Nico Brochure English

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FACTS ABOUT ME !FACTS ABOUT ME1 I was born in Medellin, Colombia on the 10th of

February 1998.

1 I was Diagnosed with Angelman Syndrome on

May 2003.

1 I was a Blessing for my parents Luisa Otero

and Oscar Betancourt.

1 I live in St Louis Missouri, US with my mother

Luisa , my stepfather Mike and Paul an Andrew

my stepbrothers.

1 I have great and very cool cousins , Isa, Gaby,

July, Dany , Jaime Andres , Andrea and

Andres Felipe.

1 I Have a lot of sensory needs, put rubber

things in my mouth, chewing , massages and

some pressure in my head or ears generallymake me calmer.

1 I attend Ackerman Special School in St Louis.

1 I have Speech therapy and Ocupational

therapy at school.

1 I go twice a week to my Biofeedback Sensory

integration sessions.

1 I Can walk very fast , I like to walk and run

around the house with my stepbrothers, we doa lot of laps in a few seconds, they barely can

reach me.

1 I love to jump on the trampoline, but beds are

great too!

1 My favorite food is Pasta, Tortellinis and

Noodles are the best!

1 My favorite snacks are Graham crackers,

Golden Cereal, and Pita chips, sometimes I

choose to eat only crunchy food.

1 I am a Water drinker, after that I like to

drink shakes and hot chocolate.

I was born in Medellin, Colombia on the 10th of

February 1998.

I was Diagnosed with Angelman Syndrome on

May 2003.

I was a Blessing for my parents Luisa Otero

and Oscar Betancourt.

I live in St Louis Missouri, US with my mother

Luisa , my stepfather Mike and Paul an Andrew

my stepbrothers.

I have great and very cool cousins , Isa, Gaby,

July, Dany , Jaime Andres , Andrea and

Andres Felipe.

I Have a lot of sensory needs, put rubber

things in my mouth, chewing , massages and

some pressure in my head or ears generallymake me calmer.

I attend Ackerman Special School in St Louis.

I have Speech therapy and Ocupational

therapy at school.

I go twice a week to my Biofeedback Sensory

integration sessions.

I Can walk very fast , I like to walk and run

around the house with my stepbrothers, we doa lot of laps in a few seconds, they barely can

reach me.

I love to jump on the trampoline, but beds are

great too!

My favorite food is Pasta, Tortellinis and

Noodles are the best!

My favorite snacks are Graham crackers,

Golden Cereal, and Pita chips, sometimes I

choose to eat only crunchy food.

I am a Water drinker, after that I like to

drink shakes and hot chocolate.

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1

1

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1

1

1

1

1

1

1

1

1 © Design Christos [email protected]

HI

I’m

HI

I ’m

NICOICO

I have

Angelman Syndrome

Thanks for taking the time

to learn more about me

May 2009

You can contact my Mom Luisa

by email on [email protected]

or by phone 314 524 6789 Home or

314 327 9678 Cell

You can contact my Mom Luisa

by email on [email protected]

or by phone 314 524 6789 Home or

314 327 9678 Cell



Angelman

syndrome is rare

non-degenerative

neurological

disorder. I have a

deletion in my

chromosome 15that affects

parts of my brain

particularly

associated with

language and movement. You can find more

detailed information on the Angelman Syndrome

Foundation website www.angelman.org or

www.angelmanforum.org The form of Angelman

Syndrome I have, is nonhereditary from my

family.

Angelman

syndrome is rare

non-degenerative

neurological

disorder. I have a

deletion in my

chromosome 15that affects

parts of my brain

particularly

associated with

language and movement. You can find more

detailed information on the Angelman Syndrome

Foundation website www.angelman.org or

www.angelmanforum.org The form of Angelman

Syndrome I have, is nonhereditary from my

family.

I am still a boy who enjoys the same things as

most other boys.

These are things in particular that I like:

0 Smiles , Words and Hugs from you0 Walking, running and climbing

0 bubble baths, Pools

0 Being outdoors

0 Being on a trampoline

0 Watching videos, Barney, Ernie and theGiggles, are still my favorites

0 Listening music and Dancing. From Classical to

Colombian, music is great!

0 Playing with sand

0 Soft play areas

0 Sliding down chutes

0 Eating & drinking

0 Getting massages

I am still a boy who enjoys the same things as

most other boys.

These are things in particular that I like:

Smiles , Words and Hugs from youWalking, running and climbing

bubble baths, Pools

Being outdoors

Being on a trampoline

Watching videos, Barney, Ernie and theGiggles, are still my favorites

Listening music and Dancing. From Classical to

Colombian, music is great!

Playing with sand

Soft play areas

Sliding down chutes

Eating & drinking

Getting massages

000

0

0

0

0

0

0

0

0

0There are many characteristics of Angelman

Syndrome

Some of the common ones that I share are:

1 Happy, smiling demeanor; easily excitable

personality

1 Developmental Delay (but no loss of skills)

1 Speech Impairment (non-verbal)

1 Movement or balance disorder usually

ataxia of gait

1 Hyperactivity, short attention span

1 Excessive chewing/mouthing behaviour

1 Seizures, abnormal EEG

1 Sleeping Disorder

1Obsession with water

There are many characteristics of Angelman

Syndrome

Some of the common ones that I share are:

Happy, smiling demeanor; easily excitable

personality

Developmental Delay (but no loss of skills)

Speech Impairment (non-verbal)

Movement or balance disorder usually

ataxia of gait

Excessive chewing/mouthing behaviour

1111

1111

1 Hyperactivity, short attention span

Seizures, abnormal EEG

Sleeping Disorder

Obsession with water

0

Walking, Running, Climbing0 Greeting people

0 Smiling

0 Making people laugh

0 Giving kisses

0 Finding water to play in

0 Emptying things

0

Tearing paper

0Walking, Running, Climbing

0 Greeting people

0 Smiling

0 Making people laugh

0 Giving kisses

0 Finding water to play in

0 Emptying things

0Tearing paper

WHAT MY FAMILY & FRIENDS SAYH A T M Y F A M I L Y & F RI E N D S S A YWHAT IS ANGELMAN SYNDROME ?HAT IS ANGELMAN SYNDROME ? REMEMBEREMEMBER

ABOUT ANGELMAN SYNDROME ?BOUT ANGELMAN SYNDROME ?

THINGS I AM GOOD AT HINGS I AM GOOD AT

NICO will always

have a great

unconditional smile,

he offers me his

hugs and his unique

energy; the sound ofhis laughter brings

joy to any place and

makes us feel united

around a special and

delicate star.

Uncle Quique

“NICO.... is an angel that heaven gave us, his

family, so that when we look at him in theeyes we can remember the kindness and

sweetness of God's own look.”

Aunt Cecilia

“When I want to feel the beauty of God

beyond what surrounds me, all I need to do is

to bring his eyes

and his smile to

memory.” Nico's

Dad

“Nico is love

personified...he

is the most

beautiful angel on the planet. Every day I

thank the supreme God for having me allowed

the gift of spending time of his existence by

his side, and for sharing with him his energy,

filled with love and sweetness. “

Grandmother Elsa

NICO will always

have a great

unconditional smile,

he offers me his

hugs and his unique

energy; the sound ofhis laughter brings

joy to any place and

makes us feel united

around a special and

delicate star.

Uncle Quique

NICO.... is an angel that heaven gave us, his

family, so that when we look at him in theeyes we can remember the kindness and

sweetness of God's own look.”

Aunt Cecilia

“When I want to feel the beauty of God

beyond what surrounds me, all I need to do is

to bring his eyes

and his smile to

memory.” Nico's

Dad

“Nico is love

personified...he

is the most

beautiful angel on the planet. Every day I

thank the supreme God for having me allowed

the gift of spending time of his existence by

his side, and for sharing with him his energy,

filled with love and sweetness. “

Grandmother Elsa

“



! Excessive chewing/mouthing behavior

! Seizures Disorder. abnormal EEG

! Sleeping Disorder

! Water Obsession

ABOUT ME

0 I was born in Medellin, Colombia on the 10th of February 1998.

0 I was Diagnosed with Angelman Syndrome on May 2003.

0 I was a Blessing for my parents Luisa Otero and Oscar Betancourt.

0 I live in St Louis Missouri, US with my mother Luisa , my stepfather Mike and Paul anAndrew my stepbrothers.

0 I have great and very cool cousins , Isa, Gaby, July, Dany , Jaime Andres , Andrea andAndres Felipe.

0 I Have a lot of sensory needs, put rubber things in my mouth, chewing , massages andsome pressure in my head or ears generally make me calmer.

0 I attend Ackerman Special School in St Louis.

0 I have Speech therapy and Ocupational therapy at school.

0 I go twice a week to my Biofeedback Sensory integration sessions.

0 I Can walk very fast , I like to walk and run around the house with my stepbrothers, we

do a lot of laps in a few seconds, they barely can reach me.

0 I love to jump on the trampoline, but beds are great too!

0 My favorite food is Pasta, Tortellinis and Noodles are the best!

0 My favorite snacks are Graham crackers, Golden Cereal, and Pita chips, sometimes Ichoose to eat only crunchy food.

0 I am a Water drinker, after that I like to drink shakes and hot chocolate.

REMEMBER

................................

! Smiles , Words and Hugs from you

Nico Brochure English

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