It's About Children - Issue 3, 2015 by East Tennessee Children's Hospital

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CPR class for parents and teens age 14 and older

Extra LifeMEDIC blood drive

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6 p.m. to 10 p.m.Children’s Hospital’s Koppel Plaza Building(Meschendorf Conference Room)Class costs $25.Log on to www.etch.com/healthykids to register. Learn CPR so you can respond to emergencies in your home.

Starts at 8 a.m.Your computer.Extra Life is a 24-hour gaming marathon in support of Children’s Miracle Network Hospitals. Team Future is East Tennessee Children’s Hospital’s offi cial team, and all funds raised by players on the team will go to help our patients through equipment purchases, training and additional care. To register for Team Future, donate, sponsor a player or to fi nd out more, visit www.etch.com/giving/extralife.

7 a.m. to 4 p.m.Children’s Hospital’s Koppel Plaza Building(Meschendorf Conference Room)It’s free.Call 865-541-8165 for more information. All blood used at Children’s Hospital is provided through MEDIC. One donation can help up to three people. Donors must be at least 17 years old, weigh more than 110 pounds and have an ID.

Mark Your Calendar

2 It’s About Children, Issue 3 • 2015

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Fantasy of Trees

The miracle of cooling

Head of the class

East Tennessee Children’s Hospital presents the 31st Annual Fantasy of Trees premier Christmas event in Knoxville.

Rains Malone spent two weeks of his life in the Children’s Hospital Neonatal Intensive Care Unit while his brain healed. Learn about his journey and the treatment.

Cheyenne Roberts was the fi rst cochlear implant patient at Children’s Hospital. Th is May, she graduated as high school valedictorian, and she isn’t stopping there.

It’s About Children is a publication of the Marketing Department at

East Tennessee Children’s Hospital.Editor: Jessica Boyd

Designer: Deborah HostermanCover photo by Neil Crosby

Connect with us:www.etch.com/ItsAboutChildren

[email protected]

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Safe Sitter class for children ages 11 to 14

Car seat inspections

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9 a.m. to 3 p.m.Children’s Hospital’s Koppel Plaza Building(Meschendorf Conference Room)Class costs $25.Log on to www.etch.com/healthykids to register. Learn correct babysitting techniques, emergency responses and how to use babysitting as a business.

9 a.m. to 1 p.m., Blount County Fire Department’s East Broadway Avenue station10 a.m. to 1 p.m., Oak Ridge Fire DepartmentIt’s free.You don’t have to register to attend. We’ll teach you everything you need to know to make sure your car seat is used and installed correctly.

3Donate at www.etch.com/ItsAboutChildren

Five-month-old Rains Malone loves to coo and smile for his parents, Kala and Alex,

and his big sister, 4-year-old Mallory. But fi ve months ago, the Malones’ lives looked quite different. Rains stayed in the Neonatal Intensive Care Unit (NICU) at Children’s Hospital immediately after he was born for about two weeks with

serious complications because of trauma to his brain.

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Five-month-old Rains Malone loves to coo Five-month-old Rains Malone loves to coo

Themiracle

ofcooling


Rains’ journey Rains was treated with a cooling cap the fi rst three days of his life, and during that time, he was mostly isolated. “His brain couldn’t be stimulated so he could be completely at rest,” Alex said. “I don’t think we knew how severe it was.” Potential outcomes were mentioned to the Malones, including severe brain damage and cerebral palsy. But in the mean time, all they could do was wait. On day three of his life, Rains began breathing on his own after the cooling cap was removed, and on day fi ve, he was bottle-fed. Soon after, Kala was able to hold him for the fi rst time. “He looked up at me like, ‘That’s my mama,’” she said. At day 10, Rains had another EEG and magnetic resonance imaging (MRI) to check his brain activity. “Both came back clear,” Kala said. By May 1, Rains was home with his family. It was two scary weeks for them, but the Malones credit the miracle of cooling technology. “I’m so thankful Children’s Hospital had that technology and that was it so close to us,” Kala said.

During Kala’s pregnancy, everything had gone smoothly. But when Rains was born on April 14, something was different. Though his heart was beating after delivery, Rains wasn’t crying or reacting or breathing. “He was just lifeless,” Alex said. “There was just nothing going on.” Later, Kala and Alex found out Rains had experienced seizures at some point during delivery or shortly after his birth. Rains was immediately placed on a ventilator and transported from the hospital to the NICU at Children’s Hospital. After testing brain activity and receiving an abnormal electroencephalogram (EEG) reading, the Malones were informed Rains was a candidate to use cooling technology. While on a ventilator and feeding tube, Rains began treatment with a cooling cap.

The cooling process Children’s Hospital Medical Director of Neonatology Dr. John Buchheit explained the science behind cooling. “We use it for babies who have suspected damage to the brain around the time of their birth. This can happen due to a lack of oxygen or blood fl ow to the infant’s brain.” Either cooling caps or cooling blankets can be used to decrease the core temperature of the body. “With cooling, you essentially shut down the activity in the brain for three days. The heart, the lungs, and other organs still work, but the brain is at rest,” Dr. Buchheit said. This process gives the brain time to heal and reduces the risk for long-term injury. After 72 hours of cooling, the infant is removed from the cooling system and gradually warmed to a normal 98.6-degree temperature.

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“He looked up atme like, ‘That’s my

mama.’” — Kala Malone


Their NICU stay During their time in the NICU, the Malones built relationships with Children’s Hospital staff. Kala and Alex were thankful for the doctors, nurse practitioners and nurses who took care of their newborn son. “They made us feel comfortable, and they answered all of our many questions.” Kala said. “They really took care of us, too.” Nurses created care packages and sent them to Mallory, saying they were from her baby brother. “They even let us bring him to the door of the NICU so Mallory could see him for the fi rst time,” Kala said.

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Next steps Now, Rains is healthy at home with his family. While he is no longer on any medication due to his hospital stay, he will continue care with Children’s Hospital specialists and be monitored closely during his fi rst year. Weekly, Rains has therapy with a Home Health occupational therapist to work on things like holding his head up and holding toys. Every three months, the Malones take Rains to appointments with pediatric neurologist Dr. Anna Kosentka to monitor his milestones. He will also have follow-up occupational therapy with pediatric physiatrist Dr. Nadine Trainer. The Malones are thankful for the health of their son. “We believe God used cooling treatment to heal our son,” Kala said. “I truly think if the technology hadn’t been there, we would be looking at a different outcome.” “It really is a miracle. He is a miracle.”

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thew

Sha

ver

Rains visits with one of his NICU nurses, Sandy Workman, at the Children’s Hospital 35th Anniversary party.

Rains and one of his NICU nurses, Nancy Parnell.


Neonatology at Children’s Hospital Every year, more than 750 of East Tennessee Children’s Hospital’s smallest patients

are treated in the Neonatal Intensive Care Unit. Infants are transported to the NICU for premature birth, breathing problems, congenital birth defects and

neonatal abstinence syndrome. Each NICU patient is monitored closely by pediatric neonatologists, nurse practitioners, critical care nurses, respiratory

therapists and other pediatric subspecialists trained to treat these fragile infants.

In 2014, Children’s Hospital began a $75 million expansion, which includes the addition of 44 private NICU rooms to provide a private, comforting environment

for both patients and families. The new building will open fall 2016. Learn more at www.etch.com/expansion.

The Science of Cooling Found in Neonatal Intensive Care Units (NICUs), Children’s Hospital uses cooling

treatment to help heal an infant’s brain by lowering the core temperature of the body. Maintaining the temperature for 72 hours slows the metabolism and can decrease the risk of further damage to the brain. Patients treated with cooling technology

are monitored closely through the entire process.

News

identifi ed at birth as deaf or with signifi cant hearing loss, we try hearing aids fi rst.” At 2 years old, the minimum allowed age at that time, the Roberts turned to Dr. Little for a cochlear implant. “We had never met anyone who had a cochlear implant,” Melissa said. “We really didn’t have anything to compare it to.” Cheyenne’s school years were fi lled with hours of therapy weekly. Melissa said her teachers were amazed Cheyenne knew how to sit and listen in preschool. Even before kindergarten, she was reading books, Melissa said. “She was taught those skills at a young age as a necessity.” Cheyenne learned more than just listening and reading skills, though. Through working hard to succeed, she learned to have a strong work ethic. It paid off. After graduating at the top of her high school class, Cheyenne began her freshman year at East Tennessee State University in August. More than anything, Cheyenne is looking forward to getting her degree. “My undergraduate degree will be in special education,” she said. “Then I want to do the audiology graduate program.” Her experience led her to want to help others, so she plans to be an audiologist and help other children with hearing

But they are sounds that 18-year-old Cheyenne Roberts is able to hear thanks to a procedure more than 15 years ago at East Tennessee Children’s Hospital. In May, Cheyenne stood as valedictorian at Scott County High School’s graduation. A cheerleader for four years, member of the Beta and Science Clubs and Senior Class President, the fact that she was born deaf never held her back. Cheyenne was the fi rst cochlear implant patient at Children’s Hospital, a procedure she had at 2 years old. Pediatric otolaryngologist Dr. John Little, the director of the pediatric cochlear implant program at Children’s Hospital, had just completed his fellowship at Johns Hopkins and performed the surgery in 1999. Cochlear implants are not hearing aids, which make sounds louder, but rather a device surgically implanted in the ear that stimulates the auditory “hearing” nerve with electrical signals, allowing the patient to hear. Dr. Little estimates approximately 250 cochlear implants have been performed at Children’s Hospital, and it all started with Cheyenne. At age 1, Cheyenne was diagnosed as deaf and fi rst used hearing aids. Dr. Little explained, “If the patient is

News

Head of the Class

The sound of crashing waves, the music at your prom or the whisper of the wind – these are all sounds many of us take for granted.


Cheyenne with Dr. Little in 2008.Photo by David Luttrell for Tennessee Alumnus.

SCOTT

impairment, especially those in the pediatric cochlear implant program at Children’s Hospital. “The audiologists helped me become the person I am today,” Cheyenne explained. In May, Cheyenne said she told her friends and classmates at graduation some advice that she has taken to heart. In her valedictory speech, Cheyenne said, “Anything is possible. You just have to work hard for it.”

Children’s Hospital’s pediatric otolaryngologists treat patients with ear, nose and throat (ENT) problems, as well as head and neck medical and surgical issues. These issues can include ear infections, nose and sinus conditions, voice and swallowing disorders, hearing loss and deafness and cleft lip and palate management.

Last year, East Tennessee Children’s Hospital had more than 1,800 visits from Scott County, ranging from infants to 21 years old. • 603 emergency department visits• 680 outpatient visits• 95 inpatient visits

Head of the Class

Pinpoint on Scott CountyPediatric

Otolaryngology


In June, Peyton Manning was back in East Tennessee to raise money at the 18th annual Peyton Manning Golf Classic. Every year, the funds raised from the tournament are divided between Children’s Hospital and the Peyback Foundation, an organization established by the National Football League’s Denver Broncos quarterback. Th is year’s golf tournament raised more than $203,000, and the portion for Children’s Hospital benefi ts much-needed equipment and services in the surgery department. Th roughout the day at Fox Den Country Club, the 256 golfers enjoyed breakfast, lunch and a 19th-hole reception. Peyton visited with two Children’s Hospital patients in attendance, Ethan Parsley and AJ Cucksey. AJ sang a special rendition of “Rocky Top” for the former University of Tennessee quarterback. Th is year’s tournament had the largest attendance since the event began 18 years ago, with 56 more players and more than 14 additional teams than 2014’s tournament.

Thanks to our gold sponsors:• Cellular Sales• Engineer Solutions, Inc.• Knoxville News Sentinel• Republic Plastics, Ltd.

Your Dollars at Work

Golfi ng with Peyton

AJ Cucksey sings “Rocky Top” to Peyton Manning.


Donate at www.etch.com/ItsAboutChildren 13


Calming courtyard Knoxville artist Marga Hayes McBride had a vision to create a peaceful fountain, and two years ago, when she visited Children’s Hospital, she knew it belonged here. Marga wanted to create a peaceful space and provide a calming outdoor place for patients and their families. Th e courtyard is between thesecond fl oor patient rooms and hematology and oncology clinics, but it is available to all patients looking to step outside. Th anks to generous donors, Marga was able to begin her work earlier this year. For the fountain, she designed a sculpture of a girl sitting at a basin of water, with stained glass, tile, stone, rocks and crystals throughout the sculpture. Around the courtyard, Marga and her team installed sculpted greenery surrounded by metallic trees and sunfl owers with smiling faces. To learn how you can help with “Th e Art of Healing” program, visit www.etch.com/giving.



Addison Helton enjoys a game provided by Andy’s iPad program.

Andy’s iPads connects patients Students at Webb School of Knoxville set out to honor one of their classmates, Andy Whitcomb, while donating to Children’s Hospital at the same time. “Andy’s iPads” is in memory of Andy, who spent many months at Children’s Hospital as an oncology patient. His friends donated 50 iPads, 50 cases, multiple iPad apps and games and one charging station aft er seeing how much Andy enjoyed his iPad during his time at Children’s Hospital. It provided not only a distraction from his illness but also allowed him to stay connected with family and friends. Webb students will continue to manage the iPads and load apps and games at no cost. Th e students are supporting this program through their annual event “Sundown in Sparta.”


Sliding the city It’s not every day a waterslide shuts down a city street, but on June 20, Slide the City brought a giant waterslide to downtown Knoxville for a fun-filled day. The slide’s three lanes extended the length of three football fields back to back, running from the top of Church Street to the bottom where riders landed in a pool of water, bringing a total of 1,000 feet of water to the event. This event marked the first Slide the City in Knoxville, and more than 2,000 adults, children, families and students

joined in on the summer fun, riding inflatable tubes down the padded water slide. Slide the City Knoxville chose Children’s Hospital as the charity partner for the event, raising $5,763. The Children’s Hospital Volunteers will use the funds raised to support hospital services and contribute toward the volunteers’ $1.5 million pledge to the Children’s Hospital capital campaign.


East Tennessee Children’s Hospital presents the 31st Annual Fantasy of Treespremier Christmas event in Knoxville. Fantasy of Trees is Nov. 25–29 at the Knoxville

Convention Center, and this year’s theme is “An East Tennessee Christmas.”

From ornately-decorated Christmas trees, on-stage performances of holiday tunes, shopping for gifts and activities for children like face-painting, cooking-decorating and ornament-making, Fantasy of Trees is sure to kick off the Christmas season with holiday cheer. This year, proceeds will purchase

updated equipment for the Children’s Hospital Emergency Department.

Major sponsors:

Preview PartyTuesday, Nov. 24: 7 p.m. – 10 p.m.

(Separate ticket required, $75 per person)

Daily Show TimesWednesday, Nov. 25: 9 a.m. – 9 p.m.

Thursday, Nov. 26: 3 – 7 p.m. (Thanksgiving Day)Friday, Nov. 27: 9 a.m. – 9 p.m.

Saturday, Nov. 28: 9 a.m. – 9 p.m.Sunday, Nov. 29: Noon – 6 p.m.

General Admission TicketsVisitors can purchase tickets for the following prices:

Adults: $8 • Children Ages 4 to 12: $4Children 3 and under: FREE

Family 4-pack: $20 (online only)

For directions, parking and more information, visit www.fantasyoftrees.org. Tickets may be purchased online or at the door. Follow us on Twitter @FantasyofTrees.


Media sponsors:


Nothing puts a smile on aNothing puts a smile on a child’s face quicker than getting a gift— child’s face quicker than getting a gift

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It's About Children - Issue 3, 2015 by East Tennessee Children's Hospital

Health & Medicine

Transcript of It's About Children - Issue 3, 2015 by East Tennessee Children's Hospital