The Lifespan Respite Care Program:Current Status and Future Directions

The Many Faces of Respite - 2011 Lifespan Respite ConferenceGlendale, AZNovember 2, 2011

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov | WEB www.aoa.gov

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The U.S. Administration on Aging

• Created in 1965 – Older Americans Act

• Focal point and advocate for older persons and their caregivers

• Supports the Aging Services Network– 56 State and Territorial Units on Aging– 629 Area Agencies on Aging– 246 Tribal and Native organizations– 18,000 service providers– Thousands of volunteers

AoA and the Aging Network Programs and Services• Supportive Services (Title III B)– adult day

care, information & assistance, transportation• Nutrition Services (Title III C 1 & 2)• Preventive Health Services (Title III D)• National Family Caregiver Support Program (Title III E)• Elder Rights – elder abuse investigations, Long-Term

Care Ombudsman Program (Title VII)• National Demonstrations (Title IV)• Other National Programs (non-OAA)

– Alzheimer’s Disease Supportive Services Program – Lifespan Respite Care Program

Respite: The ChallengesMultiple ProgramsMultiple Funding SourcesMultiple Entry PointsLimited ProvidersCaregiver AwarenessOther?

What are Lifespan Respite Care Programs?

Defined by the Lifespan Respite Care Act of 2006

(PL109-442) as:

Coordinated systems of accessible,

community-based respite care services for

family caregivers of children or adults with

special needs

Federal Program ObjectivesEnhance and Expand Respite ServicesImprove Coordination and DisseminationImprove Access and Fill Service GapsImprove Overall Service QualityVolunteer Recruitment, Training & RetentionRaise Public Awareness

Mandatory Uses of Funds

• Development or enhancement of State and local Lifespan Respite Systems

• Provision of respite services (planned or emergency)

• Recruitment and training of respite providers and volunteers

• Information for caregivers about available respite

• Assistance in gaining access to respite services

Program Implementation

Authorized by Congress in 2006Due to be Reauthorized in 2012Funded in 2009, 2010 & 2011 at $2.5 MillionPresident’s FY 12 Request: $10 MillionCompetitive Grant Process

29 States and DC funded between 2009 & 2011 Up to $200,000 for three year projectsTA Activities – ARCH National Respite Network &

Resource CenterExpansion Grants – 7 states and DC in 2011

WAAK

Hawaii

OR

CA

NV

ID

MT

WY

UT

AZ

CO

NM

TX

OK

KS

NE

SD

ND MN

IA

MO

AR

LAMS

TN

KY

IL

WIMI

INWV

AL GA

FL

SC

NC

VA

PA

NY

2009 Lifespan Respite States

DC

MD

DE

NJ

RI

MA

NH

VT

ME

OH

CT

2010 Lifespan Respite States

2011 Lifespan Respite States

Lifespan Respite States

Lifespan Respite Grantee Activities

Environmental Scans/Needs AssessmentsDefining Stakeholder Roles (ADRCs, Coalitions, Others)Connecting ADRCs and Respite CoalitionsPublic Awareness CampaignsWebsite/Database Development & ExpansionPartnerships with the Faith CommunityVolunteer Training and RecruitmentRespite Provision – Gap FillingProvider TrainingProtective Services Partnerships/Emergency Respite

2011 Program Expansion

• 7 States & DC Funded• Builds on Existing Projects• Focus on Respite• Data Collection• Key Expansion Activities:

– Vouchers/Flex Accounts/Affordable Respite Options– Quality Measures– Enhance Consumer Choice and Control– Standardize Referral Protocols– Formalize Marketing Strategies– Grow and Strengthen Coalitions

Looking Ahead

• Reauthorization• FY 2012 Budget and beyond• Technical Assistance• Outcomes/Performance/Data• Future Grant Opportunities

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov | WEB www.aoa.gov

Contact Me

Greg Link, MAAging Services Program Specialist

U.S. Administration on AgingWashington, DC

Greg.link@aoa.hhs.gov