Innovative Solution to

Patient-centered Care

Inherited Coagulopathy

and Hemoglobinopathy

Information Portal (iCHIP)

Presenter: Harinder Gill

Disclosure

• No potential conflict of interest

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Objectives

• Background and Aim

• Successes

• Challenges

• Results

• Lessons Learned

Story of iCHIP

• Inherited Coagulopathy and Hemoglobinopathy

Information Portal (iCHIP): an information tool

• BC Inherited Bleeding and Red Cell Disorders Program

(IBRCD) 2010

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Aim of iCHIP

To:

• Provide a secure standard method for patients’ infusion

records

• Promote self-management

• Enhance access to patient health information

• Collect longitudinal data

• Integrate multiple systems

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Two Modules in iCHIP

Clinic Module Patient Home Module

Example of Home Utilization

Record (before iCHIP)

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Example of Home Utilization

Record (after iCHIP)

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Successes

• Easy to use, secure, web-based tool

• Supports patient education and timely interventions

• Assists in transition from pediatrics clinic to adult clinic

• Data collection

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Challenges

• Communication and knowledge transfer

• Privacy and security requirements

• Engagement of multiple stakeholders

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Results

Patients’ Feedback:

• “User-friendly, easy and intuitive”

• “So grateful for support for parents with patients with

hemophilia”

• “You don’t know how difficult it was in the past”

• “Easier and faster to input data, easier to get info to and

from clinic”

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Results..

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Results…

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Lessons Learned

• Clarity in stakeholders’ needs and requirements

• Ongoing check-in with all stakeholders

• Communication throughout all stages

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Lessons Learned..

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Ongoing

involvement of

patients and

clinicians in every

step of the way!

Thank you

• Adult IBRCD Clinic, St Paul’s Hospital

• Pediatric IBRCD Clinic, BC Children’s Hospital

For More Information:

BC Provincial Blood Coordinating Office

604-675-3991

www.pbco.ca

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