1. A multimedia information program for peopleaffected by liver cancerRobotin M,1,2 Porwal M,1 Nguyen D, 1 Hopwood M,3 Treloar C,3 George J 2,41 CCNSW, 2 University of Sydney, 3 Centre for Social Research, the University of NSW,4 Westmead Millenium Institute and Storr Liver Unit

2. HCC in NSW: rising incidence and poor survivalSource: Cancer in New South Wales - Incidence and Mortality Report 2008 3. Background Steady increase in HCC incidence and mortalityover last decade 47% of diagnoses affect migrants to Australia Scarce good information resources on HCCdiagnosis and treatment available Consumer information needs poorly defined 4. Project objectives Stage 1- Identify the information needs of peopleaffected by HCC and preferred modes of accessinghealth information Stage 2- Develop culturally appropriate HCCconsumer resources, informed by Stage 1 research Stage 3- Develop a tailored dissemination strategy 5. Identifying available HCC informationresourcesResources for Asian PatientsHepatitis B and Liver Cancer(Chinese, Vietnamese and English)BookletsPamphletsBrochuresWebPages 6. Community-based consultation In-language focus group discussions (FGD) and in-depthinterviews conducted April 2013- Feb 2014 Significant delays and recruitment challengesLanguage # FGD participants # interview participants Total participantsEnglish 15 4 19Vietnamese 12 12Cantonese 9 2 11Mandarin 5 2 7TOTAL 29 20 49 7. Resource development priority content areas1. Process of HCC diagnosis and staging2. Understand meaning of investigations / test results3. Understand treatment modalities4. Treatment effects and ways to mitigate them5. Dietary and nutritional modification after HCC diagnosis6. Role of Complementary and Traditional Chinesemedicine play in HCC management 8. Examples of liver cancer informationmodules 10 modules developed per languageMODULE TOPIC1. About liver cancerWhat is liver cancer?How common is liver cancer in Australia?What causes liver cancer?I have just been diagnosed with liver cancer, what should I do?What are the different types of liver cancer?What are the symptoms of liver cancer?What happens if someone has liver cancer?Can my cancer be passed onto my family?2. Screening for liver cancer Why do we screen for liver cancer?How do we screen for liver cancer?What happens if screening tests suggest liver cancer?3. Diagnosing liver cancer How is liver cancer diagnosed?What is a liver biopsy and how is it done?Why is the pathology report important?How long have I got to live after a liver cancer diagnosis? 9. http://hepbpositive.com.au/understanding-liver-cancer-english/http://www.youtube.com/playlist?list=PLY6uP23xxP2krRVB0LbW3xWQTlLecN-XM 10. http://hepbpositive.com.au/understanding-liver-cancer-english/http://www.youtube.com/playlist?list=PLY6uP23xxP2krRVB0LbW3xWQTlLecN-XM 11. Resources requests- postcard 12. AcknowledgementsPeople affected by liver cancer who gave their precious time to participateConsumers on Steering Committee:Mrs Ella Lee, Mrs Loan Nguyen, Mrs Jenny BerrymanMinglo Sze, Hanh NguyenExpert panel who collaborated in resource development 13. Thank you