The Oncofertility ConsortiumAt Northwestern University

Current status and future directionsBrigid M. Smith, Kristin N. Smith, and Teresa K. Woodruff, PhD

Oncofertility ConsortiumThe Oncofertility Consortium® addresses the complex health care and quality-of-life issues that concern young cancer patients whose fertility may be threatened by their diagnosis and treatment.

The Consortium represents a nationwide, interdisciplinary, and interprofessional network of medical specialists, scientists, and scholars who are exploring the relationship between health, disease, survivorship and fertility preservation in young cancer patients. Their work and its findings may also extend to patients who have been diagnosed with other serious diseases and must undergo fertility-threatening treatments.

NIH Roadmap Grant received Oncofertility website launched Oncofertility book published OTC protocols open• # OTC patients: 2• Mean Age: 32.5 years

2006 2007 2008 2009 2010 2011 2012 2013 2014

Virtual Grand Rounds (VGRs) begin

Full time Patient Navigator hired

MyOncofertility website launched

National FERTline (866)708-FERT launched

Oncofertility: Ethical, Legal, Social & Medical Perspectives book published

• # OTC patients: 19• Mean Age: 27.3 years

iSaveFertility iPhone app developed

SaveMyFertility microsite launched

Oncofertility Medical Practice book published

Global Partners join Oncofertility Consortium

NIH SCIPPR U54 Grant received NPC relocates to Northwestern• # OTC patients: 34• Mean Age: 16 years

Oncofertility Communication book published

NPC expands to encompass non-REIs

Current OTC numbers:• # Patients: 204• Mean age: 21 years

The National Physicians Cooperative (NPC) is a nationwide network of centers dedicated to preserving the fertility of their patients. Patients with cancer and other serious diseases whose progression or treatment is likely to impair fertility can receive access to the most up to date treatments and clinical research at NPC member sites.

MISSION STATEMENT

To protect and preserve reproductive health through the continuum of care and across the lifespan of patients.

VISION STATEMENT

The National Physicians Cooperative will investigate ways to mitigate the effects of any disease or treatment on ovarian and testicular function and develop physician-guided tools that will facilitate communication and translation between basic research and clinical practice.

Testicular Tissue Cryopreservation protocol

IRB templates will be available on NPC website

Research Tissue will be sent to Dr. Kyle Orwig at University of Pittsburgh

Expansion of Pediatric Initiative Network Monthly conference calls

Oncofertility Consortium website upgrade Build-out male and adolescent pages Update provider and patient

resources Scientific Help Agreement for Research

Endeavors (SHARE) Program Follicle Take Home Kit Stadie Riggs tissue Slicer rental Ovarian Tissue Access Request

Process

National Physicians Cooperative Next Steps

“Oncofertility” coined Oncofertility

Consortium established NPC created with 4 core

institutions

2015 Oncofertility Conference

November 3-4, 2015*Chicago, IL

*in conjunction with Critical Mass

SAVE THE DATE!