Institute for Patient-Centered Design, Inc. The Patient & Family Centered NICU The site of the 2014 Patient Experience Simulation Lab

Collaboration in Action! Dear Volunteers, Donors, Supporter and Friends,

Institute for Patient-Centered Design has always highlighted the importance of designing not

only patient and family friendly spaces, but also designing products that address unmet needs

in the healthcare environment. This year, we had the privilege of working with students from

Georgia Institute of Technology (Ga Tech), and Stanford University to inspire new inventions

for the NICU Simulation Lab. In addition, we have improved the lab with new product

additions that address concerns raised by last year’s participants. Many of these

improvements introduce new opportunities to study user comfort in the family zone.

We have also returned this year with our original partners: Nexxspan Healthcare, LLC

(formerly Lifespan), Tranquil Wall Systems, Worldviz, LLC, SimTigrate Design Lab, and the

nonprofit organization Hand to Hold. Collectively, our team remains committed to raise

awareness of the needs of NICU patients, their families and caregivers in order to inspire

optimal accommodations and promote the best outcomes.

Thank you for joining us as we present Phase II of the Patient & Family-Centered NICU at the

2014 Healthcare Design Conference. We look forward to a collaborative exchange of ideas as

you interact with our team of healthcare professionals, designers, researchers, and NICU

parents and as you view the new inventions developed by the talented students who have

accepted our challenge of “designing with patients in mind.

Sincerely, Tammy S. Thompson, President Institute for Patient-Centered Design, Inc.

Patient-Centered Design is a philosophy by which healthcare facilities and healthcare designers develop products, services and spaces to be used by patients, taking into account the needs of patients, their families and methods for delivering the best care to them. Our mission is to contribute to the quality of healthcare delivery through patient-centered design advocacy, education and research.

Program Guide for the Patient Experience Simulation Lab 2014 Healthcare Design Conference

November 15-18, 2014

Booth 1043 San Diego Convention Center

San Diego, CA

Session Times: Sunday, Nov. 16, 2014 8:00 – 9:00 am 9:20 – 10:20 am 10:40 – 11:40 am 1:40 – 2:40 pm Monday, Nov. 17, 2014 9:45 – 10:45 am 2:00 – 3:00 pm 3:20 – 4:20 pm 4:40 – 5:40 pm Tuesday, Nov. 18, 2014 8:00 – 9:00 am 9:20 – 10:20 am 1:15 – 2:15 pm

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CONTENTS

Patient Experience Simulation Lab 4

Patient & Family Centered NICU Project 7

Patient & Family-Centered NICU Jury 9

Design Competition Winners 11

About the Institute 15

Support 19

2014 Patient & Family Centered NICU Lab Team

Clinical Team:

Kiana Ayers, RN, CLC - Registered Nurse; Amerigroup

Sandra Jungers, RN, BSN, MEd - President & Clinical Consultant, The Bimeco Group

Amir Lahav, ScD, PhD – Research Fellow; Brigham and Women’s Hospital; Assistant Professor of Pediatrics, Harvard Medical School

Nancy Wagner, RNC-NIC, IBCLC - Staff Nurse Leader; Children’s Healthcare of Atlanta

Parents: Jennifer Beatty, LMSW - NICU Parent

Michael Beatty, - NICU Parent

Design & Research: Megan Denham, MAEd, EDAC - Research Faculty; Georgia Tech’s SimTigrate Design Lab

Trinity Kahn, EDAC, Interior Designer; The Neenan Company

Angela Mazzi, AIA, ACHA, EDAC - Associate, Healthcare Architect; GBBN Architects

Jules Sherman, MFA Design – Lecturer, Stanford University, d. School; Founder, Maternal Life, LLC

Construction/Facilities:

Richard M Crowley Jr., Senior Vice President Kitchell Contractors Inc.

Walter Jones, FAIA, LEED AP; Sr. Vice President of Campus Transformation; MetroHealth System

George C. Smith, Senior Architectural Manager; Grady Health System

Program Support & Development: Mark Jungers, Vice President; The Bimeco Group

Elizabeth Jones, MA; Communications Specialist, Institute for Patient-Centered Design, Inc.

Stephen Jones, MBA Candidate

Josh Feler, MS Mechanical Engineering Candidate

Mikkel Soerensen, MS Mechanical Engineer Candidate

Graeme Fielder, MBA Candidate

Olivia Wu, BS Human Biology Candidate

(representing Stephen Jacobson, MS Mgmt Sci & Engineering Program and Abhishek Venkataramana MS BioEngineering)

Georgia Tech Students of winning design solutions, but unable to attend: Gen Li and Teng Shao

Institute for Patient-Centered Design, Inc. 4

Patient Experience Simulation Lab

Two years ago, for the first time in the history of the Healthcare Design Conference, patients were invited to discuss their needs and concerns for the healthcare environment! Back by popular demand, Institute for Patient-Centered Design presents The Patient Experience Simulation Lab, held in the Patient & Family Centered NICU model. The physical model, inspired by the top three winning submissions from our international design competition, serves as the site of the Patient Experience Simulation Lab. This room should not be viewed as a futuristic look at design and technological advances in healthcare design; but, rather a test bed for experiential learning. During this lab, we invite registered participants to explore this model from the patient’s and family’s perspective. These simulated activities have been developed with input from NICU families and clinicians, reflecting actual experiences they have had in the hospital. We reenact these experiences with participants, allowing them to “kick the tires” on patient centered design strategies for the NICU, and investigate the effectiveness of NICU design solutions. Recognizing that there is always room for improvement, we discuss strategies for adding to the design ideas shown in the built model with our panel of experts. This panel consists of clinicians and healthcare architects, as well as special guests joining us to represent the needs of the patient and family. In collaboration with a researcher from Georgia Tech’s SimTigrate Design Lab, we’ve collected information and ideas uncovered during this series to inform ongoing research initiatives and to disseminate within the field. Using a mobile app created by SimTigrate’s

What Others are Saying about

the Patient Experience

Simulation Lab:

One of the most talked about programs at the 2012 Healthcare Design Conference - Anne DiNardo, Senior Editor,

Healthcare Design Magazine

The sold-out sessions received rave reviews, according to conference program director Michael Raggiani, and were one of the highlights of the event. - Kristin Zeit, Editor in Chief,

Healthcare Design Magazine

If there is one thing to see – it’s the Patient Experience Simulation Lab. In a room full of ideas, it’s great to touch something ‘real’ and remember why we are all in the field of healthcare – to support the health and wellbeing of the people who need it most! - Jacob Knowles, LEED AP, Bard, Rao +

Athanas Consulting (Conference Attendee)

Patient Experience Simulation Lab Pretest

2012 Healthcare Design Conference

Simulation Lab Continued... research faculty, participants may toggle through the top three design solutions to decide for themselves which features they consider most valuable. (We would like to thank Nexxspan Healthcare, LLC (formerly Lifespan), The Bimeco Group, and GCX Mounting Solutions for providing iPods for use in the lab.) The Patient Experience Simulation Lab is the only forum in which we, or any other organization, have brought all three parties to into a physical mock-up in a professional conference to share ideas for improving the environment of care. Ideally, this occurs on commissioned projects; however, we take the value of a patient room mock-up to a different level by facilitating a “role reversal” between families and designers or stakeholders. In this workshop, designers and stakeholders assume the role of the NICU family, gaining first hand experiences of the challenges that design decisions could create. Conversely, patients and families will observe and comment on design strategies and ideas. Our goal is to enable participants to leave this experience with a more thoughtful and compassionate approach to design for the end users of healthcare facilities, thereby inspiring innovation and the use of patient-centered design principles in future projects.

Institute for Patient-Centered Design, Inc. 5

Evaluating Design Strategies

Compare & Contrast

Our Impact in the Field: Outreach In 2012, the Institute introduced a new “Mom Friendly Network,” an outreach arm of our Lactation Design program. This outreach component has allowed us to provide information and support to pregnant and postpartum mothers related to breastfeeding rights, accommodations, and peer support. As a recipient of the 2012 March of Dimes Community Award and the2014 American Association of University Women Community Action Grant, this network continues to expand. While engaging mothers and lactation professionals, we have gleaned information that has been used to strengthen our design solutions. The Mom Friendly Network has grown to provide design recommendations and other resources that employers may use to support lactating mothers. We offer free resources to the location community, and we are launching a mentoring program. More information can be found on our website www.MomFriendly.org.

Academic Collaboration The Institute regularly participates in student mentoring activities. We have worked with Converse College, Savannah College of Art & Design, Georgia Institute of Technology and Stanford University to develop content for interior design and industrial design studios at these Institutions. This year, we posed a design problem from the NICU Simulation Lab to challenge students to develop new solutions for the neonatal intensive care unit.

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The Patient & Family Centered NICU Project The neonatal intensive care unit (NICU) has changed significantly in recent years. The medical field is somewhat divided on the involvement of parents in the care of NICU patients; however, our NICU advisors have seen a growing shift toward more parent involvement. The delivery of care to the hospital’s tiniest patients has become more family-centric, acknowledging the healing power of family participation. The goal of the Patient Experience Simulation Lab is to explore the NICU from the perspective of families of NICU patients. We discuss the needs of NICU families in detail, listening to personal accounts and exploring design solutions. The Patient and Family Centered NICU model includes many solutions that may be tested within the lab to determine how well they accommodate best medical practices. We address topics, such as kangaroo care, breastfeeding, and the feasibility of rooming in for mothers recently discharged from the postpartum unit. We identify design solutions for addressing obstacles for patient-family bonding in the NICU and learn planning strategies for empowering the families of NICU patients. In a collaborative exchange, we gather information from practicing clinicians to provide insight on the operations that should be supported through design, with reference to existing health environments research on the NICU to shape future design decisions. Using the SimTigrate approach, we discuss the benefits of using a simulation lab to inform new design projects. Commonly discussed concerns, such as infection control, acuity adaptability, and privacy, are also addressed with our panel of clinicians and parents. In addition, participants witness demonstrations of routine NICU activities in order to gain a better understanding of the functions that take place inside a NICU patient room. The Patient and Family Centered NICU is not intended to be an example of a perfect NICU design; but, rather a test bed that enables an interactive exchange of ideas, and an evaluation of successful design techniques as well as the mistakes that may be discovered (and prevented) when design teams have the benefit of family involvement in design.

Institute for Patient-Centered Design, Inc. 7

Principles of

Patient-Centered Design: Patient-centered design supports the practice of patient-centered care by creating environmental conditions that facilitate healing. The following principles may be applied to healthcare design to engage patients. 1. Respect privacy

2. Facilitate communication, collaboration and trust

3. Encourage patient and family participation

4. Empower patients

5. Promote safety and security

6. Provide accessible accommodations

7. Create a comfortable environment

8. Facilitate healing

9. Support staff’s goals through design

10. Look for design opportunities to respond to unmet needs

Institute for Patient-Centered Design, Inc. 9

Dr. Jaynelle Stichler, co-editor of the Health Environments

Research & Design (HERD) Journal and Professor Emeritus of Nursing Leadership in Health Care Systems at San Diego State University

Dr. Mardelle Shepley, NICU design expert, Director of the Center for Health Systems & Design and holder of the William M. Pena Endowed Professorship in the College of Architecture at Texas A&M University

Architect Kimberly McMurray, Associate Principal at Ward Scott architecture and Vice President of Design for the Institute

Architect Tammy Thompson, the Institute's president, and the mother of a former NICU patient

Nurse LaShawna Heflin, the Institute's advisory group member and a nurse of 13 years with experience in women and infants care

Dr. Robert White, Director of the Regional Newborn Program at Memorial Hospital of South Bend, Indiana, author, and Chairman of the Consensus Committee on Recommended Standards for Newborn ICU Design

Attorney Meaghan Boyd, co-founder of Piper's Friends, a charity honoring her daughter, who lived a short life in the NICU

Nurse Jodi DeJoseph, Supervisor/Educator for the NICU at

Wake Med Health and Hospitals in Raleigh, North Carolina, who believes that families are an important part of the NICU environment

Elicia Jacob, Director of Nursing for the University of Alabama at Birmingham Women & Infants Service (the largest private-

room Regional NICU and Continuing Care Nursery in the country) We would like to thank our jurors for a job well done!

A Special Thanks to the Patient & Family-Centered NICU Jury The Institute was blessed to have an outstanding team of nine jurors to score the submissions received for the 2013 Patient & Family-Centered NICU Project. With various backgrounds from clinical to design, and patient and family experience, the team was tasked with the difficult responsibility of selecting the winners of last year’s competition. The panel of jurors included the following thought leaders (pictured from left to right).

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Stantec Architecture Ltd., Hospital for Sick Children

A Recap of the 2013 Patient & Family Centered NICU

Design Competition Winners (By Elizabeth S. Jones)

Institute for Patient-Centered Design, Inc. (the Institute) introduced a unique experiential learning opportunity at the 2013 Healthcare Design Conference (HCD.13). The Patient Experience Simulation Lab’s interactive workshop series allows participants to navigate healthcare spaces in the roles of a patients and family members in a full size model of a healthcare space.

In order to obtain a diversity of design solutions for the neonatal intensive care unit (NICU), we invited designers from across the country and abroad to submit ideas for the 2013 Patient & Family Centered NICU in our second annual design competition. Last year, the Institute for Patient-Centered Design was proud to announce the winning teams in the Patient and Family Centered NICU Design Competition. A diverse group of jurors from various backgrounds including clinicians, designers, patient advocates and even parents reviewed all submissions. After careful deliberation, the following teams were chosen. First Place: Stantec Architecture Ltd. for Hospital for Sick Children in Toronto; Second Place: Hord Coplan Macht, Inc. for MedStar Franklin Square Medical Center in Baltimore; and Third Place: McMillan Pazdan Smith Architecture for Bon Secours St. Francis Health System (Eastside Campus) in Greenville, SC. The winning projects inspired the Patient & Family Centered NICU model, a full scale mock up for the Patient Experience Simulation Lab. Inside this interactive learning lab, conference participants experience a virtual reality tour of a NICU space; then, walk inside the physical model to compare design features and discuss the impact of design with the end users. Our team of volunteers, including clinicians and NICU families, researchers, and design experts, presented this unique learning opportunity to conference attendees last year; and they are back by popular demand to present in this year’s improved learning lab. The selected projects each contained elements of innovation, functionality and creativity to address the needs of NICU families. By presenting these ideas, the Institute continues to inspire more thoughtful attention to the needs of patients and families, during this series of workshops.

Institute for Patient-Centered Design, Inc. 11

Hord Coplan Macht, Inc., MedStar Franklin Square Medical Center

McMillan Pazdan Smith Architecture,

Bon Secours St. Francis Health System

Stantec Architecture, the firm that believes in “design with community in mind,” uses a multidisciplinary approach to design, through architecture and engineering. According to Tim Eastwood, senior associate and design lead for this project, Stantec’s core design principal is patient-centered. Eastwood explained that the team often uses family and patient advocacy groups to participate in the design process and “to push the overall patient-centered discussion in the design industry.” The team from Stantec took a unique approach to patient and family engagement on their design of the “Hospital for Sick Children” in Toronto, by giving NICU families cameras so that they could photo journal their experiences. Eastwood says this was an inexpensive yet effective way to gain feedback and use it to improve their NICU design. As a result, the Stantec team created an adjoining family sleeping area with sliding panels to separate the family zone from the patient zone as needed. Hord Coplan Macht, Inc. is one of Baltimore, Maryland’s largest healthcare design firms. Jamie Norwood, project designer on the healthcare team explained that Hord Coplan Macht uses evidence-based design and believes in “everyone working in conjunction to create a healing environment.” Norwood said his team focused on creating a way to separate the family space, so that while families are visible to the patient, they are also able to live a normal life while being in the room 24/7. The team used feedback from parents when creating the NICU design for MedStar Franklin Square Medical Center in Baltimore. According to Norwood, mothers’ concerns with lactation spaces had the greatest impact on their design. Norwood believes that “success is to make the family and medical staff a team working together.” McMillan Pazdan Smith Architecture aims to address the patient’s need on each project, while also focusing on integrating technology and flexibility for the clinical staff. Tracy McGee, healthcare planner and project manager for the Bon Secours St. Francis Health System project explained that “simple things like a rocker or privacy are huge, though it may seem small to others.” The design from McMillan Pazdan Smith incorporated spaces zoned for comfort, flexibility, family space and privacy. McGee explained that they were able to incorporate simple aspects, functionality and innovation in this design. On this design, NICU families saw the mock-ups and were able to talk about the design openly. McGee believes the biggest lesson in this design process is that “it doesn’t matter the size of the project, you can be innovative in a number of ways.” These winning teams have inspired the Patient & Family Centered NICU model, with thought provoking design strategies that serve as the basis for this year’s Patient Experience Simulation Lab.

Institute for Patient-Centered Design, Inc. 13

About the Institute Officers

Shanta Gilles, MS

Kimberly McMurray, MBA, AIA, EDAC

Natasha Ramey, MPA

Tammy Thompson, NCARB, CLC, EDAC

Staff

Kiana Ayers, Clinical Partner

Andrea Hall, Event Coordinator

Elizabeth Jones, Communications Specialist

Trinity Kahn , Design Coordinator

Chandra Perry, Executive Assistant

Tammy Thompson, President

Kristen Wright, PR Consultant

Advisory Committee Members

Patients

Wanda Gispert, Patient

Ched & Nannette Salasek, Parents

Remembering the Late Roosevelt Glover,

Patient Advisor

Healthcare & Design Professionals

Kiana Ayers, RN; Nurse Educator

Jon Paul Bacariza, AIA, ACHA, EDAC, LEED

AP BD+C; VP - Design Firm

LaShawna Bowden Heflin, RN, BSN;

Practicing Nurse

Shehani Fernando, ECAC, LEED AP; Sr.

Healthcare Planner

Tracey Friley, AIA, NOMA, EDAC, LEED

AP; Architect

Walter Jones, AIA, LEED AP;

Senior Vice President – Hospital Facilities

Allyn Rippin, Design Researcher

Marjorie Serrano, PNP, AIA; Pediatric

Nurse Practitioner/Architect

George C. Smith; Hospital Facilities

Architectural Project Manager

Michelle L. Trott, AIA, NCARB, ACHA,

Architect

Vicki Vickers, Hospital Facilities Interior

Designer

Institute for Patient-Centered Design, Inc. 15

Purpose Institute for Patient-Centered Design, Inc. (the Institute) is a nonprofit organization, recognized by the Internal Revenue Service as tax exempt under section 501(c)(3) of the Internal Revenue Code. The Institute was founded by patients and design professionals with the purpose of giving patients a voice in the development of the healing environment.

Our Organization Institute for Patient-Centered Design provides education and resources to healthcare facilities and healthcare designers to address the needs of patients. Many designers lack firsthand experience in the challenges that patients face inside healthcare facilities. Our organization seeks to enlighten these professionals on the "patient experience" and to advocate for the appropriate environment of care and resources to promote optimal healing conditions.

Board & Officers Institute for Patient-Centered Design is led by its founding board members, a small, dedicated group representing the design field, public engagement and education. All of our board members have firsthand experience as patients and family members caring for patients. In addition, the board utilizes the expertise of its advisory committee, made up of patients and subject matter experts in the fields of healthcare and design.

Advisory Committee Our advisory committee is comprised of patients, healthcare professionals, and design professionals dedicated to improving the healthcare environment through advocacy and education. All subject matter experts, patients or practicing professionals, are able to contribute information regarding current trends and practices in their respective fields. - Patients: Our contributing patients live with chronic illnesses that require regular

healthcare maintenance. They have spent a great deal of time receiving medical care in diverse environments, ranging from very poor to excellent. These patients share their personal experiences to promote awareness and improvement to the environment of care available for all patients.

- Healthcare Professionals: The healthcare professionals serving on our advisory

committee provide clinical information on the requirements of a healing environment. They also provide insight on best practices and necessities that enable medical staff to deliver the best care.

- Design Professionals: We utilize the expertise of professionals in the fields of

architecture, interior design and medical planning. They offer insight from the design and construction fields to translate the information gleaned from patient experiences into design goals and principles.

Partnership Team: 2012 Patient-Centered Design Reception

Institute for Patient-Centered Design, Inc.; www.PatientCenteredDesign.org

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Support We sincerely appreciate the

contributions of our valued supporters. By investing in our mission, you are helping us to improve the quality of

healthcare delivery.

Your Contributions Make a Significant

Impact on our Success!

$800 will cover the cost to register our continuing education courses for one year.

$1000 will allow us to broadcast our educational content through webinars for one year.

$2,000 will cover the cost to publish our quarterly e-newsletter Patient-Centered Design Online™ for an entire year.

$3,190 will allow us to provide regular updates to our website audience for one year.

$5,000 will enable us to present one live, free continuing education session.

Institute for Patient-Centered Design, Inc. is a 501(c)(3) nonprofit organization. Donations

are tax deductible.

Institute for Patient-Centered Design, Inc. 19

Corporate Donors

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NICU Lab Content Development Committee: Clinicians:

George Bugg Jr., MD Kimarie Bugg, MSN, MPH, FNP-BC, CLC

Jodi DeJoseph, BSN, RNC-NIC LaShawna Heflin, RN, BSN Sandra Jungers, RN Marjorie Serrano, RN, PNP, AIA Robert White, MD

Researchers:

Megan Denham, MAEd. Allyn Rippin, MS, EDAC Mardelle Shepley, D.Arch, FAIA, FACHA, EDAC, LEED AP

Parents:

Jennifer Beatty, MSW Nannette Salasek

Design Thought Leaders:

Walter B. Jones, Jr., AIA, LEED John Kasten Angela Mazzi, AIA, ACHA Kim McMurray, AIA, EDAC

We would like to thank Dr. Bob White, Dr. Amir Lahav, Mrs. Natasha Ramey, Mrs.

Jennifer Beatty, Dr. William Rhine, Mrs. Jules Sherman and Professor Wendell Wilson

for contributing to this year's NICU Simulation Lab development.

Institute for Patient-Centered Design, Inc. 300 N Cedar Street, Suite C-1

Summerville, SC 29483 (404) 890-5646 office telephone/fax

www.PatientCenteredDesign.org

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