Two Roads Diverged: Creating Enviable Lives for Individuals
with Disabilities and their Families Through Family and
Community Partnerships
UNC School of Social Work Clinical Lecture Series
Focus on Family and Disability Seminar
University of North Carolina at Chapel Hill
Chapel Hill, NC
Rud and Ann Turnbull
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U.S. Disability Policy Promises
• Equality of opportunity
• Full participation
• Independent living
• Economic self-sufficiency
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Jay Turnbull 1967-2009
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“Two roads diverged in a yellow wood, And sorry I could not travel both And be one traveler, long I stood And looked down one as far as I could To where it bent in the undergrowth;”
Robert Frost
The Road Not Taken
• Special pre-school
• Special elementary/middle school placement
• Special scout troop
• Special religious program
• Special camp
• Special secondary placement
• Sheltered workshop
• Group home6
Road to Segregated Lifelong Living
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• Regular preschool• Regular elementary/middle school placement• Regular scout troop• Regular religious program• Regular camp• Regular secondary placement• Regular post-secondary placement• Regular job• Home of one’s own
Road to Inclusive Lifelong Living
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What withstands the test of time ?Education – WHAT you know
Business/Politics – WHO you know
What did Jay teach us over 4 decades?
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Early Childhood
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Childhood Years
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Adolescent/Transition Years
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High School Education
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CRISIS!!!!
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Epiphany of Double Standard
How many adults with significant disabilities do you know who have an enviable life – one that you would want for yourself and your family?
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“No matter how far down the wrong segregated road you go, if it’s the
wrong road – turn around”
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Failure to Achieve IDEA Outcomes
• Equality of opportunity
• Full participation
• Independent living
• Economic self-sufficiency
JT’s Weekly SupportsTime Mon Tues Wed Thur Fri Sat Sun
8-8:30 AM8:30-9 AM9-9:30 AM
9:30-10 AM10-10:30 AM10:30-11 AM11-11:30 AM11:30-12 PM12-12:30 PM12:30-1 PM1:30-2 PM2-2:30 PM2:30-3 PM3-3:30 PM3:30-4 PM4-4:30 PM4:30-5 PM5-5:30 PM5:30-6 PM6-6:30 PM6:30-7 PM7-7:30 PM7:30-8 PM8-8:30 PM8:30-9 PM
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Sisyphus from Greek mythology -- has to continually start over
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“Sisyphus” with reliable allies as partners
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Reliable Allies
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Group Action Planning
• Inviting support
• Creating connections
• Sharing great expectations
• Solving problems
• Celebrating success
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Inviting Support
Job
Preferences
Strengths
Com
mun
ity
Sch
ool
Frie
nds
Nei
ghbo
rhoo
d
Home
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Creating Connections
Home
Job
Scho
ol
Com
munity
Strengths
Preferences
Frie
nds
Neighborhood
http://www.youtube.com/watch?v=4h7cHv5Ulr0 http://www.youtube.com/watch?v=xUoOlkqo7-A
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Great Expectations
FRIENDS
NEIGHBORHOOD
HOME
JOBSCHOOL
COMMUNITY
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Solving Problems
ACTION PLAN
Weigh Options
VISION
Brainstorm Options
http://www.youtube.com/watch?v=MhY1Sn7gjoA
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Celebrating Success
• Celebrate Progress
• Acknowledge Group Members’ Contributions
• Develop the “Joy Quotient”
http://www.youtube.com/watch?v=PHIlJXNeRc4
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http://www.youtube.com/watch?v=H8N7uVOQTDU
Memorial Service Eulogy
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http://www.youtube.com/watch?v=MD5iSACBuRk
Memorial Service Celebration
JT’s Weekly SupportsTime Mon Tues Wed Thur Fri Sat Sun
8-8:30 AM8:30-9 AM9-9:30 AM
9:30-10 AM10-10:30 AM10:30-11 AM11-11:30 AM11:30-12 PM12-12:30 PM12:30-1 PM1:30-2 PM2-2:30 PM2:30-3 PM3-3:30 PM3:30-4 PM4-4:30 PM4:30-5 PM5-5:30 PM5:30-6 PM6-6:30 PM6:30-7 PM7-7:30 PM7:30-8 PM8-8:30 PM8:30-9 PM
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Church
Massage
Yoga
Sleep
Bkt/Lunch/Dinner
Personal Care
Speech Therapy
Work
Music Therapy
Leisure/Comm. Part.
Week at a Glance
Time Mon Tues Wed Thur Fri Sat Sun12-8:30 AM F H H H H H H
8-8:30 F H C1 C4 C1 C1 H8:30-9 AM C1 H C1 C4 C1 C1 F9-9:30 AM ST H C1 C4 C1 C1 F
9:30-10 AM ST H C1 C4 C1 C1 F10-10:30 AM MS H C1 C4 C1 C1 F10:30-11 AM MS YT C1 C5 C1 C6 F11-11:30 AM H H C1 C5 C1 C6 F11:30-12 PM JC JC JC JC JC C6 F12-12:30 PM JC JC JC JC JC C6 F12:30-1 PM JC CW JC JC CW C6 F1:30-2 PM JC JC JC JC JC C6 F2-2:30 PM JC JC JC JC JC C4 F2:30-3 PM JC JC JC JC JC C4 F3-3:30 PM JC JC JC JC JC C4 F3:30-4 PM H C2 H C5 H C? F4-4:30 PM H C2 H C5 H C? F4:30-5 PM H C2 H C5 H C? F5-5:30 PM H C2 FR C5 H C? F5:30-6 PM H C2 FR C3 C5 C? F6-6:30 PM H/MT/GF C2 FR C3 C5 C? F6:30-7 PM H/MT/GF C2 FR C3 C5 C? F7-7:30 PM MT/GF MT C3 C3 H C? F7:30-8 PM MT/GF MT C3 C3 H C? F8-8:30 PM H H H C3 H C? F8:30-9 PM H H H H H C? F9-11 PM H H H H H H/C? F
H – Housemate JC – Job Coach
F – Family C1-C6 – Companions
ST – Speech Therapist FR – Fraternity
MT – Music Therapist GF – Girlfriend
M – Masseuse CW – Co-Worker
Y – Yoga Teacher
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It was not simply WHAT he knew or simply WHO he and his family knew…but it is HOW WELL he and his reliable allies could create trusting partnerships that were reciprocal.
Reciprocity enabled his trusting partnerships to grow exponentially and flourish in creating and sustaining equality of opportunity, full participation, independent living, and economic self-sufficiency.
Whatdid Jay teach us over four decades?
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“I shall be telling this with a sighSomewhere ages and ages hence:Two roads diverged in a wood, and JayJay took the one less traveled by,And that…made all the difference.”
Paraphrase from Robert Frost
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“Love goes very far beyond a physical person of the beloved. It finds its deepest meaning in his spiritual being…”
“Set me like seal upon they heart, love is a strong as death.”
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