Heard In Fort Worth Hearing Loss Association of America - Fort Worth Chapter August 2016

HLAA Monthly Meeting Saturday, August 13, 10:00 a.m.

Snacks and socializing at 9:30 a.m.

Goodrich Center, 2500 Lipscomb St., Fort Worth

“Hearing Health” &

“Ask an Audiologist”

Presented by

Heather Dean, Au.D. Audiologist at Cityview Audiology

Come listen to what Dr. Heather Dean has to say about hearing loss. What are the main causes of hearing loss? What are some consequences of hearing loss? How can hearing loss affect the total body? She will also have an "Ask the Audiologist" Q/A time.

Dr. Heather Dean has been an audiologist for five years, graduating from the University of South Alabama in 2011. Before practicing at Cityview Audiology, she was in Atlanta, GA, at a large ENT practice. Dr. Dean has been with Cityview Audiology for two years, working part time while completing a Master of Theological Studies at Southwestern Baptist Seminary. She has decided to continue at Cityview Audiology after her graduation in May 2016.

Guests are always welcome at Fort Worth Chapter meetings. Join us!

Frank Brauer Appointed as Secretary

The Fort Worth Chapter’s board of directors has

appointed Frank Brauer to fill the position of secre-

tary for the remainder of the calendar year. Frank has

had hearing loss since birth and has worn hearing

aids since he was three years old.

After 25 years in the photo-processing industry,

Frank decided to return to college. He plans to

graduate this December with dual major bachelor’s

degrees in photojournalism and applied arts and

sciences. He will also receive a certificate in dispute

resolution.

“It is my desire to find a career as an advocate for

people with hearing disabilities. To serve at any

capacity is a welcome challenge,” Frank said.

The board believes Frank will be an asset to the work

of our chapter.

IN THIS ISSUE:

Reflections on the 2016 HLAA Convention

Extended report on June Program: Listening Training at Home: Workouts are Not Just for Your Abs, by Dr. Carol Cokely

Discourse Tracking, by Dr. Carol Cokely

Affordable and Accessible Hearing Health Care – editorial by David Edmondson

What Keeps Us Going? – editorial by Dan White

Photo Credit: The photograph of The Fort Worth Herd on our Heard In Fort Worth banner is used by permission of The Fort Worth Herd

and its sponsor, the Fort Worth Parks and Community Services Department.

David’s Discussion Accessible and Affordable Hearing Health Care

My wife Sharon and I had a wonderful time at the

National HLAA Convention in Washington, DC, and

found it very educational. This year we met jointly

with the International Federation of Hard of Hearing

People. The co-partnership in this year’s convention

gave it an international flair by having 22 countries

represented. We all learned that hearing loss in our

country is no different from the issues that other

countries face with hearing loss in their populations.

Hearing loss affects a large segment of the world’s

population, and only a small percentage of them are

benefitting from the use of hearing devices that will

provide a better quality of life.

One of the more exciting announcements at this

year’s convention was a committee report commis-

sioned by the National Academies of Sciences,

Engineering, and Medicine. The Committee on

Accessible and Affordable Hearing Health Care for

Adults released their report a few weeks ahead of the

convention, focusing on placing a top priority on

individuals with hearing loss. HLAA was on the top

of the list as one of the organizations sponsoring this

report as part of its advocacy goal that we all can

benefit from.

The report focused on the need for transparency and

changes in the cost of hearing health care and on

expanded treatment options, given the number of

Americans, estimated at 30 million, who have

hearing loss, and given the high cost of hearing

health care. It is estimated that only about 14 to 33

percent of adults over the age of 50 who could

benefit from hearing aids actually use them. The

committee believed that the high cost, lack of insur-

ance, the stigma associated with wearing hearing

aids, and limited awareness of available options are

barriers for people in accessing hearing health care.

The majority of these high costs are the responsibility

of the individual seeking this type of care.

The report also emphasized how important it is to

have everyone be part of the solution: health care

providers, hearing health care professionals,

employers, government agencies, professional

associations, researchers, and consumer support

advocacy groups. The fact is that good hearing is

crucial to our quality of life, and the recommenda-

tions in this report will allow all of us to have better

availability of hearing health care as these recom-

mendations are implemented. HLAA at the national,

state, and chapter levels can all play a role in moving

this implementation forward. The education and

advocacy goals of our HLAA organization can be

responsible for providing our constituents with

credible information to make informed choices.

The report identifies the need to support and manage

hearing health and to foster environments that maxi-

mize hearing and communication for all of us. For

example, reducing exposure to noise at high volume

levels for extended periods of time and using hearing

protection as appropriate for the environment will

reduce the damage being done to our hearing health.

The report also emphasizes the need for compliance

with the Americans with Disabilities Act and other

laws and to exceed their minimum requirements, as

well as to research and incorporate features into

buildings and public spaces that improve hearing and

communication.

Our quality of life depends on it, and this report takes

us closer to the realization that this can really happen

as their recommendations are adopted. The report is

publically available on the Internet and accessible to

all of us. As part of our commitment to ourselves and

other hearing loss individuals in our country, we

should make ourselves aware of these recommenda-

tions and do everything in our power to support the

implementation of each and every one of them. These

recommendations identify key institutional, techno-

logical, and regulatory changes that would enable all

of us to find and fully use the appropriate, affordable,

and high-quality services, technologies, and support

we need.

– David Edmondson, Chapter President

For more information on the report, go to:

http://nationalacademies.org/hmd/reports/2016/Hearing-

Health-Care-for-Adults.aspx

HIGHLIGHTS OF JULY 2016 PROGRAM:

2016 HLAA Convention Reflections

Presented by David Edmondson, Sharon Edmondson, and others

From meeting transcript by Maribel Arredondo, CSR; edited and summarized by Dan White

The goal of the convention was communication. That

is the goal of HLAA. The new Executive Director

Barbara Kelly spoke at the opening session. She

pointed out that HLAA is the premier organization

that has hearing loss as its number one priority. We

advocate and educate, speaking up and making others

aware of hearing loss. We promote research and

legislation, making known that hearing loss is a key

disability in this nation and the world. Being able to

hear is essential.

She spoke about our needing to learn to request

assistance for hearing and to be an advocate for

hearing loss concerns. Have you ever gone to a

meeting and requested assistance for your hearing

loss? We need to say, I have a hearing problem. Can I

have closed captions? Is there a looping system? Can

I have sign language? Can I have CART sitting there

beside me? You might not get it, but you surely are

not going to get it if you don't ask for it.

Another general session featured Jenny Lay-Flurrie,

Microsoft’s Senior Director of its Trusted Experience

Team (TExT). She is Microsoft’s chief accessibility

officer. Microsoft has created a division for

accessibility, and her job is to make sure that the

products and websites have greater accessibility. She

was there to get insights to improve their products.

She said we are going through a cultural evolution,

and hearing loss is finally being identified as the

number two disability in the United States. She is

deaf herself, and her job at Microsoft is to empower

people with hearing loss through technology.

She commented that one of our problems is that we

learn to hide our disability. Rather than come out and

say we have a disability and need assistance, we hide

it, and that doesn't help us. But then finally, we hit a

brick wall, and some of us actually go and seek out

how to get around these limitations, and that's what

we need to do better. When we acknowledge our

disability, new opportunities can open up.

Many other companies now have officers responsible

for accessibility to their products. Sony Corporation

was there and won an innovation award for their

Sony entertainment glasses. These closed caption

glasses allow people with hearing loss to improve

their experience at cinemas. Yahoo has an acces-

sibility team. Yahoo is a search engine website that

has become much more than that. They were honored

because they are making sure that all of their movies

and even movie trailers on their websites are

captioned. You can call the main offices of many

corporations and talk to the person in charge of

accessibility to offer your complaints, comments,

requests, or suggestions. You can get help with your

issues.

Do you want to hear well? You need to be wired for

sound. Wireless technology is involved with the

caption phone industry, being able to have Caption

Call or an iPad. You can be out in the desert of

Arizona and be able to talk effectively on the phone.

There are a number of things with your iPhone that

will allow you to hear better – allow you to train

yourself to hear and listen better.

The convention offered educational workshops

divided into different tracks such as Advocacy Issues,

Assistive and Other Technology, Employment,

Hearing Aids and Cochlear Implants, Dating and

Relationships. It offered sessions for military service

members and veterans because one out of three

people who come back from battle service has

hearing problems.

There was a track on living our life, dealing with the

stress we have, learning how to cope with our hearing

loss and how to help others understand us and

communicate.

There was also a track for leaders in state and chapter

development and how to better run a state association

or local chapter like Fort Worth.

There was a track on cochlear implants and hearing

aids. The FDA is making changes with cochlear

implants. In the past, you had to have a 40% word

comprehension score or worse to qualify for a

cochlear implant. Now it’s changing to 60%. People

do better when they get an implant if they have some

residual hearing.

They had meetings for parents of children with

hearing loss. The FDA now recommends that

children be implanted before 12 months of age. In

that first year, if they can be implanted, they will

have normal quality of life that you would want for

every child. We have seen an example of that at one

of our chapter meetings.

Another device works with your residual hearing. It

is called a hybrid. It has fewer electrodes and uses the

Continued on next page

Convention Reflections, continued from page 3

hearing you have. It is a hybrid of a cochlear implant

and a hearing aid. They also talked about a direct

auditory brain stem implant. This is an implant for

people who don't have auditory nerve stimulation.

Telephone usage: Using hearing aids with the

telephone has improved tremendously. A lot of

people have frustration with telephones. In fact, it

ranks right up with trying to understand the

television.

Captioning and CART: I learned how rare this

commodity is, having Maribel sitting here and

captioning our meetings. Only one out of ten people

who begin a degree in court reporting actually finish

that degree and become court reporters. Of that one

out of ten, only one seventh can do what Maribel is

doing – CART – real-time transcription. That blew

my mind.

The National Captioning Institute has established

best practices and certification for TV captioning.

They've also created a mechanism to provide feed-

back on the accuracy of captions, the delay in

sending captioning out, the completeness and the

placement of captions. You can go to the website

www.captioningmatters.com and provide feedback

for what's happening in the broadcast industry.

We have made many friends over the years through

the HLAA annual meetings. We actually get to meet

all of our virtual friends and spend time with them.

It's really a lot of fun. Usually these conventions have

state organization meetings, so you get to meet other

people from Texas, like from San Antonio, Houston,

or Austin, and those are people that you might want

to be close to in the future.

You also get to meet the people that are actually

running the national HLAA. We got to speak to the

new executive director, who was appointed two or

three months ago. So you get to meet a lot of people,

but what is even more eye opening is seeing the

number of vendors in the hearing loss field, learning

about the tremendous amount of research that's going

on, and seeing the new products that are coming out

regularly.

I encourage you to put a priority on your bucket list

to attend one of these conferences. This thing is a big

deal. A couple thousand people were there. They

have general sessions; they have track sessions; and

they go from 8:00 o'clock in the morning to 8:00 or

9:00 at night. They have a big banquet where they

identify and award people in chapters who have done

excellent things. It is really worth your time to go,

and I encourage you to do so.

EDITORIAL

What Keeps Us Going? What keeps us going? Stories. Last month a fairly

new member said, “This chapter changed my life!”

She heard something at a meeting that empowered

her to get the help she needed to make her life better.

We hear comments and stories like hers often enough

to be reminded that the work we do is vital and

appreciated.

We make a difference in the lives of individuals and

families, and that’s what keeps us going. Knowing

that we have significantly improved someone’s

quality of life feeds our souls. It fans the flame of

desire to keep the chapter alive and working.

The Fort Worth Chapter has been meeting

continuously every month since March, 1990. Some

of us have been active participants and leaders the

entire time. Others joined later, added their contri-

butions, and either stayed with us or moved on.

Other chapters have come and gone, but thankfully,

the Fort Worth Chapter remains strong and growing.

We’ve had many great milestones in our 26 years of

service. We’ve also had times of discouragement and

despair, wondering if we could find or keep leaders

to carry on the work. Burnout has been a real threat.

What keeps us going are the reminders that it matters

to real people in real life situations. Thank you – for

being part of our lives, part of our chapter – learning,

growing, giving, and making a difference to other

participants.

Perhaps you can join us in doing more for others by

helping with a project or a health fair booth, serving

on a committee or as an officer. Some of us would

like to pass the torch to a new group of growing and

capable leaders. It’s a rewarding endeavor.

Look at our list of officers and committee chairs and

consider where you can help shoulder the load. We’ll

hold a chapter election this fall. We’re counting on

you. – Dan White, editor

Have You Tried the Listening System? You probably know about the loop listening system

at our monthly meetings. If you have telecoils in your

hearing aids or CI processor, you may have tried it

and experienced the difference it can make in

comprehending what’s being said. If you don’t have a

t-coil, you can try the new receivers donated by the

Sertoma Club of Fort Worth. It’s worth a try. You’ll

be amazed at how much better you can hear. Try it

The June program was so helpful that we are including a fuller transcript than usual in this issue. One of the auditory training methods was so simple, free, and useful that we have given further details of it on page 7. We encourage you to try it. – Editor HIGHLIGHTS OF JUNE 2016 PROGRAM:

Listening Training at Home: Workouts are Not Just for Your Abs Presented by Carol Cokely, Ph.D, Clinical Professor of Audiology at the University of Texas at Dallas

Edited from a transcription by Maribel Arredondo, CSR, and from Dr. Cokely’s PowerPoint presentation

Workouts are not just for your abs. If you want to

hear better and understand more, you need to

exercise your brain through auditory training –

letting your ear-to-brain relearn. If you have

hearing loss that's acquired or diminished over

time, your hearing system is different now than it

used to be, and you have to train your ears to do a

better job of picking out the important information.

That's work for your ears, it's work for your brain,

it's work for the ear-to-brain connection. Just like

that fellow with the abs, he probably wasn't always

that way; he had to work at it.

The Ear. You have hearing loss but you also have

residual hearing. You still can hear, but you can't

hear as well as you used to. We want to know what

you have, what you're capable of using, and how

much better can we make it. Even if you're doing

well, you can work to do better, and working to do

better usually means that you're not as tired at the

end of the day. Because you're training your ear-to-

brain connection and you're training how to pull

out the sound information and the auditory

information, it might be happening more

efficiently, so you won't have to work at it as hard

to understand.

The Brain. The brain is a very important

component here. Brain plasticity means the brain

changes. It can change to the good by training. You

can actually forge some newer connections, faster

connections.

You. This is a big part of the equation. Your own

personal motivation, your own abilities are a

tremendous part of trying to build a program that is

specific to you.

The Cochlea. Damage to the cochlea results in

hearing loss. Even if we can make things louder,

we can't always make things clearer, and part of

that is cochlear disruption. In real terms, this

means you do not hear soft sounds, do not

understand speech well, do not hear in noise, and

do not enjoy music as you did before.

The cochlea has a beautiful organization. The

processing of sound occurs because the cochlea is

organized by pitch, like a piano. Some parts are

devoted to low pitches, other parts are devoted to

mid pitches, and still other parts are devoted to

high pitches.

That beautiful organization in the inner ear also

happens up in the higher parts of the brain.

Hearing loss usually starts in the high pitches. That

part of the cochlea is damaged first, and the brain

is waiting for high pitched information, but it's not

getting it.

Untreated and Undertreated Hearing Loss. Only

one out of seven individuals with hearing loss do

something about it. That’s untreated hearing loss.

But of those who have done something about it,

many are undertreated. You made some great

steps. You have appropriate technology, you have

support systems, you may have a lot of residual

hearing, but even with your help, you are still

perhaps not functioning to the maximum. So we

call that undertreated.

Some people wait five years, 20 years, to do

something about it, and that's a long time for the

brain to miss that stimulation. So the brain starts to

restructure. Part of it was accustomed to receiving

high pitched information, but now it’s not being

stimulated. So it starts to adapt and starts to

welcome mid pitch information because that's

there. Your hearing is better in the mid pitches than

in the high pitches. So the brain reorganizes. That's

what we call plasticity. It is a change in the brain.

So after five years, seven years, ten years, maybe

someone is nudging you to do something about it,

or maybe you feel there is some tipping point, and

you realize your life is not as good as it could be,

and so you decide to do something about it. You

get the hearing aid and now you are getting some

of those high pitches, but it's been many years, and

your brain is not used to that, so the brain has to

restructure again.

Just because you put a hearing aid on doesn't mean

that it’s automatically going to foster the necessary

changes. This is where additional training may

help this reorganization happen more effectively.

You add the hearing aid and other activities that

can change the brain, and relearning also changes

the brain. You like to hear what you are used to

hearing and sometimes new sounds create

confusion and you have to work at it.

Systematic. Formal auditory training is a

systematic program of doing intentional listening

for a period of time every day or several times a

week over a long period of time.

The two basic philosophies or methods of auditory

training are analytic and synthetic. Analytic is

taking the very smallest pieces of speech and trying

to help train your brain to tell the difference, for

example, the difference between the S and F

sounds. That’s analytic training.

Synthetic training means pulling it all together.

So while it's important to do the little pieces, it's

extremely important to get the big picture. You

don't hear everything someone is saying, but it

doesn't mean you are unable to follow a

conversation. Your brain fills it in naturally.

However, with hearing loss, it's harder for your

brain to do that because you're getting less of the

information.

Adult Learning Theory. The truth about adult

learning is that nothing is going to happen for you

unless you are motivated. You have to be the

material driving force for you to do it. It has to be

practical and relevant for you to learn something,

and it has to be experiential most of the time. So

it's not just tied to facts.

Self-Efficacy. You have to be confident. You must

feel you can do it. I can't over-state how much your

confidence in your ability to do something matters

in whether you're going to learn it.

No one program or method is it. Research shows

there has to be a good match between the person

and the method, so that the motivation is

consistent, that the person feels I can do that, this is

a method I can do. If you think it looks too

complicated or looks too silly, you're not going to

do it. You're not going to be motivated. So self-

efficacy is extremely important.

Analytic and synthetic training are shown to be

effective, but not for everyone. A lot of people

have not shown improvement, and sometimes

people who listen to audio books do as well as

people who are listening to actual training

programs. That’s a mystery.

Auditory training programs to

consider:

LACE, Listening and Communication

Enhancement: a for-purchase program, online or

DVD, available to HLAA members at a discount.

Go to www.hearingloss.org.

– http://www.neurotone.com/lace-

interactive-listening-program

– http://www.neurotone.com/lace-

demonstration-download

– [LACE listening programs – select ->

FREE trial

– DVD; on-line, Home Edition CD-ROM

Seeing and Hearing Speech CD ROM:

www.sens.com/products/seeing-and-hearing-

speech-lessons

Randall’s ESL Cyber Listening Lab:

http://www.esl-lab.com/

Read My Quips: www.sensesynergy.com

Posit Science Brain Fitness System – Brain HQ: http://www.brainhq.com/

Communication Corner:

http://www.cochlear.com/us/communication-

corner

Discourse Tracking: Low-tech, face-to-face

practice with ongoing (connected) speech to

enhance auditory skills.

See page 7 for details on the Discourse Tracking

method.

Discourse Tracking for Auditory Training By Carol Cokely, Ph.D.

Discourse tracking is my favorite auditory training

programs because it's the most low tech one of all.

It's used to enhance auditory skills for ongoing

speech because that's how we work. Its emphasis is

on a verbatim response.

You have a partner who is the speaker. You and your

partner take out a magazine article that you like.

There is work ahead of time: counting the number of

words there are in the reading selection. The speaker

will read parts, chunk by chunk, and the job of the

listener is to repeat verbatim. You don't get a pass or

close enough. It's verbatim, like this:

Speaker (Raquel): Evening was descending –

Listener (Carol): Evening was descending.

Speaker: When I arrived at the immense –

Listener: When I arrived at this tent?

Speaker: When I arrived at the immense –

Listener: At the immense –

Speaker: White stone.

Listener: White stone.

So what happened there? She read chunk by chunk,

but she wouldn't let me go on until I got it exactly

right.

This is scored by words per minute. You have to time

it with a watch and say, “Go,” reading and repeating

for two minutes or three minutes. You count and say,

okay, that was, for example, 50 words per minute.

Now we're going to do this again with another set of

paragraphs. You do this time after time, and you

should see your words-per-minute count get higher

because you're able to process them better.

But also what is the speaker doing? When I started

missing things, what did she do? She enunciated; she

slowed down her speech. So not only are you training

your brain, but the speaker is learning how to

optimize to deliver the message. This is one of my

favorite programs.

Support your Fort Worth chapter and newsletter.

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Platinum = $400+; Gold = $200 to $399; Silver = $100 to $199; Bronze = $50 to $99; Friends = Up to $49

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Friends: Don Fitz, Lanny & Jill DeMoss, Emma Hill, Joyce Parlin, Fred & LaNeta Teryn.

The Fort Worth Chapter is a 501 (c) (3) nonprofit organization.

All contributions are tax-deductible.

The Hearing Loss Association America (HLAA), founded in 1979 by Rocky Stone, opens the world of communication to people with hearing loss through information, education, advocacy, and support. HLAA publishes the bimonthly Hearing Loss Magazine, holds annual conventions, produces Walk4Hearing®

events, hosts online learning, and more. HLAA has an extensive network of chapters and state organizations. Further information can be found at

www.hearingloss.org. The national headquarters is located at 7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814. Phone: 301-657-2248.

2016 Board of Directors

President: David Edmondson (david_edmondson@att.net) Vice-President: Jack Wages (wages21@yahoo.com) Secretary: VACANT Treasurer: Patricia Hindman Newsletter Editor: Dan White (daniel.white761@gmail.com) Librarian/Historian: Judy Oetting (judyoetting@earthlink.net Hospitality Chair: Jeannene Brown Program Chair: Joyce Parlin (kjparlin@hotmail.com)

Professional Advisor Dan White (daniel.white761@gmail.com) . .

Heard in Fort Worth

Published monthly by the Hearing Loss Association

of America Fort Worth Chapter

2500 Lipscomb Street

Fort Worth, TX 76110-2625 Telephone 817-564-3764

http://www.hearinglossfortworth.org

http://www.hearingloss.org

Hearing Evaluations * Hearing Devices

J. Thomas Roth, Au.D. CCC-A, FAAA Doctor of Audiology

Phone 817-332-8817 904 W. Pennsylvania

Fax 817-332-8827 Ft. Worth, TX 76104

ANTHONY HEARING AIDS

Physician-Based Hearing Solutions

Phillip F. Anthony, M.D., Otologist

Sandra Clarkson, MA, CCC-A, FAAA, Lead Audiologist

Julie Mistic, Au.D, CCC-A, FAAA, Audiologist

901 Hemphill, Fort Worth, Texas 76104

817/338-HEAR

Fonner Hearing Aid Center

315 Randol Mill Road, Arlington 76011 Call 817-277-8121 Fax — 817-277-8191

6647 Boulevard 26, Fort Worth 76180 Call 817-284-8584 Fax — 817-284-3253

www.Fonnerhearing.com

HEARING CARE CENTER

“Helping patients and families hear a difference”

Kurt Chappell, BBA

4736 Bryant Irvin Road, Suite 702 Fort Worth, TX 76132

(817) 263-1971 www.chappell-hearing-aids.com

THIS SPACE IS AVAILABLE

Fonner Hearing Aid Center

Arlington 315 Randol Mill Road

Tel — 817-277-8121 Fax — 817-277-8191

Fort Worth 6647 Boulevard 26

Tel — 817-284-8584 Fax — 817-284-3253

www.texasears.com

HEALTHFIRST MEDICAL GROUP

SCOTT O’LEARY, M.S., CCC-A AUDIOLOGIST

Audiology/Hearing Aids

George Kostohryz, Jr. M.D.

Otolaryngology/ENT

4625 Boat Club Road, #257 Phone 817-346-6464

Fort Worth, Texas 76135 Fax 817-238-0054

Marylyn Koble, M.S., CCC-A, Audiologist

(817) 504-3644 koblehearing@gmail.com

Call for an in-home consultation

Audiology Associates of Arlington

Elizabeth Johnson, Au.D., FAAA

Comprehensive Audiological Evaluations Hearing Aids and Assistive Devices

3132 MATLOCK RD., STE 303 817-472-7720 ARLINGTON, TEXAS 76014 817-417-7280 FAX

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All are welcome!

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A Little Laugh

Two friends meet and exchange

greetings. Then Bob, who is hard of

hearing, says to John, “My whole life is

changed. I’m wearing a new hearing aid

that’s a marvel of the latest develop-

ments in electronic ingenuity. It cost me

$6,000, but it’s worth every penny.”

John says, “That’s great! What kind is it?”

Bob looks at his watch and says, “It’s a

quarter past ten.”

From “Do You Hear Me?” by Maxwell Schneider, as published in Wired For Sound, the newsletter

of the Albuquerque chapter of HLAA, May, 2016.