Designing for Patients Designing for Ourselves

Pat Mastors President | Co-Founder The Patient Voice Institute Hx Refactored | May 14, 2014 PatientVoiceInstitute.org Pat@PatientVoiceInstitute.org Twitter: @Pmastors @PatientVoices

Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

Designing an Ecosystem Focused on Care

…use our empathy to identify and address unmet needs… Asking “What if”?

My plan today:

§ Success stories – “unmet needs” § A major announcement! § Q & A

Michael Graves Architect & Designer

Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

Michael Graves Architect & Designer

Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

Patty Skolnik Corporate Executive, Wife, Mother

Patty Skolnik Corporate Executive, Wife, Mother

Pat Mastors TV News Reporter, Wife, Mother

Pat Mastors TV News Reporter, Wife, Mother

Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

Pat Mastors TV News Reporter, Patient Advocate

Copyright © 2014,The Patient Voice Institute, All Rights Reserved.

•  NQF •  PfP •  CU Safe Patient Project •  IPFCC •  IHI Forum •  QNet

…Patient advocates finally get a seat at the table (but something’s not working…)

§  We’re often an afterthought §  We have few resources (funding,

infrastructure) §  We also have to make a living

(is our time valuable?)

…Patient advocates Finally Get a Seat at the Table, but how effective can we be?

§  We have different, sometimes singular stories §  No “database” of patients §  We don’t all agree on approach (“partnership” vs. more aggressive stance) §  Those who are successful are SWAMPED!

…We Finally Get a Seat at the Table…

Patient Voices Need a home

Pulling from PwP & IHI experiences…

WHAT IF…? We Built a New Community for Patient Voices…

Welcome Newly

Activated

Training Development

Support

Speakers Advisors

Consultants

WHAT IF it was a resource for any entity seeking Authentic Patient Perspective ?

Surveys Focus Groups

Geographically Or by Topic

Speakers Advisors

Consultants

WHAT IF all who joined embraced Reliable, Consistent Principles…

Safety

Partnership

Compassionate Interaction

Access to Meaningful Information

Continuity in Care

WHAT IF everyone in this new community pledged to weave their authentic personal story into those Reliable, Consistent Principles?

WHAT IF…we enlisted known Patient Engagement Leaders to show us the way?

Introducing The Patient Voice Institute (PVI) http://patientvoiceinstitute.org/

E-Patient Dave Alicia Cole Regina Holliday Patty Skolnik

Pat Mastors Jean Rexford Diane Stollenwerk Libby Hoy

Senior Advisors

“Patient Voice Principles”

We want “Frictionless”…

We want Interoperability…

“Frictionless Interoperability” The missing piece

How it Translates (Why it Matters)

What about the next person?

Design an Ecosystem Focused on Care… For Yourself

PatientVoiceInstitute.org Pat Mastors President | Co-Founder Pat@PatientVoiceInstitute.org Twitter: @Pmastors @PatientVoices

Copyright © 2014,The Patient Voice Institute, All Rights Reserved.