James Cimino MD - Developing Governance Approaches
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Transcript of James Cimino MD - Developing Governance Approaches
Meaningful Use and Personalized Patient Education:
Consumer Health Information Activities at the National Library of Medicine
James J. Cimino, MDChief, Laboratory for Informatics Development
NIH Clinical Center and the National Library of Medicine
Disclaimer
This presentation is not intended to promote any commercial entity, including healthcare providers, knowledge resources or children’s entertainment.
PersonalHealth
Records
Personal Health Records
• State of the art in PHRs
Personal Health Records
• State of the art in PHRs
• NLM Personal Health Record
How does it differ from other PHRs? How does it differ from other PHRs?
• Single web page for efficient data entry Single web page for efficient data entry
• Generates input forms “on the fly”Generates input forms “on the fly”
• Can capture almost any kind of structured dataCan capture almost any kind of structured data
• Aims to code all key facts with US standardsAims to code all key facts with US standards
• Intelligent, Intelligent, patient-specificpatient-specific reminders reminders
Personal Health Records
• State of the art in PHRs
• NLM Personal Health Record
PersonalHealth
Records
ElectronicKnowledgeResources
Electronic Knowledge Resources
• MedlinePlus
MedlinePlus
• Consumer & patient health• English & Spanish• Coverage:
– Diseases and conditions– Health and wellness– Drugs, herbs, and supplements– Videos, interactive tutorials, etc.
• Stringent quality criteria
~1,000 drugs100 supplements~1,000 drugs100 supplements
172 tutorials78 anatomy videos112 surgery videos5 Sp surgery videos
172 tutorials78 anatomy videos112 surgery videos5 Sp surgery videos
>40 languages>250 topics>3,000 links
>40 languages>250 topics>3,000 links
~ 3,500 encyclopedia articles> 2,000 images~ 3,500 encyclopedia articles> 2,000 images
15-20 news stories daily15-20 news stories daily
1,445 links to ClinicalTrials.gov1,445 links to ClinicalTrials.gov
885 English856 Spanish885 English856 Spanish
http://www.nlm.nih.gov/mobile/
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
Genetics Home Reference Genetics Home Reference
• Website of genetics information for the publicWebsite of genetics information for the public• Currently more than 1,400 summaries Currently more than 1,400 summaries
– Incidence and prevalenceIncidence and prevalence– Gene/disease relationshipsGene/disease relationships– Common vocabulary terms, definedCommon vocabulary terms, defined
• Background information about geneticsBackground information about genetics– Handbook: Handbook: Help Me Understand GeneticsHelp Me Understand Genetics– Glossary of genetics termsGlossary of genetics terms
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
• Clinical Trials.gov
ClinicalTrials.gov
• Access to data about individual clinical trials
• 97,835 registered trials from 7,961 Sponsors
• 2,467 Results entries from 449 Sponsors
• 43% with associated publications
• Powerful search tools
• Users can identify and track trials and outcomes
Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
• Clinical Trials.gov
• Infobot
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Infobot
• Augment an EMR with pertinent information from evidence-based resources
• Provide access to key facts needed to support clinical decision making and evidence based plans of care
Inside of CRIS
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Electronic Knowledge Resources
• MedlinePlus
• Genetics Home Reference
• Clinical Trials.gov
• Infobot
PersonalHealth
Records
ElectronicKnowledgeResources
Infobuttons
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Infobuttons
• Context-specific links out to information resources
Infobuttons
• Context specific links out to information resources
• Resources that respond to specific information needs
MedlinePlus Connect for DiagnosesMedlinePlus Connect for Diagnoses
Spanish MedlinePlus Connect for DiagnosesSpanish MedlinePlus Connect for Diagnoses
MedlinePlus Connect for Medications
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Infobuttons
• Context specific links out to information resources
• Resources that respond to specific information needs
PersonalHealth
Records
ElectronicKnowledgeResources
LITEInfobuttons
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i
Clinical Applicationwith Infobutton Link
UserPatient
Healthcare Institution
InfobuttonManager
Page of Links
Infobutton ManagerKnowledge Base
The Librarian Infobutton Tailoring Environment
(LITE)
Institutional Librarian(or other LITE users)
PersonalHealth
Records
ElectronicKnowledgeResources
LITEInfobuttons
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Thanks to…
• Thomas Graf, Geissinger Health System
• Louise Lang, Kaiser Permanente
• Clem McDonald, NLM
• Swapna Abhayankar, NLM
• Joyce Backus, NLM
• May Cheh, NLM
• Deborah Zarin, NLM
• Dina Demner Fushman, NLM