PLOT-IT FORCE2015
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Transcript of PLOT-IT FORCE2015
Ways the Public Collaborates
With PLOT-IT
PLOT Prioritize
choose, supply
Research Questions
Living Systematic
Review
Project Planning, Recruiting
Steering group, Peer Advocacy,
Crowd-source Teaching &
Funding
Design, Develop &
Test Platform and Protocol
Analyse, interpret and disseminate
How Participants Can Help
Amy Price Amanda Burls and Su May Liew
ThinkWell
Application Requires Preparation
The application of
what we know already will
have a bigger impact on health
and disease than any drug or
technology likely to be
introduced in the next decade.
Sir Muir Gray.
Amy Price Amanda Burls and Su May Liew
How Learning Changes Function
The world will not
evolve past its current
state of crisis by using
the same thinking that
created the situation.
- Albert Einstein,
scientist (1879-
1955)
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Amy Price Amanda Burls and Su May Liew
The Public SpeaksThe first thing we need is a list of those things that make people feel
powerless and a set of limited achievable objects to start removing
the barriers to people taking control of the health science process.
Amy Price Amanda Burls and Su May Liew
What I learned From Qualitative Research
Shame slows the Train
Amy Price Amanda Burls and Su May Liew
Paralyzed By Shame & Not Lack of Information
The miracle is not that I finished but that I had the courage to start J
Bingham
Amy Price Amanda Burls and Su May Liew
Perspective Matters
It doesn’t have to be comfortable to work
Amy Price Amanda Burls and Su May Liew
Pattern recognition can float your boat
or sink your ship
Behavior is more than knowledge
Amy Price Amanda Burls and Su May Liew
Does drinking water reduce
headaches?
Join study My data Contact usLearn more
H2O Study
ThinkWell
Amy Price Amanda Burls and Su May Liew
Where The Public Decides Research Priorities
DO IT TOGETHER YOUR WAY!
Choose topic
Hands On
learning
Do The Research
• Bio-
Feedback for
Pain
• Aging
without
Alzheimer’s
Disease
• Drinking
water is it a
weight loss
tool?
Amy Price Amanda Burls and Su May Liew
Tell us about you
Trial information
Consent
Tasks
What’s in it for me
Consent for observational data, no randomization
yet Each layer separate sections
Amy Price Amanda Burls and Su May Liew
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Should we drink
extra water?
And if so, how
much? Join in
research
to find
out!
You expressed interest
in headaches
and drinking extra water
Amy Price Amanda Burls and Su May
Liew
Amy Price Amanda Burls and Su May Liew
.5
1
5 76 8
Join in
research
to find
out!
How much water do I drink?
2
2
2
1
3 4
1 3 4
Forgot? Drink the extra
when you remember
=500ml
=120ml
=1L
=2L
Amy Price Amanda Burls and Su May Liew
Record fluid intake
Personal Dashboard
Record intake and report
outcomes
daily
Not done
Reminders
Day to Day Trial Activity
The public is smart enough to master risk, odds and ethics while conducting
research. They have untapped potential for improving decision-making,
education, policy and advocacy. Join us to provide them with training and a
voice
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The most under-realized resource is the participant.
Amy Price Amanda Burls and Su May Liew
Got Online Trials?
You can build them: We can help!
Amy Price Amanda Burls and Su May Liew
Find us at
http://ithinkwell.org