M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Message from the Editorial TeamMessage from Anna Ugalde and Anna Boltong

Welcome to the May 2013 edition of the MASCC Society News. We are very pleased to report some exciting news regarding upcoming MASCC Conferences. Firstly, we feature a piece on the 2016 MASCC International Symposia, which will be held in Adelaide, Australia! This will be the first time that MASCC has been held outside of USA or Europe, and because your Newsletter Co-editors are proud, warm and friendly Australians, we hope you come and visit us in the southern hemisphere. We also feature an update for the MASCC June 2013 Symposia in Berlin, some information about MASCC’s membership with UICC and, as in prior newsletters, there’s an opportunity to read up on the latest MASCC member publications and meet our newest MASCC members. This month we profile the work of the Australian Cancer Survivorship Centre, based in Melbourne, Australia. We hope to feature the supportive care work of more cancer institutes around the world in future editions, so please get in touch with us so we can tell your story! We can be contacted at anna.ugalde@svhm.org.au or anna.boltong@petermac.org.

We hope you enjoy this edition.Anna & Anna

MASCC Comes to Australia!Announcing Adelaide as host city to the MASCC Symposium, 2016!

Professor Ian Olver (CEO, Cancer Council Australia) and Professor Dorothy Keefe (Service Director, South Australia Cancer Service) gave the following comments about the 2016 MASCC Symposium to be held in Adelaide:

Q. What was the process of application for the MASCC meeting to come to Adelaide?

Momentum has been building to host the MASCC symposium in Australia for several years. An Australian bid team was convened in mid-2012 (Ian Olver, Richard Logan, Jude Lees, Alex Chan, Alex Molasiotis and Dorothy Keefe) to consider several Australian cities as the potential host. The South Australian Government strongly supported this Adelaide 2016 bid and we were lucky enough to be selected to host by the MASCC Board.

Q. Why has Adelaide been selected to host MASCC in 2016?

Our professional bid was supported by the fact that this will be the first MASCC meeting in the Asia-Pacific region. We have local organising committee members from Hong Kong and Singapore and we will actively encourage attendance from all the other Asian countries. This will be a great thing for MASCC and we anticipate it will lead to an expansion in membership and influence, making us a truly "multinational" society.

Q. Tell us a bit about Adelaide - what can people expect from the city and why should they travel to Australia?

Adelaide is the Capital City of South Australia with a population of 1 million residents. The city boasts a thriving Arts, heritage, and food and wine scene with wonderful wildlife and is a central gateway to the rest of Australia. It is a convenient city of ideal size for the MASCC meeting and will be the drawing card for the trip of a lifetime for many MASCC members. By 2016 Adelaide will have completed its new "Riverbank" precinct with new Hospital, Research Institute, Convention Centre and University buildings (not to mention the upgrade of the World-famous Cricket Oval) so it will be perfect timing to show these off during our annual meeting in which we learn about and discuss the best supportive care science.

NEWS

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

MASCC Comes to Australia (continued)

Q. What are you most excited about with regards to hosting MASCC in your home city?

We look forward to showcasing local research and to welcoming experts from around the world who will stimulate interest in patient centered supportive care. Annual MASCC symposiums have given us the opportunity to visit many MASCC friends and colleagues in their home countries and cities. It will be wonderful to have the same opportunity to host them all in Australia – we have a great deal to show them and tell them!

MASCC: Member of Union for International Cancer Control MASCC is, once again, a member of UICC in 2013, committed to the global fight against cancer. UICC

members share a passion to eliminate cancer as a life-threatening disease and the network brings together

organisations that all contribute to shape cancer control world-wide. Current UICC membership comprises more

than 760 member organisations in 155 countries. For more information, please visit uicc.org

Meet a new MASCC Member!MASCC membership continues to increase. Currently, there are over 700 members worldwide. Each month we profile some of the new members in the MASCC community.

Elizabeth Feldman

I am Maxillofacial Prosthodontist, Chief Section leader of Maxillofacial Prosthodontics, Dental Oncology at MD Anderson Cancer Center Orlando in Orlando, Florida. I am involved in supportive care because my patients are mostly head and neck cancer patients receiving chemotherapy and/or radiation treatment, I am always looking for novel ways to help them get through treatment through supportive care. I have decided to join MASCC to gain more awareness about supportive care and advance my self-education. I hope membership will increase participation with other leaders. treating the patients I encounter daily

Ray Chan

I am the Nurse Researcher for Cancer Care Services at the Royal Brisbane and Women's Hospital, Brisbane, Australia. I have a clinical background in palliative/cancer care nursing. Subsequently, I have been involved in a number of research programs/activities around end-of-life care, symptom self-management, central venous device related complications and skin toxicity. I am interested in MASCC as I strongly believe that high quality and evidence-based supportive care is extremely important for cancer patients. I joined MASCC/ISOO, because I would like to take advantage of networking with other key researchers/clinicians around the globe in my area of research through the study groups, in particular, the Fatigue Study Group.

Sulamita Miranda

I am a pharmacist, clinical pharmacy and pharmaceutical care specialist, now finished my residency in oncology service Barros Luco Hospital, Santiago, Chile. I

am interested in supportive care as pharmaceutical care has an important role in monitoring chemotherapy toxicity. It is important to know that pharmacists

support therapies for the management of adverse events. I have joined MASCC to access information on supportive care for cancer patients.

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

New MASCC Members (continued)

Hans Helge Bartsch, M.D.

I am the Medical Director of the Tumor Biology Center and Professor of Internal Medicine at the Albert-Ludwigs University in Freiburg, Germany. I have Board Certification in Hematology and Medical Oncology and I have been actively involved in supportive and rehabilitative strategies for cancer patients over the past 20 years. Our center was among the first in Germany to get accreditation as an ESMO center of integrated and palliative care in cancer. As chair of the working group for supportive and rehabilitative care within the German Cancer Society, building a bridge to work more closely with MASCC/ISOO was an obvious step, given it’s global importance for supportive care in cancer. We look forward to hosting all members of MASCC/ISOO June 2013 in Berlin!

Profile: Australian Cancer Survivorship Centre (ACSC)

Linda Nolte, a new MASCC member, commenced as the Manager of the ACSC in January 2013. She tells us a bit about the Centre and its work:

Q. Who are the ACSC and what do you do?

The ACSC is based at Peter MacCallum Cancer Centre in Melbourne, Victoria, Australia. The ACSC consists of a small multidisciplinary team including the Clinical Director Associate Professor Michael Jefford, a longstanding member of MASCC. We work with multidisciplinary oncology teams at Peter Mac and throughout Victoria to

facilitate improved care for survivors. The ACSC program includes a range of projects and activities to implement survivorship care plans, develop health professional education and training modules, publish consumer information resources, and support government funded pilot projects.

Q. Why is your work important and how do your goals align with those of MASCC?

Research shows there is an important need to address issues faced by cancer survivors during and beyond acute cancer treatment. The ACSC program and its objectives align with the Rehabilitation-Survivorship-Quality of Life Study Group of MASCC. The goal of the ACSC is to support improvements in care for people affected by cancer including the implementation of survivorship care plans at Peter Mac. Survivorship care planning includes the assessment and identification of supportive care needs, provision of treatment and information, and a documented patient owned care plan. These care plans are used to optimize the physical, social, psychological and vocational functioning of patients, taking into consideration the type of cancer experienced and its side effects.

Q. What are you working on right now?

In 2013, ACSC will be developing and releasing a new strategic plan. We also plan to publish new consumer information resources for Chinese and Greek cancer patients, launch a national online education module for cancer nurses and state based education module of allied health professionals, as well as conduct an evaluation of our survivorship care planning project. To find out more about ACSC please visit our website http://www.petermac.org/cancersurvivorship/Home.

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Have any news items to share?

Please send contributions for the MASCC News to MASCCnews@mascc.org or the co-editors:

Anna Ugalde - anna.ugalde@svhm.org.au & Anna Boltong - anna.boltong@petermac.org

For more information please contact: Åge Schultz, MASCC Executive Director - aschultz@mascc.org

Some New Supportive Care Publications by MASCC MembersMolassiotis A, Bardy J, Finnegan-John J, Mackereth P, Ryder WD, Filshie J, Ream E, Eaton D, Richardson A. A randomized, controlled trial of acupuncture self-needling as maintenance therapy for cancer-related fatigue after therapist-delivered acupuncture. Ann Oncol. Epub 2013 Feb 21. PubMed PMID: 23436910

Stover AM, Reeve BB, Piper BF, Alfano CM, Smith AW, Mitchell SA, Bernstein L, Baumgartner KB, McTiernan A, Ballard-Barbash R. Deriving clinically meaningful cut-scores for fatigue in a cohort of breast cancer survivors: a Health, Eating, Activity and Lifestyle (HEAL) Study. Qual Life Res. Epub 2013 Feb 19. PubMed PMID: 23420495

Boers-Doets CB, Gelderblom H, Lacouture ME, Epstein JB, Nortier JW, Kaptein AA. Experiences with the FACT-EGFRI-18 instrument in EGFRI-associated mucocutaneous adverse events. Support Care Cancer. Epub 2013 Feb 17. Pubmed PMID: 23417565

Donovan KA, Jacobsen PB. Progress in the Implementation of NCCN Guidelines for Distress Management by Member Institutions. J Natl Compr Canc Netw. 2013 Feb 1;11(2):223-6. PMID: 23411388

Stringer AM, Al-Dasooqi N, Bowen JM, Tan TH, Radzuan M, Logan RM, Mayo B, Keefe DM, Gibson RJ. Biomarkers of chemotherapy-induced diarrhoea: a clinical study of intestinal microbiome alterations, inflammation and circulating matrix metalloproteinases. Support Care Cancer. Epub 2013 Feb 10. PubMed PMID: 23397098

Currow DC, Agar M, Abernethy AP. Hospital can be the actively chosen place for death. J Clin Oncol. 2013 Feb 10;31(5):651-2. doi: 10.1200/JCO.2012.46.2556. PubMed PMID: 23295796

Fearon K, Arends J, Baracos V. Understanding the mechanisms and treatment options in cancer cachexia. Nat Rev Clin Oncol. 2013 Feb;10(2):90-9. doi: 10.1038/nrclinonc.2012.209. PubMed PMID: 23207794

Aapro MS, Schmoll HJ, Jahn F, Carides AD, Webb RT. Review of the efficacy of aprepitant for the prevention of chemotherapy-induced nausea and vomiting in a range of tumor types. Cancer Treat Rev. 2013 Feb;39(1):113-7. doi: 10.1016/j.ctrv.2012.09.002. PubMed PMID: 23062719

Stauder MC, Romero Y, Kabat B, Atherton PJ, Geno D, Deschamps C, Jatoi A, Sloan JA, Botros M, Jung KW, Arora AS, Miller RC; EABE Registry Consortium. Overall survival and self-reported fatigue in patients with esophageal cancer. Support Care Cancer. 2013 Feb;21(2):511-9. doi: 10.1007/s00520-012-1537-1. PubMed PMID: 22842921

Ganzer H, Touger-Decker R, Parrott JS, Murphy BA, Epstein JB, Huhmann MB. Symptom burden in head and neck cancer: impact upon oral energy and protein intake. Support Care Cancer. 2013 Feb;21(2):495-503. doi: 10.1007/s00520-012-1542-4. PubMed PMID: 22825457

Catania G, Bell C, Ottonelli S, Marchetti M, Bryce J, Grossi A, Costantini M. Cancer-related fatigue in Italian cancer patients: validation of the Italian version of the Brief Fatigue Inventory (BFI). Support Care Cancer. 2013 Feb;21(2):413-9. doi: 10.1007/s00520-012-1539-z. PubMed PMID: 22790224

Gibson F, Shipway L, Aldiss S, Hawkins J, King W, Parr M, Ridout D, Verity R, Taylor RM. Exploring the work of nurses who administer chemotherapy to children and young people. Eur J Oncol Nurs. 2013 Feb;17(1):59-69. doi: 10.1016/j.ejon.2012.01.006. PubMed PMID: 22464655