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2

6

4

1

2

1 1 1

4

0

1

5

7

3

0

3

0

1

2

1

3

1

2 2

0

2

1

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

1

2

3

4

5

6

7

8

9

10

Ne

uro

log

ica

l d

ea

th t

es

ted

pa

tie

nts

Neurological death tests performed, by hospital,

April 2016 – March 2017

National: 56 deaths where neurological

tests were performed

Page 17: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Reason why neurological death tests were not

performed for patients where neurological death

was suspected, April 2016 – March 2017

2, 7%

3, 11%

8, 31%

2, 8%

2, 8%

2, 8%

6, 23%

1, 4%

Family declined donation

Family pressure not to test

Patient haemodynamically unstable

Continuing effects of sedatives

Biochemical/endocrine abnormality

Inability to test all reflexes

Clinical reason/Clinicians decision

SN-OD advised that donor not suitable

National: 26 deaths where neurological death

was suspected but neurological tests were not

performed

Page 18: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

8

3 3

4

3

1

2 2 2

5

1

5

4

2

9

2

0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15

Age (years)

0

1

2

3

4

5

6

7

8

9

10

11

12

Ne

uro

log

ica

l d

ea

th t

es

ted

pa

tie

nts

Neurological death tests performed, by age,

April 2016 – March 2017

Median (IQR): 9 years (3, 12)

Page 19: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

4

1211

12

8

21

1011

3 3

29

12

7

2

8

4

2

12

4

10

7

12

3

5

9

2

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

2

4

6

8

10

12

14

16

18

20

22

24

26

28

30

Elig

ible

do

no

rsEligible donors, by hospital, April 2016 – March

2017National: 205 eligible donors

(55 eligible DBD and 150 eligible DCD)

Page 20: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

4

12

11

12

8

2

1

10

11

3 3

29

12

7

2

8

4

2

12

4

10

7

12

3

5

9

2

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

2

4

6

8

10

12

14

16

18

20

22

24

26

28

30

Elig

ible

do

no

rs

Family not approachedFamily approached

3

18

4

4

7

5

7

5

3

1

1

1

5

5

6

5

1

2

2

1

10

19

7

5

7

2

6

2

4

2

6

6

3

1

5

5

4

3

5

7

3 3

2

4

5

2

Eligible donors, by hospital and whether the

family were approached, April 2016 – March 2017National: Families of 101 (49%) eligible

donors were approached for organ donation

(43 eligible DBD and 58 eligible DCD)

Page 21: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

8, 7%

3, 3%

20, 19%

28, 27%7, 7%

31, 30%

7, 7%

Family stated that they would not supportdonation before they were formally approached

Family considered too upset to approach

Coroner / Procurator Fiscal refused permission

Patient’s general medical condition

Other medical reason

Other

Not identified as a potential donor / organdonation not considered

Reason families of eligible donors were not

approached, April 2016 – March 2017

National: Families of 104 eligible donors were

not approached for organ donation

Page 22: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

3

8

4

5 5

1 1

5

6

1

2

10

7

0 0

6

0

2

6

3

5

4

5

3 3

4

2

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

1

2

3

4

5

6

7

8

9

10

11

12

Fa

milie

s o

f e

lig

ible

do

no

rs a

pp

roa

ch

ed

SNOD not involved in approachSNOD involved in approach

33

67

75

25

75

25

60

40

80

20

100 100 20

80 100

100

100

70

30

57

43

. .

100

.

100

83

17

100 60

40

25

75

80

20

67

33

100

100

100

National: SNODs involved in 72 (71%) of the

101 approaches (32 (74%) eligible DBD and

40 (69%) eligible DCD)

Proportion of approaches involving a SNOD,

by hospital, April 2016 – March 2017

Page 23: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

3

8

4

5 5

1 1

5

6

1

2

10

7

0 0

6

0

2

6

3

5

4

5

3 3

4

2

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

2

4

6

8

10

12

Fa

milie

s o

f e

lig

ible

do

no

rs a

pp

roa

ch

ed

Family did not consent/authorise organ donationFamily consented/authorised organ donation

3

5

3

3

1

5

1

4

1 1 1

4

3

3

1

2

5

5

1

6

4

2

1

1

2

4

1

2

2

3

4

1

4

1

2

1

2

2

2

2

Eligible donors whose families were approached,

by hospital and whether the family consented/

authorised organ donation, April 2016 – March 2017

National: Families of 40 (40%) eligible donors

were approached and consented/authorised

organ donation (23 eligible DBD and 17 eligible

DCD)

Page 24: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Reason families of eligible donors did not

consent/ authorise organ donation,

April 2016 – March 2017 National: Families of 61 eligible donors

approached did not consent to

organ donation

1, 1%

3, 5%

6, 10%

1, 2%

8, 13%

12, 20%

2, 3%

13, 21%

5, 8%

1, 2%

1, 2%

8, 13%

Family were not sure whether the patient wouldhave agreed to donation

Family did not believe in donation

Family felt it was against their religious/culturalbeliefs

Family were divided over the decision

Family felt the patient had suffered enough

Family did not want surgery to the body

Family wanted to stay with the patient after death

Family felt the length of time for donation processwas too long

Family felt the body needs to be buried whole(unrelated to religious or cultural reasons)

Family concerned that organs may not betransplanted

Strong refusal - probing not appropriate

Other

Page 25: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

0

5

3

0

1

0

1 1

3

1

2

5

1

0 0

4

0

1

2

1

2

0

1 1 1

2 2

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

1

2

3

4

5

6

7

8

Elig

ible

co

ns

en

ted

/au

tho

ris

ed

do

no

rs

Proceeding donorNon-proceeding donors

5

3

1 1 1

2

1

1 1

1 3

2

1

4

1

2

1

2

1 1 1

2

1

1

Eligible donors whose families consented/

authorised, by hospital and whether the donor proceeded

to organ donation, April 2016 – March 2017

National: 32 eligible donors whose families

consented/authorised organ donation

proceeded to organ donation

(20 eligible DBD and 12 eligible DCD)

Page 26: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

1, 12%

2, 25%

1, 12%

2, 25%

1, 13%

1, 13%

Family changed mind

Coroner/Procurator Fiscal refusal

Organs deemed medicallyunsuitable by recipient centres

Prolonged time to asystole

Cardiac Arrest

Other

Reason eligible donors whose families

consented/authorised organ donation did not

proceed to organ donation, April 2016 – March 2017

National: 8 eligible donors whose families

consented/authorised organ

donation did not proceed to

organ donation

Page 27: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

0

14

8

0 0 0

3

2

7

0

5

8

1

0 0

7

0

1

8

0

2

0

7

4 4

7

5

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27

Hospital

0

2

4

6

8

10

12

14

16

18

20

22

24

Nu

mb

er

of

tra

ns

pla

nts

Transplants from eligible proceeding donors,

by hospital, April 2016 – March 2017

National: 93 solid organ transplants were

performed (70 from eligible DBD and 23 from

eligible DCD)

Page 28: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Deceased paediatric donors

(aged 15 years or under)

2005/06 - 2016/17

Page 29: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Deceased paediatric donors (<16 yrs),

by donor type, 1 April 2005 to 31 March 2017

24

4

36

5

20

9

24

12

18

8

26

9

19

9

18

9

21

15

22

12

25

16

23

17

2005/06

2006/07

2007/08

2008/09

2009/10

2010/11

2011/12

2012/13

2013/14

2014/15

2015/16

2016/17

Financial year

0

10

20

30

Num

ber

DCDDBD

Page 30: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Deceased paediatric donors (2 years old and under),

by donor type, 1 April 2010 to 31 March 2017

3

1

5

12

10

5

3

5

8

months<2

months2-6

months6-12

months12-24 <1 month.

months.1-2

months.2-6

months.6-12

months.12-24

Age

0.0

2.5

5.0

7.5

10.0

12.5

Num

ber

DCDDBD

Page 31: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

Paediatric patients

(<18 years)

2016/17

Page 32: Paediatric donation - Microsoft · 2017. 8. 11. · PICU through donation pathway (PDA data) 0 2 4 6 8 10 12 14 16 A g e (y e a r s) Audited deaths c riteria Meeting referral Eligible

% o

f p

ote

nti

al d

on

ors

0

10

20

30

40

50

60

70

80

90

100

Potentialdonors1

Neurologicaldeath testsperformed(DBD only)

Neurologicaldeath

confirmed(DBD only)

Contraindications Familyapproach

Consent/authorisation

Donation

1 Potential DCD donor - A patient who had treatment withdrawn and death was anticipated within four hours

1 brain stem reflexes returned, and neonates less than 2 months post term

1 Potential DBD donor - A patient who meets all four criteria for neurological death testing excluding those for which cardiac arrest occurred despite resuscitation,

1

DBD, 37 donated (33% of potential donors)DCD, 12 donated (6% of potential donors, 7% of those not contraindicated)

28% 1%

20%

35%10%

10%

61%

72%37%

Stages at which potential paediatric (<18 years)

organ donors lost the opportunity to become

actual donors , 1 April 2016 to 31 March 2017