1. Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee @healthbyus #vutechtalk Medical Doctor as Maker Designer Participatory Design for Healthcare 2. I have no ties to any pharmaceutical companies Social Media/Web Editor of JAMA Pediatrics 3. Obesity & Type 2 Diabetes: Biomarkers/Child Health Policy Type 1 Diabetes: Learning Health Systems Mobile Technology/Data Visualization/ Participatory Design/Online Communities 4. Folk in black turtlenecks and designer glasses working on small things like the Apple Watch -TB This is a medical designer 5. A pediatric endocrinologist who spends her days seeing patients in clinic and writing grants & papers that no one will ever read? This is a medical designer? No black turtleneck? No designer glasses? 6. Part 1: A Personal Design Experiment 7. B 8. #design #fail 9. #lazytigermother 10. 700+ students & 40 teachers 11. #designsuccess #proudtigermother 1769 views! 12. http://ihavefoodallergies.tumblr.com 13. Bs Trilogy Part 2: Ingredients and Food Handling 14. Bs Trilogy Part 3: Asthma 15. #design #fail 16. Design Insights about the Production of Health and the Future of Medicine 17. We were experts 18. We were makers 19. We were collaborators 20. Patient as expert maker collaborator #futureofhealthcare 21. Part #2 of the journey: Learning to design is learning to see -Oliver Reichenstein 22. #design #suckiness 23. The needle is opposite to the cap, which is counter- intuitive Design Flaw #1 24. >15,000 Unintentional injections from Epi-Pens in the US between 1994-2007 There were 25. 0 500 1000 1500 2000 2500 3000 < 6 yrs 6-12 yrs18-64 yrs Total 13-17 yrs >64 yrs Unintentional Injections with Epinephrine auto-injectors Simons, 2010 26. Greenberg, 2010 A large number of health care professionals including nurses, p a r a m e d i c s , a n d p h y s i c i a n s inadvertently self-inject while attempting to administer the EpiPen to patients 365 injections over 6 years in 1 poison ctr 27. Life or death is stressful! Dont make me think! Design Flaw #2 28. Its an awkward size, & doesnt fit in your pockets Design Flaw #3 29. Blackberry iPhone 30. Redesign #1 31. Redesign #2 32. Redesign #3 33. It was designed by patients! 34. patients frequently do not understand how and when to use [the epi-pen]. Sicherer, 2011In medicine, we often blame the patient 35. patients frequently do not understand how and when to use [the epi-pen]. Sicherer, 2011But is it a patient problem or is it a design problem? The needle is opposite to the cap, which is counter- intuitive 36. Sicherer, 2011In medicine, we often blame the patient Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common 37. Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common Sicherer, 2011But is it a patient problem or is it a design problem? Life or death is stressful! Dont make me think! 38. patients often forget [the device],allow it to expireSicherer, 2011In medicine, we often blame the patient 39. But is it a patient problem or is it a design problem? patients often forget [the device],allow it to expireSicherer, 2011Its an awkward size, & doesnt fit in your pockets 40. Patient problems are really design problems 41. Fix the design, and its no longer the patients problem 42. Let patients and caregivers design, and they will fix the problem! The Nightscout Project 43. 75% of children fail to achieve recommended blood sugar goals in Type 1 Diabetes 44. 75% of healthcare providers/ systems fail to help children achieve recommended blood sugar goals in Type 1 Diabetes 45. Part #3 of the Journey #polarvortex 46. Healthdesignby.us 47. Human-Centered Design Thinking An approach that puts human needs, capabilities, and behavior first, then designs to accommodate those needs, capabilities, and ways of behaving 48. Participatory Design an approach to design attempting to actively involve all stakeholders in the design process to help ensure the result meets their needs and is usable 49. Committee Work: Communications to Improve Clinical Care 50. Interdisciplinary Workshops: Design My Diabetes Solution 51. Community Events: My Dream Diabetes Device 52. Empathy PrototypeDefine Ideate Test 53. Empathy Understand a problem before solving it 54. Define Patient-defined problem 55. Ideate Collaborative, creative brainstorming 56. Prototype Sketch, draw, glue, code 57. Test Iterative Feedback from User 58. Design= Distraction from Health A critical tool for the creation of health 59. Maker Movement Do It Yourself (DIY) Learning by Doing Peer-to-Peer 60. Maker Movement Participatory Design = 61. DIY = Expert Learning by doing = Maker Peer-to-Peer = Collaborator 62. The Secret Life of Medical Devices 63. We #makehealth Fest 64. Expert Doctors are experts, not patients #cultureofhealthcare 65. Only certified health professionals should be creating health Maker #cultureofhealthcare 66. Health is created doctor TO patient Collaborator #cultureofhealthcare 67. IT said you cant do that! #cultureofhealthcare 68. MD to Patient Passive Solitary 69. Patient to Patient Active Collaborative 70. You are a designer 71. I don't feel like getting yelled at today he makes me feel stupid 72. Don't cry (says a boy to his mom) 73. #waitingwaitingwaiting 74. Design WITH and not FOR Patients 75. Integrate design into your daily workflow 76. Design with members of a different tribe, not your own 77. it can also come off as arrogant when a d e s i g n e r f a i l s t o respect the solutions that already exist, particularly those that have evolved from within a community. Check your ego at the door 78. HealthDesignBy.Us Twitter: @healthbyus @joyclee Our patient experts, John Marshall, Matt Kenyon, Patricia Anderson, Nancy Benovich Gilby, Emily Puckett Rogers, Scott Olson, Amy Cohn, Patricia Abbott, Kelly Parent, John Costik, Jose Gomez- Marquez, Emily Hirschfeld, Charles Woodson Research Fund, UM Provost, & the healthdesignby.us virtual community 79. #designthinkinghellokitty