BEAKA Design Innovation Project

Catherine Farrar2015

Epilepsy in children, and the support of care

1 2 3Project Question

Understanding the context

What happens

Meeting the carers

How it works

Who helps

How they help

Considering the issues

Re-de�ning the solution

How it works

How it improves

Hypothesis

Filling gaps

Generating ideas

Design Development

Prototyping systems

Feedback

Can design improve the understanding of epilepsy in children, and encourage stronger support amongst the appropriate circle of care for the child?

Project Question

1 500in every

people su�er from Epilepsy in the uk

Can start at any age, but most commonly begins during childhood

www.epilepsy.org

www.epilepsyscotland.org.uk

54,000 people live with the condition in Scotland

There are over 40 di�erent types of epilepsy

Epilepsy is a common serious neurological condition causing the brain to behave abnormally and result in physical seizures.

Context

Mother Family Teacher School Nurse

Neurologist Pediatrician Local DoctorCommunity Nurse

Stakeholders

Royal Hospital for Sick Children

Neurologist

Patients general information, carers contact details and relationship

Types of seizures the patient may su�er from, and detail on how he/she is suggested to react

What to do in the event of a seizure. Amount of medication, and length of time before calling an ambulance

Aftermath and recovery procedures to followAdditional

important information

Seizure Management Plan

Observation

Take Aways

Gatekeeper for any change in medical advice.Little frequent contact with the child.

Pediatrician Community Nurse

UNFAMILIAR

PANIC

SUPPORTIVE

Local Community Hospital

“”

Key contacts and a supportive network is the best help you can get.

“ Everybody in the classroom is important, even a fellow pupil. Not only for when a seizure occurs, but for when the child returns back to school .

”

“When you aren’t familiar to giving the child their emergency medication you panic, you’re more likely to make mistakes then.

”

Keywords

Interview

PANIC

”Keywords

Teacher

FRIGHTENING

REMINDER

PROMPT

“”

The situation can be very frightening for sta�, especially when you experience it for the �rst time.

“Small reminders and prompts would be useful. We follow the SMP, but this isn’t easy to understand at quick glance. ”

Primary School

Keywords

Interview

Family and FriendsLESSON

PLAN

“”

Circumstances and reactions change when a seizure happens in front of you, it would be good to have a clear simple plan prepared to follow.

“ Id feel more comfortable having a lesson or something.

”Keywords

MotherSAFETY

TRUST

“ ”I put a lot of trust into his teacher. A close relationship with them is very important I’d say.

“My child’s safety is constantly on my mind when I am not with him. ”

Keywords

Interview

LESSON

PLAN

””

Keywords

MotherNeurologist

Pediatrician Local Doctor

Community Nurse Paramedic

School Nurse Teacher

Relationship Map

Mother

Community Nurse

TeacherSchool Nurse

Innovation Circle

So where can design innovation play role?

Design can implement immediate a�ect if used sensitively in the circle of care on a local aspect.

Gatekeeper for any change in medical advice.Little frequent contact with the child.

”

1 2 3Project Question

Understanding the context

What happens

Meeting the carers

How it works

Who helps

How they help

Considering the issues

Re-de�ning the solution

How it works

How it improves

Hypothesis

Filling gaps

Generating ideas

Design Development

Prototyping systems

Feedback

SA

PPREPARATIONSUPPORT

AWARENESSUNFAMILIAR

FRIGHTENING

SAFETY

LESSON

PANIC

REMINDER

TRUST

SUPPORTIVE

PROMPT

PLAN

Insight Map

UNFAMILIARFRIGHTENINGSAFETYLESSON PANICREMINDER TRUST SUPPORTIVEPROMPTPLAN

Keywords

Insight Analysis

S“Key contacts and a supportive network is the best help you can get.”

Awareness days and seminars for sharing stories and learning about the condition. Attended by family and friends, NHS sta�, carers etc.

Supportive Concepts

Epilepsy Support Seminars

SUPPORT

P“Small reminders and prompts would be useful. We follow the SMP, but this isn’t easy to understand at quick glance.”

“My child’s safety is constantly on my mind when I am not with him.”

A less formal, more visual version of the seizure management plan, to be given to teachers, family and friends. This document would contain the same information provided by the NHS, only written and displayed in a manor in which would be easier to digest in moments of panic.

Childs necessary information would be stored and a copy of SMP could be carried on the child at all times.

Parents, School teachers and Local Nurse get together periodically to discuss changes and create\update a visual road map of the child’s epilepsy route and possible scenarios and how to react in the event of a seizure. This can then be handed out to the school, family and friends of the child so all have the same protocol to follow.

Seizure Route Map Epilepsy ID Tag

Seizure Management Plan

Preparation Concepts

SUPPORT PREPARATION

A “Everybody in the classroom is important, even a fellow pupil. Not only for when a seizure occurs, but for when the child returns back to school .”

Awareness activities that can be played in classroom situations to expand knowledge around the condition, avoiding a reaction of panic from fellow pupils should a seizure happen.

Motion detecting pager, picks up movements of a seizure and displays prompts for what to do and when to give emergency medication. Would be attached onto the child and visible to passers by.

Epilepsy Learning ActivitiesSeizure Alert Pager

Awareness Concepts

AWARENESS

Mother Community NurseTeacherFamily and Friends

Design Workshop

Concept design Workshop.

Seizure Management PlanBlank TemplateSimple icons

1 2 3Project Question

Understanding the context

What happens

Meeting the carers

How it works

Who helps

How they help

Considering the issues

Re-de�ning the solution

How it works

How it improves

Hypothesis

Filling gaps

Generating ideas

Design Development

Prototyping systems

Feedback

BEAK

Helping the parents, carers, family and friends of young children living with Epilepsy.

Epilepsy Learning ActivitiesEpilepsy ID Tag Seizure Route Map

Epilepsy ID Tag

For the child to have on their person.School BagJacket ZipGym Bag

BEAK

My Name is :

I have Epilepsy, if I’m having an Epileptic Seizure please call:

on

How it works

Epilepsy Learning Activities

Provided to the parent to use at their discretion.In school, an extra to the curriculum, for teaching fellow studentsAt home, for teaching siblings.

How it works

Seizure Route Map

BEAK

Seizure Route Map

for

In the event of a seizure, where possible, please follow this plan.

Name:

Address:

DOB:

CHI:

Emergency Contact:

This Seizure Route Map has been designed in association with BEAK. We follow NHS guidelines in seizure management, however can only o�er this route map as a prompt. All cases of Epilepsy di�er and if you are unsure at any moment, we strongly advise that you call the childs emergency contact.

Type 1 Seizure

Type 2 Seizure

Type 3 Seizure

Medication:

This Seizure Route Map has been created following the o�cial Seizure Management Plan provided by the prescribing doctor, and should act as a prompt for the carer, of when has an Epileptic Seizure.

main seizure types are listed below , and inside demonstrates the route and typical protocol to follow in the event of a seizure.

Enter childs details below

Enter childs medication and dosage below

According to Seizure Management Plan, Enter each type of seizure and description here

1

2

3

Type:

Type:

Type:

Colin is making noises with his throat and any limb may twitch or jerk.

Monitor amount and length of seizures.

Place him in the recovery position when seizures have stopped and it is possible to do so.

Call Colin’s Mother to notify of seizures.

If he has had 5 or more of these seizures in 30 minutes give 0.5ml of Epistatus dripped slowly into side of his cheek.

Colin should be sent home for the remainder of the day.

He should be given time to rest and recover from his dose of Epistatus.

Colin is making noises with his throat and all 4 limbs jerk. He may cry and sound in pain. His eyes could be �ickering.

Monitor this seizure for 5 minutes.

Notify Colin’s Mother of his seizure. She should make her way to Colin.

If his seizure has not stopped give 5 ml of Epistatus dripped slowly into the side of his cheek.

If possible, place Colin in the recovery position.

Monitor seizure for a further 5 minutes.

If seizure is continuing after the 5 minuets, give 12ml paraldehyde per rectum.

If still �tting, call 999 for an ambulance.

Call Colin’s mother if she isn’t already present.

Colin may appear blank and distant for a few seconds.

Monitor amount and length of absence seizures.

Notify Colin’s mother of his seizure activity.

Colin may remain at school if he returns to normal.

He should avoid strenuous activity and try to rest.

Monitor seizure for a further 5 minutes.

Provided to the parent to use at their discretion.Give to family membersProvide copies for schoolAfter school care/clubsKeep in the childs bag

How it works

Receive the completed items and put them to use.

After request, receive seizure route map template to �ll in.

Read Instructions and use stickers to illustrate the seizure journey

Annotate icons.Complete contact details, and seizure types according to Seizure Management Plan.

Post completed map to BEAK.

How it works

How it Improves

“Its eye catching and quirky, really easy to remember.”

E�ective straight away

Understandable for all ages

Simple and low tech

Customizable

“I’m glad I can personalise it, and can be called at any time I wish, for my own piece of mind.”

“The colour coordination really helps with seizure type, that’s where I get lost sometimes.”

BEAKA Design Innovation Project

Catherine Farrar2015