Openphacts wilbanks

60
open phacts keynote john wilbanks 18 september 2011 volendam, NL

description

Keynote on legal and incentive aspects of sharing genomic and pharmaceutical data. Given 19 September 2011, Volendam Netherlands.

Transcript of Openphacts wilbanks

Page 1: Openphacts wilbanks

open phacts keynotejohn wilbanks

18 september 2011volendam, NL

Page 2: Openphacts wilbanks

1. we want to “publish” “data”

Page 3: Openphacts wilbanks

container-based publishing.

Page 4: Openphacts wilbanks
Page 5: Openphacts wilbanks

the scholarly content industry reaction.

Page 6: Openphacts wilbanks

(we are subsidizing the dig, sadly)

Page 7: Openphacts wilbanks

everyone‘s favorite shovel.

Page 8: Openphacts wilbanks
Page 9: Openphacts wilbanks

no: copying, distribution, display, etc.

(in the absence of an unambiguous license)

Page 10: Openphacts wilbanks

not:

Page 11: Openphacts wilbanks

built for this…

(so what’s this?)

Page 12: Openphacts wilbanks

(or this?)

Page 13: Openphacts wilbanks
Page 14: Openphacts wilbanks
Page 15: Openphacts wilbanks
Page 16: Openphacts wilbanks

“ownership” may be the wrong frame for this stuff.

Page 17: Openphacts wilbanks

2. we need rights (legal or normative) to do certain

things with data.

Page 18: Openphacts wilbanks

research

Page 19: Openphacts wilbanks

credit

Page 20: Openphacts wilbanks

assembly

Page 21: Openphacts wilbanks

annotation

Page 22: Openphacts wilbanks
Page 23: Openphacts wilbanks

not always connectable to the law.

Page 24: Openphacts wilbanks

publication is step 1.

Page 25: Openphacts wilbanks

3. first principles.

Page 26: Openphacts wilbanks

when we try to solve all the problems at once, we overdo it.

Page 27: Openphacts wilbanks

“Taking the "forklift upgrade" approach to networking, it specified eliminating all existing protocols and replacing them with new ones at all layers of the stack. This made implementation difficult, and was resisted by many vendors and users with significant investments in other network technologies. In addition, the protocols included so many optional features that many vendor's implementations were not interoperable.”

http://en.wikipedia.org/wiki/Open_Systems_Interconnection

Page 28: Openphacts wilbanks

let the critics fix the problems.

Page 29: Openphacts wilbanks
Page 30: Openphacts wilbanks

avoid unintended consequences of control.

Page 31: Openphacts wilbanks
Page 32: Openphacts wilbanks

4. what can we actually do, now?

Page 33: Openphacts wilbanks

(please don’t write your own.)

Page 34: Openphacts wilbanks

thanks,@workingontology and XKCD

Page 35: Openphacts wilbanks

Edsger Wybe Dijkstra

Page 36: Openphacts wilbanks

We know that a program must be correct and we can study it from that viewpoint only; we also know that it should be efficient and we can study its efficiency on

another day, so to speak. In another mood we may ask ourselves whether, and if so: why, the program is

desirable. But nothing is gained --on the contrary!-- by tackling these various aspects simultaneously. It is what I sometimes have called "the separation of concerns",

which, even if not perfectly possible, is yet the only available technique for effective ordering of one's thoughts, that I know of. This is what I mean by

"focusing one's attention upon some aspect": it does not mean ignoring the other aspects, it is just doing

justice to the fact that from this aspect's point of view, the other is irrelevant. It is being one- and multiple-track

minded simultaneously.

Page 37: Openphacts wilbanks

treat content, data, software, and privacy in separate bins, but with an eye towards forming a

stack.

Page 38: Openphacts wilbanks
Page 39: Openphacts wilbanks
Page 40: Openphacts wilbanks
Page 41: Openphacts wilbanks
Page 42: Openphacts wilbanks
Page 43: Openphacts wilbanks

attribution (does not) = citation

Page 44: Openphacts wilbanks
Page 45: Openphacts wilbanks

“open core” / variety of apps

Page 46: Openphacts wilbanks

sage bionetworks “public genomic records”

“static” genomic

data

“dynamic” genomic

data

“observational”data

requires “informed consent” to share.

Page 47: Openphacts wilbanks
Page 48: Openphacts wilbanks
Page 49: Openphacts wilbanks
Page 50: Openphacts wilbanks

the openphacts “stack” – a bespoke combination built of standard tools…

Page 51: Openphacts wilbanks

incentives and sustainability

Page 52: Openphacts wilbanks

data grocery > data souk

set prices and terms in advance, with pre-negotiated terms.

Page 53: Openphacts wilbanks

taxpayers waking up…

Page 54: Openphacts wilbanks
Page 55: Openphacts wilbanks

nothing beats a funder mandate.

before mandate after mandate0

10

20

30

40

50

60

70

80

% of author compliance with NIH deposit

Page 56: Openphacts wilbanks
Page 57: Openphacts wilbanks

rationale for LGPL, CC-BY, etc: allow for profit to be taken on private libraries and services, which may

scale better than treating data as property.

Page 58: Openphacts wilbanks

in a world of abundance, quality is economically valuable.

Page 59: Openphacts wilbanks

simple. weak. standardized. open.

Page 60: Openphacts wilbanks

thank you.

[email protected]://del-fi.org

@wilbanks