Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Report from the MPDF Organising Committee...
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Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Report from the MPDF Organising Committee toDisability Support Advisory Committee of CCDHB &
HVDHB
13 August 2012
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Overview1. To provide an update from the 2010 Hui/Fono and
highlight service changes.
2. To provide a safe space for Māori and Pacific disabled people to come together
3. To provide a means for the voices to these communities to be heard, and understood.
4. Gain further understanding of issues, and identify ways to facilitate better healthcare access
5. Develop recommendations to inform CCDHB disability responsiveness strategy & education programme
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Discussion Themes1. Needs Assessments/Service
Coordination
2. Consumer Engagement
3. Equipment Management Services
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
1. Needs Assessment Presentation by Mr David Darling (Service Leader, Capital Support)
1.Disparities of access by Māori and Pacific
2.Lack of cultural awareness/ empathy
3.Lack of agency collaboration → duplication of assessments/ forms
4.Client ‘focus’ rather than ‘process’ focus → more timely responses
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Needs Assessment/ Service Coordination
Issues/feedback RecommendationsStatistics/Data of those accessing services vs. those that don’t
Advocate for research project to collate this information
Lack of demonstrated cultural awareness amongst health professionals
Evaluate cultural training, content, providers, post course accountability
Lack of demonstrated cultural empathyEvaluate cultural training, content, providers, post courses accountability
Improve and catered Needs Assessment processesConsumer involvement in design & development phases- ONE MULTIAGENCY FORM
Consumer-friendly Needs Assessment process / Assessors
Consumer involvement in training and implementation
Lack of agency collaboration & services for consumer / duplication
The development of a standard Needs Assessment process across medical fields
More client focussed, rather than ‘process’ or compliance focussed
The development of client focuses/driven approach to collaborate with DHB
Response timing reflects NEED of the person rather than process
Review current process – Consumer engagement
Support services more available and accessible Develop a call centre (Hotline) that can access services at all times
Training consumers to provide services for consumer Provide training opportunities for consumers & build capacity. Recruitment of staff with “lived experiences” of disability
Support Services: Need to be experience, not just qualifies
Recommend all providers are trained in cultural awareness/ ethnic specific areas (see above)
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
2. Consumer Engagement Presentation by Mrs Kerrie Hayes (Director Nursing/ Midwifery
CCDHB)
1.Lack of cultural empathy/ understanding by staff of how to engage in culturally appropriate manner
2.Staff lack staff training in disability-specific support for inpatient services
3.Inadequate opportunities for consumer input/engagment
4.Need for capacity-building of disabled people to be involved in service provision
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Consumer Engagement
Issues/feedback Recommendations
One size fits all approach More adaptable approach for all peoples
Nurses / staff: “Robotic” vs. “Human”Cultural training all cultures and understand ways and beliefs
Lack of demonstrated cultural empathy Consumer engagement in cultural training
Nurses not trained appropriately to support people with disabilities
Consumer engagement in specific training
Equipment in hospitals not designed with needs in mind
Database for disabled peoples needs
Methods of communication not ideal to reach ALL peoples/communities
More appropriate communication equipment/ services
Lack of consumer in involvement at a strategic level & decision making
Māori/Pacific Disability Consumer Engagement Group
Lack of consumer input in the community with implementing funding & services
Māori/Pacific Disability Consumer Engagement Group
Recognition of different pacific identities in delivery Māori/Pacific Disability Consumer Engagement Group
Training consumer to engage with consumers Māori/Pacific Disability Consumer Engagement Group
Irregular and erratic opportunities for consumers to collaborate
More regular engagement meetings/ opportunities
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
3. Equipment Management Services Presentation by Rachael Tatham (on behalf of Equipment Services Manager,
MoH)
1.Lengthy, convoluted process → long delays
2.Inability to readily view/ access trial equipment → poorly suited equipment (poor selection)
3.Inadequate ‘lifetime’ entitlements
4.Lack of holistic approach/ responsiveness to client needs (funding driven process)
5.Lack of availability of communication equipment/services
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Equipment Management Services
Issues/feedback Recommendations
Long and convoluted process More timely and appropriate equipment
Limited equipment optionsLoan equipment more easily available. Loan instead of buy/ rent (Toy Library model). Loan instead of buy/ rent
Trial equipment not easily available Warehouse to trial equipment (better system for returns)
Lack of communication for deaf and people with speech impairment
Improved access to deaf communication aides (outpatients, emergency department etc).
Lack of communication for deaf and people with speech impairment
111 text service. SMS text communication
Deaf communication aides TTY/ Voice interface first appointments/ in hospital
Lifetime entitlement (Vehicle modification etc.) Review of entitlements to remove lifetime limit.
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
RecommendationsNeeds Assessment/ Service Coordination
1. Advocate for a common, shared, electronic disability assessment tool for use with all NASC’s & providers
2. Identify barriers to access of NASC services
3. Address the lack of culturally appropriate processes & staffing
4. Evaluation of service effectiveness for Māori & Pacific
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
RecommendationsConsumer Engagement
1. Improved & more regular consumer interaction with Māori and Pacific disabled communities
2. Establish Māori and Pacific Consumer Engagement Group to regularly liaise with CCDHB (service delivery & staff training)
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
RecommendationsEquipment Management Services
1. Improved communication equipment/ services for inpatients/outpatients with disability
2. Audit effectiveness of current service processes from client/ outcomes perspective
3. Improved access to trial equipment with selection of types and sizes available