John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08
31
-
Upload
sage-base -
Category
Health & Medicine
-
view
442 -
download
1
description
John Wilbanks & Stephen Friend, Nov 7-8, 2011. Partnering for Cures: Standardized Informed Consent, New York, NY
Transcript of John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08
PORTABLE LEGAL CONSENT
John Wilbanks
“one more thing”
what‘s missing?
network effects.
how do we get there?
standards, legal and technical.
start with the patient.
patient-driven data collection.
in the beginning, there was consent.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
http://weconsent.us
@wilbanks [email protected]
supported by: Sage Bionetworks
Ewing Marion Kauffman Foundation Lybba.org