UOAConnection February 2013

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The UOAConnection is a publi-

cation of the United Ostomy

Association of Canada Inc. This

bulletin is published 10 times a

year in both English and French

(future) to provide greater com-

munication to the chapters.

Limited funds only permit circu-

lation to chapter leadership who

are encouraged to share the in-

formation with their members by

including items of interest in

their newsletters.

NATIONAL OFFICE:

United Ostomy Association of

Canada Inc.

344 Bloor St. West, Suite 501Toronto, ON M5S 3A7

[email protected]

416-595-5452

FAX: 416-595-9924

TOLL FREE: 1-888-969-9698

WEBSITE:www.ostomycanada.ca

PRESIDENT:

Peter Folk

VICE PRESIDENT:Ann Ivol

TREASURER:

Stephen Maybee

SECRETARY:Carol Wells

February 2013

UOACONNECTION

PresidentsMessage

3 February 2013

Greetings all,

Our board of directors had its first online board meeting on February 2nd. It was attended by our entire ex-

ecutive and board as well as four observers. Although there were a few technical problems, all in all it was a

successful board meeting. However, two hours is just not enough time to thoroughly discuss all the issues t

need to be discussed. I will be scheduling more of these type of meetings on a regular basis so that the boar

can make some important decisions.One of advantage of having online board meetings is the cost. To hold an unlimited number of online mee

ings costs us less than $200 per year. Compare that with the cost of flying nine executive and board membe

to a location, plus accommodations, taxis and per diem expenses and you can see fairly quickly that this is t

most economical option at this time.

Speaking about expenses, our new treasurer, Steve Maybee, has done a lot of work in the last two months

preparing for our online meeting and we devoted much of the time online discussing and approving some

the recommendations that the auditors had recommended in the 2012 Financial Statement and Audit. We

are thankful for Steves expertise and for making motions to get UOAC in a better financial position.

The board of directors will meet in person in Halifax on August 16, the day before the Chapter Informatio

Session (CIS), and attend the CIS on August 17 and meet again the afternoon after the Annual General

Meeting on August 18.

The Canada Not-For-Profit Corporations Act provides federal not-for-profit corporations with a new set of

rules that are modern, flexible and better suited to the needs of today's not-for-profit sector. Our by-laws co

mittee is working hard to have new by-laws ready for a vote at the AGM in Halifax in 2013. Details will be

sent to chapter delegates at the appropriate time later this year. I urge all chapters to study them when they

arrive and to plan to attend the meeting in Halifax on August 18.

Our friends to the south of us, the United Ostomy Associations of America (UOAA), have a conference in

2013 and are inviting their Canadian friends to come join them in Jacksonville Florida. The theme this yea

is Bridge to Acceptance. Registration fees and hotel rooms are very reasonably priced. Activities start on

August 7th and continue through August 10th. To find out more information or to register for the 2013 Na

tional conference, go to http://www.ostomy.org/conference_2013.shtml.

I would like to offer congratulations to Jessica Grossman who has made the news lately in support of ostom

awareness. If you have not seen it, check out her YouTube video at

http://www.youtube.com/watch?v=jqsguzwEh2Eor visit her website http://uncoverostomy.org/. What a

great way to raise ostomy awareness

Contd Page 2

Volume 19 Issue 6
mailto:[email protected]:[email protected]://www.ostomycanada.ca/http://www.ostomycanada.ca/http://www.ostomy.org/conference_2013.shtmlhttp://www.ostomy.org/conference_2013.shtmlhttp://www.youtube.com/watch?v=jqsguzwEh2Ehttp://www.youtube.com/watch?v=jqsguzwEh2Ehttp://uncoverostomy.org/http://uncoverostomy.org/http://uncoverostomy.org/http://www.youtube.com/watch?v=jqsguzwEh2Ehttp://www.ostomy.org/conference_2013.shtmlhttp://www.ostomycanada.ca/mailto:[email protected]


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Contd Page 1

I would also like to thank and congratulate Paul Riome from Saskatoon. In September and October of 2012, he and a group trave lled to

Nepal and climbed Island Peak (6189 m / 20,305 ft). His experience travelling, trekking and climbing has been thoroughly documented and

shared with all his followers on his blog, as well as regular posting to Facebook and on our website have been an inspiration to all of us. Paul

even shares some of the details of his ostomy blowouts and the ways he was able to improvise ways to adapt to them. Paul was also joined by a

Gastronaut by the name of Hogus. If you have not heard of gastronauts, there is a great explanation on Pauls website: http://

www.livingbiggerwithcolostomy.com/ as well as here:

Hogus is from a family of dozens of Gastronaut puppets. These puppets were created to help children understand and become comfortable

with ostomies. Nurses use the Gastronauts to explain to children about their own ostomies, or about their parent's or grandparent's ostomies.

Over 4000 child ostomates around the world have received their own Gastronaut, to help them recover from surgery and to adjust to their

new ostomy and lifestyle. Other Gastronauts, like Hogus, do adventure travel with an adult ostomate, and share what they learn with child

ostomates around the world ... showing ostomates that they are not alone, and that they can live ordinary lives - even extraordinary lives.

More about Gastronauts by TheBowelMovement and their UK Distributor StomaWise, who generously collaborated to create Hogus on their

website: http://www.thebowelmovement.info/category/the-gastronauts/.

Our next biennial conference will be in St. Johns Newfoundland in 2014. Tentative dates are July 31 to August 2. Our conference chair is

Delilah Guy and the St. Johns and Gander chapters are working together to put on a great conference. We hope to see you all there and take

some time to tour around the Rock and enjoy the unique experience that is Newfoundland.

Peter Folk

President, United Ostomy Association of Canada Inc.

UOAConnectionPage 2
http://www.livingbiggerwithcolostomy.com/http://www.livingbiggerwithcolostomy.com/http://www.livingbiggerwithcolostomy.com/http://www.thebowelmovement.info/category/the-gastronauts/.%20http://www.thebowelmovement.info/category/the-gastronauts/.%20http://3.bp.blogspot.com/-pffm5aJGqs0/UFOSGNnz6LI/AAAAAAAAADk/ETUoW6SbtP0/s1600/hogus.jpghttp://www.thebowelmovement.info/category/the-gastronauts/.%20http://www.livingbiggerwithcolostomy.com/http://www.livingbiggerwithcolostomy.com/


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Social Networking.

During 2012, there were 728,083 hits on our website by 27,019 unique visitors.

80% of our visitors use Windows, 13% use Macintosh, less than 1% use mobile phones.

70% of our visitors type in the URL, use bookmarks or links in email to reach our site, 21% came

to our site from a search engine and 9% came to our site from a link on another web site.

Social Media:

Our website is very popular, a great source of information and at least

6,350 other websites directly link to ours. More and more people are using the Internet to get

Ostomy information and our contact form is used regularly to contact the office.

Peter Folk

UOAConnection

Contd from Page 1

Directors

Delilah Guy

John Molnar

Andrea Manson

Mary Penner

Ed Tummers

Three Vacant Positions

OFFICE COORDINATOR

Marion Whate

OFFICE ASSISTANT

Carole Pew

OFFICE CHAIR

Di Bracken

NATIONAL OFFICE

ADDRESS

344 Bloor St. W., Suite 501

Toronto, ON M5S 3A7

UOAC COMMITTEES

2012-2013

UOAC DSS

Roger Ivol (Leader)

Ken Osmond (Pacific Rep)

John Molnar (SouthernOntario)

Roger Ivol (SouthernOntario)

Jean-Pierre Lapointe(Quebec Rep)

UOAC INTERNATIONAL

RELATIONS

Janet Paquet (Leader)

Pat Cimmeck (Member)

UOAC NATIONAL

OFFICE SUPPORT

Di Bracken (Leader)

Peter Folk, UOAC Office

UOAC Public Awareness &

Support

John Molnar (Leader)

Delilah Guy (Member)

Carol Wells (Member)

Mary Penner (Member)

Unique Web Visitors 2904

Facebook Likes 118

Number of Web Visitors 5593

Facebook Parents Group Members 26

Google + Members 14

Blog Hits 849

Facebook Group Members 319

Discussion Board Members 61

Twitter Followers 97

Linkedin Followers 5

Linkedin Group Members 11

UOAC1 Group Members 36

Blog Followers 110

Page 3


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Page 4 UOAC Connection

Objective: Developing a system whereby passengers members of the Ostomy Halifax Society can contact us ahead of time to make

arrangements with their screening.

This trial is voluntary and will be conducted from February 11th and will last for a three month period at the Halifax InternationalAirport (YHZ) solely.

Guidelines:

Passengers are invited to contact the Canadian Air Transport Security Authority (CATSA) via telephone or email up to 48 hours prior

to flight departure. When calling, please let the officer know you are interested in the Advance Notification Trial.

1-888-294-2202:

1. Callers are greeted by an automated telemessage with a language selection;

2. Select option #3 (complaints department);

3. and then option #1 (to speak to next available agent) between 09:00 and 17:00 AST, Monday to Friday.

Via email at [email protected] emergency only: Between 17:00 09:00 AST Monday to Friday and weekends and Statutory Holidays

-Contact 1-888-294-2202:

Here is the information needed in order to make the arrangements with our local CATSA management:

Full name (as appears on your boarding pass): Preferred language: Contact phone numbers: Emails or other points of contact (is appropriate):

-by providing an email, the passengers will receive an email confirmation of the details provided. They

may wish to present this document at the checkpoint (although not necessary)

Flight number: Date of travel:

Guidelines:Following their travel, the passengers will also be contacted at their convenient time (unless otherwise specified) in order for CATSA to

conduct a short survey regarding their experience at the screening checkpoint. We invite your members to provide us with feedback

on the Advance Notification Trial and participate in the continuous improvement of our collaboration.

Page 4 UOAConnection

As a result of a Meeting between CATSA and Ostomy Halifax Society CATSA is starting a trial program at Halifax International Air-

port. This program is aimed at making the security check at Airports easier and more user friendly for ostomates. Please note this is a

trial program onlyand is being carried out only at Halifax International Airport. Please refer below. It is suggested that ostomates trav-

eling through Halifax International during this trial period take advantage of this opportunity. It would also be appreciated that you

report your experience to Ed Tummers President of Ostomy Halifax Society for follow up.

Regards

Betty Woolridge

Ostomy Halifax Society Advance Notification Trial
mailto:[email protected]:[email protected]:[email protected]


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Chapter Information on the Website

Did you know that our websitewww.ostomycanada.cahad over a half million hits last year? A lot of

the visitors visited the website to look for a support group in their area. Therefore, it is important

that this information be kept up to date! Make sure when sending the information in to the UOACoffice that the chapters contact information is current - phone number, email contact, newsletter

availability, website, annual dues, meeting dates and times. Visit our chapters page on our website at

http://www.ostomycanada.ca/chaptersand let the UOAC office know via email if any of the infor-

mation needs to be updated.Weve had at least one chapter past president contact the office to tell

us that the website still included their phone number instead of the current president. Please

check your chapters listing to make sure the updates have been done correctly!

Upcoming Events: July 1st - July 6th 2013 UOAC Youth Camp at Camp Horizon, Alberta.

Deadline for application is June 1st, 2013. Cost is $570.00

UOAA Conference August 7-10, 2013, more information at

http://www.ostomy.org/conference_2013.shtml

August 16-17-18, 2013 - 40th Anniversary, Chapter Information Session and Annual General Meeting

in Halifax, NS

August 16, 2013 - UOAC Board of Directors meeting in Halifax

August 18, 2013 - Annual General Meeting in Halifax (morning)

August 18, 2013 UOAC Board Meeting (afternoon only)

July 31st - Aug 2nd, 2014. Conference in St. Johns, Newfoundland

Note: If your chapter has an upcoming event that you would like added here or on the national website,

please email the details to Carol Wells through the national office email.

UOAC Annual General Meetings 2013/2015

Halifax has been chosen to host a Chapter Information Session and Annual General Meeting in 2013.

We are looking for a host chapter for the year 2015. If any chapter is interested, please contact the national

office for a Hotel Check List of the criteria required to host an Annual General Meeting. Also contact yourDSS representative for the Chapter Information Session manual.

United Ostomy Association of

Canada Inc. Mission State-

ment

The United Ostomy Associa-

tion of Canada Inc. is a volun-

teer-based organization dedi-cated to assisting all persons

facing life with gastrointestinal

or urinary diversions by provid-

ing emotional support, experi-

enced and practical help, in-

structional and informational

services through its member-

ship, to the family unit, associ-

ated care givers and the general

public.

A Non-Profit Canadian Chari-

table Organization

Articles, information and/or

opinions expressed in this

newsletter are NOT necessarily

endorsed by the entire UOAC

membership, they are the opin-

ions of the writer and may not

be applicable to everyone.

Editors Please Note

Items in the UOAConnection

may be copied for use in other

newsletters, providing proper

credit is given regarding the

source of the material.

UOAConnectionPage 5
http://www.ostomycanada.ca/http://www.ostomycanada.ca/http://www.ostomycanada.ca/chaptershttp://www.ostomycanada.ca/chaptershttp://www.ostomycanada.ca/chaptershttp://www.ostomycanada.ca/


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Contd from Page 2

2012-2013 COMMITTEES

OSTOMY CANADA

Lisa Gausman (Senior Editor)

Lorne Aronson (Advertising Manager)Tammy Hunter (Graphic Designer)

UOAC CONNECTION

Carol Wells (Leader)

Ann Ivol, Joel Jacobson, UOAC Office (Members)

UOAC PRIVACY POLICY

Elizabeth Lindner (Privacy Officer)

John Molnar (Member)

UOAC PUBLICATION

Ann Ivol (Leader)

Joel Jacobson, Andrea Manson (Members)

UOAC WEBSITE

Peter Folk, John Molnar (Leaders)

Mary Penner, Andrea Manson (Members)

UOAC SOCIAL MEDIA

Peter Folk (Leader)

John Molnar, Mary Penner, Di Bracken, Carol

Wells

(Members)

UOAC CONFERENCE

Delilah Guy (Conference Administrator)

Janet Paquet, Carol Wells, Gander & St. JohnsChapters (Members)

UOAC FINANCE

Treasurer

Executive Committee

UOAC FUNDRAISING and bringing forth a

Case Statement

Mike Paquet (Leader)

John Molnar, Ed Tummers, Carol Wells AndreaManson, Janet Paquet (Members)

UOAC AWARDS

Ann Ivol (Leader)


UOAC BY-LAWS

Ed Tummers (Leader)

Carol Wells (Members)

Donate To UOAC

The Canadian finance minister, Jim Flaherty, announced that the Cana-

dian one cent coin is going to be phased out, so now's the perfect time to

donate your pennies to charity!

We have signed up to receive donations online through CanadaHelps.org.

This is a handy way for you to make a donation without even leaving the

comfort of your computer chair. Simply visit our website at:

http://www.ostomycanada.ca/ and click on the image that looks like this:

This will bring up a secure website that will allow you to enter your credit

card or PayPal information. Canada Helps will issue a donation receipt

right away and email it to you.

Page 6 UOAConnection
https://www.canadahelps.org/DonationDetails.aspx?cookieCheck=true


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UOAConnection

FROM THE EDITOR

Editors Message

Its Heart Month, time to think more of heart health than any other month, I suppose, even though we should be think-

ing about our heart every month of the year.

Why am I, in an ostomy publication, talking about another health area?

Because we all have hearts and without one, we would fail to exist.

But hearts and Ostomates have more in common than just hearts beating in the chest to keep blood flowing and the body

working.

An ostomates heart beats more strongly than most because of what we do for others.

Ostomates are leaders. We seek out other ostomates who need advice, support, and even comfort as they might struggle

with a change of lifestyle that can be daunting and fear-inducing.

Ostomates are resilient. We have faced challenges in our lives caused by an upheaval resulting from a medical diagnosis or

traumatic experience that creates the need for a bowel or urinary diversion. But we come right back and live normally,doing what we did before, almost without missing a (heart) beat.

Ostomates are upbeat. How many times have you had an accident, bitten the proverbial bullet after uttering a nasty

word or two, made the necessary cleanup and change, and gone back to whatever it was you were doing in the blink of an

eye? If youre like me, you think It could have been worse and proceed to proceed.

Ostomates are compassionate. We become registered visitors and share our stories so others can live well.

Ostomates are open. Were willing to speak publicly, in open forums or through the media, or tell our stories in Ostomy

Canada or in writing contests. We want the world to know who we are, how we've coped and how weve carried on.

Ostomates are giving. We scour for supplies to send to third-world countries through Friends of Ostomates Worldwide

Canada, ensuring those without will have.

It all comes down to heart, doesnt it?

Keep yours healthy this month and every month so it can continue to beat strongly and you can assist those who need,

both in the ostomy community and the greater populace.

Joel Jacobson

Page 7


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UOAConnection

Jan 22, 2013

Hello Everyone,

As the past World Ostomy Day/ Canada Day Chairman 2012, I extend my gratitude to all who supported

this special event through out the years from local, national and global level. Mostly to all chapter members,

Presidents of each chapters, United Ostomy Association Executives. Board of Directors and staff of the Na-

tional Office. The three major companies played a major role in making this event a success in 2012 namely-

Hollister Poster for WOD awareness and the Photo contest which we had 4 Canadian winners. ConvaTec

had the Video2012 contest and had a winner from Canada. ConvaTec also provided the 2012 WOD PINS

and were distributed among members. Coloplast had the Coloplast Merits Award which we participated

globally. There is no announcement of the Coloplast Merits Award winners to date.

A special mention to Peter Folk for whom with his expertise on the Website greatly made it a lot easier for

me to tackle all the jobs successfully .Thank you very much Peter.

Also a special thanks to the Gander and District Chapter for the World Ostomy Day pins. We appreciate

your support.

2013 we will celebrate Canada Ostomy Day. The date will be determined later. It is usually the first Saturday

of October of each year.

I would like to welcome Lisa Gausman as the new WOD/COD chair for 2013 and wish her the best on this

challenging venture.

Sincerely,

Delilah Guy RN. BN. ET.

Past Chairman of WOD/COD 2009-2012

Message from WOD/COD Chair 2012

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2012-2013 COMMITTEE S

Continued

OTHER PROFESSIONAL PARTNERS

Andrea Manson (Leader)

Contacts from Crohns and Colitis,Colorectal Cancer Assoc., Bladder Cancer

Canada, etc.

2012-2013 COMMITTEE S Continued

UOAC POLICY & PROCEDURES

Ann Ivol (Leader)


UOAC 20/40 GROUP

Angie Schickerowski( Leader)

UOAC PARENTS of CHILDREN with anOSTOMY

Mary Penner (Leader)

Pat Cimmeck, Karen Lindsay (Members)

UOAC SASO GROUP

Betty Woolridge (Leader)

Ann Ivol (Member)

UOAC YOUTH CAMP

Pat Cimmeck (Camp Administrator)

Lisa Gausman, John OShaughnessy,

Karen Spencer (Members)

UOAC MEMBERSHIP

Mary Penner (Leader)

UOAC NOMINATIONS & ELECTIONS

Peter Folk (Leader)

Janet Paquet (Member)

UOAC STRATEGIC PLANNING

Executive Committee

Board of Directors, UOAC Office

UOAC ANNUAL OPERATIONALPLAN

Executive Committee

Andrea Manson, Les Kehoe,

UOAC COD/WOD

Lisa Gausman (Leader)

Peter Folk, Mary Penner, Delilah Guy

(Members)

UOAC INDUSTRY ADVISORY

Andrea Manson (Leader)

Contacts from Hollister, ConvaTec, Coloplastand Salts

UOAC MEDICAL ADVISORY

Delilah Guy (Leader)

Dr. Zane Cohen, Dr. Philip Gordon, Current

CAET President

Page 9

A driver tucked a note under her

windshield wiper and dashed off:Ive circled the block for 20 minutes.

Im late for an appointment, and if I

dont park here Ill lose my job. For-

give us our trespasses.

Returning, she came back only to

find a parking ticket and this note:

Ive circled the block for 20 years,

and if I dont give you a ticket, Ill

lose my job Lead us not into temp-

Jokes for Today

A womans husband had been

slipping in and out of a coma for

several months, yet she stayed by

his bedside every single day.

When he came to, he motionedfor her to come nearer. As she sat

by him, he said, You know what?

You have been with me all

through the bad times. When I

got fired, you were there to

support me. When my business

failed, you were there. When I

got shot, you were by my side.

When we lost the house, you gave

me support. When my health

started failing, you were still by

my side You know what?

What dear? She asked gently.

I think you bring me bad luck.

UOAConnection


10/10

LOOK FOR UNSUNG HEROES IN YOUR CHAPTERS. LET'S HONOUR THEM BY TELLING US WHAT

THEY DO.Surely there have to be men and women in your chapters who are doing all the little things that make the chapter tick. Email Joel Jacobson,

UOAConnection editor, through the national office email at [email protected] their story.

PEG BOARD

UOAC Website Update:During the year 2010, our website has had 504,822 hits from 17,193 unique visitors. During 2011, we have had 660,359 hits from 19,160

unique visitors.As for the final figures for 2012 we have had 728,083 hits from 27,019 unique visitors. Our focus this term has to been to

develop social media.

62 percent of our visitors come from bookmarks or links in email and 28 percent found our website through a search engine, with Google

being the most popular.

For an online map of chapters and districts, click here: http://www.ostomycanada.ca/maps/map.html. You can type your postal code in

the bottom right hand search box to locate your city or town and then zoom in to find your nearest chapter or satellite.

If you have any comments on our website, please contact: John Molnar or Peter Folk through the national office email

[email protected].

2014 UOAC Conference in St. JohnsDelilah Guy has been appointed Conference chair for the 2014 conference in St. Johns. She will be working closely with St. Johns chapter

president Carol Wells along with other members of the Gander and St. Johns chapters. Watch this space for updates in the coming months!

The dates for the Conference are July 31 August 2, 2014. We have the Delta St. Johns tentatively booked.

What a chance for you to come see Canadas coolest city (quote from Danny Williams, Past Premier.

Immerse yourself in our culture at Newfoundland and Labradors largest public culture space. Its the place where it

all comes together - our history, heritage and artistic expression. The Rooms unites the Provincial Archives, Art Gallery

and Museum. A place for people. The Rooms is a portal to the many stories our province has to tell.

To see more about the Rooms visit their website as http://www.therooms.ca/abouttherooms.asp

UOAConnectionPage 10
mailto:[email protected]:[email protected]://www.ostomycanada.ca/maps/map.htmlhttp://www.ostomycanada.ca/maps/map.htmlmailto:[email protected]:[email protected]://www.therooms.ca/abouttherooms.asphttp://www.therooms.ca/abouttherooms.asphttp://www.therooms.ca/abouttherooms.aspmailto:[email protected]://www.ostomycanada.ca/maps/map.htmlmailto:[email protected]

UOAConnection February 2013

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