Going Blind & Going Forward Evaluation Report – Phase...

Going Blind & Going Forward Evaluation Report – Phase Three


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TABLE OF CONTENTS

• Introduction 3-5 • Thank You to Our Funders 5-6 • Major Achievements in Raising Awareness 6-11

o Phase One and Two of Outreach 6-8 o Phase Three of Outreach 8-9 o Looking to the Future: Goals for Phase Four of Outreach 10-11

• Going Blind Screens on Capitol Hill 12-13 • Going Blind Broadcasts on Public Television 14-18

o Binghamton Partnership: WSKG & A.V.R.E 16-18 • Outreach Partners 19-26

o Outreach Partner October Screenings 20-26 • National Eye Institute Webinar on Going Blind & Going Forward 27-31

o Participants: The NHAB & The New York VA 29-31 o What Effect is the Webinar Having? 31

• Joseph Lovett Receives Glaucoma Foundation’s Kitty Carlisle Award 32 • Speaking Engagements 33-34 • Library Journal Reviews 35 • Educational Outreach 36-39

o Educational Curricula 38-39 • Indiegogo Campaign 40-42 • Building a Movement 43-44

APPENDIX 45-78

A. Public Television Carriage Report 46 B. News Clips 47-51 C. Viewer Comments 52-53 D. List of Outreach Partners 54-58 E. Outreach Partner Publicity for Broadcasts 59-62 F. Outreach Partner Letters of Support 63-70 G. University of Central Florida Going Blind Screening 71-73

H. Letter in Response to JCAHPO Speech 74 I. Library Journal Reviews 75-78 ORGANIZATIONAL PURCHASES TO DATE 79-92 SCREENINGS TO DATE 92-108 USA Screenings 92-102 International Screenings 103-105 Speaking Engagements 106-108


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Introduction

The following evaluation report, which is the third evaluation report, is intended to bring funders and supporters of Going Blind up to date on the achievements of the Outreach Campaign from November 2011- December 2012. It includes a summary of the first two evaluation reports, the screenings and panels that have been held since at blind service organizations, universities, VA centers, and other institutions. The information was brought to Capitol Hill; inroads were made in improving communication between ophthalmologists and low vision providers and outreach to the general public through public television broadcasts. Our efforts to raise awareness and change the standard of care are making headway through multiple pathways of bringing the film to individuals. The problem is that many people are undiagnosed with vision impairment, people with low vision often do not know help exists, doctors do not know low vision therapies exist and there is no structure in place to connect these vision loss patients with rehab professionals, low vision therapists and resources. The film and its outreach seek to change that. Kept in the Dark: An open letter from a patient who saw Going Blind “When you are facing the specter of diminishing vision the last thing you want is to be kept in the dark. Alas my first two experiences with glaucoma specialists after learning about my own glaucoma during a routine eye exam have been disturbingly disappointing. I have no doubt that both the doctors I have seen are technically top notch and that they have done all the tests, imaging and diagnostics necessary to manage my disease as best they can…Neither, however, has made me a part of the process of dealing with this disease. Glaucoma specialist #1 did a thorough set of tests and sat me down to see the images and explain what I was seeing. I appreciated that. That he chose to describe my glaucoma as mildly advanced I did not appreciate; why would you mislead a patient as to the extent of their disease? A second opinion was in order and I chose one of the most prestigious glaucoma groups in New York City. In my first visit I was further tested and then informed by my doctor (staring at his computer screen and not looking at me) "You have very advanced glaucoma. You have lost 90% of your optic nerve. Do you have any questions?" Stunned, terrified, in shock I could not muster anything quickly enough, drops were dispensed and I was sent on my way.


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Four weeks later I returned with a list of questions culled from a month of reading about glaucoma…Each question was met with unhidden impatience, as if it was irrelevant. Although they had performed many tests, I was not shown or told about what they had found in these tests. No description or explanation of the state of my retina, the cupping of my optic nerve... No discussion of the treatment, what results might be expected or hoped for. No mention of a prognosis... No mention of what "glaucoma" is... Nothing! "You have very advanced glaucoma, you've lost 90% of your optic nerve, see you in four months." I understand that one goes to an ophthalmologist, as any specialist, for their diagnostic and surgical skills. But is it too much to ask that they recognize the needs of their patients?... I know that the "system" often forces doctors to spend less than optimum time with each patient. But the response to these limitations should not be to leave the patient in limbo…Regardless of how busy a doctor may be, there is no excuse for ignoring the human needs of their patients.” Some key statistics: • 25 million Americans are visually impaired, and that

number is growing.

• 70% of blind and visually impaired who could be working are not because they don’t know what services are available to them.

• Less than 5% of blind and low vision Americans

obtain vision rehabilitation services of any kind. • 4 times as many veterans are returning from war with significant eye injuries than

lost limbs, but only 1/3 of them take advantage of vision rehabilitation. Our primary goals are the following: • Raise awareness among the general public about

vision related diseases and encourage annual eye exams so that vision loss diseases are detected early.

• Empower the visually impaired to enhance their

remaining sight by use of vision rehabilitative therapy and to overcome fear of blindness.


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• Encourage medical professionals to understand how vision rehabilitation services can improve their patients’ quality of life and refer them early to such services.

• Increase patient advocacy so that the blind and visually impaired know what to

ask for from their doctors and their communities. • Reach legislatures with this important information so that they are aware of the

issues of the blind and visually impaired. The following is a look at what we have accomplished and what we are aiming for as we look to the future.

Thank You to Our Funders The achievements of the film and its outreach campaign are made possible by many generous contributions from our funders. • Major production funding provided by: • Pfizer Ophthalmics

• Reader’s Digest Partners for Sight Foundation • The Gibney Family Foundation • Allene Reuss Memorial Trust

• National Eye Institute • The Allergan Foundation • Fred A. Lennon Charitable Trust • Rudin Foundation • May and Samuel Rudin Family Foundation • Reid Williams Foundation • Glaucoma Optometric Society • James & Ellyn Polshek • David Duplantis • Richard and Kathleen Levin


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• Major outreach funding provided by: • Reader’s Digest Partners for Sight Foundation • The Sarah K. de Coizart Charitable Trust • The Allergan Foundation • The Gibney Family Foundation • Olcott Family Foundation • Bloomberg Foundation • Teubert Foundation • Gill Foundation • Evelyne Balboni • Reid Williams Foundation • James & Ellyn Polshek • The Beuth Foundation • Drew & Jessica Guff

Funding has been fully tax-deductible through arrangements with the IFP, our 501-C3 fiscal sponsor.

MAJOR ACHIEVEMENTS in Awareness Building

Phase One and Two of Outreach:

June 2010 – November 2011

• Going Blind premiered in June 2010 at the World Ophthalmology Congress in Berlin, a convention of 17,000 ophthalmologists.

• The American Academy of Ophthalmology (AAO) green lit a

program headed by Dr. Mary Lou Jackson to incorporate Going Blind into its Resident Education in Vision Rehabilitation program. In 2011 the program became a part of comprehensive vision rehabilitation curriculum as a way to educate ophthalmology residents all across the globe with the addition of online lectures.

• The Canadian Institute for the Blind (CNIB) licensed the film for all of Canada to

build better cooperation between clinical ophthalmologists and vision rehab specialists.


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• Going Blind premiered theatrically at New York's Quad Cinema during the week of World Sight Day (October 8-14, 2010) and garnered numerous local and national reviews in publications including, but not limited to, the British Journal of Ophthalmology, USA Today, Variety, the Village Voice, the Washington Post and two articles on low vision by Jane Brody in The New York Times.

• In June 2010 we created an outreach toolkit to help organizations hold

screenings, organize panel discussions, raise funds and increase awareness of their services.

• Going Blind was licensed for educational distribution in 35 US

states and 12 countries. The DVD is now fully equipped with audio description to benefit the blind and visually impaired. Our DVD menu is chaptered chronologically, and by character and eye disease, making it easier to use in educational settings. The DVD also contains English and Spanish subtitles.

• In November 2010, WGVU Public Television in Michigan aired Going Blind on

their program, Family Health Matters. A live in-studio panel on blindness and low vision therapy followed the broadcast.

• Alcon purchased 25 copies of Going Blind to distribute to all

optometry schools in the United States and for Alcon’s own staff sensitivity training.

• Speaking engagements by Joseph Lovett enhance and facilitate discussions

around the issues raised by the film. Most notably at the 2011 World Glaucoma Congress in Paris, AER Regional Conference in Boston, the Global Health Innovation Conference at Yale University, and the University of Houston, College of Optometry.

• The National Educational Telecommunications Association

(NETA) acquired Going Blind to distribute the film free of charge to all 350 public television stations in the United States in October 2012 for World Sight Day. NETA believes we can reach up to 150,000,000 Americans through broadcasts.

• Going Blind made its Canadian Broadcast Premiere on the Accessible Channel

on June 9 and 10, 2011. Accessible Media and the Canadian Institute for the Blind (CNIB) jointly acquired the broadcast and non-exclusive educational rights of the film for Canada.


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• Going Blind became available for individual use via downloading & streaming on Amazon. An audio description edition is also available.

• In July 2011 we revamped the website for Going Blind to

encompass both the scope of the documentary and the breadth of our ongoing outreach. Additions to the website include up to date blogs on current events, lists of all screenings, speaking engagements and downloadable PDFs of the toolkit and the evaluation reports.

• In addition to the website, Going Blind has active social

networking platforms, with 600+ Twitter followers and 350+ Likes on the Facebook page.

• The Outreach Toolkit continues to make a difference with over 110 screenings

worldwide and 145 educational purchases.

MAJOR ACHIEVEMENTS in Phase Three of Outreach: November 2011 – December 2012

• With help from the House Vision Caucus, Going

Blind screened on Capitol Hill on September 19, 2011. The event was introduced by Senator John Boozman (R, AR) and followed with a panel discussion.

• Going Blind is being distributed to public television stations free of charge by the National Education Telecommunications Association (NETA) and since September 2012, has been programmed for over 230 broadcasts and reached over 50% of the country.

• To support the public television broadcast initiative,

over 100 Outreach Partner organizations came on board to help spread the word. Many organizations hosted community screenings at the same time as the broadcasts to increase efforts of raising awareness.


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• The National Eye Institute (NEI) sponsored a webinar on Going Blind and Going Forward on September 5, 2012 to teach organizations how to use Going Blind as a tool to raise awareness. Over 400 individuals registered for the webinar-the highest in NEI’s history.

• Speaking engagements for Joseph Lovett

continued throughout Phase III. Notable events include the Unite for Sight Global Health Innovation Conference in April and two keynote presentations at JCAHPO events.

• Going Blind was reviewed in four library

journals, leading to an increase in sales to libraries. Of note is a review in Library Journal, circulation 100,000, which is available in appendix I.

• Going Blind continues to have an impact with institutions around the country and throughout the world. To date, the educational use DVD has been obtained by over 245 organizations, VAs, schools, libraries and other institutions.

• The film has been used in educational curricula in 5 programs, including

the American Academy of Ophthalmology’s Resident Education in Vision Rehabilitation program, Western University in California, a Masters Program at Missouri State University, a Continuing Education program for Opticians in Ontario, and an Occupational Therapy course at Tennessee’s Belmont University.

• The Outreach Campaign continues to

connect individuals and organizations together. Through screenings, broadcasts, and national events, we are fostering interdisciplinary relationships and connections within the blind and visually impaired community. Examples of this to follow.

• Social media increased substantially in 2012. Going Blind Movie has over 750

Facebook likes (up from 350 in December of 2011) and over 960 Twitter followers (up from 600 in 2011). 2012 saw the start of a YouTube account and Going Blind related videos have over 4,400 views.


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Looking to the Future, Goals for Phase Four of Outreach: January 2013-December 2013

For the next phase of Outreach, we want to build on the Campaign’s continued success. With so many people facing severe vision loss (often without knowing it), it is critical to make everyone aware of the issues faced by the visually impaired community, to help them to understand that blindness does not equal the end of life and that there are many services and technologies available to help the visually impaired keep or take back their lives. And we’re going to need your help. Foundations and individuals have already been so generous toward the success of this effort, but we feel that we are only beginning to hit our stride. We can only keep up the momentum with your continued support. We plan to:

• Organize Statehouse screenings. Building off the success of the Going Blind Congressional screening, we plan to organize Statehouse screenings throughout the country over the next several years. Starting in New York, Massachusetts, Texas and West Virginia, where Outreach Partners have already approached us to help, we aim to bring the issues of the blind and visually impaired before State legislatures.

• Continue Public Television Broadcast Initiative. As of December 2012, the

film has already been broadcast over 230 times and reached over 50% of the country. Stations have the rights to the film throughout 2013 and we want to continue to reach out to station programmers to re-broadcast the film, and for new stations to broadcast it for the first time.

• Increase Media for Outreach. The National Eye Institute Webinar created an

increase in organizations obtaining and using Going Blind as a tool in their community. In order to raise awareness about what the film can do for communities, we are hoping to do webinars with other organizations and university departments.

• Continue Educational Outreach. While we

have already reached a large number of organizations with this important information, there are still many more to reach. We will continue to do outreach to organizations and find creative and effective ways to get the word out about


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the film and the Outreach Campaign. We also want to engage new communities including disabilities, diabetes and aging organizations.

• Continue speaking engagements for Joseph Lovett. Speaking engagements are an important and effective means of reaching medical professionals and getting the word out about the film and the Outreach.

• Strive for 100 Outreach Partner screening events for October 2013. In

2012, over 100 Outreach Partners came on board to help get Going Blind broadcast on as many of the 350 public television stations as possible. To help spread the message of the film, many Outreach Partners organized large-scale screening events to raise awareness locally. For 2013, we want to work with our Outreach Partners to help them organize more screenings, and to help organizations that have not hosted screenings before to do so.

• Initiatives to reach more patients. We are speaking with the Joint

Commission on Allied Health Personnel in Ophthalmology (JCAHPO) about the role ophthalmic techs can play in patient education and awareness of vision enhancement services. Joe will be working with the Jewish Guild on a Healthcare Training Program for Excellence in Vision + Health to bring low vision therapy to ophthalmology departments.


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Going Blind Screens on Capitol Hill Going Blind screened on Capitol Hill to a packed audience of legislators, Hill and agency staffers, and veterans’ representatives on Wednesday, September 19, 2012. Senator John Boozman from Arkansas, an optometrist and low-vision specialist, gave a special introduction to the event. Jeff Todd of Prevent Blindness America presented welcoming remarks. Most of the blind service organizations in From left to right: Joseph Lovett, the metro area were in attendance. Senator John Boozman,

Jessica Jones and Steve Baskis

Following the screening, a panel discussion included Going Blind characters Steve Baskis and Jessica Jones; Dr. Robert Murphy, MD, an ophthalmologist who refers patients to low vision therapy; Dr. Suleiman Alibhai OD, a low vision therapist, Chris Danielsen, Director of Public Relations for the National Federation of the Blind; and Kim Hutchinson, President & CEO of the Disability Funders Network

Going Blind Congressional Screening Invitation


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Media at Going Blind’s Congressional Screening

VisionAware’s Maureen Duffy provided live Twitter feed for the event on both Going Blind and VisionAware Twitter accounts.

The entire event was live-streamed by the Going Blind team so that those who couldn’t make it to DC could still watch online. Following the screening, the live-streamed video was made available on YouTube

(http://www.youtube.com/watch?v=5-nOuczCk-Q&feature=plcp). Lovett Stories + Strategies created a 4 minute video about the screening, highlighting some of the key discussion points and available on the Going Blind website (www.goingblindmovie.com/capitol-hill/). In the video, selects of NFB’s Chris Danielsen, and Going Blind’s Jessica Jones discussion of low employment expectations for the blind, have particularly opened new conversation pathways for the film. Thanks to Our Sponsors The event was sponsored in part by the American Academy of Ophthalmology, Blinded Veterans Association and Reader’s Digest Partners for Sight Foundation. The National Eye Institute provided their low vision booklets as handouts for the event.


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Going Blind Broadcasts on Public Television

The National Educational Telecommunications Association (NETA) is distributing Going Blind free of charge to all 350 public television stations in the United States starting in September 2012 and through October 2013. With the help of a station-relations consultant, the Going Blind team reached out to all 350 public television station programmers across the country to get the film broadcast in the fall of 2012 in conjunction with World Sight Day, White Cane Day, World Blindness Awareness Month & National Disabilities Awareness Month. Station Outreach To increase awareness about the film’s availability to public television programmers, we created promotional materials to get the word out about Going Blind. Our station-relations consultant, Laura Adams Guy, attended conferences and distributed Going Blind Amsler grid magnets and other materials. In July of 2012 we conducted a major mass mailing to station programmers with information about the film. Included in the mailing was a list of local Outreach Partners in each station’s viewer area to provide

programmers with contact information should the station sponsor a follow-up on local resources.

A postcard mailed to public television stations

Front of Going Blind

Amsler Grid magnet


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Success To date, the film has been programmed for over 230 broadcasts and reached over 50% of the country. To see a full list of all the domestic broadcasts, visit www.goingblindmovie.com/broadcast/. The carriage report of television station coverage is available in Appendix A. To help get the word out about the broadcasts, public relations firm SWPR Group, reached out to local press to publicize the broadcasts. See Appendix B for news clips. In response to viewings, we have received numerous comments from individuals on the Going Blind Facebook, website and through email, describing how the film opened doors for them, and we’ve been able to respond to these comments and direct individuals to local Outreach Partners where they can find resources. Below is an example of one of the comments we’ve received:

I saw the film on my local PBS station WFYI in Indianapolis. My 45 yr old son has optic neuritis and has lost vision in both eyes. He has started working with low vision organizations. He is scared. Your film was helpful to me

and I will purchase a copy for my family. A door has opened for my son and I…Thank you for making this film…you have my support.

– Deana McGivern

The Going Blind Facebook wall following a public television broadcast


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See Appendix C for additional viewer comments. Viewer Response Anecdote I Following a KLCS Los Angeles television broadcast, Tom Taitt from the station’s Membership department, called the Lovett Stories + Strategies office because a visually impaired viewer who had watched the broadcast had called the station looking for help. Tom asked for a list of organizations he could use to direct future viewers and we were able to provide that to him. Viewer Response Anecdote II

Following a Going Blind broadcast on his local channel, WVIA Wilkes-Barre, PA, Joe Koizen from Scranton, PA called the Lovett Stories + Strategies office. After struggling for many years with

glaucoma, and tired of doctors who have only offered surgery, he was looking for alternatives to help his remaining vision. He requested a DVD to bring to his doctor so they could together review what the best low vision resources are for him.

Binghamton Partnership: WSKG & A.V.R.E

In Binghamton, New York, the Association for Vision Rehabilitation and Employment (A.V.R.E.) partnered with their local public media station WSKG to produce a series of Going Blind events. Provided in part by a grant from the United Way, the organizations worked together during the fall to draw attention to vision loss issues. A.V.R.E. In buildup to Going Blind’s broadcast on WSKG, A.V.R.E. sponsored three screenings of Going Blind in September and October in different venues throughout Binghamton and in nearby Whitney Point. The first two screenings took place in a church, and the third at a senior citizens home and all were organized as word of mouth screenings for the film’s broadcast on WSKG public television on October 25. A local volunteer agency helped with transportation and the event flyer was sent out through area agency newsletters of 4,000 subscribers.


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The A.V.R.E. screenings targeted a senior population, and their caregivers due to the fact that 70% of the local visually impaired population is 65 and older. The organization also conducted a focus group of 20-30 year olds on how to spread word about the airing to younger audiences. A.V.R.E. plans to use the model from 2012’s screenings to expand into outlying counties over the next couple of years. Jennifer Cubic, Director of Development, wrote, “The screenings will be held in the Binghamton area, but we are hoping to use this model in the outlying counties over the next couple of years. The film is great - we're glad we discovered it!”

A.V.R.E. Fall Going Blind Events Flyer

ARE YOU OR SOMEONE YOU KNOW

EXPERIENCING VISION LOSS?

Going Blind —

Coming Out of the Dark

About Vision Loss

Attend a free screening of

Going Blind —

September 19, 2012

September 27, 2012

October 4, 2012

Please RSVP to A.V.R.E. at 607-724-2428

Transportation is available if necessary.

Reservations are required.

Association for Vision Rehabilitation & Employment, Inc.

174 Court Street, Binghamton

607-724-2428 www.avreus.org


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WSKG For WSKG, the partnership included a program about vision loss on their radio show, Community Conversation featuring Joseph Lovett, Dr. Michael Lange, an optometrist, and Diane McMillan a low vision therapist from A.V.R.E. The interview aired live on October 9, two weeks before the television broadcast on October 25. For television viewers, WSKG created a 15-minute segment about A.V.R.E. to follow the Going Blind October 25 broadcast to show viewers where to find the resources depicted in the film.


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Outreach Partners Over 100 organizations from across the country have come on board as Outreach Partners to help with the public television broadcast initiative, a full list of organizations is available at Appendix D. We alerted Outreach Partners to local scheduled broadcasts so that they could publicize the airings through agency newsletters, email blasts and social media. See Appendix E for Outreach Partner publicity for Going Blind broadcasts. Flyer for WLIW NY broadcast Many organizations sponsored community screenings for World Sight Day and White Cane Day. In total, there were 13 screenings of Going Blind throughout the U.S. by Outreach Partners on or around White Cane Day, October 15, 2012. Many of these screenings were dynamic and participatory events and included panel discussions, marches and simulated experiences, in addition to a Going Blind screening. These events brought the issues of the blind and visually impaired out to the general public in creative and impactful ways. From INSIGHT Newsletter Although, we had asked our Outreach Partners to help with the public television broadcast initiative, many have stepped into a larger role in the Outreach Campaign. For our Congressional screening in September, organizations encouraged their Representatives to attend the event. A number of organizations have asked for Statehouse screenings of the film. Outreach Partner organizations have also written letters of support for Going Blind and Going Forward, which are available in Appendix F. One of our Outreach Partners, The New Hampshire Association for the Blind (NHAB), has organized 26 screenings of the film throughout the state of New Hampshire and has started their own Going Blind and Going Forward Outreach Campaign. The NHAB has served as a model to other organizations how to use the film to raise awareness and participated in the NEI webinar on Going Blind—more about the NHAB can be found in the webinar section (pages 29-30)


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Outreach Partner October Screening Events

In addition to Binghamton, NY, notable Going Blind October screening events occurred in Lexington, KY; Orlando, FL; Sioux Falls, SD; St. Paul, MN; Syracuse, NY; Boston, MA; Washington, DC and; New York, NY. Lexington, KY

In Kentucky, the Lexington Fayette Urban County Government’s Office of Aging Services and Disability Support partnered with the Lexington VA Medical Center, Independence Place, Inc., (a local disabilities organization), and Bluegrass Council of the Blind to host a screening event. The full-day event started with a White Cane Safety Awareness Walk down Lexington’s Main Street. Led by Vice Mayor, Linda Gorton, both blind attendees, and sighted attendees who wore low vision simulation goggles, walked together. Reporters from local Noon News shows on CBS, WKYT, WLEX, and Talk Radio 690 came to get footage of the event in which over 80 participated.

Kristina Stambau of the Lexington Fayette Urban County Government, who helped organize the event, said: “We have heard some positive reviews from attendees who are either losing their eye sight or have family members who are experiencing vision loss. This was a first for the community and the access to the Tool Kit on your website was a great help.”

GOING BLIND AND

GOING FORWARD

Monday, October 15, 2012

AGENDA

10:30 AM Meet the Support Groups

12:00 PM Exhibits and Lunch

Lunch on your own

1:00 PM Agency Presentations Amy Hatter, Executive Director, Radio Eye/Newsline

Tiffany Bryant, KY Office for the Blind Greg Manuel, VIST Coordinator Lexington VAMC

2:00 PM White Cane Safety Day Walk

Exhibits Remain Open

3:00 PM Panel of Professionals

4:00 PM Dr. Musick, Optometrist Low Vision Solutions for the Visually Impaired

Drs. Ditto and Musick Eye Care Center

4:30 PM�—5:30 PM MOVIE: �“Going Blind�”

For more information contact Independence Place at 859-266-2807

Save the DateSave the DateCommunity Expo:Going Blind andGoing Forward

Monday, October 15, 201210:30 am – 5:30 pm

Downtown Public Library(Auditorium & Conference Rooms)

Join us for educational seminars, resources and hands-on activities as we celebrate White Cane Safety Day. Enjoy a special viewing of Going Blind by Peabody Award-winning Producer/Director Joseph Lovett of Lovett Productions. This event is FREE; however, there is a fee to park in the library lot.

For more information, contact Independence Place at (859) 266-2807.

Presented by: Lexington Fayette Urban County Government’s Offi ce of Aging Services and Disability Support, Lexington VA Medical Center, Independence Place, Inc.,

and Bluegrass Council of the Blind


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Orlando, FL Myrna Ubides-Pagan, Assistant Director of University of Central Florida (UCF) Student Disability Services, in partnership with the Lighthouse of Central Florida (LCF), organized a World Sight Day event at UCF, which she wrote about for campus newspapers, see Appendix G to read both the published article and her original and more detailed draft. The Orlando organizations teamed up to produce a panel discussion of blind students sharing their experiences navigating campus as blind and visually impaired. The event included a skit in which sighted participants wore simulator goggles and learned ways in which students with visual impairment are often excluded from classroom participation. Many visually impaired students will not speak up if they have trouble seeing the board and so the simulation experience gave sighted students a chance to “see” what it is like to have an obstacle such as visual impairment. The Lighthouse of Central Florida answered questions from the audience and spoke about causes of blindness and the day concluded with a Going Blind screening.

Blind and visually impaired students sit on a panel for UCF & LCF World Sight Day


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Lee Van Eepoel of the Lighthouse of Central Florida said of the event, “It was exciting to have UCF students who are blind and visually impaired share their experiences. The World Sight Day event offers an avenue to educate UCF students and staff about the abilities of individuals who are blind and visually impaired.” Following the event, we received an email from one of the students on the World Sight Day Knights Panel:

“I got to see some of the [Going Blind] clips and thought it is pretty amazing with some of the things I saw and read on here with my screen reader. It does show it's not easy being blind but we can get through it with the resources handed to

us…My experience [on the panel] was great for a first timer. I was comfortable when I came to talking about the experiences I had at UCF and sharing what I do outside of UCF since there was a question about hobbies and interests outside academics. It gave the sighted students a better look into the non-sighted student since they experience school a lot more differently from a person with sight.”

- Marinela Ortiz


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Sioux Falls, SD As part of the Sioux Falls White Cane Day Taskforce, South Dakota VAMC Vision Impairment Services Team (VIST) Coordinator Anna Perry organized a march through downtown Sioux Falls. The march followed with a screening of Going Blind and a post-screening panel discussion. One veteran attending the march noted that, as per usual, motorists failed to yield to pedestrians, only this time there were police escorts to help those with canes.


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St. Paul, MN In the Midwest, the Joint Commission on Allied Health Personnel in Ophthalmology (JCAHPO), a national organization based in St. Paul, hosted a screening and panel discussion featuring local doctors. Janice Prestwood, General Manager, provided the following account of the evening: “Approximatley 70 attended the screening, each with their own story of why they were there. Stories ranged from being an ophthalmic tech, to a gentleman whose 5-year-old nephew was recently diagnosed with bilateral retinoblastoma, to several people with glaucoma. Several of the attendees were blind themselves and came with lead dogs, family, etc.

We had several partners with us last night, including the MN Academy of Ophthalmology, the Woodbury MN Lions group, Blind, Inc., and the MN Low Vision Store. I am proud that were able to provide many of the attendees with additional local information on where to go for help.

They loved the film and made comments such as ‘very enlightening’ ‘nice to hear other people’s stories about how to cope’ ‘interesting perspectives’ and more.’”


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Syracuse, NY Syracuse’s VAMC partnered with Aurora of Central New York, a blind services organization. The two institutions co-hosted a Going Blind screening with breaks throughout to provide time for audience questions. VAMC VIST Coordinator, Nancy Chaffee says, “It was a great way to share information about visual impairments.” The two organizations plan to have a large screening of the film in February 2013, and are currently fundraising for that.

Syracuse event invitation Boston, MA

In Boston, The Carroll Center hosted a screening on October 1 for medical professionals and for potential donors for the organization. The event was geared towards those who were neither familiar with the organization, nor with blindness to learn more about both.

The Carroll Center’s Going Blind Screening was featured in local press

You are invited to a special screening Monday, October 1, 2012 6 pm

You are invited Monday, O

ctober 1st,

6 to 8 pm

for a special screening of

GoingB

lind

RSVP: Renee Hall

617-969-6200 ext 225 Email: renee.hall@

carroll.org

Light Refreshm

ents will be served

Joe Lovett has glaucoma, a disease that robs 4.5

million people w

orldwide of their vision. A

fter years of slow

ly losing his sight, Joe decides to take ac-tion: to investigate how

people all over the country respond to vision loss. Join us for a view

ing of this hopeful look at the w

orld of vision loss and blind-ness follow

ed by a panel discussion with m

edical experts and C

arroll Center G

raduates.

The Carroll C

enter for the Blind

770 Centre St, N

ewton, M

A 02458


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Washington, DC The Washington DC VAMC screened Going Blind for White Cane Day, attended by visually impaired veterans as well as staff from the medical center. VIST Coordinator Cecilia Rose provided the following account: “One of our female veterans seeing the woman on the screen that worked at the VA stating why she did not use a white cane. The veteran stated that she felt the same way and felt an affinity with this woman because of their similar attitudes. Another male veteran commented on something stated in the film about his eye condition and not having anyone mention that particular problem outside of his doctor’s office. The non-vision impaired in the audience were also quite responsive to the movie. At one point, a woman watching the movie who was a nurse was a bit surprised at the statistic mentioned in the movie that 1 in 3 people over the age of 65 would begin to experience serious vision problems. Overall, people expressed the thoroughness of the movie, especially the individual stories of the people profiled.”

New York, NY The New York Harbor VA Healthcare System Manhattan Campus organized a White Cane Day event, which included screening Going Blind on loop throughout the day. Organized by VIST Coordinator Stacy Pommer, the event was unfortunately canceled due to Hurricane Sandy.


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National Eye Institute Webinar on Going Blind and Going Forward

The National Institutes of Health National Eye Institute (NEI)-a funder and Outreach Partner for Going Blind-has found the Outreach Campaign, Going Blind and Going Forward, so successful that they hosted a webinar on it to demonstrate to organizations how to use the film as a tool to raise awareness. As part of the National Eye Health Education Program (NEHEP), the

webinar occurred on Wednesday, September 5, 2011 at 2pm. Moderated by Rosemary Janiszewski, Branch Chief, Office of Science Communications, Public Liaison, and Education at NEI, the online workshop featured Joseph Lovett, director of

the film, Going Blind: Coming Out of the Dark About Vision Loss; Julie Gaynin, Outreach Coordinator for Going Blind and Going Forward; George Theriault, President of the New Hampshire Association for the Blind; and Stacy Pommer, Visual Impairment Services Team (VIST) Coordinator at the Veterans Health Administration, New York Harbor Healthcare System Manhattan Campus. Over 400 individuals registered for the event – the highest in NEHEP’s history. During the hour-long presentation, participants discussed how to use Going Blind as a tool to engage the blind and visually impaired community to open the lines of communication between their eye care providers, low vision specialists, and the general public; raise awareness about low vision services and devices; and inspire the visually impaired community to seek out these services. A question and answer session followed the presentations. Rosemary Janiszewski remarked that the high number of participants speaks to the need for this information.


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A video of the webinar, and the transcript, is available online. The video can be found on the Going Blind website at: www.goingblindmovie.com/view-webinar/. The transcripts are available through the NEHEP website at: www.nei.nih.gov/nehep/webinars/index.asp NEHEP’s Spotlight on Going Blind In addition to the webinar, NEHEP published an article on Going Blind in their newsletter, Outlook, to introduce the film and the Outreach Campaign to the NEHEP community.


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Webinar Participants, The New Hampshire Association for the Blind & The New York VA: Case Examples of How to Use

Going Blind in the Community New Hampshire Association for the Blind – George Theriault, President The New Hampshire Association for the Blind (NHAB) has been a model of how an organization can use the film to help build awareness around the issues of vision loss, bring recognition to organizations, help with fundraising, and most importantly get people into the

services they need. Since licensing the film in January of 2011, and aided by a grant from the Citizens Bank of New Hampshire, they have had 26 screenings of the film, and have taken it around the state, partnering with various local organizations and medical professionals. Guy Woodland, Senior VP, notes that audience members "have been empowered by the movie to seek out specialized vision rehabilitation services for the first time."

When asked how they could have so many screenings, NHAB notes that with each

screening, there are new attendees who watch the film and sign up for treatment for the very first time.

Using the Going Blind Outreach Toolkit as a guide, screenings are followed by panel discussions of local ophthalmologists, optometrists, low vision specialists and people with dogs and canes. Panel discussions have afforded the NHAB an opportunity to connect with various service care providers throughout the state, building partnerships among the various service providers.

Page from the Outreach Toolkit George F. Theriault, President and CEO of NHAB, also notes that the film has made an impact on the medical community as well: “Eye medical professionals serving on the panels have commented that, having seen the film, they better understand how they can help patients by referring them to NHAB for rehabilitative services. Some have also said they now feel more comfortable discussing vision loss with their patients.”

Photo from an NHAB screening


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Spotlight on the NHAB In addition to participation in the webinar, we featured the NHAB in a short video and blog post that details how they have been using Going Blind so that other organizations may learn from them. Both are available on the Going Blind website at: www.goingblindmovie.com/spotlight-on-nhab/ Still from the NHAB video And organizations have indeed been learning from the NHAB. Two have already approached us about using the film on a state-wide model the way

NHAB has—The Carroll Center in Boston, MA; and the Iris Network in Portland, ME.

Veterans Health Administration New York Harbor Healthcare System, Manhattan Campus – Stacy Pommer, VIST Coordinator Stacy Pommer, VIST Coordinator at the Veterans Health Administration New York Harbor Healthcare System, uses the segment on Steve Baskis, blinded Iraq war veteran in her support group, as well as for presentations on vision rehabilitation. She says the film helps her to explain vision rehabilitative therapy to her patients. In May of 2012, Stacy organized a screening of Going Blind, coordinated with the Brooklyn and Queens VAMCs, with film screenings on all 3 campuses of the NY Harbor VA at the same time. About 100 people attended the Manhattan screening (which looped throughout the day so staff could catch it on their different lunch breaks) and 30 attended a Q&A with Pat Williams, character in the film who also works at the VAMC. After the screening we got a note from Pat: Good morning Joe:

The VA had shown the movie as a teaching tool in all three campuses and let me tell you, it was very well received. Your genius on film definitely struck a cord with the audience. We had a short Q&A and people just wanted to know how to assist blind/low vision people and how to approach “us”. Thanks Joe – you opened up a whole new world for me. I have much Pat Williams more confidence and I can speak to one or a multitude fearlessly. You don’t have to see to speak. Sincerely, Pat Williams


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Slide from Stacy Pommer’s Presentation on Going Blind for the NEI’s Webinar

What Effect is the Webinar Having? A webinar post-participation survey found that 69% of participants work with people who are visually impaired or who are at risk for vision loss, and 81% of participants would likely use the film and outreach materials in their community to raise awareness of low vision services and breakdown stereotypes of those living with low vision. In particular, participants would like to use the film with:

• Medical residents; in-service programs • Senior citizens; family and friends • Community screenings • Local legislators

Since the webinar, 35 organizations have obtained an educational use DVD.


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Joseph Lovett Receives Glaucoma Foundation’s Kitty Carlisle Award

The Glaucoma Foundation honored Joseph Lovett with the Kitty Carlisle Hart Award of Merit for Lifetime Achievement for his work on Going Blind. The event took place on December 7, 2011 during the foundation’s annual Black & White Ball held at the Pierre Hotel in New York City. The Kitty Award is given each year to honor patients who make a difference despite visual impairments. Named for actress, singer, advocate and glaucoma patient, Kitty Carlisle Hart. Past award recipients include playwright, John Patrick Stanley; former New York Governor, David Paterson; and the forty-first President of the United States, George H.W. Bush.

Joe spoke briefly after showing the audience short selects from Going Blind. During his speech, Joe called for greater promotion of low vision therapy for many patients who are sadly ignorant of its many benefits. Knowing one’s options is the first stop in properly diagnosing a problem. Photographer, Bill Cunningham, featured the event in The New York Times Style Section.


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Speaking Engagements Speaking engagements for Joseph Lovett continued in 2012 with six important conferences and events:

- The Rosenberg School of Optometry in San Antonio, TX; - Unite for Sight Global Health & Innovation Conference in New Haven, CT; - The New Hampshire Association for the Blind’s Centennial event in Manchester,

NH; - The University of Pittsburgh

Medical Center’s Grand Rounds in Pittsburgh, PA;

- JCAHPO’s Annual Continuing Education Program in Chicago, MI, and;

- JCAHPO’s Syracuse, NY Continuing Education Program in Syracuse, NY

At the Unite for Sight Global Health Innovation Conference at Yale University, Joe spoke about the need for a two-prong approach to changing the continuum of care. Doctors need to refer patients to low vision services, and patients need to be aware services exist so they know to ask for referrals.

Joe was honored with the keynote speaking address for two JCAHPO events:

– The Annual Continuing Education Program in Chicago & – The Syracuse Conference in conjunction with the SUNY Upstate Medical Center

Department of Ophthalmology.

At both events, Joe spoke about the need for patient advocacy and the importance of ophthalmic techs—who comprise JCAHPO’s membership—to be accountable to patients’ needs as the gatekeepers between patients and their doctors.


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After JCAHPO’s Chicago conference, the John Moran Eye Center Technician Education department posted on the Going Blind Facebook, "I'm an ophthalmic tech who has seen the movie, and also attended the [JCAHPO] Stein Lecture, yesterday. It has definitely made me ask myself, ‘Am I giving patients what they need’ in the way of education empathy, and sincerity. Thank you for recognizing, and bringing to light, the technician's role in this!"

The packed audience at Joe’s speech at the JCAHPO Chicago conference

After the JCAHPO Syracuse program, we received the following note from an attendee:

“As a technician, after the doctor completes the exam and leaves the confused, scared, vision compromised patient with you, it would be so much easier if the doctor could just initiate the fact that there is low vision care and then leave it to the tech to provide the information of how to get the patient the info… it should be information that is provided in a mandatory, professional and specific manner. After all....it's vision...it's life.” – Anonymous (See Appendix H for the full letter)


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Library Journal Reviews Going Blind received 4 positive reviews in library journals in 2012. Library Journal, the largest of the publications with circulation 100,000 writes, “As producer and narrator, Lovett has crafted a much-needed awareness tool about vision loss. The downloadable PDF tool kit is worthy of the name bonus material. Going Blind is a jewel of a film and belongs in every library.” American Libraries Magazine’s Booklist writes, “This is an affirming and inspirational production for viewers and family members facing similar situations.” Video Librarian: “With its clear explanations of conditions and procedures—related within the easily accessible framework of a personal journey—this informative documentary is recommended.” From the Educational Media Reviews Online (EMRO): “Although their stories may appear to be the exception, the producer’s point in making the film was to encourage others who may be having or have had vision loss not to lose hope, or lock yourself away. To that end, it appears he has succeeded.” Full reviews are available in Appendix I.


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Educational Outreach Going Blind educational sales are continuing to grow. Over 245 institutions have licensed the DVD in 44 states as well as the District of Columbia. A list of organizational purchases and community screenings to date is at the end of this evaluation report. Organizations continue to use the film to bring new members into their services. Many service providers take advantage of the DVD’s segmented chapters to show sections of the film as examples of the services they are providing. Stacy Pommer, VIST Coordinator of the Veterans Health Administration New York Harbor Healthcare System Manhattan campus and a participant in the NEI’s Going Blind and Going Forward webinar, says she uses the section on Steve Baskis, blinded Iraq War veteran, every time she does a presentation on rehabilitative therapy to new patients, which she says helps her to explain vision rehabilitative therapy to patients. Using the film as a tool After the National Eye Institute webinar on using Going Blind as a tool to raise awareness, Going Blind educational sales increased. Moreover, many organizations that participated in the webinar and already had a DVD learned how to use it in the community. Veterans Affairs Medical Centers (VAMCs) According to the Blinded Veterans Association, the number of all Iraq and Afghanistan veterans with eye conditions from October 2001 to June 30 2012 has reached 118,150.

We have been doing Outreach to this important community and 24 Veterans Affairs centers have already bought the film, and more are in the process of obtaining it. Many VAs are using the film with patients, as in New York and others are organizing screenings, as in Sioux Falls, Syracuse and Washington DC.


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Access to the film We increased online access to Going Blind by incorporating video-on-demand to the Lovett Stories + Strategies website. A page on the Going Blind website instructs individuals how to access the stream, which is available in both the original version of the film, as well as an audio-described version. Both are available for 2-day rental for $4.99. The film was made available on iTunes to increase access. Going Blind is now available for individuals on three online platforms: the Lovett Stories + Strategies website, iTunes and Amazon. Geographic Reach One of our goals has been to make the film available in all 50 states, and Phase III of Outreach has brought us closer to reaching that goal. 2012 saw the film available in 44 states and the District of Columbia. New states include:

- Alaska - Iowa - Nevada - Delaware - Oregon Screening at the Antigua College of Medicine

Globally, the film was accepted into the International Documentary Film Festival of Amsterdam (IDFA)’s Docs for Sale catalog. IDFA is the world’s largest documentary film festival. The Canadian National Institute for the Blind (CNIB) sponsored in part a film screening at the Diversity Film Festival in Nova Scotia. Jeff Overmars, of the Nova Scotia government, who helped organize the screening, reported, “The film was very well received by those that did attend, described as "brilliant" and "thought-provoking" by those I asked who had seen it.” International Screenings of the film in 2012 include:

- Ottawa Educational Day, presented by the College of Opticians in Ontario - The Diversity Film Festival in Halifax, Nova Scotia - Antigua Girls High School, in Antigua and Barbuda - The American University of Antigua, School of Medicine, in Antigua and

Barbuda


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Educational Curricula In 2011, The American Academy of Ophthalmology (AAO) green lit a program headed by Dr. Mary Lou Jackson to incorporate Going Blind into its Resident Education in Vision Rehabilitation program. Dr. Mary Lou Jackson’s report on the program follows: “During 2011/2012 members of the American Academy of Ophthalmology Vision Rehabilitation Committee made presentations about vision rehabilitation, including showing the Going Blind movie, or portions of the movie, in 28 academic departments. This included presentations in the following locations:

– Kansas City, KS, – East Meadow, NY, – San Antonio, TX – Morris, MN – New Orleans, LA – Valhalla, NY – San Diego, CA – Great Neck, NY – Jackson, MS – Boston, MA – Philadelphia, PA – Oklahoma City, OK – San Francisco, CA – Nashville, TN – Toronto, Canada – Calgary, Canada – Loma Linda, CA – Charlottesville, VA – Kansas City, MO

Presentations included an introduction to the Comprehensive Vision Rehabilitation model that addresses the ‘whole person’ by considering reading rehabilitation, assisting individuals to complete their unique daily activities, patient safety, continued participation in activities despite vision loss and the psycho-social adjustment to vision loss. A goal of these presentations was that attendees learn how to identify patients who need to be referred for rehabilitation and what to expect from effective multidisciplinary vision rehabilitation.


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These are comments from attendees: ‘This was a highlight. Really made a huge impact on me and sparked interesting discussion’, ‘Excellent video, good to be in patients’ shoes’, ‘Indispensable part of our course’, ‘Powerful movie that reminds us all why we went into ophthalmology in the first place’.” In 2012, the film was welcomed into 4 more educational programs. Western University in California is using the film in their educational curricula for the College of Optometry’s nearly 250 students.

Missouri State University uses the film for their online graduate courses, part of a Masters degree and Graduate certificate program to train teachers of the visual impaired and orientation & mobility specialists.

The College of Opticians in Ontario accredited Going Blind for continuing education credit. Eye care professionals prescribing eyeglasses and contact lenses can receive 2 of their required 30 credits by watching the film. Ingrid Koenig of Visual Rehab, an Ottawa low vision clinic, used the film during the Ontario Opticians Association Educational Day to supplement a demonstration on low vision aids. In Tennessee, Nashville’s Belmont University’s Occupational Therapy students are using the film in their course curricula. Dr. Susan Young, Associate Professor of Occupational Therapy, says, “I watched the film and was amazed at how it clarified low vision issues and addressed the underlying pathophysiology… the film gave [my students] information about devices and the world of those with visual impairments so that they can more fully help them live their lives as fully as possible.”


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Indiegogo Campaign In addition to fundraising, our fall Indiegogo crowdfunding campaign attracted extra media attention for Going Blind. Optical magazine Vision Monday spotlighted the film’s campaign twice – both during and after the campaign. Additionally, the Glaucoma Support and Education Group New York Chapter of the Glaucoma Foundation featured a spot on the Outreach in their newsletter and encouraged readers to donate to the Outreach Campaign.


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The Glaucoma Support and Education Group New York Chapter of the Glaucoma Foundation October Newsletter


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As part of our campaign perks, contributions of $350 or more granted an organization a donated DVD. Many organizations requested to be on the waiting list, which provided organizations with smaller budgets a chance to obtain a DVD. In total, 12 organizations around the country, and 3 abroad, received donated DVDs:

- Alaska Center for the Blind and Visually Impaired

- The American Council of the Blind of New York

- Bermuda Society for the Blind - DisABILITY Link, GA - Discover Project: Next Level Art

Experiment for the Blind & Visually Impaired, Serbia

- Greater Wilkes Barre Association for the Blind and Visually Impaired, PA

- Lighthouse of Collier, FL - Lilac Services for the Blind, WA - LV Prasad Eye Institute, India - Metrolina Association for the Blind, NC - Oregon Commission for the Blind - San Luis Obispo Access for All, CA - Santa Clara Valley Blind Center, CA - Utah Schools for the Deaf & Blind - Wisconsin Council for the Blind and

Visually Impaired When notified about their DVD, organizations were excited and appreciative. Karla Jutzi, Executive Director of the Alaska Center for the Blind and Visually Impaired, wrote, “Thank you so much for this gift. We have been looking at options to use this excellent film to help spread the word throughout Alaska that there is hope when people lose their eyesight.” Kathi Koegle, Director of Community Relations at the Wisconsin Council of the Blind, in a hand-written note to the Going Blind team wrote, “We are thrilled with this news and we feel very grateful for this gift. You can be sure that we will share this resource. Education is a key component of the Council’s mission and work.”


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Building A Movement Organizations and individuals in the blind and visually impaired community continue to connect through Going Blind. In their 26 Going Blind screenings, the New Hampshire Association for the Blind has created interdisciplinary relationships between doctors, patients and service providers. Partnerships continue to form, like those between: the University of Central Florida and the Lighthouse of Central Florida; the Syracuse VAMC and Aurora of Central New York, and; the Lexington Office of Aging Services and Disability Support, the Lexington VAMC, Independence Place, Inc., and Bluegrass Council of the Blind. These connections highlight how people and organizations around the country are working together to raise awareness for the issues of the blind and visually impaired. Photo from Sioux Falls

VA October Screening To continue existing relationships, and to develop new ones, we have created a comprehensive website to help organizations use the film, and to connect individuals to resources. The website, www.GoingBlindMovie.com, is frequently updated with information on screenings, news on the film and the outreach community. The outreach toolkit, press kit and publicity stills are all available online. Website additions in 2012 include:

- Video and description of the Going Blind Congressional Screening, www.goingblindmovie.com/capitol-hill/

- Public television broadcasts, www.goingblindmovie.com/broadcast/ - Viewer comments, www.goingblindmovie.com/viewer-comments/ - Fact sheet for public television programmers,

www.goingblindmovie.com/pmd/ - The National Eye Institute webinar, www.goingblindmovie.com/view-webinar/ - List of funders, www.goingblindmovie.com/funders/ - Video-on-demand, www.lovettproductions.com/vod/going-blind-movie/ - Further Reading and Viewing page, www.goingblindmovie.com/further-

reading/ - Additional blog posts, www.goingblindmovie.com/news/


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Social media pages on Facebook, www.facebook.com/goingblindmovie, and Twitter, www.twitter.com/goingblindmovie, keep followers up to date and help us stay connected to the community. In 2012 we added a Lovett Stories + Strategies YouTube channel with Going Blind related videos, www.youtube.com/lovettstories.

Social Media in 2012 - Facebook: over 750 likes, and reach of over 1,000 - Twitter: over 960 followers - YouTube: over 4,400 views of Going Blind related videos

Lovett Stories + Strategies former intern, Ian Moubayed, created a video about Joe called “Going Blind and Going Forward,” detailing Joe’s experience making Going Blind. The video, posted on HooplaHa, was featured in the Huffington Post.


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Appendix


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Appendix A: Public Television Carriage Report

Telecasts Stations Markets States % Coverage

All Stations 234 133 81 31 54.53 %

Main Channels 101 73 56 25 42.47 %

Primary Stations 59 44 44 23 23.28 %

Metered Stations 81 48 27 21 42.22 %

Nielsen Channels 96 70 56 26 43.21 %

Distribution of Airings by Day and Daypart

Demographic Information of Potential AudienceDemo Group Men Women Total

People 2+ 158,317,489

DMA Households 62,262,770

Kids 2-5 8,547,054

Kids 6-11 12,644,464

Kids 12-17 12,963,575

Adults 18-34 18,363,064 18,405,626 36,768,690

Adults 35-49 15,959,907 16,689,342 32,649,249

Adults 50+ 25,282,247 29,462,210 54,744,457

Distribution of Airings by Time Zone Penetration by Market RankOther Pacific Mountai

nCentral Eastern

8 % 17 % 6 % 28 % 41 %

Rank Percent

Top 25 68 %

26 to 50 36 %

51 to 100 46 %

101+ 29 %

EpisodesCentury Percent

Unknown 100 %

Carriage SummaryGoing Blind, Going Blind and Going Forward, Going Blind Follow Up

9/16/2012 - 1/16/2013

Page 1 of 112/18/2012 2:36 PM


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Appendix B: News Clips

Page 1 of 1

October, 2012

Page 1 of 1

October 6, 2012

What’s On Today 3 P.M. (21) GOING BLIND: COMING OUT OF THE DARK ABOUT VISION LOSS (2010) Joseph Lovett chronicles his adjustment to low vision caused by glaucoma while telling the stories of six sight-impaired residents of New York and New Jersey.


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49

Page 1 of 1

October 23, 2012

Page 1 of 1

October 18, 2012

Thursday’s TV Picks "Going Blind" (2010), 11 p.m. (KCTS): After learning he has glaucoma, news producer and filmmaker Joseph Lovett examines how people, especially artists, cope with vision loss. *Re-printed from the New York Times


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51

Page 1 of 1

October 23, 2012


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Appendix C: Viewer Comments “I recently saw your documentary PBS. I have diabetes and the topic was of interest to me. The story and information presented was amazing. The section on the blind veterans moved me to tears. Good job.” –Dave Femine “I just saw your movie last night and it is breathtaking. I have glaucoma and lost sight in one eye and eighty percent in left. Without contacts, I’m mostly housebound and as the disease progressed, have learned to deal with it. I just had to say your movie meant the world to me as I didn’t feel alone with someone explaining what we go through. . . Bless you a million times and ways.” –Teena Guendling “Thank you so much for putting this film together. It really spoke to me as a person who lives with vision loss, and I appreciated the honesty with which vision loss was approached in the production . . . Thank you for this wonderful film. I hope to show it to my family and friends in the hopes that will help them understand some of my experience better.” –Luis Perez “Today I watched your film, Going Blind. There are no words. Great film…My mom suffered with vision loss before her death this year. I went thru the process with her but learned more from your film than from her docs over the past 18 months…You continue to help people.” –Jacquie Farmer “Wonderful film. Very informative. My sister suffered a severe vision loss this past year. Even though I’ve been with her to see a low vision specialist, I learned a lot form this film. It’s very encouraging for those with these challenges and I think just as importantly helps loved ones and friends have a better understanding of what the patient is dealing with.” –Rene Emery Dees “I am 42 years old and going blind in my left. The movie exactly shares how I feel and how I have been trying to survive. I hope now to find and prepare for more blindness. I live in Pittsburgh area. I totally understand the pain of a scratched cornea. It is worse than labor. I have had 20 eye injections. Thanks for getting it perfectly right and sharing what I could not put into words!” –Tara Magill Gates “I have early stage glaucoma and have been depressed and terrified of the thought of losing my vision. Although I recorded it some time ago it took me several months to gain the courage to even watch this wonderful film. I was so moved and inspired by the stories of courage and determination of the amazing people in this movie. It has helped me put things in perspective and given me hope for the future, whatever it may hold. Thank you Joseph Lovett for helping me understand the many dimensions of blindness and for opening my eyes to the options available as sight fails. It has given


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me a sense of peace and a determination to appreciate what I have today rather than worrying what I may lose tomorrow.” –Margaret Gilbert “I watched the film Going Blind last night on PBS. I was very moved by the film. I am currently going to school as a part time student where I am enrolled in Health Information Technology. We just finished studying about the eyes and vision. I am 55 years old and have had poor vision since I was a child. I have myopia and without my glasses or contact lenses I am only able to see a few inches…one of the segments that had an impact on me was Jessica Jones’ story. I have been interested in art since I was a young child…my dream is to spend my time creating artwork and playing music when I retire. But in the back of my mind I have considered the possibility that I may lose much of my vision. If that were to happen I wouldn’t want to give up on doing artwork or playing music. Jessica’s moving story on her work with children gave me inspiration that poor vision does not have to interfere with a person’s ability to experience art. Thank you for creating this wonderful film. I’m sure it will reach many people. I hope to order a copy if it is available. Thank you.” –Jeff Kopseng “Thank you, thank you, thank you for your movie. I just happened upon it while flipping the channels looking for something to watch. It was a Godsend. I was diagnosed with glaucoma when I was 5 years old. That diagnosis has sent me on a journey including surgeries for glaucoma, cataracts, corneal transplants, etc. etc. I am now 50 and amazingly still have vision in one eye well enough to drive and work. I (foolishly?) went to law school and became a criminal defense attorney, and only within the last 5 or so years have had to really face the possibility of going blind in my “good” eye. I keep asking myself if I will be able to continue in that work when/if I lose my good eye. Talk about “blind justice.” Your movie was both informative and inspiring. I want all my friends and family to see it, especially those I work with.” –David McDuffie


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Appendix D: List of Outreach Partners National Outreach Partners

- Association for the Education and Rehabilitation of the Blind and Visually Impaired

- Audio Description Associates - Blinded Veterans Association - Envision Foundation - Helen Keller International - Joint Commission on Allied Health Personnel in Ophthalmology - National Federation of the Blind - National Eye Institute - Optometric Glaucoma Society - Reader’s Digest Partners for Sight Foundation - United States Association for Blind Athletes - VisionAware - VisionServe Alliance

Regional Partners by State Alaska Alaska Center for the Blind and Visually Impaired Arkansas Arkansas Lighthouse for the Blind World Services for the Blind Arizona Southern Arizona Association for the Visually Impaired California Blind Children’s Center Braille Institute Center for Partially Sighted Earle Baum Center of the Blind The Hatlen Center for the Blind Junior Blind of America Santa Clara Valley Blind Center Vista Center for the Blind and Visually Impaired Western University of Health Sciences Colorado Ensight Skills Center United States Association of Blind Athletes


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Connecticut Chicopee Public Library Prevent Blindness Tri-State Florida Lighthouse of the Big Bend Lighthouse for the Visually Impaired and Blind of Pasco, Hernando and Citrus Counties The Lighthouse of Broward Lighthouse Central Florida Lighthouse of Collier Lighthouse of Pinellas Miami Lighthouse for the Blind New Vision for Independence University of Central Florida Visually Impaired Persons of Southwest Florida Georgia Center for the Visually Impaired Savannah Association for the Blind Vision Rehabilitation Services of Georgia Illinois The Hadley School for the Blind The Chicago Lighthouse Optometric Glaucoma Society Kansas Envision Foundation Kentucky American Printing House for the Blind Visually Impaired Preschool Services Louisiana Lighthouse for the Blind-New Orleans Louisiana Association for the Blind Maine The Iris Network Massachusetts The Carroll Center


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Massachusetts Eye and Ear Infirmary Our Space Our Place Maryland The Richard E. Hoover Rehabilitation Services for Low Vision and Blindness at the Greater Baltimore Medical Center National Federation for the Blind Michigan Association for the Blind and Visually Impaired Minnesota Joint Commission on Allied Health Personnel in Ophthalmology Lighthouse for the Blind-Duluth Vision Loss Resources Mississippi The National Research & Training Center on Low Vision at Mississippi State University University of Mississippi Medical Center Missouri Alphapointe Association for the Blind Delta Gamma Center for Children with Visual Impairments Lighthouse for the Blind St. Louis St. Louis Society for the Blind & Visually Impaired VisionServe Alliance Nebraska Outlook-Nebraska Nevada Blindconnect New Hampshire New Hampshire Association for the Blind National Organization for Albinism and Hypopigmentation New Hampshire Retina New York Art Beyond Sight Association for the Blind and Visually Impaired-Goodwill Association for Vision Rehabilitation and Employment, Inc. Helen Keller International Manhattan VAMC


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New York Institute for Special Education The Northeastern Association of the Blind at Albany Prevent Blindness Tri-State Reader’s Digest Partners for Sight Visions North Carolina Industries for the Blind Metrolina Association for the Blind Ohio The Sight Center of Northwest Ohio Oklahoma NewView Oklahoma Pennsylvania Blind and Vision Rehabilitation Services of Pittsburgh Greater Wilkes-Barre Association for the Blind Pennsylvania Association for the Blind The Sight Center of Northwest Pennsylvania Susquehanna Association for the Blind and Vision Impaired Rhode Island INSIGHT Providence VAMC South Carolina Association for the Blind and Visually Impaired of South Carolina South Dakota Sioux Falls VA Health Care System Texas AFB Center on Vision Loss Beacon Lighthouse Vermont Vermont Association for the Blind & Visually Impaired Virginia Virginia Industries for the Blind


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Washington Lilac Services for the Blind Sightconnection Washington, D.C. Association for the Education and Rehabilitation of the Blind and Visually Impaired Audio Description Associates Blinded Veterans Association National Eye Institute West Virginia West Virginia University Eye Institute Wisconsin Wisconsin Council of the Blind and Visually Impaired


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Appendix E: Outreach Partner Publicity for Broadcasts

INSIGHT: Providence, Rhode Island

Promoting Independence

and Opportunities for People

with Vision Loss.

Lunch and Learn Series

INSIGHT’s popular Lunch and Learn series returns this fall with several new workshops. The programs, which are free and hosted at INSIGHT, include lunch and a presentation on a topic of interest to people with visual impairments.

Our fall programs, listed at right, will include a workshop on a variety of accessible cell phones that are currently on the market, a hands on demonstration of accessible voting machines, our annual low vision technology fair with a number of local dealers, and strategies for making shopping easier.

Space is limited. To register for one or more of the fall workshops, call Rick Andrade at (401) 941-3322.

Fall 2012

Upcoming Events

Accessible Cell PhonesSeptember 13, 12PM - 2:30PM Voting in Upcoming ElectionsSeptember 25, 10AM - 12:30PM

Basic Home RepairsOctober 11, 12PM - 2:30PM

Low Vision Technology FairOctober 23, 10AM - 1PM

Shopping IndependentlyNovember 8, 12PM - 2:30PM

All of the workshops are free, open to

friends and family, and include a light lunch.

When Joe Lovett’s vision began deteriorating due to glaucoma, he set out to learn how people cope with their vision loss. The result is Going Blind, a powerful fi lm that highlights the stories of a child with albinism, an Iraqi war veteran, an older man with macular degeneration, an art teacher, and a program assistant at a busy hospital. Each person in the fi lm details their journey towards acceptance and ultimately independence.

We hope that you will take the time to watch this fi lm with your friends and family. It will air on RI PBS (Channel 36 or Channel 8 on Cox and Verizon) on Thursday, October 25, 2012 at 8PM.

Going Blind Documentary to Air on RI PBS: October 25th

Ray Korman (left) shares his story with

Joe Lovett in the fi lm Going Blind.


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New York Harbor VA Healthcare System: New York, NY

VIST INSIGHT:

Welcome to the Fall 2012 issue of the VIST INSIGHT newsletter, a publication of the

Visual Impairment Services Team

! John Collins, VIST Coordinator (Brooklyn/St. Albans): (718) 836-6600, x6846

! Stacy Pommer, VIST Coordinator (Manhattan):

(212) 686-7500, x3731 !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

"Going Blind" Documentary Update

"Going Blind" is a documentary that highlights six personal stories of individuals living in New York City adjusting to vision loss. Two notable stories feature a visually impaired VA employee from the NY Campus Home Based Primary Care Program and a Veteran blinded by an explosion in Iraq. The film presents information on common types of vision loss, potential treatments, and in each case how the individual has accepted the challenges and moved forward in life. It is an uplifting documentary that instills inspiration and demystifies the process of going blind. In May 2012 the Brooklyn, New York, and St. Albans campuses hosted successful screenings. Lovett Productions and the National Eye Institute recently invited Stacy Pommer, NY VIST Coordinator, to speak on a panel discussing outreach efforts using the documentary in the medical setting. The webinar will be available to the public on the National Eye Institute website in October (http://www.nei.nih.gov/nehep/webinars/index.asp). Additionally, in honor of Disability Awareness Month Public Broadcasting Service (PBS) will be airing "Going Blind" in New York on Saturday, October 6 at 3 PM on channel WLIW-21). !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


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Wills Eye Institute: Philadelphia, PA


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Alphapointe: Kansas City, MO


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Appendix F: Outreach Partner Letters of Support

Blinded Veterans Association: Washington, DC

bB

CHARTERED BY THE CONGRESS OF THE UNITED STATES

BLINDED VETERANS ASSOCIATION 477 H STREET NORTHWEST • WASHINGTON DC 20001-2694 • (202) 371-8880

March 5, 2012 Joseph Lovett Lovett Productions, Inc. 17 Van Dam Street, Ground Floor New York, NY 10013 Dear Mr Lovett, On behalf of the Blinded Veterans Association, the only congressionally chartered veteran service organization representing blinded veterans and families for 67 years we want to support you on the continued efforts with the documentary “Going Blind.” We at the BVA thought it was great. I'm very pleased to get your invitation to be an advisory board to Going Blind and Going Forward and for the Blinded Veterans Association to be an outreach partner. We've been very happy with our involvement in the film. Your outreach to date has made remarkable strides in getting the issues of the blind and visually impaired out to the general public and the visually impaired world. We're excited to be part of the next year. The film is inspiring as it reveals the challenges people face every day and how they overcome them with the successful adaptations that can be made. Again I wish every medical school in the country would have this film to show to the third year medical students, as they begin to examine patients so they are more exposed to the impact of these common blinding diseases. Blinded Veterans Association appreciates the professionalism and commitment to this project and will recommend “Going Blind” to a wider audience moving into 2012. Sincerely,

Thomas Zampieri BVA Director Government Relations


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Helen Keller International: New York, NY

March 9, 2012

Mr. Joseph Lovett Lovett Productions, Inc. 17 Vandam Street, Ground Floor New York, NY 10013

Dear Joe,

Helen Keller International is pleased to partner with you in connection with your Going Blind and Going Forward Outreach Campaign. We are committed to helping you raise awareness about this important project and the messages that it delivers.

We congratulate you on scheduling a Congressional screening of Going Blind on Capitol Hill this September, and securing a nationwide public television broadcast in October. HKI will work with you to raise awareness about the broadcast by utilizing our social and traditional media vehicles.

Thank you for seeking our partnership in this initiative.

Warm regards,

Kathy Spahn President and CEO

Cc: Julie Gaynin, Lovett Productions Oliver Mosier, Lovett Productions Jennifer Klopp, Helen Keller International


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VisionServe Alliance: Saint Luis, MO

8760 Manchester Rd. Saint Louis, MO 63144 P 314.961.8235 VisionServeAlliance.org

March 2, 2012

Mr. Joseph Lovett Lovett Productions, Inc. 17 Vandam Street, Ground Floor New York, NY 10013 Dear Joe, Thank you for your request to serve as an outreach partner for the ongoing effort of Going Blind and Going Forward Outreach Campaign. We understand that this phase of outreach will continue to reach the blind and the visually impaired, medical and blind service organizations and professionals as well as public libraries and other educational institutions. Our one hundred members – nonprofit organizations providing services to people who are blind or visually impaired - are also excited to support the nationwide public television broadcast initiative for this October. Broadening the reach of Going Blind to the general public is a must and we are committed to working to raise awareness about the broadcast. It would be our privilege to collaborate with your outreach team alongside public television stations to maximize the impact of the upcoming broadcast. Thank you for seeking our partnership for this important project. Sincerely,

Roxann Mayros President and CEO

.


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West Virginia University Eye Institute: Morgantown, WV


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Envision Foundation: Wichita, KS


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New Hampshire Association for the Blind: Concord, NH


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Appendix G: University of Central Florida Going Blind Screening Article

Published Article


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Original Article from Myrna Pagan-Ubides Student Disability Services Partners with Lighthouse Central Florida to Help Promote 2nd Annual World Sight Day at UCF with Education for the Sighted Event on October 11, 2012. “If any one of us here who is sighted were to lose some or most of our sight due to an accident, an illness or disease, or an act of violence, what resources would you reach out to for support?” This was one of the five questions asked of the audience by UCF Knight Larry Schneider, a graduate student in the College of Optics & Photonics, before turning the question to other Knights at the panel. The Knights Panel was represented by UCF students who are blind or have a visual impairment and are registered with the Office of Student Disability Services. First, the questions were read to the audience and all were encouraged to offer their immediate thoughts with the panelists. Then, the panelists shared their perspectives in response to the same questions based on personal experience.

Photo courtesy of UCF Student Disability Services Photo courtesy of Lighthouse Central Florida “What resources would you reach out for support?” Most of the panelists had shared the common experience of receiving independent skills training from Lighthouse Central Florida, including mobility training to help them navigate the campus. Mock Classroom & Tips for the Sighted Lighthouse Central Florida welcomed and offered goggles to those who dared to experience a visual impairment before entering the simulated “mock” classroom environment. UCF Students and staff who sported the goggles got first hand exposure to what it might feel like to be in a classroom where the instructor is presenting a lecture with the aid of a PowerPoint or a short film without offering to describe what was being shown. The “mock” classroom facilitator, Ms. Myrna Pagan-Ubides (Student Disability Services), walked around stopping to ask the participating “students” with the goggles to answer questions that could only be answered if they could “see” the PowerPoint or the film. The key point of the demonstration was to


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show how classroom presentations can be inaccessible to students with low vision in their classrooms. The audience learned that students with low vision may or may not always inform their instructors of their visual impairments and attempt to blend in to be “normal”. Lee Nasehi, Lighthouse CF President and Chief Executive Office and, Lee Van Eopoel, Lighthouse Director of Program Services talked about causes of sight loss and offered tips for the sighted. Their expertise was shared with advice and humor. Some health conditions that could lead to loss of vision and blindness include Diabetes and Traumatic Brain Injury. They also talked about less common factors such as amoebas found in lakes and smoking. “Smoking has been linked to many of the chronic long-term eye diseases that catch up with us as we get older. Going Blind World Sight Day was drawn to a conclusion with the showing of the documentary film Going Blind by Director Joseph Lovett http://www.goingblindmovie.com/. The film was introduced by Ms. Lee Van Eopoel who described the film as one that was “designed to give people insight into the lives of several individuals with different vision impairments and their journey to blindness and vision rehabilitation services”. Ms. Van Eopoel took questions and comments at the end of the film from those in the audience. UCF premiered Going Blind just last year in October 2011 to showcase its first World Sight Day campaign. “It was the first time I had seen it, here at UCF”, said Ms. Van Eopoel. If you or a loved one is losing vision, contact Lighthouse Central Florida http://www.lighthousecentralflorida.org/. Schedule an annual eye exam and don’t forget to wear sunglasses that protect against UV sunlight. UCF partners who helped planned World Sight Day 2011-2012: Multicultural Student Center, Recreation and Wellness Center, and Student Government Association-Diversity Initiatives, and Student Disability Services. A special thanks to our partners in Lighthouse Central Florida. M. Pagan-Ubides


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Appendix H: Letter in Response to JCAHPO Speech

“I work for a group of ophthalmologists who are wonderful mechanics. I have watched patients be treated and when vision deteriorates to the point of not being improved by continuing treatment or surgery they fall into the ‘we'll monitor you carefully’ mode. I would like to believe that their generation of physicians were untrained or not groomed on how to take the patients any further that their ‘specialty’ provided. As a technician, after the doctor completes the exam and leaves the confused, scared, vision compromised patient with you, it would be so much easier if the doctor could just initiate the fact that there is low vision care and then leave it to the tech to provide the information of how to get the patient the info. I realize that low vision discussions are out of some ‘comfort zones’ or won't make them any money but I feel a low vision protocol is just as important as a protocol for drop therapy or surgery. I be don't feel it should be a casual ‘oh by the way.... you might try’ it should be information that is provided in a mandatory, professional and specific manner. After all.... it’s vision...it's life. My hope is that the physicians you spoke with yesterday.... listened well and will help us.” - Anonymous


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Appendix I: Library Journal Reviews


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Advanced Review – Uncorrected Proof Booklist Online Exclusive: May 14, 2012 Going Blind: Coming Out of the Dark about Vision Loss. Feb 2012. Lovett, DVD, $250.00. (9780615552132).

Writer and filmmaker Joseph Lovett who is experiencing vision loss as a result of glaucoma, chronicles his

experiences in this 2010 documentary that spans a five-year period in which Lovett visits various

specialists and clinics and undergoes treatments and surgeries to try and save his eyesight. And he also

seen talking with various persons (teacher, architect, war veteran, and others) who are experiencing vision

loss due to medical conditions or injuries. Through these discussions Lovett gains new insight into the

meaning of “vision impaired” and learns how others are coping and adapting. The experienced filmmaker

asks pointed questions that elicit thoughtful, honest responses. The film also includes information on new

technologies and medical breakthroughs; computer graphics illustrate the inner workings of the eye. This

is an affirming and inspirational production for viewers and family members facing similar situations. — Debra McLeod


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Organizational Purchases To Date Acucela Seattle, WA Alabama Institute for the Deaf & Blind Talladega, AL Alaska Center for the Blind & Visually Impaired Anchorage, AK Alcon Fort Worth, TX Alden Library, Ohio State University Athens, OH Alexandria VAMC Pineville, LA Allen County Public Library Fort Wayne, IN Allergan Foundation Irvine, CA Alphapointe Association for the Blind Kansas City, MO American Academy of Ophthalmology San Francisco, CA American Council of the Blind of Colorado Denver, CO American Optometric Association St. Louis, MO AMESVI Arlington, MA


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Ann Arbor District Library Ann Arbor, MI Antigua Girls’ High School Antigua, Bermuda Appalachia Intermediate Unit 8 Altoona, PA Arkansas Children’s Hospital Little Rock, AR Association for the Education & Rehabilitation of the Blind & Visually Impaired Alexandria, VA Association for Vision Rehabilitation Employment, Inc. Binghamton, NY Bermuda Society for the Blind Hamilton, Bermuda Blind and Vision Rehab Services of Pittsburgh Homestead, PA Blindconnect Las Vegas, NV Blindrafelagid, Icelandic Organization of the Visually Impaired Reykjavik, Iceland The Book House Jonesville, MI Bucks County Association for the Blind & Visually Impaired Newton, PA Butler VAMC Butler, PA


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Cabell County Public Library Huntington, WV The Carroll Center Newton, MA Center for the Visually Impaired Atlanta, GA Centre de Réadaptation MAB-Mackay Montreal, Canada The Chicago Lighthouse Chicago, IL Chicopee Public Library Chicopee, MA Christoffel Blindenmission Deutschland Potsdam, Germany Cincinnati Association f/t Blind &VI Cincinnati, OH Columbus Public Library Columbus, GA Community Services for the Blind & Partially Sighted Seattle, WA Concord Lions Club Concord, NH Council of Citizens with Low Vision, International Malverne, NY CNIB Centre Toronto, Canada CNIB – Hamilton Office Hamilton, Canada


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The Dacula Lions Club Dacula, GA The Data Group Brampton, Canada Dallas Lighthouse for the Blind Dallas, TX The Dean McGee Eye Institute – University of Oklahoma Oklahoma City, OK Delaware Division for the Visually Impaired New Castle, DE Des Moines Area Community College Ankeny, IA Discover Project Novi Sad, Serbia Division for the Blind and Visually Impaired Bangor, ME Durham District School Board Whitby, Canada Dwight D. Eisenhower VAMC Leavenworth, KS Educational Vision Services New York, NY Ensight Skills Center Fort Collins, CO Envision Wichita, KS Erie Community College Williamsville, NY Florida Division of Blind Services Daytona Beach, FL


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Fordham University New York, NY Foundation for Blind Children Phoenix, AZ The Frank Stein and Paul S. May Center for Low Vision Rehabilitation at California Pacific Medical Center San Francisco, CA Ghent University Hospital Ghent, Belgium Glaucoma Service University of Pittsburgh School of Medicine Eye & Ear Institute Pittsburgh, PA The Hadley School for the Blind Winnetka, IL Hershey Medical Center Hershey, PA Himalayan Cataract Project Waterbury, VT Hofstra North Shore-LIJ School of Medicine Great Neck, NY Hoover Rehabilitation Services for Low Vision & Blindness Baltimore, MD Huntington VAMC Huntington, WV Indiana University Libraries Bloomington, IN


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INSIGHT Warwick, RI The Iris Network Portland, ME Ithaca College Library Ithaca, NY Jack C. Montgomery VAMC Muskogee, OK Jacksonville Area Center for Independent Living Jacksonville, IL Joint Commission on Allied Health Personnel in Ophthalmology St. Paul, MN Journal of Visual Impairment & Blindness Chester, NY Juneau Public Library Juneau, AK Impairment and Blindness Chester, NY Kent District Library Wyoming, MI Key Peninsula Lions Club Gig Harbor, WA Kinikinnick Elementary School Sechelt, Canada Lavelle School for the Blind Bronx, NY Leader Dogs for the Blind Rochester Hills, MI


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Lee Eye Centre Perak, Malaysia Lighthouse for the Blind & Visually Impaired Port Richey, FL Lighthouse of Broward Fort Lauderdale, FL Lighthouse of Central Florida Orlando, FL Lighthouse of Collier Naples, FL Low Vision Services of Southern Colorado Colorado Springs, CO LV Prasad Eye Institute Hyderabad, India Ottawa Hospital Ottawa, Canada Lighthouse for the Blind of Fort Worth Fort Worth, TX Lighthouse of Southwest Florida N. Fort Myers, FL Lions Clubs International Oak Brook, IL Loma Linda University Redlands, CA Long Island Council for the Blind Hempstead, NY Los Alamos Retired & Senior Center Los Alamos, NM Louisiana State University Health Science Center New Orleans, LA


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Low Vision Center of New Jersey Somerset, NJ Madison VAMC Madison, WI Manchester VAMC Manchester, NH Maryland/DC Chapter of AER Baltimore, MD Massachusetts Eye and Ear Infirmary Boston, MA The Merrimack Valley Library Consortium Lowell, MA Montana Audio Information Network Missoula, MT Moorfields Eye Hospital London, England Mountain Home VAMC Mountain Home, TN Nevada Dept of Employment, Training, and Rehabilitation Carson City, NV New Hampshire Association for the Blind Concord, NH New Jersey Commission for the Blind and Visually Impaired Newark, NJ New Vision for Independence Leesburg, FL New York Harbor VA Healthcare System Manhattan Campus New York, NY New York University Libraries New York, NY


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North Central Sight Services Williamsport, PA North Dakota Vision Services Grand Forks, ND Northern Illinois University DeKalb, IL Oklahoma Library for the Blind & Physically Handicapped Oklahoma City, OK Oklahoma School for the Blind Muskogee, OK Ohio State University College of Optometry Columbus, OH Ophthalmological Society of Nigeria Lagos, Nigeria Oregon Commission for the Blind Portland, OR Puget Sound VAMC Graham, WA Reno VAMC Reno, NV Saint Louis Society for the Blind & Visually Impaired Saint Louis, MO South Dakota Dept of the Blind and Visually Impaired Pierre, SD South Dakota School for the Blind & Visually Impaired Aberdeen, SD Southwest Georgia Regional Library Bainbridge, GA Spokane VAMC Spokane, WA


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State of Virginia Dept for the Blind & Visually Impaired Richmond, VA Storm Eye Institute Charleston, SC Paradigma Ophthalmology Clinic Suceava, Romania Parkland Regional Library Lancombe, Canada Pennsylvania Association for the Blind Mechanicsburg, PA Perkins School for the Blind Watertown, MA Queen’s University Ontario, Canada Southern College of Optometry Memphis, TN St. Clair County Library Port Huron, MI Renwick Centre Royal Institute for Deaf & Blind Children North Rocks, Australia Richmond VA Medical Center Richmond, VA RRTC on Blindness and Low Vision Mississippi, MS SAFE Foundation Sacramento, CA San Antonio Lighthouse San Antonio, TX


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San Luis Obispo Community Foundation/Access for All San Luis Obispo, CA Sight Loss Services West Dennis, MA Sioux Falls VAMC Sioux Falls, SD The Smith-Kettlewell Eye Research Institute & California Pacific Medical Center Novato, CA Southeast Community College Lincoln, NE Southeastern Guide Dogs East Palmetto, FL South Texas Regional Group/Blinded Veterans Association San Antonio, TX SUNY College of Brockport: The Research Foundation Brockport, NY SUNY College of Optometry New York, NY Syracuse VAMC Syracuse, NY Tampa Lighthouse for the Blind Tampa, FL Texas Dept of Assistance and Rehabilitative Services Austin, TX Texas State Library and Archives Commission Austin, TX Tomah VAMC Tomah, WI


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Traverse Area District Library Traverse City, MI Trial by Jury Kennels Kansas City, MO United Disability Services Akron, OH University of Alabama - Birmingham Birmingham, AL University of Arkansas – Jones Eye Institute Little Rock, AR University of Central Florida – Libraries Orlando, FL University of Louisville Louisville, KY University of Montreal Montreal, Canada University of Texas San Antonio, TX University of Toronto Toronto, Canada University of Virginia – Department of Ophthalmology Charlottesville, VA University of Wisconsin - Whitewater Whitewater, WI VA Connecticut Healthcare Norwalk, CT VA Malcolm Randall Medical Center Gainesville, FL


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VA Medical Center Boston, MA VA Medical Center Lexington, KY VA Medical Center St. Cloud, MN VA Medical Center Voluntary Services Martinsburg, WV Vermont Association for the Blind & Visually Impaired Burlington, VT Vermont Dept of the Blind and Visually Impaired Waterbury, VT Virginia Beach Public Library Virginia Beach, VA Visual Rehab Ottawa, Canada Washington DC VAMC Washington, DC Wayne County Regional Library for the Blind & Physically Handicapped Westland, MI West Virginia Division of Rehabilitative Services Nitro, WV West Virginia University Eye Institute Morgantown, WV Western Pennsylvania School for Blind Children Pittsburgh, PA Western University Pomona, CA


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Wills Eye Hospital Philadelphia, PA Wisconsin Center for the Blind & Visually Impaired Janesville, WI Wisconsin Council of the Blind & Visually Impaired Madison, WI World Glaucoma Association Amsterdam, The Netherlands

Screenings of Going Blind To Date

USA Screenings Oct 30, 2012 VA NY Harbor Healthcare System Manhattan Campus New York, NY Oct 24, 2012 JCAHPO Central Park Ampitheater Woodbury, MN Oct 20, 2012 Columbus Libraries for Accessible Services Columbus, GA Oct 15, 2012 Syracuse VAMC Syracuse, NY Oct 15, 2012 LFUCG Office of Aging Services & Disability Support, Independence Place, Lexington VAMC and Bluegrass Council of the Blind Central Public Library Lexington, KY


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Oct 15, 2012 Washington DC VA Medical Center Washington, DC Oct 11, 2012 University of Central Florida & Lighthouse of Central Florida Orlando, FL Oct 6, 2012 NH Association for the Blind Amherst Congregational Church Amherst, NH Oct 4, 2012 Association for Vision Rehabilitation and Education Action for Older Persons Binghamton, NY Oct 1, 2012 The Carroll Center for the Blind Newton, MA Oct 1, 2012 NH Association for the Blind Berlin, NH Sept 27, 2012 Association for Vision Rehabilitation and Employment Whitney Point Methodist Church Whitney Point, NY Sept 27, 2012 NH Association for the Blind Derry Municipal Center Derry, NH Sept 19, 2012 Going Blind Congressional Screening Capitol Hill Rayburn Building Washington, DC


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Sept 19, 2012 Association for Vision Rehabilitation and Employment First Presbyterian Church Endicott, NY June 30, 2012 Gig Harbor & Peninsula Lions Clubs Galaxy Theater Gig Harbor, WA June 28, 2012 NH Association for the Blind Gibson Center North Conway, NH May 19, 2012 NH Association for the Blind Franklin Opera House Franklin, NH May 12, 2012 The Palace Theatre NH Association for the Blind Manchester, NH May 2, 2012 NH Association for the Blind Manchester, NH May 2, 2012 Manhattan VAMC New York, NY May 1, 2012 Vermont Association for the Blind & Visually Impaired South Burlington, VT April 27, 2012 NH Association for the Blind VA Medical Center White River Junction, VT


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April 21, 2012 NH Association for the Blind Hopkinton Town Library Hopkinton, NH March 21, 2012 NH Association for the Blind Keene State College Keene, NH February 25, 2012 NH Association for the Blind Wentworth-Douglass Hospital Dover, NH February 22, 2012 NH Association for the Blind Manchester, NH February 18, 2012 Houston Area Visually Impaired Network (HAVIN) Windwood Presbyterian Church Houston, TX February 10, 2012 The Merrimack Valley Library Consortium The Pollard Memorial Library Lowell, MA February 4, 2012 Lions of Georgia/The Foundation Fighting Blindness St. Joseph’s Hospital Atlanta, GA February 4, 2012 NH Association for the Blind Taylor Community’s Woodside Laconia, NH January 26, 2012 NH Association for the Blind Manchester, NH


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January 26, 2012 New Vision For Independence, Inc. Leesburg, FL January 13, 2012 NH Association for the Blind VA Medical Center White River Junction, VT January 7, 2012 NH Association for the Blind Huggins Hospital Wolfeboro, NH December 5, 2011 NH Association for the Blind Peterborough Community Theatre Peterborough, NH November 25, 2011 NH Association for the Blind Keene State College Keene, NH November 23, 2011 Houston Area Visually Impaired Network Windwood Presbyterian Church Houston, TX November 3, 2011 The St. Cloud VA Health Care System Paramount Theatre St. Cloud, MN October 23, 2011 NH Association for the Blind The Dartmouth Hitchcock Medical Center Lebanon, NH October 21, 2011 JCAHPO Annual Meeting Orlando, FL


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October 18, 2011 The St. Cloud VA Health Care System VA Community Based Outpatient Clinic Montevideo, MN October 17, 2011 The St. Cloud VA Health Care System Law Enforcement Auditorium at Alexandria Technical College Alexandria, MN October 13, 2011 The University of Central Florida Orlando, FL October 12, 2011 Huntington Museum of Art Huntington, WV September 29, 2011 The St. Cloud VA Healthcare System Minnesota National Guard Armory Brainerd, MN September 28, 2011 University of Houston College of Optometry Houston, TX September 26, 2011 Concord Lions Club & NH Society of Eye Physicians Concord, NH September 15, 2011 Vermont Association f/t Blind & Visually Impaired Putney, VT September 15, 2011 Maine’s Division for the Blind & Visually Impaired The Iris Network Portland, ME


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September 14, 2011 UPMC Eye Center University of Pittsburgh Pittsburgh, PA August 13, 2011 AER Regional Conference Boston, MA August 1, 2011 Oklahoma AER Meeting Oklahoma School for the Blind Muskogee, OK July 13, 2011 American Council of the Blind, 50th Annual Conference & Convention Reno, NV July 7, 2011 The CCLVI Annual Convention Long Island, NY July 5 & 7, 2011 Lions Clubs International 94th Annual Convention Seattle, WA June 25, 2011 JCAHPO Regional Meeting St. Paul, MN June 7, 2011 National Eye Institute Bethesda, MD May 19, 2011 Smith-Kettlewell Eye Research Institute San Francisco, CA May 19, 2011 North County Regional Hospital Littleton, NH


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May 14, 2011 JCAHPO Regional Meeting St. Paul, MN May 11, 2011 St. John’s Episcopal Church Oakland, CA May 10, 2011 Envision INTRUST Bank Community Services Hall Wichita, KS May 9, 2011 Kendal Retirement Community April 30, 2011 Hanover, NH Senior Living Facility – Heritage Heights Concord, NH April 26, 2011 The Lions Club of Gwinnett County Gwinnett County, GA April 18, 2011 Dacula Lions Club Dacula, GA April 15, 2011 UPMC Eye Center – University of Pittsburgh Pittsburgh, PA April 12, 2011 Envision INTRUST Bank Community Services Hall Wichita, KS April 6, 2011 Blind Babies Foundation Oakland, CA


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March 26, 2011 Ann Arbor District Library Ann Arbor, MI March 21, 2011 Concord Public Library Portsmouth, NH March 18, 2011 Blind & Vision Impaired of Marin San Rafael, CA March 18, 2011 All Saints Lutheran Church Novato, CA March 16, 2011 Hoover Rehabilitation Center Baltimore, MD March 7, 2011 Concord Lions Club Concord, NH February 5, 2011 Low Vision Study Group San Francisco, CA January 24, 2011 Concord Lions Club Concord, NH January 19, 2011 Blind & Vision Impaired of Marin San Rafael, CA December 14, 2010 Ann Arbor District Library Ann Arbor, MI November 20, 2010 Visions New York, NY


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November 20, 2010 Community Services for the Blind & Partially Sighted Tacoma, WA November 15, 2010 Optometric Glaucoma Society San Francisco, CA November 14, 2010 Community Services for the Blind & Partially Sighted Bellevue, WA November 13, 2010 Community Services for the Blind & Partially Sighted Everett, WA November 10, 2010 PBS Western Michigan Grand Rapids, MI November 7, 2010 Community Services f/t Blind & Partially Sighted Seattle, WA November 4, 2010 Oklahoma School for the Blind Muskogee, OK October 30, 2010 Low Vision Center of New Jersey New Brunswick, NJ October 21, 2010 AAO Conference Chicago, IL October 20, 2010 San Antonio Blinded Veterans San Antonio, TX


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October 19, 2010 VA Healthcare Connecticut West Haven, CT October 14, 2010 Massachusetts Eye and Ear Infirmary Boston, MA October 8-14, 2010 Quad Cinema New York, NY October 7, 2010 SUNY College of Optometry New York, NY September 24, 2010 Envision Conference San Antonio, TX June 21, 2010 Massachusetts Eye and Ear Infirmary Boston, MA June 20, 2010 SUNY College of Optometry New York, NY May 4, 2010 Mount Sinai Medical School New York, NY


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International Screenings Sept 23, 2012 Visual Rehab Ottawa Educational Day Canada Aug 22, 2012 CNIB Communications Nova Scotia Diversity Film Festival Halifax, Nova Scotia Canada March 27, 2012 Antigua Girl’s High School St. John’s Antigua March 16, 2012 American University of Antigua, School of Medicine Coolidge Campus Antigua March 12, 2012 Deluxe Cinemas, High St St. John’s Antigua November 23, 2011 Rainbow Cinemas Canada November 5, 2011 Night and Fog Arts Festival Germany October 15, 2011 Blindafelagid, Icelandic Organization of the Visually Impaired (BIOVI) Iceland October 12, 2011 Humboldt University of Berlin Germany


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October 6, 2011 Blindafelagid, Icelandic Organization Of the Visually Impaired Iceland October 5, 2011 Accessible Channel Canada October 5, 2011 Icelandic Television Iceland June 29 – July 2, 2011 World Glaucoma Congress France June 4, 2011 Mayfair Theatre, sponsored by Visual Rehab Canada May 26, 2011 The Annual Ophthalmologists Reunion Providenta Center IASI Romania May 20, 2011 Lions Club National Convention Romania May 11, 2011 The CNIB Canada April 8, 2011 Lions Club Suceava, House of Culture Romania March 23, 2011 The 26th APAO Congress Australia


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March 11, 2011 Romanian Glaucoma Society Romania February 7, 2011 Centre de Réadaptation Canada January 20, 2011 University of Toronto Canada January 19, 2011 Scotia Bank Theatre Canada January 19, 2011 CNIB Centre Canada November 9, 2011 University of Magdeburg Germany October 14, 2011 Lee Eye Centre Malaysia June 4, 2011 World Ophthalmology Congress Germany


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Speaking Engagements November 30, 2012 Convention Center at Oncenter JCAHPO, Syracuse Continuing Education Program Syracuse, NY November 12, 2012 Hilton Chicago Hotel JCAHPO & ATPO Annual Continuing Education Program Chicago, IL October 26, 2012 University of Pittsburgh Medical Center Guest Speaker Grand Rounds BST S 120, 7am Pittsburgh, PA May 12, 2012 The Palace Theatre New Hampshire Association for the Blind Manchester, NH April 21, 2012 Unite for Sight: Global Health & Innovation Conference, Yale University New Haven, CT January 27, 2012 University of the Incarnate Word, Rosenberg School of Optometry San Antonio, TX October 12, 2011 Huntington Museum of Art Huntington, WV September 28, 2011 University of Houston, College of Optometry Houston, TX


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September 14, 2011 UPMC Eye Center University of Pittsburgh Pittsburgh, PA August 12, 2011 AER Regional Conference Boston, MA June 30, 2011 World Glaucoma Congress France June 7, 2011 National Eye Institute Bethesda, MD April 16, 2011 Global Health Innovation Conference Yale University New Haven, CT April 6, 2011 UPMC Eye Center University of Pittsburgh Pittsburgh, PA January 20, 2011 University of Toronto Canada November 15, 2010 Optometric Glaucoma Society San Francisco, CA October 7, 2010 SUNY College of Optometry New York, NY September 24, 2010 Envision Conference San Antonio, TX


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June 21, 2010 Massachusetts Eye and Ear Infirmary Boston, MA June 4, 2010 World Ophthalmology Congress Berlin, Germany

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