EHDI Systems and the Medical Home

Carlos Quezada-Gomez, PsyDNational Center of Medical Home Initiatives for

Children with Special Needs

American Academy of Pediatrics

What Is a Medical Home?

A Medical Home ensures that:Care is accessible family-centeredcomprehensive continuous

coordinatedcompassionate

culturally effective

Primary care physicians serve as the medical home.

A pediatric sub-specialist may be appropriate in complex cases.

AccessiblePhilosophically• Efforts made to meet needs of all patients and families

Geographically• Care is provided in the child’s community

Financially• All insurance, including Medicaid, is accepted and

changes are accommodated

Family-centered

Family is the principal caregiver and the center of strength and support for children

Parents are experts on their own children and are a source of essential information

Unbiased and complete information is shared on an ongoing basis

Recognition that:

Continuous

Same primary health care professionals are available from infancy through adolescence

Primary care physician assists with transitions

- Hospital to home

- Home to school

- School to job or independent living

- Primary to secondary to tertiary medical care

Comprehensive Preventive and primary care is provided

As part of coordinating the child’s care makes contacts with all other providers, including audiologist,

otolaryngologist, therapists, EI, & school

discusses needs for respite care, equipment, transportation, etc.

provides information on Title V, SSI, SCHIP

assesses emotional, educational & health status at each visit

provides written information on relevant issues and support groups

Coordinated Makes referrals (and assists with setting up

appointments) to sub-specialists as needed, including mental health

Families are linked to appropriate support, educational, and community-based services

Information from other service providers is centralized

Primary Care Physician communicates effectively and collaborates with all service providers on plan for child’s care

Participates in the IFSP or IEP by phone, letter, or in person

Compassionate

“Gets to know” the family & has a comfortable relationship

Makes an effort to understand the family’s needs

Concern for well-being of child and family is expressed and demonstrated

Families’ values, beliefs, and behaviors are respected

Culturally Effective

Uses interpreters where appropriate (including sign language)

Has materials translated into the families’ primary language

Attempts to understand families’ beliefs and customs

Shared Responsibility

Accepts responsibility for services rendered

Maximizes quality while minimizing cost

Ensures that all needed services are delivered and avoids duplication

EHDI and the Medical Home

Parent Groups Mental Health

Birthing Hospital

Audiology

Primary Provider

Child/Family

ENT

GeneticsEarly Intervention Programs

3rd Party Payers

Deaf Community

Services for Hearing Loss

Addressing Medical Home Issues in Your Grant Application

• Identify references in Application Guidance

– MCHB Core Outcomes (p. 2)

– Requirements for Narrative (p. 13)

– Purpose of funding program (p. 20)

– Review criteria (pp. 21-22)

• Demonstrate your familiarity with the issues involved in linking EHDI with Medical Homes

• Describe your plan for addressing the above issues

• Link your plan to the evaluation procedures

Strategies to Link Screening to Medical Home

• Identification of Medical Home provider prior to screening

• Seamless transfer of results to the medical home

• Involvement of primary care physicians in EHDI advisory groups

The National Center of Medical Home Initiatives for Children with Special Needs

Phone: 800/433-9016, ext 7081Fax: 847/228-6432

Email: medical_home@aap.org

For More Information:

Technical AssistanceSunnah Kim

Manager, Screening Initiatives

e-mail: skim@aap.org

phone: 847/434-4924

Amy Gibson

Manager, Technical Assistance

e-mail: agibson@aap.org

phone: 847/434-4989

National Center of Medical Home Initiatives for Children with Special Needs

(1999 - 2004)

American Academy of Pediatrics

Funded by the Maternal and Child Health Bureau,

Division of Children with Special Health Care Needs

National Center Projects

• General Newborn Screening Recommendations

• Project Universal Preschool Vision Screening

• Medical Home Training Program

• Universal Newborn Hearing Screening

• Technical Assistance

Universal Newborn Hearing Screening

• An AAP Task Force on Newborn and Infant Hearing was convened in Spring 1998• Developed a policy statement endorsing

universal newborn hearing screening in 1999• AAP has 2 delegates to the Joint Committee

on Infant Hearing• AAP endorsed the Year 2000 JCIH Position

Statement

Technical Assistance

• Specialized TA provided to help link screening to medical home

• Provided by National Center staff to all who are involved in community-based initiatives to ensure children with special needs have access to a medical home

• Mentoring program