TiMS Meeting

MS Trust Conference, Beaumont estate, WindsorNovember 7th 2016

Welcome and Agenda

1. Looking back over 20162. Looking forward to 20173. Presentation of the TiMS Working Group

cup4. AOB

Looking back over 2016

1. Competency Framework2. Annual Review Form3. Newsletter

AHP Competency Framework Project

Competencies Framework

• List of 20 competencies

• PT, OT, SLT and dietitians

• Bands 5,6,7 and 8

• Knowledge and skills

Structures

• Excel• Accessible as complete document or by

Band/Profession• Similar structure for many of the

competencies• Tick box and date system; evidence of how

completed; link to CPD

Annual Review Form

• Required in line with MS Nice Guidelines 2014 and Quality Standards

• Currently there are many variations of assessment/annual review forms which would be good to standardise

Paper or electronic?

• Printed check list • Send out with clinic appt to focus thoughts to

get most out of appointment – supports self-management agenda

Electronic

• Electronic assessment checklist with a list of areas to be assessed

• Expands into more detailed assessment if appropriate, item by item

Who, what, when?

• Teams could trial and audit the form to make any necessary adjustments before finalised

• Forms could be used by pwMS and/or HCPs – GPs, AHPs, MS nurses

• Could also be used as a teaching aid

The proposal is to develop:

• A single sided check list for PwMS to focus thoughts for clinic – available on MST/TiMS website and marketed

• An Annual Review booklet similar to the other TiMS/MST Publications?

• An expandable electronic review form for formal review and to be used as a teaching aid

• Collaboration with other organisations e.g. UCHL

TiMS newsletter

Looking forward to 2017

• New Working Group members• MS Forward View• Working with pharma• Patient Activation Measure• New resources

Looking forward to 2017

New Working Group members

• Chris Beach – PT • Tania Burge – PT • Fiona Roberts – OT • Amy Smissen – OT• Still looking for SLTs/neuropsychs

MS Forward View

• Consensus statements about the priority actions needed to improve the equity, efficiency and effectiveness of MS services around the UK

• How can TiMS help?

MS Forward View

1. Every person with MS needs an individually tailored, flexible blend of symptom management, disease modification and neurorehabilitation…. with access to a MDT (with neuro-specialist skills).

MS Forward View

2. Services … should be centred around their needs and not around organisations. (HCP and social care) need to work together to develop pathways, share learning, agree standards and undertake joint audit so that pwMS experience seamless and integrated care … and know how to contact the service in between routine appointments.

MS Forward View

3. .. an MS health professional who assists the person to coordinate their care, especially at times of change… that includes clinical assessment … set their goals and putting in place the support and care they need to achieve them.

MS Forward View

4. Each year, MS teams should offer everyone with MS a comprehensive annual review with an appropriate health professional who has specialist expertise in MS.

MS Forward View

5. Every MS team should have a named professional lead for advanced MS. …. For some this includes timely access to palliative care.

MS Forward View

6. MS teams should make greater use of clinical expertise of MS (nurses and AHPs).

MS Forward View

7. Urgent need to make disease modifying drug monitoring safer, more efficient, cost-effective and convenient for pwMS.

MS Forward View

8. There is a need to reduce unwarranted variation in access to and use of DMDs in MS.

MS Forward View

9. MS services need to be able to plan services effectively, measure and reduce variation and audit and evaluate the outcomes of service provision. …need for a comprehensive set of measurable standards. The development of a common dataset and register of people with MS used by every MS team should be a priority.

Working with pharma

• TiMS increasingly contacted by pharma companies to help with: – policy documents – written information for pwMS– learning more about experience of MS

Working with pharma

• TiMS needs a policy on dealing with pharma

• Impartiality issues

• Need to change our constitution to reflect the relationship with pharma

Working with pharma

• TiMS members can work privately for pharma

• TiMS could potentially take a percentage of the earnings to fund independent projects

• Thoughts from the floor ….

Patient Activation Measure

• TiMS members have reported in their symptom management programmes that some people don’t progress because of their ‘readiness for change’ status

• PAM helps to identify those people but licence required to use it

• TiMS have asked us to try and be included in the first 250 licences (King’s Fund contact)

New resources

• Respiratory resource – assessment, research, information leaflet

• Ataxia – information leaflet for pwMS on coping strategies

• Cognition - resource for therapists• Any other ideas?

AOB

• Presentation of TiMS Working Group cup

• AOB