Fighting Parkinson Disease with Data

Fighting Parkinson Disease

with DataKevin Krejci

January 16, 2014

Quantified Self Show and Tell #32

I’m A Dude with PDI’m A Dude with PDI’m A Dude with PDI’m A Dude with PD

image: (cc) emdot @kevinkrejciKevin Krejci

What is PD?What is PD?What is PD?What is PD?

Big QS FanBig QS FanBig QS FanBig QS Fan

Organized event in 2011: "Healthcare Technology Convergence – Smart Consumers Meet Care Delivery of the Future“

Inspired to OvercomeInspired to OvercomeInspired to OvercomeInspired to Overcome

An “N” of ManyAn “N” of ManyAn “N” of ManyAn “N” of Many

Wheel of Wheel of (mis)Fortune?(mis)Fortune?

Or QS Opportunity?Or QS Opportunity?Or QS Opportunity?Or QS Opportunity?

A QuoteA QuoteA QuoteA Quote

- Michael J. Fox

My Challenges*

•Bradykinesia

•Muscle Rigidity

•Slowness

•Coordination

•Sleep

* That don’t define me

My Actions*My Actions*My Actions*My Actions*

* That define me

ExamplesExamplesExamplesExamples

The List Goes OnThe List Goes OnThe List Goes OnThe List Goes On

My Goals

•Short Term

•Maximize Productivity

•Typing, running around office, etc.

•Reduce stress

•Long Term

•Slow or reverse PD progression

•Keep playing beach soccer with kids

•Hold my future grandkids

My QS Goals

•Find efficient ways to measure/track my condition

•Establish solid baselines

•Try experiments and learn from them

Collect the Data!Collect the Data!Collect the Data!Collect the Data!

SleepSleepSleepSleep

FitnessFitnessFitnessFitness

Lose WeightLose WeightLose WeightLose Weight

Fasting Helps!Fasting Helps!Fasting Helps!Fasting Helps!

Movement VideosMovement VideosMovement VideosMovement Videos

Movement MonitoringMovement MonitoringMovement MonitoringMovement Monitoring

Typing TestingTyping TestingTyping TestingTyping Testing

Symptoms and Symptoms and MedsMeds

NutritionNutritionNutritionNutrition

Lessons LearnedLessons Learned(So Far)(So Far)

•Tracking is no easy task

•Requires discipline and commitment

•Data is too scattered and hard to cross-correlate

•Apps and social networks help to motivate

Fujitsu Sprout Fujitsu Sprout PlatformPlatform

Challenges to Challenges to Quantify MeQuantify Me

•Routines

•Charging devices

•Losing Cables

•Making time for everything

Challenges to Challenges to Quantify MeQuantify Me

•Big Data Good Data

•Turning into actionable wisdom

So I Can Be There for So I Can Be There for ThemThem

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