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Regional response to the Global action plan on dementia (Europe)
ADI Conference, Chicago – 27 July 2018
Jean Georges, Executive Director
@JeanGeorgesAE
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Alzheimer Europe
40 associations in 35 countries
European Dementia Monitor - Concept• Benchmarking of national dementia policies (comparison and
ranking)
• Possibility to repeat and show changes in rankings
• Lobbying tool for AE to present comparative data to European Parliament, European Commission and WHO/Europe (inequalities in access to care and treatment)
• Lobbying tool for national Alzheimer associations (compare national situation to other countries)
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European Dementia Monitor - Priority areas
• Availability of care services
• Affordability of care services (financing)
• Treatment-reimbursement of AD medicines
• Access to clinical trials
• Involvement of country in EU dementia research
• Recognition of dementia as a priority
• Dementia friendly Communities/Inclusiveness
• Recognition of legal rights
• Recognition of human rights
• Employment carer/employment support
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Recognition of dementia as a priority• Is dementia recognised as a research priority?
• Is a national strategy in place or in development?
• Does the strategy have specific allocated funding?
• Is there a Government appointed person in charge of the coordination of dementia policies?
• Does the national Alzheimer’s association receive funding from Government for its core activities or central office?
• Does the national Alzheimer’s association receive funding from government programmes for projects or specific services?
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Clinical Trials• Phase III
• Available in at least two European countries
• 9 clinical trials investigating different compounds (Aducanumab, Bexipiprazole, CAD106, Crenezumab, Idalopirdine, JNJ-54861911, LY3314814, RVT-101 and Varubecestat)
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Dementia friendliness• Working group of people with dementia
• Dementia friends programme
• Dementia-friendly communities
– Developed concept
– In development
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Overall ranking• Each section contributes 10% to the overall score
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Concluding remarks• Growing recognition of dementia as a European priority
– Need for increased funding and improved coordination at European and global level
– Need for benchmarking and comparison tools such as WHO Global Dementia Observatory
• Inequalities across European countries
– Need for dementia strategies and increased dementia awareness in all European countries
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