6

University of Pittsburgh

Center for Research on Healthcare

Kidney Transplant Fast Track Study

230 McKee Place, Suite 600

Pittsburgh, PA 15213

We welcome your comments,

suggestions, or questions.

E-mail: Bornemannk@upmc.edu

Call: 412-692-2678

Mail: University of Pittsburgh

Center for Research on Healthcare

230 McKee Place, suite 600

Pittsburgh, PA 15213

SUMMER 2018 UPDATE Kidney Transplant Fast Track Study

Arranging Your Life When

Dialysis Comes Home (V1)

This book tells the story of Steve Williams,

who was diagnosed with ESRD in September

of 2007. This relatable tale offers valuable

advice when it comes to making space for

home dialysis with a range of topics including

comfort, storing of medical supplies, and

budgeting. This book is available for purchase at

www.amazon.com/Arranging-Your-Dialysis-Comes-Volume/

dp/0615325289.

Hope, Inspiration and Wisdom

The Renal Support Network compiled a book

of essays written by individuals with chronic

kidney disease. This book includes 30

heartfelt essays written over the course

of 10 years. It is available for purchase at

www.amazon.com/Hope-Inspiration-

Wisdom-Treasury-Thoughts/dp/1482643537.

DAVITA RENAL FRIENDLY DIET HELPER

DaVita provides a diet helper

with free renal cookbooks,

meal planning, dining out

guides, a field tracker, and

recipes. Please visit

www.davita.com/diet-helper.

DaVita also has a free renal

friendly recipe database at

www.davita.com/recipes.

Left to Right: Dr. Larissa Myaskovsky

-Co Investigator, Dr. Mary Amanda

Dew– Principal Investigator,

Kellee Kendall– Project Coordinator,

Emilee Croswell– Research Assistant,

Hannah Wesselman– Research Fellow

READING CORNER

NURTITION AND CHRONIC KIDNEY DISEASE

The NKF has great resources for renal diet tips! Please visit www.kidney.org/nutrition/Kidney-Disease-Stages-1-4 for information on diets that may help.

KIDNEY FRIENDLY RECIPES

1

Fast Track Study

UNIVERSITY OF PITTSBURGH

Summer 2018 UPDATE

Kidney Transplant Fast Track Study

UNIVERSITY OF PITTSBURGH

SUMMER 2018 UPDATE

Kidney Transplant

The newest member of

our research team, Hannah

Wesselman, joined us in

August of 2017. She con-

nected with the Kidney

Transplant Fast Track Study

via the Pittsburgh Urban

Leadership Service Experi-

ence (PULSE), a program that partners college graduates

with nonprofits in the region for one year to facilitate

community development and personal growth. Hannah is

from Washington State, where she graduated from Saint

Martin’s University with a Bachelor’s of Science in Biology.

Her previous research focused on genomics, but she is

currently thriving as a clinical research assistant, and es-

pecially enjoys interacting with patients. She has transi-

tioned well to life in Pittsburgh, and loves exploring new

coffee shops in the city. At the conclusion of her year of

service in July, she will be attending the University of

Notre Dame to pursue a PhD in Biological Sciences.

STA

FF S

PO

TLIG

HT

HANNAH WESSELMAN, BS

The kidney transplant research team appreciates your help

with our study and hopes you have had a wonderful spring

and fun filled start to the summer season. We are looking

forward to warmer and sunnier days ahead. We hope to

take a little of your time to update you on the progress of

our study as we approach the four year mark. Your partici-

pation in this study will help us better understand how to

reduce transplant evaluation times and how to increase

the rates of kidney transplantation as well as to understand

how people make decisions about their treatment options

for kidney transplantation. To date, 1289 participants have

been enrolled in our study, and 1255 of those have com-

pleted their first interview. Of the 1255 participants who

completed their first interview, 767 completed their second

and final interview. Our goal is to complete all first and sec-

ond interviews by July 2019. So far, 37% percent of the

participants in our study are women and 62% percent are

men. The average age of study participants is 56 years old,

with an overall age range of 20 to 89. Your continued par-

ticipation is what really makes our research a success!

Thank you for your support of our project.

Sincerely,

Drs. Larissa Myaskovsky, Mary Amanda Dew,

and the Kidney Transplant Research Team

RESEARCH STUDY PROGRESS

Two of our team

members—Dr. Laris-

sa Myaskovsky and

Ms. Hannah Wessel-

man—had the op-

portunity to present

our ongoing research

at the 18th Annual

American Transplant Congress in Seattle, WA. They discussed

research related to living donor kidney transplantation, and con-

nected with several researchers and clinicians across the country.

We hope to continue the tradition of presenting our ground-

breaking research at this conference again next year!

OUR RESEARCH AT THE AMERICAN

TRANSPLANT CONGRESS 2018

A BIANNUAL PUBLICATION OF THE UNIVERSITY OF PITTSBURGH KIDNEY TRANSPLANT FAST TRACK STUDY TEAM

2

UNIVERSITY OF PITTSBURGH UNIVERSITY OF PITTSBURGH

KIDNEY WORKS: This program was created by the American Association of Kidney Patients (AAKP) to identify working-age patients with Stages 3-5 CKD and to promote job retention for a better quality of life, financial health, and continued insur-ance coverage. Please visit www.kidneyworks.org for more information. The AAKP provides valuable information, free membership, brochures, and publications. Please visit www.aakp.org/join to learn more.

RENAL NETWORK 4: Renal Network 4 works to ensure patients receive the highest quality of

care. Resources on their website include dialysis facility comparisons, mental health information, access

to care, as well as many other topics. Please visit www.qirn4.org/Home.aspx to learn more.

NKF PEERS: NKF provides a peer service phone line that connects users with mentors to help them learn about dialysis and organ transplantation. Please visit www.kidney.org/patients/peers, or call 855-653-7337 to speak to a mentor.

RESOURCES

HEALTH UNLOCKED ONLINE COMMUNITY: Join this online NKF community to engage in asking

questions, learning, and sharing experiences in a supportive environment. Visit healthunlocked.com/nkf-ckd

to learn more.

KEEP HEALTHY PROGRAM: The NKF hosts events across the country to educate about

kidney health and reducing risk factors of kidney disease. Please visit www.kidney.org/keephealthy

to find an event near you.

RELIGION AND ORGAN DONATION GUIDE: This page has a large listing of

religions and their viewpoints regarding organ transplantation. For more information,

please visit www.kidney.org/atoz/content/religion-organ-donation.

KIDNEY LIVING MAGAZINE: Kidney Living magazine is provided for free by the NKF!

Please visit www.kidney.org/patients/KidneyLiving to enroll and receive your free issue.

KIDNEYTALK PODCAST: Renal Support Network’s KidneyTALK page features renal

related podcasts on a large range of topics. Please visit www.rsnhope.org/kidneytalk-podcast-

show-kidney-disease.

LIVE DONOR TOOLKITS

The Live Kidney Donor Toolkit is a new resource created by the American Society of Transplantation that

helps living donors plan for life post donation (available in English and Spanish). This comprehensive

online tool clarifies the complicated path that ultimately leads to the gift of life.

Live Donor Financial Toolkit: The financial toolkit addresses topics for donors regarding post-donation

care, financial stability, and how donation may affect their job and daily life. Potential donors can visit

this resource to learn about the challenges of post-donation and what to expect. Please visit

www.livedonortoolkit.com/financial-toolkit to learn more.

Live Donor Medical Toolkit: The medical toolkit addresses medical questions for donors regarding actual surgical donation,

expectations, experiences, medical donor evaluation, post donation care, and mental wellbeing. Please visit

www.livedonortoolkit.com/medical-toolkit to learn more.

3

Summer 2018 UPDATE Kidney Transplant Fast Track Study SUMMER 2018 UPDATE Kidney Transplant Fast Track Study

Our research assistant, Han-nah Wesselman, organized a team for the Novem-ber 2017 NKF kidney walk held at the Pittsburgh Zoo and PPG Aquarium. The PULSE team of eight runners (six are pictured)

endured the rain to support the National Kidney Foundation and enjoyed the inspirational stories of ESKD patients along the way. The event was a huge success, and raised $268,000 for kidney disease patients across the nation. Please visit www.kidney.org/offices/nkf-serving-alleghenies for more information on how to participate in future events.

SELENA RECEIVED THE GIFT OF LIFE

Kidney

disease

affects

30 million

Americans

across all

socioeco-

nomic status-

es, gender,

and age.

Despite the challenges posed by chronic kidney disease, individuals

across the globe find ways to survive and thrive, and some even be-

come chart-topping performers! Selena Gomez, an actress and singer

known for her work on Wizards of Waverly Place and her best-selling

albums Revival and For You, was diagnosed with Lupus in 2015. Lupus is

an autoimmune disease that can spread to the kidneys, causing renal

failure. Gomez has been open about her health battle with her fans and

revealed that she received a living donor kidney transplant in the sum-

mer of 2017 from her friend and roommate, Francia Raisa. The surgery

was successful, as Gomez has experienced complete remission of her

kidney disease, and both Gomez and Raisa are doing well. This heart-

warming story of sacrifice offers hope for those living with kidney dis-

ease, showing that it is possible to succeed and be proactive about your

health. Please visit www.kidney.org/newsletter/selena-gomez-

announced-she-had-kidney-transplant for more information.

PITTSBURGH NKF KIDNEY WALK

Portions: 1 loaf (10 slices) Serving size: 1/10 of a loaf (1 slice)

INGREDIENTS

Nonstick cooking spray

1 tablespoon flour to coat loaf pan

1-1/2 cups all-purpose white flour

1 teaspoon baking powder

1/3 cup canola oil

1 cup sugar

2 tablespoons lemon extract

4 egg whites

1/2 cup nonfat milk

1 cup fresh blueberries

2 tablespoons grated lemon rind 1/2 cup lemon juice

KID

NE

Y F

RIE

ND

LY

R

EC

IP

E

Preheat oven to 350° F. Coat a 9”x 5”x 3” loaf pan with nonstick cooking spray and dust with flour. In a large bowl, combine flour and baking powder. In another bowl, mix oil, 2/3 cup sugar, extract and egg whites. Add flour mix-ture to oil and sugar mixture alternat-ing with milk. Stir just until blended; do not over mix. Fold in blueberries and lemon rind. Pour batter into loaf pan and bake for 40-50 minutes or un-til toothpick comes out clean. Prepare glaze while bread is baking. In a small saucepan, combine remaining 1/3 cup sugar and lemon juice. Heat until sugar is dissolved. Remove bread from the oven, immediately poke holes at 1” intervals into the top, and pour lemon glaze over bread.

Recipe created exclusively for DaVIta.com by DaVita® dietitian Mindy from Indiana. Before using this recipe, please consult a registered dietician to verify that this recipe is appropriate for your nutritional needs.

LEMON BERRY BREAD

4

UNIVERSITY OF PITTSBURGH

The Allegheny NKF chapter is hosting a corpo-rate Monopoly tournament. The evening will feature a gourmet dinner and open bar, basket raffle, photo booth, and corporate networking opportunities. Please visit, www.kidney.org/events/gala/2017-corporate-monopoly-tournament.

NKF CORPORATE MONOPOLY TOURNAMENT

Pittsburgh, PA Rivers Casino—October 4, 2018

UPCOMING EVENTS 2018

The National Kidney Foundation’s Kidney Walk is a community fundraiser to support the preven-tion and early detection of kidney disease, and to raise awareness for organ donation. Participants include kidney patients, transplant recipients, organ donors, families, friends, supporters, and local businesses. Please visit donate.kidney.org/site/TR/Walk.

PITTSBURGH NKF KIDNEY WALK

Pittsburgh Zoo and PPG Aquarium—

November 4, 2018

Each year, faith groups across the United States educate the public about organ, eye, and tissue donation by observing the National Donor Sab-bath. To learn how you can get involved, please visit www.donatelife.net/nds.

NATIONAL DONOR SABBATH—

November 10-11, 2018

The Transplant Games of Amer-ica is a multi-sport festival style event that promotes organ, eye, and tissue donation. The festivities highlight the importance of organ and tissue donation while cele-brating the lives of organ do-nors and recipients. Living do-

nors and transplant recipients can register to participate in a variety of athletic events. The games also host activities for attendees such as workshops and receptions. To register or get information on attending, visit www.transplantgamesofamerica.org.

TRANSPLANT GAMES OF AMERICA

Salt Lake City, UT—August 2-7 2018

RSN ESSAY CONTEST 2018—Deadline August 10, 2018

Three winners of the 2018 Renal Support Network essay contest will receive cash prizes. The deadline to submit an essay is Au-gust 10, 2018. Winners will be announced on Sep-tember 20, 2018, and win-ning essays will be fea-tured in RSN's new maga-zine Live & Give and on www.rsnhope.org.

5

SUMMER 2018 UPDATE Kidney Transplant Fast Track Study

Diabetes Lupus Glomerulonephritis Polycystic InterstitialNephritis BloodPressure KidneyStones Vesicoureteral Pyelonephritis Donate Life Exercise HealthyEating Potassium Fluid Hope Thrive

KIDNEY WORD SEARCH

Please visit our research study website for the answer to this word search and word jumble:

kidneytransplantresearchstudy.wordpress.com/word-search-answers.

Dialysis cartoon by Peter Quaife, The Lighter Side of Dialysis.