SafeBeat - disadvantaged-hcsd - ach - 12-06-2010

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A Foundation Dedicated to the Prevention of Sudden Cardiac Arrest of the Adolescent Athlete and Young American Population www.SafeBeat.org a 501 (c)(3) not for profit SCREENING HEARTS - SAVING LIVES

Transcript of SafeBeat - disadvantaged-hcsd - ach - 12-06-2010

Page 1: SafeBeat - disadvantaged-hcsd - ach - 12-06-2010

A Foundation Dedicated to the Preventionof Sudden Cardiac Arrest of the Adolescent

Athlete and Young American Population

www.SafeBeat.org a 501 (c)(3) not for profit

SCREENING HEARTS - SAVING LIVES

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Initiative

Establishes life saving Heart Screening and Emergency Action Planning Programs in an effort to prevent Sudden Cardiac Arrest (death) of the adolescent athlete and young American population:

www.SafeBeat.org

VIDEO

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COLLABORATION PARTNERS

All Children’s Specialty Physicians, a wholly owned subsidiary of All Children’s Hospital, a 501 (c) (3) not for profit corporation and under the direction of the Medical Director of Pediatric Cardiology, Dr. Gul Dadlani:

Cardiac Arrhythmia Syndromes Foundation (CAS Foundation) (CASF) a 501 (c) (3) not for profit corporation founded by Jayne Vining, in memory

and honor of her son Marc who died of a congenital heart defect:

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PROGAM # 1 PARTICAPANTS

Primary;Economically disadvantaged and/or ethnic minority populations, ages 6 to 25 within ACH’s primary service area; Hillsborough, Manatee, Pasco, Pinellas, and Sarasota Counties (other counties as funding permits).

Secondary (as funding allows);Economically disadvantaged and/or ethnic minority adult populations within the counties of; Hillsborough, Manatee, Pasco, Pinellas, and Sarasota Counties (other counties as funding permits).

We will recruit these participants by providing services at organizations that also serve individuals in these demographics, including youth clubs, churches in low-income areas, civic associations, etc……

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DISPARITIES IN HEALTHCARE

The United States historically had large disparities in health and access to adequate healthcare between races, and current evidence supports the notion that these racially-centered disparities continue to exist and are a significant social health issue.* Demographic trends indicate that the number of Americans who are vulnerable to suffering the effects of heath care disparities will rise over the next half century.* Current data show that some ethnic minorities, as well as low-income families of whatever race or ethnicity, tend to be in poorer health than other Americans.*

* The National Healthcare Disparities Report, developed by the Agency for Healthcare Research and Quality (AHRQ/HHS)

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PROGRAM # 2 - BEGINNING WITH

Hillsborough County School District the eighth largest school district in America with 193,500 students and 55,000 students in grades 9 thru 12:

FUTURE PROGRAM PARTICIPANTS

Schools within All Children’s 17 county service area consisting of Citrus, Hernando, Pasco, Sumter, Pinellas, Hillsborough, Polk, DeSoto, Hardee, Highlands, Manatee, Sarasota, Charlotte, Collier, Glades, Hendry, and Lee:

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EducationRisk factors, symptom recognition, life style modification

Emergency Action PlansReactive preparedness, Chain of Survival

Heart Screening ServicesPersonal & family heart health histories, blood pressure (BP), body mass index (BMI), electrocardiogram (ECG)

Follow-up CareExpedited appointments (to minimize anxiety and/or ineligibility), FREE follow-up care for the uninsured

Create a Collaborative Research DatabaseAdvance the literature and create American based science

PROGRAM HIGHLIGHTS

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• 20 children between the ages of 6 & 18 will die today from sudden cardiac arrest caused by a Cardiac Arrhythmia Syndromes (CAS).

• 1 out of every 143 children has a Cardiac Arrhythmia Syndromes.

• Cardiac Arrhythmia Syndromes is more common in the United States than all childhood diseases combined.

• The first symptom in over 80% of the cases of sudden cardiac arrest is death.

• 70% of the causes of sudden cardiac death by cardiac arrhythmias are detected by heart screening.

STATISTICS

VIDEO

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• The African American population has been found to suffer sudden cardiac arrest 3 to 5 times more than all other races.

• Cardiac Arrhythmia Syndromes are genetic and hereditary. Screening one family member could very well save the lives of other family members.

• Once a Cardiac Arrhythmia Syndromes is detected and 1st and 2nd degree family members are tested, an average of nine additional cases are found.

• Once diagnosed, these syndromes are treatable, and individuals with these conditions can have normal life spans and lifestyles.

STATISTICS

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You will literately help save thousands of lives, not only of the children screened but that of their 1st and 2nd degree family members and by doing so you’ll help prevent untold grief and profound DESPAIR

THE BENEFITS OF SUPPORTING THE INITIATIVE

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“To not succeed is not an option; as to not succeed is to needlessly cost children their lives from detectable and treatable cardiac conditions and that’s a price I’m not willing to pay”.

Jayne Vining

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“Together Making A Difference”

Screening Hearts – Saving Lives

Will you please help us???