A.I.C. introducingA.I.C. introducingNapoli 16 settembre 2010Napoli 16 settembre 2010

Prof. Cleto Corposanto

AIC - Italy

2

Our first thirty yearsOur first thirty years11

Thirty years in numbersThirty years in numbers22

RulesRules33

““5 per mille” contribution 5 per mille” contribution from tax income declarationfrom tax income declaration44

1979

What is this disease about?What can be eaten?

Where to find products?

Which are the needs?

2010

• The right “eating out” • “Demedicalication” of coeliac disease• “Get back” to family life• The “ready to eat” gluten-free meal• Gluten-free holiday• Gluten-free “Sociality”• Early diagnosis

TODAY

needs

• Free foodstuff allocation (from 1982)• Safeguard rare / chronic disease • Having granted the right to gluten-free meal in public

structures• More than 2.000 products in RNA (Registro Nazionale

Alimenti: Food National Register)• More than 10.000 products in the Food and Drinks

Directory, so called “Prontuario”• More than 2.000 venues to eat and sleep out• More effective labels, the trademark • 19 local AIC societies

TODAY

On what does the coeliac person can count on?

AIC FEDERATION

General Assembly

19 local Association

Chair

Board of Directors

Chief Operating Officer

Food

Trademark Fund Raising

Events’ management

Public Financing Projects

External Relations

International Relations

Companies’ relations

Education

Medical Scientific Education

Local Activites’ Development

No Food

“Celiachia Notizie” House Organ

Editing

Scientific editing

National Scientific

Committee

Ethic and Disciplinary Committee

External Auditors’

Board

Staff

Treasurer

Management control

Aoecs representative

Food Manager

Alimentazione Fuori Casa/ Eating out Project

Restaurants, Pizzeria and Ice-cream parlours

Catering for those whose travel

Public Catering

Bed & Breakfast

Special Projects

Foodstuff

Product certification and Food and Drinks Directory

Food Technology Research

Food Education

AIC BOARD OF DIRECTORS

SBS CHAIR SBS Board of Directors

CHIEF OPERATING OFFICER

DIET PROJECTS:

•Food and Drinks Directory

•Trademark

•“Alimentazione Fuori Casa” Eat Out project

General Secretariat Administration

OTHER PROJECTS:

•“Celiachia Notizie” four-monthly review

•Publishing activities

•Convention organization

AIC – FUNCTIONAL RESPONSABILITY

FOOD MANAGER

SBS – Spiga Barrata Service limited company

AIC GENERAL ASSEMBLY

Board of Directors

VICE- CHAIR

VICE- CHAIR

TREASURER AND SECRETARY

C.S.R.RESEARCH SCIENTIFIC

COMMITTEE

10

Our first thirty years

Thirty years in numbers

The RulesThe Rules33

““5 per mille” contribution from tax income 5 per mille” contribution from tax income

declarationdeclaration 44

11

22

20052006

20072008

2009

members' quantity

38.31043.137 48.690

53.642 56.895

0

10.000

20.000

30.000

40.000

50.000

60.000

members' quantity

Data updating

Members : 56.895 on Dec. 31° 2009, with an increase of 6% increase to year 2008

Data updating

Coeliac population in Italy: more than 100 thousand people

- as per advanced information from the “Relazione annuale al Parlamento sulla Celiachia – anno 2009” (annual Coeliac Parliament Relation – 2009 edition),

to be shortly presented by Health Ministry-

Food and Drink Directory year

2005

2006

2007 2008 2009 2010

Quantity of products

5829 6660 8612 10.211 12.320 *

Food and Drinks Directory, the Food and Drinks Directory, the “Prontuario”“Prontuario”

* Plus 20% compared to 2009, with a 15% increase in terms of companies

0

2000

4000

6000

8000

10000

12000

14000

2005-2006

2007 2008 2009 2010

2005-20062007200820092010

Trade Mark Updating Trade Mark Updating Food and Drinks Directory

year2005

2006 2007

2008 2009 2010

Quantity of products 343 434 720 744 1014

19 29 41100 100

343

434

720 744

1014

0

200

400

600

800

1000

1200

Anno2000

Anno2001

Anno2002

Anno2003

Anno2004

Anno2005-2006

Anno2007

Anno2008

Anno2009

Anno2010

“Registro Nazionale degli Alimenti”* (Italian Foodstuff National Register) Updating

2001: 281 products2010: more than 2500 products and 143 companies

*Introduced by Veronesi’s Decree in 2001

0

500

1000

1500

2000

2500

3000

2001 2010

Nr ofproducts

WHERE TO GET GLUTEN-FREE FOODSTUFF

GLUTEN-FREE PRODUCTS

Retail purchasing

Consortiums

DRUGSTORES

SPECIALIZED SHOPS

AIC’s Projects

AFC Eating Out Project 2010:

more than 2000 venues

- Precise guidelines for: • Provisioning

• Storage

• Production

• Food supply

- Educational and refresher courses

- monitoring system with recurrent visits

ALIMENTAZIONE FUORI CASA

THE “EATING OUT PROJECT”

GENRE TOTAL NUMBER

   

“AUTOGRILL” HIGHWAY SHOPS 22

B&B 110

BAR 36

SAILING BOATS 2

“FINI GRILL” HIGHWAY SHOPS 24

ICE-CREAM PARLOUS 324

“MY CHEF” RESTAURANTS’ CHAIN 22

RESTAURANTS / HOTELS 1.521

SUMMER CAMP 1

VENDING 10

TOTAL 2.072

AFC’s Venues 2010

Il sito www.celiachia.it

Visitors’ number www.celiachia.itEach visitor is counted per session (in a month period)

21.000

73.350

206.283

237.681

0

50.000

100.000

150.000

200.000

250.000

gen-03gen-07gen-09gen-10

Geografic origin (January 2009)

“In fuga dal glutine/“Running away from gluten”’s Project

Inform and increase COMMUNITY awareness on:

- what Coeliac disease is - the problems referring to this disease - the therapy = the requirement to follow a strict diet- peculiarities of the diet itself

OBJECTIVESInform and Educate

“SENSITIVE” people on:- coeliac disease

- gluten-free nourishment

To encourage- amongst STUDENTS a strong relationship foundation

- within the SCHOOLS the safeguard of different needs, striving in order to reduce and avoid any discomfort arising from this diversity

“In fuga dal glutine”/”Running away from gluten”’ Project

Eurispes*: AIC is amongst Eurispes*: AIC is amongst the 100 Italian excellences the 100 Italian excellences

On October 2° 2008, the third “Rapporto di Eccellenza” (Excellence Report) was

presented: 100 successful episodes in Italy

*Political, economical and social studies Institute

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Our first thirty yearsOur first thirty years

Thirty years in numbersThirty years in numbers

The RulesThe Rules

““5 per mille” 5 per mille” contribution from contribution from tax income declarationtax income declaration44

11

33

22

CURRENT STATUS ON CURRENT STATUS ON REGULATIONSREGULATIONS

1982: Ministerial Decree dated July 1°, 1982

Introduction of Free Foodstuff Allocation

1992: Decree 111, dated January 27°, 1992

Particular Nourishment

2001: Decree 279, dated May 18°, 2001

Rare Diseases

2001: Decree, dated July 5°, 2001, so called Veronesi

Free Allocation and Products Register

2003: Community Directive n. 89, indication of allergens in labelling

2005: Law 123, dated July 4°, 2005

Coeliac population’s prophylaxis regulation

2008: Prime Minister Decree 23/04/08

“LEA” Minimum level of service in Health provision – Rare and Chronic Disease’s listing

28

Law nr. 123/05 and the right for GF Law nr. 123/05 and the right for GF mealmealSummary:

Coeliac disease, social disease, art 1

Confirmation of free foodstuff allocation, art 4

Objectives: early diagnosis and prevention: medical professional trainings and refresher courses, centers and network structures’ confirmation, diagnosis’ protocols, prevention of complication and monitoring of linked diseases, test definition, art 3

Gluten free meal in schools and hospitals’ restaurants as well as in public offices, art 4

Coeliac disease information at professional training and refresher courses for restaurateurs and hotelkeepers, art 5

Parliament report on new scientific outcome referring to early diagnosis and complication monitoring, art 6

“Legge bianca”,which is a law with no provision in case of clauses’ lack of implementation, and its application:

Medical professional training Professional training for catering operators (report on art. 5)

Complication Interpretation (art.4’s emendment)

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Law nr. 123/05, art 4Law nr. 123/05, art 4

Art. 4.1. (…..)2. (…..)

3. Gluten free shall be given out, upon anticipated request by the interested people, in school and hospital premises, as well as in public offices’

refectories.

4. The burden outcoming from the implementation of paragraph 3 is evaluated in 3.150.000 euros per

year as of 2005.Non official article translation

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Law nr.123/05, art 5Law nr.123/05, art 5

Art. 5.1. (…)

2. Regions and self-governing districts of Trento and Bolzano to provide ad hoc coeliac disease information

pamphlets at professional trainings and refresher courses for restaurateurs and hotelkeepers.

3. The burden outcoming from the implementation of paragraph 2 is evaluated in 610.000 euros per year as of

2005.

Non official article translation

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I nostri primi trent’anniI nostri primi trent’anni

Trent’anni in cifreTrent’anni in cifre

Le normeLe norme

The first communication The first communication campaigncampaign

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44

22

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Coeliac diseaseAIC

AIC SPOT COMPETING AT “GRANDPRIX DELLA PUBBLICITA’” 2010 EDITION

Thanks!

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