January 2016 Community Counts
-
Upload
phungthuan -
Category
Documents
-
view
214 -
download
1
Transcript of January 2016 Community Counts
January 2016
Inside this issue:
New Kids on the Block
2
Super Steppers 2
Director’s Corner 2
5200 Holiday Fun 3
Outpatient Holiday Events 4
PBMT Happenings 5
Winner’s Circle 6
January 2016
A monthly newsletter for Duke Pediatric Blood and Marrow Transplant patients, families and supporters
The Community Counts
Holiday Traditions
The volunteer-based
Family Support
Program is dedicated
to caring for, serving,
and lightening the
burden of the Duke
Pediatric Blood and
Marrow Transplant
Community through a
comprehensive array
of services and
resources.
One of the missions of the Duke PBMT Family Support Program is to ensure that
patients and families are able to experience the regular celebrations and routines of life throughout the
year, especially holidays. Holiday seasons are often times of special traditions, decorations, and fun
activities, and that is also true with how we celebrate the holidays in Duke PBMT.
Our outpatients start things rolling right after Thanksgiving with our ornament decorating party at
Hillandale Golf Course, sponsored by the H.E.A.R.T.S. Club at Hillandale Golf Course. Patients and
family members have the opportunity to make decorations for their homes and also to decorate the
H.E.A.R.T.S. Club tree. Our inpatients held their own ornament decorating activity as well to get the
playroom and their rooms ready for the holiday season.
Outpatient families were also invited to our Holiday Party held at the Duke Gardens on Decem-
ber 16th. There were reindeer games, yummy treats, arts and crafts and fun activities. Piggies and Paws,
Inc. came to make some special keepsakes using the handprints and footprints of those in attendance. Santa
himself even stopped by to join the excitement! The night ended on a perfect note with our tradition of
singing “This Little Light of Mine” while holding battery-operated candles and sharing warm wishes with
5200, the Children’s Health Center, and the world.
The inpatient nursing team once again joined in the fun and organized a door-decorating contest
for the holidays. Patients were able to garnish their doors with ribbon, wrapping paper, bows and whatever
items they could find to express their festive spirit. A variety of awards were passed out celebrating the
creativity and spirit shown by the inpatients.
Our inpatients were also able to enjoy the 10th Annual Gingerbread House Activity with Nurse
Bobbie, giving them an outlet not just for their creativity, but also their architectural skills! Patients and
caregivers got creative with their sugary engineering, crafting walls, chimneys, and gates out of candy and
icing. Smiles were plentiful in the playroom as the gingerbread city came together, maybe because some of
the candy got consumed!
Of course, much of the holidays is about giving gifts, and Duke PBMT was once again truly
blessed by so many who wanted to make sure that our patients and families were well loved! We were
happy to continue a recent tradition and hosted the 3rd Annual Holiday Workshop on December 15th and
16th at our administrative offices on Morreene Road. Outpatient families, often far from home and con-
fined by safety requirements, can be in a tricky situation when it comes to holiday shopping. The event,
sponsored by H.E.A.R.T.S. Club at Hillandale Golf Course, Joey’s Little Angels, MeFine Foundation,
Rocky Mount Data Quality COE Employees of PNC and staff of Umstead Pines provided an opportunity
for caregivers to choose holiday gifts for outpatients and siblings. Music, homemade treats provided by
Preserve Bible Study, and hot cider made the event a festive occasion. Volunteers from Cisco Systems, Inc.
and the Rocky Mount PNC group assisted with an activity for the children and wrapped gifts while care-
givers shopped. We are thankful for everyone’s efforts to make the workshop a success.
Our inpatients were blessed by the generosity of several special visitors from groups bringing all
types of holiday joy. The Kim Jones Foundation, the Sailsbury family, the friends and family of Owen and
Mabry Webb, BRYANTSTRONG and friends of Elijah Watterson, and the family of Preston Winslow
provided a wealth of presents to our inpatient families to make sure they didn’t miss out on anything just
because they were in the hospital. Of course, our good friend, Santa Claus, visited on Christmas Eve to
share gifts and cheer with our 5200 families as well.
We are fortunate to have a strong community of PBMT supporters to share the holidays with. We
hope that each of you enjoyed celebrating with your own traditions this December and wish you the best in
the year to come.
Page 1
New Kids on the Block
Page 2
“New Kids on the Block” features patients on the 5200 unit who were admitted for transplant during the month of December. It is our way to honor them and help the other inpatient families get to know them.
Super Stepper Patients are able to join the Super Stepper Club by walking or riding a minimum of 250 laps
while on 5200. In addition to being featured in Community Counts, we give the patient a com-
memorative T-shirt with their picture on it to mark their accomplishment. Throughout their jour-
ney to being a Super Stepper, patients receive prizes as incentives to keep as a reward for their
great efforts.
The Super Stepper inductee this month is Carlos who walked three hours per night with his
mom. Carlos didn’t submit his number of laps or request any prizes for his efforts. When asked
why he was so committed, Carlos stated; “The first 10 laps are for me and the rest of the laps are
for the kids who can’t walk. It breaks your heart they can’t get out of bed and I can relate to what
they feel.” Congratulations to all of our dedicated walkers.
Director’s Corner
Aaliyah, age 11
Winston-Salem, NC Haley, age 16
Harrisonburg, VA
Elijah, age 23 months
Wake Forest, NC Addison, age 5 months
Travelers Rest, SC
As we begin the new year and look forward to all the possibilities it brings, we wanted to take the time to thank
two special friends who have been long time supporters of the Duke PBMT Family Support Program (FSP), the Katie
Swaney Foundation and the Fox Family Foundation. These two foundations have been dedicated supporters of FSP
through the years, with each providing a unique facet to what our program does.
For the past nine years, the Katie Swaney Foundation has provided a grant to FSP that has sponsored Music Ther-
apy on 5200, Pizza Wednesdays on 5200, and our parking pass program. For those who have been through transplant,
these three areas are some of the ways in which families have felt some of the most consistent impact of our work. We are
so appreciative not just that the Katie Swaney Foundation has sought to ensure the availability of these programs, but they
have also enabled us to look towards growing Music Therapy in order to allow Tray Batson, our Music Therapist, the
chance to do new and innovative programming with our patients. In addition, many a caregiver has bookmarked Wednes-
day as they look forward to enjoying pizza provided in the caregiver kitchen. Being able to relieve the stress of finding
one more meal is a burden that always could use lifting. We were blessed to be able to have some of the members of the
Katie Swaney Foundation come for a visit right before Thanksgiving as we were able to update them on the great work
that they had helped make happen and also thank them in person.
The Fox Family Foundation has annually sponsored our Fox Family Matching Challenge as a way to encourage
others to make donations to the FSP, which has allowed us to grow our ability to provide financial support to patients and
families during transplant. We have benefitted from the foundation’s generosity for the last nine years, and look forward to
their ongoing stewardship to our program, as well as their encouragement of others to join them in giving to the FSP. By
using their gift to encourage others to give, they have truly sought to increase the reach of their dollars, making the impact
on our program even greater. We can’t express our gratitude enough to these two foundations for what they have enabled
us to do in the past and for the future. We wish everyone the best for 2016! -Scott
5200 Holiday Fun
Page 3
Outpatient Holiday Events
Page 4
Page 5
PBMT Happenings
It’s going to fall mom! Where’s my mom? Tara’s tower MINUTE TO WIN IT Games
Flying marshmallows Sweet Gus Snuggles Serenna grew up Farewell Carlos
Aaliyah got a Bingo Sisters visit with Santa Gracie catches a quick nap Blaize and his dancing robot
Traditional Chinese Christmas eve dinner Happy 14th Birthday Khaleda Remmy’s confetti parade
Page 6
Winner’s Circle
If we have inadvertently left you off our Winner’s
Circle, we apologize and please let us know!
We would also like to thank the following groups for providing Community Meals for families on 5200:
Aldersgate United Methodist Church
Claudina Bonetti
DTM Foundation
Ephesus Baptist Church
Katie Swaney Foundation
Macedonia/Salem Baptist Churches
St. Luke’s Episcopal Church
Family of Amy Wolf
Family of Kimberly Jones
We are grateful to all of the people who help support PBMT families through contributing their time, energy, and resources.
We would like to thank the following who made monetary donations:
We would like to thank the following who made memorial donations:
We would like to thank the following who made in-kind donations:
David Bartlett for facilitating Santa’s participation in our
outpatient Winter Wonderland holiday party
David and Amy Beebe of Cute and Sweet Boutique for
donating caregiver celebration cupcakes
Bobbie Caraher for donating gingerbread house supplies
Susan Crawford of Sweet and Sassy Cakes in
Hillsborough, NC for creating Khaleda's 14th birthday
Icing Smiles cake
Duke DCRI SPA for donating gift cards and art supplies
from our wish list
The H.E.A.R.T. S. Club of Hillandale Golf Course for
sponsoring the inpatient and outpatient ornament
decorating activities
The Kearney family for putting together discharge bags
The family of Jordan Lehman for donating gift cards
The Light of Hope Fellowship for donating toys and
toiletry items in memory of Darian Lester
Mary Morris for donating Kroger gift cards
Panera Bread at Streets of Southpoint for donating mitten
cookies for our cookie decorating station at the outpatient
Winter Wonderland holiday party
The family of Maxwell Pogers for donating toys
Preserve Bible Study for donating homemade treats for
the outpatient holiday workshop
Project Linus for donating pillowcases and laundry bags
The family of Roslyn Rogers for donating books,
Halloween stickers, and storage bins
The staff of Sarah P. Duke Gardens for allowing us to use
the Doris Duke Center for our outpatient Winter
Wonderland holiday party
We would like to thank the following for sponsoring our Outpatient Holiday Workshop:
The H.E.A.R.T.S. Club at Hillandale Golf Course Joey’s Little Angels MeFine Foundation Rocky Mount Data Quality COE employees of PNC Scott, Mike and staff of Umstead Pines
We would like to thank the following for providing holiday gifts for our inpatient families: The BRYANTSTRONG organization in memory of
Elijah Watterson The Kim Jones Foundation The family of Jenna Sailsbury The family and friends of Owen and Mabry Webb The family of Preston Winslow
Steve Barsh and Amber Salzman
Michael and Maureen Jeffreys
Ken and Julie Bihn
Claudina Bonetti
Amy Brown in honor of Caroline Britt
Lori Combs in honor of Christian Hunter Combs
Ryan Cook
Cord Blood Registry
Clyde Cooper’s Barbecue of Raleigh, NC
The Fox Family Foundation
Hope Community Church Small Group
Webb and Marty Howell in honor of Jeremy Howell
James and Cynthia Johnson
Brian and Jill Kaufman
Marilyn Kaufman
Charles, Susan and Kyle Lindley
St. Luke’s Episcopal Church, Durham, NC
Drs. Marty and Ann Murphy
Sarah Negri
Sara Payne in honor of Will Zimmerman
Mary Sides in honor of Zach Sides
Chris and Harry Sundberg n honor of Nate Parry
David Ward
De Cesare Agency, Inc. in memory of Michael McGuinniss
Amber Hammer in memory of Kathryn Vanderlinde
Lucy Harris in memory of Kathryn Vanderlinde
Walstein and Vivian Jordan in memory of Stephen Jordan
Marion Kalbacker in memory of Kathryn Vanderlinde
Marion Kalbacker in memory of Mary Ellen Owen
Sloan Kojis in memory of Kathryn Vanderlinde
Sloan Kojis in memory of Mary Ellen Owen
Bill, Pam and William Kristoff in memory of Alyssa Kristoff
Sherone Massey-Burgess in memory of Kathryn Vanderlinde
Robin McGahee in memory of Ian McGahee
Cara McGuinniss in memory of Michael McGuinniss
Filomena and Martin McGuinniss in memory of Michael McGuinniss
Danny and Karen Mercer in memory of Barry Lee Pope
George and Jeanette Oliver in memory of Maxwell Pogers
Bob Ruggiero and Lucy Rodriguez in memory Dana Ruggiero
Carey Sanders in memory of Madalyn Dooley
The Katie Swaney Foundation in memory of Katie Swaney
Gary and Caroline Sweezy in memory of Barry Lee Pope
James and Jeri Young in memory of David Cummings