NASUH MALASMD/MPH CANDIDATE 2009

UNIVERSITY OF WISCONSIN-MADISON SCHOOL OF MEDICINE AND PUBLIC HEALTH

JIM SAVAGEDIRECTOR OF THE KOHL’S SAFETY CENTERAMERICAN FAMILY CHILDREN’S HOSPITAL

UNIVERSITY OF WISCONSIN-MADISON

Safety for Special Kids Project: Injury Prevention for Children with Special Health

Care Needs

Acknowledgements

Thanks to: American Family Children’s Hospital

Kohl’s Safety CenterWaisman Center

The MCH-LEND ProgramSAFE Kids Coalition of Dane CountyThe Special Needs Advisory CouncilThe Kohl’s Safety Center Partners

Outline

IntroductionGoals and ObjectivesPartnershipsResources and OutreachSustainabilityExpected ResultsDiscussionConclusionReferences

Injury Prevention and Advocacy

“Life affords no greater responsibility, no greater privilege, than the raising of the

next generation.” - C. Everett Koop

Introduction

Unintentional Injury Leading cause of mortality for children ≤15 years of age1

35 child deaths each day2

30 million emergency room visits each year1

400 billion dollars yearly in expense and lost productivity1

1. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Control and Prevention. “State Injury Indicators Report: 3rd Edition”. July 2004

2. Brixey, S. et al. “Injuries can be prevented.” WMJ. Feb 2005. Vol 104. Issue 2. 19-20

Introduction

Wisconsin 70% of all injuries in Wisconsin are due to unintentional

injuries1,2

31,623 hospitalizations, of which 2,288 were for children1

Over 3,000 injury-related deaths and approximately 1 of every 6 deaths occurs in children2, 3

Costs 619 million dollars yearly2

Motor vehicle injuries account for the majority of Wisconsin injuries, at 40%, followed by falls and poisonings4

1. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Control and Prevention. “State Injury Indicators Report: 3rd Edition”. July 2004

2. Wisconsin Department of Health and Family Services. “Wisconsin Injury Prevention Program”. http://www.dhfs.state.wi.us/Health/InjuryPrevention/ Accessed: June 3, 2008

3. Peterson, N. “Community-Based Injury Prevention Programs: Toward a Safer Wisconsin”. WMJ. Dec 2000. Vol 99. No 9. 22-26

4. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Control and Prevention. “State Injury Profile for Wisconsin”. 1989-1998.

Introduction

Unintentional Injury and Children with Special Needs Definition:

“…children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required for children generally.”1

13-18% of the general child population Higher risk for injuries 2,3,4

Lack of preventative service and programming

1. Perrin, J. et al. “A family-centered, community-based system of services for child and youth with special health care needs”. Arch of Pediatric Adolescent Med. Oct 2007. Vol 161. No 10. 933-936

2. Spira-Gaebler, D. et al. “Injury Prevention for children with disabilities”. Physical Medicine and Rehabilitation Clinics of North America. 2002. Vol 13. 891-906

3. Maternal and Child Health Bureau of Health Resources and Services Administration.Injury Prevention Information for Children with Special Health Care Needs”. http://mchb.hrsa.gov/child/specialcareneeds.htm Accessed: June 12, 2008

4. Sherrard, J. et al. “Injury risk in young people with intellectual disability”. Jan 2002. Vol 46. No 1. 6-16

Introduction

Kohl’s Safety Center Opened October 2007

14’x 14’ facility providing childhood injury prevention resources

Serves Wisconsin, northern Illinois and northeastern Iowa

Supported by Kohl’s Department Stores’ “Kohl’s Cares for Kids Program”

Introduction

Safety for Special Kids Project

Comprehensive initiative to incorporate safety resources for children with special needs and their families

Multidisciplinary Council guides project: Selection of Safety Products

Preliminary stock of special needs friendly products

Pursuit of Funding Resources

Submission of CVS/Caremark Foundation Grant

Development of Educational Materials

Child Injury Prevention Parent Handbook

Goals

Goals:1. Enhance caregiver's understanding of the value of injury

prevention

2. Increase awareness among families of special needs resources

3. Improve comfort in use of special needs injury prevention products

4. Reduce burden of cost incurred when ensuring injury prevention

5. Improve referral rates by providers to the Safety Center for special needs products

6. Increase physician education in counseling families about the importance of injury prevention in the special needs population

Objectives

Objectives (By Jan 1, 2010): 1. Serve the safety needs of 4,000 families served by the

Waisman Center and American Family Children's Hospital.

2. Offer on-site safe home evacuation assessments and general home safety assessments at least twice a month.

3. Provide education to families during visits to the Safety Center Store and the Waisman Center

4. Distribute all 1,060 of the special needs safety products to families

5. Phone consultation to families seeking information on special needs

Partnerships

Broad pool of partners Waisman Center

American Family Children’s Hospital

Special Needs Advisory Council

Key stakeholders

Guide selection of resources

Promotion through community and health-based networks

Suggest innovative funding channels

Evaluation tools

Resources and Outreach

Safety resource recommendations: Product Inventory

Broad, community-based promotional campaign

Waisman Center Collaboration

Improved website capabilities

“Childhood Injury Prevention Handbook for Parents”

Sustainability

Continuing financial commitment from hospital administration

CVS/Caremark Charitable Trust Grant

Other funding sources: Children’s Hospital, Safe Kids, Kohl’s

Challenge: maintain pool of funds to purchase special needs products and provide them to families at little to no cost

Expected Results

Proposed Partnerships Start locally, then move throughout the county and state

Strongest partnership forged with the Waisman Center

Additional partners: Madison Fire Department

American Family Children’s Hospital

Madison Area Down Syndrome Society

University of Wisconsin School of Medicine and Public Health 

Expected Results

Future support: Local law enforcement

Birth to 3 programs

Local public health offices

UW Poison Prevention and Education center

Wisconsin Department of Transportation

Wisconsin Department of Agriculture

Trade and Consumer Protection

AAA Wisconsin

Safe Community Coalition of Madison and Dane County

Expected Results

Evaluation Tools Simple needs assessment

Convenience sample of families of children with special needs

Offered at clinical visits or other visits to Waisman Center

Address epidemiology, safety concerns, and barriers to care

Evaluation will be both qualitative and quantitative

Qualitative Data

Survey at least 1% of our target population, or 40 families

Survey providers at Waisman Center and Children’s Hospital

Quantitative Data

Tally visits or calls requesting special needs safety resources

Tabulate number of families that obtain safety products

Discussion

Basic foundation to ensure long term success

Driving force: large need, dedicated faculty, staff and family advocates

Cornerstone of project: Special Needs Advisory Council

Unique products and services provide a niche market for the Safety Center

Should lead to further financial support and community advocacy for the project

Discussion

Limitations: Financial sustainability Staff and Space Addressing the issue of self injurious behavior and child

abuse Realize burden of unintentional injury in special needs

population Need further study

Kohl’s Safety Center: Safety for Special Kids Concise goals and objectives, with quantitative and

qualitative evaluative tools, provide requisite measures to gauge progress

After one year, able to determine if efforts will bear fruit

Conclusion

Novel Approach to Injury Prevention

Address concerns of families with children with special health needs

Currently: Initiation and Preparation

Created Special Needs Advisory Council

Final phases of creating the Injury Prevention Handbook for Parents

Pursuing funding opportunities

Future directions

Questions?