Fighting Parkinson Disease with Data

Fighting Parkinson Disease

with DataKevin Krejci

January 16, 2014

Quantified Self Show and Tell #32

http://www.meetup.com/quantifiedself/events/155120172/

http://www.flickr.com/photos/kevinkrejci/11152132604/in/set-72157638244338303

I’m A Dude with PDI’m A Dude with PDI’m A Dude with PDI’m A Dude with PD

image: (cc) emdot @kevinkrejciKevin Krejci

https://twitter.com/kevinkrejci

What is PD?What is PD?What is PD?What is PD?


http://en.wikipedia.org/wiki/Parkinson's_disease

Big QS FanBig QS FanBig QS FanBig QS Fan


Organized event in 2011: "Healthcare Technology Convergence – Smart Consumers Meet Care Delivery of the Future“

http://www.slideshare.net/fujitsulabs/flats2011-agenda-rough-7995680

http://www.slideshare.net/fujitsulabs/flats2011-agenda-rough-7995680

http://www.flickr.com/photos/fujitsu_labs/5861923610/in/set-72157627025368066

Inspired to OvercomeInspired to OvercomeInspired to OvercomeInspired to Overcome


http://www.epatientdave.com/2013/10/04/resources-for-todays-lecture-at-the-world-parkinsons-congress/

An “N” of ManyAn “N” of ManyAn “N” of ManyAn “N” of Many


https://www.patientslikeme.com/

Wheel of Wheel of (mis)Fortune?(mis)Fortune?

Wheel of Wheel of (mis)Fortune?(mis)Fortune?


Or QS Opportunity?Or QS Opportunity?Or QS Opportunity?Or QS Opportunity?


A QuoteA QuoteA QuoteA Quote


- Michael J. Fox

http://www.michaeljfox.org/thinkableLanding/thinkable.html

My Challenges*

•Bradykinesia

•Muscle Rigidity

•Slowness

•Coordination

•Sleep

* That don’t define me

My Actions*My Actions*My Actions*My Actions*


* That define me

ExamplesExamplesExamplesExamples


The List Goes OnThe List Goes OnThe List Goes OnThe List Goes On


My Goals

•Short Term

•Maximize Productivity

•Typing, running around office, etc.

•Reduce stress

•Long Term

•Slow or reverse PD progression

•Keep playing beach soccer with kids

•Hold my future grandkids

My QS Goals

•Find efficient ways to measure/track my condition

•Establish solid baselines

•Try experiments and learn from them

Collect the Data!Collect the Data!Collect the Data!Collect the Data!


http://www.ihealthlabs.com/

http://www.withings.com/en/scales

http://www.fitbit.com/

http://www.bodymedia.com/

http://www.zephyranywhere.com/zephyr-labs/

SleepSleepSleepSleep


FitnessFitnessFitnessFitness


Lose WeightLose WeightLose WeightLose Weight


Fasting Helps!Fasting Helps!Fasting Helps!Fasting Helps!


Movement VideosMovement VideosMovement VideosMovement Videos


Movement MonitoringMovement MonitoringMovement MonitoringMovement Monitoring


Typing TestingTyping TestingTyping TestingTyping Testing


Symptoms and Symptoms and MedsMeds

Symptoms and Symptoms and MedsMeds


NutritionNutritionNutritionNutrition


http://www.flickr.com/photos/kevinkrejci/11211779095/

Lessons LearnedLessons Learned(So Far)(So Far)

•Tracking is no easy task

•Requires discipline and commitment

•Data is too scattered and hard to cross-correlate

•Apps and social networks help to motivate

Fujitsu Sprout Fujitsu Sprout PlatformPlatform

Fujitsu Sprout Fujitsu Sprout PlatformPlatform


Copyright 2012 Fujitsu Laboratories of America, Inc.

http://quantifiedself.com/2013/12/ajay-chandler-measuring-moment/

Challenges to Challenges to Quantify MeQuantify Me

•Routines

•Charging devices

•Losing Cables

•Making time for everything

http://www.flickr.com/photos/kevinkrejci/

Challenges to Challenges to Quantify MeQuantify Me

•Big Data Good Data

•Turning into actionable wisdom

http://www.flickr.com/photos/kevinkrejci/11862008693/

So I Can Be There for So I Can Be There for ThemThem

So I Can Be There for So I Can Be There for ThemThem






Fighting Parkinson Disease with Data

Health & Medicine

Transcript of Fighting Parkinson Disease with Data