The mission of the Clinical and Translational Science Institute of Southeast Wisconsin is to create a borderless, complementary and synergistic research environment in Southeast Wisconsin to translate

discoveries into better health of our citizens while simultaneously providing comprehensive educational and training programs to develop the next generation of Clinical and Translational Researchers.

Community Engagement in Research (CEnR) and Comparative Effectiveness Research (CER)

Bridge Building Day Workshop

University of Wisconsin-Milwaukee School of Continuing Education Conference Center

Tuesday October 2, 2012

8:00 a.m.—4:00 p.m.

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Table of Contents

Section Page #

Conference Facilities 3

Welcome 4

Agenda 5

Glossary of Terms 6

Speaker Biographies 8

Case Study Examples and Participant Lists

1. Description of the United Community Center, Latino Geriatric Center and Long Standing United Community Center/Medical College of Wisconsin Partnership

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2. Engaging Neighborhoods in Creating Policy: Local Solutions for Local Issues— Childhood Obesity

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3. Attention Deficit Hyperactivity Disorder 18

4. Working with Veterans’ Organizations to Improve Blood Pressure 20

Conference Participant Directory 22

Notes 25

Conference Sponsorship 29

Cover photo from: http://commons.wikimedia.org/wiki/File:Milwaukee_Wisconsin_7990.jpg

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Conference Facilities

Parking Complimentary parking is available. When you enter the UW-Milwaukee/Grand Avenue Mall parking structure, retrieve a ticket. In order to have your parking expense covered, you must take your ticket with you into the conference center. Parking validation and a parking voucher will be provided to all participants at the conference center’s Reception Desk directly outside the North Elevators on the 7th floor.

WiFi Access The conference center offers complimentary wireless access for conference speakers and participants. When accessing the network, select the network named “Classroom”. There is no login or password required.

Photography Throughout the day a photographer will be taking pictures that will be used for promotion and educational opportunities for the Clinical and Translational Science Institute (CTSI) and Community Engagement Key Function. By attending the conference, your consent is implied. If you do not wish to be photographed please inform a volunteer at the registration tables.

Audiotaping To reduce note taking effort, the workgroup breakout sessions will be audiotaped. These recordings will not be used for research purposes. Publication or White Paper The themes that come from the workgroup discussions could be used in possible future publications or white papers. No direct quotations or identifiable information will be used for publication.

Conference Center Map

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Welcome

Dear Colleagues,

I am pleased and honored to welcome you to the Community Engagement in Research (CEnR) and Comparative

Effectiveness Research (CER) Bridge Building Day Workshop led collaboratively by the Clinical and Translational

Science Institute of Southeast Wisconsin (CTSI) and its Community Engagement Key Function. The purpose of this

workshop is to establish a preliminary dialogue between CEnR and CER scientists. There is growing, mutual

recognition that some interdependence between the CEnR and CER disciplines will produce benefits. Your

participation and contributions throughout the day’s interactive workshop will help to identify the assets, needs,

and potential collaborative solutions.

Workshop goals include:

Examine the national and local perspectives on collaborative research between Community Engagement and

Comparative Effectiveness

Generate, through active, facilitated small group discussions, a baseline framework for collaboration on a

broad class of needs and assets

Provide an opportunity for networking among local researchers interested in collaboration on existing and

new research initiatives

I wish to express my sincere gratitude to those that have made this workshop possible through sponsorship,

planning support and staffing. I thank the following planning committee members who have dedicated

significant time and effort into every detail of the workshop: Scott Belanger, Christina Ellis, Michael Farrell, Zeno

Franco, Arthur Hefti, Anne Kissack, Theodore Kotchen, Prakash Laud, David Nelson, Julie Panepinto, Ken

Schellhase, Fouza Yusuf, and Jeff Whittle. I appreciate the following additional volunteers who are helping with

this workshop in various roles such as supporting workshop sessions, working at the conference registration, and

assisting with the needs and demands of the day: Terry Brandenburg, Carlos De La Pena, Melissa DeNomie,

Christina Eldredge, Shari Hagedorn, Gina Lukaszewicz, Angie Mauz, John Meurer, Jeff Morzinski, Michelle Smith-

Beckley, and Tracy Wilson.

Sincerely,

Syed Ahmed, MD, MPH, DrPH, FAAFP

Senior Associate Dean for Community Engagement Professor, Department of Family and Community Medicine Professor, Institute for Health and Society Director, Community Engagement Key Function Clinical and Translational Science Institute of Southeast Wisconsin

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Agenda

Timeframe Topic

8:00-8:30 am Registration and Continental Breakfast

8:30-8:45 am Welcome and Opening Session (Room 7970)

Introductions: Syed Ahmed, MD, MPH, DrPH, FAAFP, Senior Associate Dean for Community Engagement, Director of the Community Engagement Key Function of the Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin

Opening Remarks: Reza Shaker, MD, Senior Associate Dean for Clinical and Translational Research, Principal Investigator and Director, Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin

Hosting Institution Welcome: Patricia Arrendondo, PhD, Interim Dean, School of Continuing Education, Associate Vice Chancellor in the Office of Academic Affairs and Professor of Counseling Psychology in the School of Education at the University of Wisconsin-Milwaukee

8:45-9:30 am Keynote Address

National Perspective on CEnR and CER Collaboration Thomas Concannon, PhD, Health Services Researcher, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, Massachusetts

9:30-10:20 am CTSI Institutional Partners: Local Priorities and Relevant Research Initiatives

Medical College of Wisconsin: Syed Ahmed, MD, MPH, DrPH, FAAFP

University of Wisconsin-Milwaukee: Rachel Schiffman, PhD, RN, FAAN, Associate Dean for Research,

Co-Principal Investigator for Clinical and Translation Science Institute of Southeast Wisconsin,

Professor of Nursing, University of Wisconsin-Milwaukee

Marquette University: Katherine Durben, MSW, Executive Director, Office of Research and

Sponsored Programs, Marquette University

Medical College of Wisconsin: Julie Panepinto, MD, MSPH, Director of the Center for Clinical

Effectiveness Research, Professor of Pediatrics, Medical College of Wisconsin

10:20-10:30 am Workshop Vision and Format Syed Ahmed, MD, MPH, DrPH, FAAFP

10:30-10:45 am Break

10:45 -12:00 pm Morning Facilitated Workgroups (See name tag for assigned room number)

12:00-1:00 pm Lunch (Main Dining Room 7820)

1:00-2:00 pm Afternoon Facilitated Workgroups

2:00-2:15 pm Break

2:15-3:15 pm Large Group Discussion (Room 7970) Four facilitated workgroups will present their ideas from the morning and afternoon workgroup sessions

3:15-3:45 pm Keynote Speaker Reflections and Assessment Thomas Concannon, PhD

3:45-4:00 pm Closing Remarks Theodore Kotchen, MD and Syed Ahmed, MD, MPH, DrPH, FAAFP

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Glossary of Terms

Community: What we mean by “community” is dynamic and inclusive; there is no “one” definition of community. Community need not be defined solely by geography. It can refer to a group that self-identifies by age, ethnicity, gender, sexual orientation, disability, illness or health condition. It can refer to a common interest or cause, a sense of identification or shared emotional connection, shared values or norms, mutual influence, common interest, or commitment to meeting a shared need. A group of people linked by social ties who share common perspectives or interests, and may also share a geographic location .

Source: MacQueen, KM, McLellan, E, Metzger, DS, Kegeles, S, Strauss, RP, Scotti, R, Blanchard, L, and Trotter II, RT. (2001) What Is Community? An Evidence-Based Definition for Participatory Public Health. American Journal of Public Health, 91(12): 1929–1938.

Community Based Participatory Research (CBPR): A collaborative approach to research that equitably involves all partners in the research process and recognizes the unique strengths that each brings.

Source: W.K. Kellogg Foundation (2001).

Community Engagement: Community Engagement describes the collaboration between institutions of higher education and their larger communities (local, regional/state, national, global) for the mutually beneficial exchange of knowledge and resources in a context of partnership and reciprocity.

Source: Carnegie Foundation for Advancement of Teaching (2012).

Community Engagement in Research (CEnR): CEnR is a process of inclusive participation that supports mutual respect of values, strategies, and actions for authentic partnership of people affiliated with or self-identified by geographic proximity, special interest, or similar situations to address issues affecting the well-being of the community or focus. It is a core element of any research effort involving communities which requires academic members to become part of the community and community members to become part of the research team, thereby creating a unique working and learning environment before, during, and after the research.

Source: Ahmed, SM and Palermo, AS. (2010) Community Engagement in Research: Frameworks for Education and Peer Review. American Journal of Public Health, 100(8): 1380-1387.

Comparative Effectiveness Research (CER): Comparative Effectiveness Research (CER) identifies what works best for which patients under what circumstances. It is the generation and synthesis of evidence that compares the benefits and harms of alternative methods to prevent, diagnose, treat, and monitor a clinical condition or to improve the delivery of care. The purpose of CER is to assist consumers, clinicians, purchasers and policy makers to make informed decisions that will improve health care at both the individual and population levels.

Source: Institute of Medicine, Initial National Priorities for Comparative Effectiveness Research (2009).

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Glossary of Terms

Patient-Centered Outcomes Research: Patient-Centered Outcomes Research (PCOR) helps people and their caregivers communicate and make informed health care decisions, allowing their voices to be heard in assessing the value of health care options. This research answers patient-centered questions such as:

1. “Given my personal characteristics, conditions and preferences, what should I expect will happen to me?”

2. “What are my options and what are the potential benefits and harms of those options?”

3. “What can I do to improve the outcomes that are most important to me?”

4. “How can clinicians and the care delivery systems they work in help me make the best decisions about my health and healthcare?”

Source: Patient-Centered Outcomes Research Institute (PCORI), www.pcori.org.

Patient/Stakeholder: Stakeholders include patients, caregivers and clinicians, and the following or their representatives:

Clinicians/clinician associations (physicians, nurses, pharmacists, other clinicians, professional societies and associations)

Organizational providers (hospitals, integrated delivery systems, clinics, community health centers, pharmacies, nursing facilities)

Purchasers (employers, self-insured, government, and other entities)

Payers (insurers, Medicare and Medicaid, states, and labor trusts)

Industry (drug, device, biotechnology, and technology vendors)

Policymakers (elected officials or policymaking entities)

Educational institutions

Source: Concannon, TW, Meissner, P, Grunbaum, JA, et al. (2012) A new taxonomy for stakeholder engagement in patient-centered outcomes research. Journal of General Internal Medicine, 27(8):985–991.

Translational Research: Translational Research (a.k.a. translational science) is a way of conducting scientific research to make the results of research applicable to the population being studied. It is used to translate research findings more quickly into medical practice for the purposes of diagnosing, preventing and treating medical conditions.

Source: Clinical and Translational Science Institute of Southeast Wisconsin, https://ctsi.mcw.edu/community/what-is-translational-research/, as assessed on September 28, 2012.

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Speaker Biographies

WELCOME AND OPENING SESSION

Syed Ahmed, MD, MPH, DrPH, FAAFP

Senior Associate Dean for Community Engagement, Director of the Community Engagement Key Function of the Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin

Syed Ahmed, MD, MPH, DrPH, FAAFP is the Senior Associate Dean for Community Engagement at the Medical College of Wisconsin (MCW). Dr. Ahmed is also a Professor of Family and Community Medicine, and also serves as a Professor in the Institute for Health and Society. Dr. Ahmed provides leadership in improving the health of the communities served by MCW through community partnerships and integration across the school’s four missions of research, education, patient care and community engagement. He serves as the external representative for MCW’s Community Engagement Mission. He has been an invited expert on community-academic partnership and community-based participatory research at the Agency for Health Care Research and Quality, the Center for Disease Control and the National Institute of Health (NIH). He was a member of the Council of Public Representatives (COPR), an advisory board to the NIH director and the Co-Chair of the COPR’s Role of the Public in the Research workgroup, which focuses on public & community engagement. Dr. Ahmed has made nationally and internationally recognized contributions to the field of community health, community-academic partnerships, community-based participatory research and community engaged research. His many recognitions for outstanding service to underserved and uninsured communities include the Certificate of Special Congressional Recognition in 2000 from the U.S. Congress, the Ohio Quality of Care Award in 2000, and the Wright State University Presidential Award for Faculty Excellence in Professional Service in 2001, and the Humanism in Medicine Award in 2001 from the Association of American Medical Colleges.

Reza Shaker, MD

Senior Associate Dean for Clinical and Translational Research, Principal Investigator and Director, Clinical and Translational Science Institute of Southeast Wisconsin, Medical College of Wisconsin

Reza Shaker, MD, is Joseph E Geenen Professor and Chief, Division of Gastroenterology and Hepatology, Director of the Digestive Disease Center and Senior Associate Dean for Clinical and Translational Research at MCW. He is the Principle Investigator and Director of the Clinical and Translational Science Institute of Southeast Wisconsin . His research career includes both T1 and T2 clinical and translational research, NIH and industry sponsored clinical trials and the development and clinical use of medical devices and endoscopic techniques. He is internationally recognized for his studies of deglutition and deglutition disorders, gastroesophageal reflux disease and cerebral cortical control of gastrointestinal sensory motor function. Continuous NIH funding for the past 15 years has led to seminal discoveries in the area of airway protection against aspiration which have opened new avenues of investigation and treatment for patients with swallowing disorders. He developed the rehabilitative exercises for treatment of upper esophageal sphincter dysphagia: the ‘Shaker Exercises’ commonly used in clinical practice. His work has led to the description of the subliminal domain of gut sensory function, allowing investigation of brain-gut axis without the influence of related cognitive processes in humans. He developed the field of functional interaction between the upper gut and aerodigestive tract that has resulted in discovery of several related reflexes. Dr. Shaker developed the technique of transnasal unsedated upper GI endoscopy for concurrent evaluation of the aerodigestive and upper GI tracts. A NIH program project and an R01 grant both addressing human mechanistic pathobiology currently fund his work. He is also PI on a T32 training grant in gastroenterology reflecting his long record of training students, fellows and faculty, some of whom currently hold leadership positions. Dr. Shaker has well established community and philanthropic associations.

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Speaker Biographies

Patricia Arrendondo, EdD

Interim Dean, School of Continuing Education, Associate Vice Chancellor in the Office of Academic Affairs and Professor of Counseling Psychology in the School of Education at the University of Wisconsin-Milwaukee

Patricia Arredondo is Associate Vice Chancellor in the Office of Academic Affairs and Professor of Counseling Psychology in the School of Education at the University of Wisconsin-Milwaukee. Professor Arredondo served as President of the American Counseling Association (ACA), 2005-2006 and was also recognized as a “Living Legend” by the ACA for her contributions to the development of multicultural counseling competencies, dedication to Latina/o issues and her leadership in promoting organizational change through a focus on diversity. She has published widely on these topics. With respect to scholarship, Dr. Arredondo is the author and co-author of five books, 60 plus articles and book chapters, and multiple counselor training videos and DVDs in English and Spanish. Her scholarship areas address immigrants and life change processes, Latina/o issues in counseling, multicultural competency development, and organizational diversity assessment. She was co-chair of the APA Taskforce on the Guidelines for Multicultural Education and Training, Research, Practice, and Organizational Change for Psychologists. Her current research involves first-time homeowners in a south Phoenix Habitat for Humanity community. Dr. Arredondo has held leadership positions in many national and local professional organizations. She served as President of the American Psychological Association Division 45 Society for the Psychological Study of Ethnic Minority Issues, National Latina/o Psychological Association, ACA Association of Multicultural Counseling and Development, and the Latino Professional Network of Boston. Currently, she is on the Board of Directors of the Diversity Leadership Alliance of Greater Phoenix and chairs the Dissertation Awards Committee for the American Association of Hispanics in Higher Education. Dr. Arredondo has received numerous awards. She holds Fellow status with Divisions 17 and 45 of the American Psychological Association and is a recipient of an Honorary Doctorate of Humane Letters from the University of San Diego. At ASU, she has received the Dean’s Excellence Awards for both Diversity and Service from the College of Education. Prior to going to ASU, Dr. Arredondo was President of Empowerment Workshops, Inc., based in Boston, MA, an organizational consulting firm primarily focused on multicultural organizational development. She received her doctorate in Counseling from Boston University and master’s in Counseling from Boston College. Patricia also holds a B.S. in Spanish and Journalism from Kent State University. She is a licensed psychologist and bilingual in English/Spanish.

KEYNOTE SPEAKER

Thomas Concannon, PhD

Health Services Researcher, Institute for Clinical Research and Health Policy Studies at Tufts Medical Center

Tom Concannon studies the organization of healthcare services for high-cost and high-intensity patients. He is principal investigator on a project to compare strategies for regionalization of heart attack care. He has expertise in comparative effectiveness research, simulation modeling, geographic information systems (GIS), cost effectiveness, and stakeholder engagement in healthcare research. He currently serves as co-chair of the NIH CTSA Consortium’s Comparative Effectiveness Research Key Function Committee. Dr. Concannon received his PhD in Health Policy from Harvard University in 2007. Prior to pursuing his PhD, he was a consultant with the health care consulting firm John Snow, Inc., where he worked with Ryan White CARE Act-funded health departments, hospitals and clinics to improve federally-funded care for people living with HIV and AIDS.

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Speaker Biographies

CTSI INSTITUTIONAL PARTNERS: LOCAL PRIORITIES AND RELEVANT RESEARCH INITIATIVES

Rachel Schiffman, PhD, RN, FAAN

Associate Dean for Research, Co-principal Investigator for Clinical and Translational Science Institute of Southeast Wisconsin (CTSI), Professor of Nursing, University of Wisconsin–Milwaukee

Rachel Schiffman, PhD, RN, FAAN is professor and Associate Dean for Research in the College of Nursing at the University of Wisconsin-Milwaukee (UWM). She is the Director of the College’s Self-Management Science Center and Director of UWM’s Clinical and Translational Research Support Office. She serves as one of the co-principal investigators of the CTSI. Dr. Schiffman’s research focus is on early childhood intervention programs with a specific focus on family health, parent-child interaction, infant mental health and socio-emotional development with home visitation as a service delivery model. Dr. Schiffman earned her doctorate in Educational Psychology from the University of Connecticut. She received a BS in Nursing from Boston College and a MS in nursing from the University of Connecticut.

Katherine Durben, MSW

Executive Director, Office of Research and Sponsored Programs, Marquette University

Katherine Durben, Executive Director of the Office of Research and Sponsored Programs at Marquette University, has more than 20 years of experience in extramural funding and grant administration. Since coming to Marquette in 1996 as a proposal specialist, Ms. Durben has worked extensively with faculty representing all disciplines and has built strong relationships with numerous external constituencies. Previously, she worked for a statewide non-profit organization for five years. She oversaw programming for older adults in five counties, wrote grant applications, negotiated county contracts, and collaborated with United Ways and other public and private funding sources. Ms. Durben holds a Master’s degree in Social Work from the University of Wisconsin–Milwaukee and is a past recipient of the university’s Graduate of the Last Decade (G.O.L.D.) award. She is licensed as an Advanced Practice Social Worker in the State of Wisconsin, has served as a grant writing consultant to various community organizations and currently sits on the board of several local non-profit organizations.

Julie Panepinto, MD, MSPH

Director of the Center for Clinical Effectiveness Research, Professor of Pediatrics, Medical College of Wisconsin

Julie Panepinto is a Professor of Pediatrics at the Medical College of Wisconsin/The Children’s Hospital of Wisconsin in the section of hematology/oncology/bone marrow transplantation and director of the Center for Clinical Effectiveness Research of the Children’s Research Institute. Dr. Panepinto’s research has been focused on the care of and improvement in outcomes of patients and families with sickle cell disease. Her research, which has been funded by the NIH, has sought to determine and incorporate the perspective of the patient and family through the use of patient-reported outcomes, specifically health-related quality of life (HRQL) and to understand health care utilization patterns in this population. She recently completed development of a disease specific HRQL instrument for use in children with sickle cell disease and is currently using the instrument to determine the impact of a therapeutic intervention on HRQL within a clinical trial setting. Work in Dr. Panepinto’s laboratory has also described the impact of hospitalizations for painful events on the short term outcomes of patients and families. More recently, the laboratory reported that patients utilize multiple sites for acute sickle cell disease related problems resulting in fragmentation of care and that patients have increased reliance on the emergency department as they transition from pediatric to adult care.

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Speaker Biographies

CASE PRESENTERS (ALPHABETICAL)

Zeno Franco, PhD

Assistant Professor, Community Engagement Key Function of the Clinical and Translational Science Institute of Southeast Wisconsin, Department of Family and Community Medicine, Medical College of Wisconsin

Zeno Franco holds a PhD in clinical psychology, with an emphasis in Post Traumatic Stress Disorder treatment and trauma. He is the Principal Investigator for an Healthier Wisconsin Partnership Program funded project, “Los Cuidadores Latinos Unidos” (United Latino Caregivers) at the Latino Geriatric Center, housed in the United Community Center (UCC). He also serves as the faculty coordinator for the DryHootch (veteran)/VA/MCW/UWM Community-Academic Partnership and is a member of the Community Research Council at the Walnut Way Conservation Corps. Dr. Franco has performed research in the areas of community impact of large scale disasters, social psychology, and technology.

David Nelson, PhD, MS

Assistant Professor, Community Engagement Key Function of the Clinical and Translational Science Institute of Southeast Wisconsin, Department of Family and Community Medicine, Medical College of Wisconsin

David Nelson, PhD, MS, has twelve years of experience in working with communities in Maine and Wisconsin as Principal Investigator and Co-Principal Investigator on a number of projects through federal, state, and local programs. During his time in Milwaukee, Dr. Nelson has completed an assessment of three neighborhoods concerning physical activity and nutrition, worked on a team that developed a diabetes education curriculum for Spanish speaking individuals taught by community health workers, led an effort that resulted in funding from the Robert Wood Johnson Foundation to address childhood obesity and most recently completed a health literacy project working with his partners at the United Community Center.

Julie Panepinto, MD (previously listed)

Jeff Whittle, MD , MPH

Professor of Medicine, General Internal Medicine, Center for Patient Care and Outcomes Research, Medical College of Wisconsin and Clement J. Zoblocki Veterans Affairs Medical Center

Jeff Whittle's research focuses broadly on the problem of underuse of health promoting activities that are known to be effective. This leads him to work with community organizations to help their members adopt healthy lifestyles and to help them understand the rationale for using evidence based therapies. In addition, Dr. Whittle studies clinical practice to identify areas where therapy use does not line up with evidence. This has included describing non-clinical (e.g., racial, geographic) variation in procedure use, and working to understand apparent underuse of anticoagulants and antihypertensive therapy more broadly. Currently, he is working with veterans groups to help them help their members improve their self management knowledge, attitudes and behaviors. These efforts have focused on chronic conditions that are prevalent in older adults, including hypertension, obesity and osteoarthritis. He is investigating variation in the use of electrodiagnostic procedures among VA facilities. Finally, he participates in multicenter randomized trials that are needed to answer important questions about management of common chronic conditions, particularly hypertension. He is currently funded by the National Institutes of Health and the Department of Veterans Affairs. Recent studies have been funded by the Healthier Wisconsin Partnership Program, the American Heart Association and the Agency for Healthcare Research and Quality.

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Speaker Biographies

WORKGROUP FACILITATORS (ALPHABETICAL)

Terry Brandenburg, MBA, MPH

Director of Public and Community Health Education and Master of Public Health Program, Institute for Health and Society, Medical College of Wisconsin

Terry Brandenburg is currently the Director of Public and Community Health Education and Director of the Master of Public Health Program at the Medical College of Wisconsin. Prior to this appointment he worked in local public health departments for over 34 years, serving as a public health officer for 27 of those years. In addition to years of experience in public health practice at the local level, Mr. Brandenburg has been active in a number of statewide Initiatives including the development of the 2010 and 2020 state public health plan, the revision of Wisconsin’s public health statutes, the Wisconsin Public Health Quality Initiative and the Wisconsin Public Health Practice-Based Research Network.

Michael Farrell, MD

Associate Professor, Internal Medicine, Pediatrics, and Bioethics & Medical Humanities, Center for Patient Care and Outcomes Research, Medical College of Wisconsin

Mike Farrell is a primary care provider and pediatrician. His research and professional interests focus on population-scale methods for quality assurance of risk communication, especially surrounding the use of screening tests which may have unforeseen or unexpected implications. As both an adult and pediatric health care provider, he has studied communication prior to cancer screening tests for adults (prostate-specific antigen and mammography) and communication following newborn genetic screening (for cystic fibrosis and sickle cell hemoglobinopathy). Dr. Farrell is currently funded through an NIH R01 grant which uses methods developed in the development award to assess communication processes and outcomes across the state of Wisconsin after newborn screening. He is using a method of his own design called the "Brief Standardized Communication Assessment" (BSCA) to analyze physician risk communication against a series of "communication quality indicators," funded by the R01 and also by two ARRA grants. He is a part of the Research Scientist pathway and to work closely with several medical students and residents on their research projects. He is active in several teaching and service activities at the Medical College.

John Meurer, MD, MBA

Professor, Director of the Institute for Health and Society, Medical College of Wisconsin

John Meurer is Professor and Director of the Institute for Health and Society. The Institute includes the PhD in Public and Community Health and MPH degree programs, Biostatistics, Epidemiology, Bioethics and Medical Humanities, Community Engagement, Youth Violence Prevention, Health Equity, Urban Clinical Care Partnerships, and Global Health. Dr. Meurer also directs the Institute/Pediatrics Primary Care Research Fellowship and the Medical School Health Policy Course. John is a general pediatric clinician-educator and expert in population health management, childhood asthma and obesity coalition models to control chronic disease. During the past few years, he was repeatedly awarded as an Outstanding Medical Student Teacher and a Best Doctor in America. John enjoys mentoring and advising graduate and medical students and residents.

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Speaker Biographies

WORKGROUP FACILITATORS (ALPHABETICAL)

Jeff Morzinski, PhD

Associate Professor, Director, Division of Professional Development, Department of Family and Community

Medicine, Medical College of Wisconsin

Jeff Morzinski earned a PhD in Administrative Leadership from the University of Wisconsin – Milwaukee’s School of Urban Education after serving as a clinical director at a rural, comprehensive community mental health center. In his current role, Dr. Morzinski directs the Professional Development Division in Family and Community Medicine and is responsible for programs in faculty development, continuing medical education, leadership training and systems-based medicine. He directs a series of graduate courses on leadership in the health professions. For over 12 years, Dr. Morzinski has consulted on and led several implementation and evaluation initiatives regionally and nationally to advance excellence in teaching, leadership, community health and professional development.

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Case Study #1

Description of United Community Center, Latino Geriatric Center and Long Standing United Community Center/Medical College of Wisconsin Partnership

BACKGROUND

The United Community Center (UCC) is located on 9th & Washington on Milwaukee’s Southside, and serves

the Hispanic community through a variety of programming, including the Bruce-Guadalupe Community

School, a senior center, a large recreation facility, men’s and women’s residential AODA treatment, and the

Latino Geriatric Center (LGC). The Los Cuidadores Latinos Unidos project is a Healthier Wisconsin

Partnership Program (HWPP) funded effort. The project involves a partnership between the LGC staff and

faculty from the Department of Family & Community Medicine at the Medical College of Wisconsin

(MCW). Beyond this specific project, MCW and UCC have collaborated on a number of health related

community-academic partnerships over a number of years. Because the overall institutional partnership is

quite close, many of the “start-up” issues for partnerships were already resolved before this particular

project got underway.

OBJECTIVES

This project focuses on improving psycho-social functioning of Latino community members who are

caregivers for people with Alzheimer’s disease and other dementias in culturally appropriate ways. The

project seeks to: 1) Provide a flexible, culturally appropriate care-giver support intervention to at least 40

individuals over 2 years and 2) assess the impact of the intervention on these participants.

METHODS

The care-giver support intervention integrates six primary components using a family systems approach.

Over a six-month period, the participants will receive: 1) Two family and spousal dementia education

sessions; 2) Four individual Behavioral Activation sessions; 3) Follow-up visits in person, via telephone, or

video phone calls (e.g., Skype); 4) A respite day for caregivers with activities for self-care (e.g., Yoga,

massages, guided imagery, nutrition education, and spiritual activities); 5) Peer network with mentors to

provide support and guidance; and 6) Availability of educational sessions online or via DVDs according to

the caregiver’s preference. Assessment is performed at enrollment, mid-point (3 months) and exit from

study (6 months). Measures include the Patient Health Questionnaire (PHQ-9) and the Zarit Care Giver

Burden survey, as well as information about family support for the caregiver.

FINDINGS

Pending

STATUS

The project has currently consented 10 individuals and baseline data from these participants has been

collected.

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Case Study #1

Description of United Community Center, Latino Geriatric Center and Long Standing United Community Center/Medical College of Wisconsin Partnership

LIST OF PARTICIPANTS

CHALLENGES

How can CER inform CEnR projects about measuring and improving treatment fidelity with community

based providers (e.g. social workers, etc.) with little research experience? Can CER offer CEnR projects

ideas about how to better control intervention delivery in a fairly chaotic, non-clinical/lab setting?

Are there ways we can minimize the impact of inevitable staff turnover in community partner (and

academic) organizations that adversely impact CEnR research – are there strategies, technologies, or

other techniques that CER uses in clinical/lab settings that might be translatable to CEnR projects? (e.g.

knowledge management, etc.)

First Name Last Name Institution / Organization Primary Field (noted in registration)

Elizabeth Bedwell Children's Hospital of Wisconsin CER - Comparative Effectiveness Research

Rebecca Bernstein Medical College of Wisconsin CEnR - Community Engagement in Research

Sanjib Bhattacharyya City of Milwaukee Health Department CEnR - Community Engagement in Research

Mary Lou DeFino Community Member Public Education

Katherine Durben Marquette University CEnR - Community Engagement in Research

Tonya C Evans Community Action Agency Public Health

Tifany Frazer Medical College of Wisconsin CEnR - Community Engagement in Research

Daniel Fuhrmann University of Wisconsin-Milwaukee Health Economics

Morgan Hodge University of Wisconsin-Milwaukee Health Psychology

Jeana Holt University of Wisconsin-Milwaukee Family Nurse Practitioner—Community Based

Cynthia Kay Medical College of Wisconsin Residency Education

Jeffrey Morzinski Medical College of Wisconsin CEnR - Community Engagement in Research

Kim Pemble Wisconsin Health Information Exchange Health Information Technology & Exchange

Kourosh Ravvaz University of Wisconsin-Milwaukee CER - Comparative Effectiveness Research

Marie Sandy University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Kimberly Strong Medical College of Wisconsin Genomics and Ethics

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Case Study #2

Engaging Neighborhoods in Creating Policy: Local Solutions for Local Issues—Childhood Obesity

BACKGROUND

The Nutrition and Weight Status objectives of Healthy People 2020 support the health benefits of eating a nutritious diet and maintaining healthy body weight to reduce overweight and obesity in Americans(1). Prevalence of overweight and obesity has been increasing in US children, adolescents and adults(2-4) (5), with the highest levels in African–Americans and Hispanics(6). Despite immense awareness, prevention receives little attention and treatment and research still centers on individual responsibility and change(7). A broad, inclusive, community-based approach to the prevention of childhood obesity is needed(8-10). Such an approach would require moving beyond individual strategies, yet, a lack of community-level coordination is a barrier to effective obesity prevention (11). This project describes an effort to improve the health and well-being of children and families who use social-service agencies in Milwaukee, Wisconsin. The project emphasizes a localized approach toward health improvement in low-income neighborhoods and it influences multiple outward “circles of influence”.

METHODS

The purpose of the Milwaukee Childhood Obesity Prevention Project (MCOPP) is to develop agency-driven nutrition and physical activity policy and environmental change strategies for Milwaukee’s youth and family serving agencies. The intended long-term effect is to increase opportunities for healthy eating and active living for those who use and work at the agencies in order to ultimately reduce childhood obesity. The model is designed to first influence policy and environmental change strategies within the United Neighborhood Centers of Milwaukee (UNCOM) agencies and then develop “circles of influence” around the agencies by sharing policies and strategies with other similar agencies. The project is built upon core concepts of collaboration, transparency and open communication and welcomes newcomers. At the onset of the project, two objectives were established: 1) Developing a finalized project structure, and 2) Developing a policy structure that affects healthy eating and active living. Democratic input from participating individuals provided the basis for moving to the next step. Consistent monthly meetings provided a venue for social and professional interaction and for informing, sharing, and celebrating successes.

FINDINGS

Policies were developed to affect healthy eating and active living at the UNCOM agencies. A multifocal prevention approach is necessary to change the landscape related to obesity(7). Early on, executive directors of the UNCOM agencies supported the project; they provided valuable experience in designing the initial project and guiding the development of the MCOPP partnership and policies. Regular communication and twice yearly presentations to the executive directors maintains an open line of communication. During an interview process early in the project, the executive directors provided the following priorities for the direction of the project: 1) curriculum development and staff training, 2) active living for children, 3) active living for staff, 4) vending, and 5) land use. MCOPP continues to gain feedback from the directors throughout the project.

Feedback and direction also came from community members living near UNCOM centers. To gain their input, community sessions were held at each site. From the data collected at the sessions, MCOPP leaders generated higher-order themes(12). The resulting higher-order themes will better inform the foci and direction of programming, education and training, and ultimately, implementation of policy change at each site, giving the community and center users a voice in the process. This process revealed a number of place-based differences among agencies one might otherwise have assumed were similar in their perceptions, needs, and capacity for change.

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Case Study #2

Engaging Neighborhoods in Creating Policy: Local Solutions for Local Issues—Childhood Obesity

Solutions need to be specific to the neighborhoods’ needs. Higher order themes were generated from community input on five topics: childhood health concerns; ways the agency can help improve children’s health; healthy eating; physical activity; and changes in the neighborhood to improve health.

CHALLENGES

How will the broad set of policies be translated into practice at community centers with limited capacity for implementation?

How might outcomes be developed and tracked for this population?

REFERENCES/CITATIONS 1. Healthy People.gov. In: U.S. Department of Health and Human Services; 2012. 2. Clinical guidelines on the identification, evaluation, and treatment of overweight and obesity in adults: executive summary. Expert Panel on the Identification, Evaluation, and Treatment of Overweight in Adults. The

American Journal of Clinical Nutrition 1998;68(4):899-917. 3. Lytle L. Dealing with the childhood obesity epidemic: a public health approach. Abdominal Imaging:1-6. 4. Ogden CL, Carroll MD, Curtin LR, Lamb MM, Flegal KM. Prevalence of High Body Mass Index in US Children and Adolescents, 2007-2008. JAMA: The Journal of the American Medical Association 2010;303(3):242-249. 5. Ogden CL, Carroll MD, Curtin LR, McDowell MA, Tabak CJ, Flegal KM. Prevalence of Overweight and Obesity in the United States, 1999-2004. JAMA: The Journal of the American Medical Association 2006;295

(13):1549-1555. 6. Ogden CL, Flegal KM, Carroll MD, Johnson CL. Prevalence and Trends in Overweight Among US Children and Adolescents, 1999-2000. JAMA: The Journal of the American Medical Association 2002;288(14):1728-1732. 7. Ogden CL, Carroll MD, Kit BK, Flegal KM. Prevalence of obesity in the United States, 2009-2010. NCHS data brief, no 82. Hyattsville, MD: National Center for Health Statistics; 2012. 8. Freedman DS, Khan LK, Serdula MK, Ogden CL, Dietz WH. Racial and Ethnic Differences in Secular Trends for Childhood BMI, Weight, and Height[ast]. Obesity 2006;14(2):301-308. 9. Wang SS, Brownell KD. Public policy and obesity: the need to marry science with advocacy. Psychiatr Clin North Am 2005;28(1):235-52, x. 10. Pelfrey WV. The cycle of preparedness: Establishing a framework to prepare for terrorists threats. Journal of Homeland Security and Emergency Management 2005;2(1):1-21. 11. Cale L, Harris J. Interventions to promote young people’s physical activity: Issues, implications and recommendations for practice. Health Education Journal 2006;65(4):320-337. 12. Pate RR, Trost SG, Mullis R, Sallis JF, Wechsler H, Brown DR. Community Interventions to Promote Proper Nutrition and Physical Activity among Youth.

Preventive Medicine 2000;31(2):S138-S149.

First Name Last Name Institution / Organization Primary Field (noted in registration)

Roohi Abdulla Medical College of Wisconsin CEnR - Community Engagement in Research

Gil Almeida University of Wisconsin-Milwaukee Physical Therapy Use

Ann Bachrach Agape Community Center Community Partner

Jim Bartos Silver Spring Neighborhood Center Administration

Andrea Brown Medical College of Wisconsin CEnR - Community Engagement in Research

Melissa DeNomie Medical College of Wisconsin CEnR - Community Engagement in Research

Michelle DiPaolo University of Wisconsin-Milwaukee Health Psychology

Erin Folstad Marquette University Administration

Jeanne Hossenlopp Marquette University Chemist

Sarah Johaningsmeir Medical College of Wisconsin Care Coordination Research

Joanne Lagatta Medical College of Wisconsin CER - Comparative Effectiveness Research

Kathleen Marquardt Medical College of Wisconsin CEnR - Community Engagement in Research

George Morris Aurora Health Care CEnR - Community Engagement in Research

Nuananong Seal University of Wisconsin-Milwaukee CER - Comparative Effectiveness Research

Tony Shields United Neighborhood Centers of Milwaukee Community Partner

Christopher Simenz Marquette University CEnR - Community Engagement in Research

Dwight Williamson COA Youth and Family Centers CEnR - Community Engagement in Research

LIST OF PARTICIPANTS

18

Case Study #3

Attention Deficit Hyperactivity Disorder

BACKGROUND

Attention deficit hyperactivity disorder (ADHD) is diagnosed in childhood and affects 5-15% of youth ages 4-17 years. Common symptoms include trouble paying attention, difficulty controlling impulsive behavior and often being overly active. The etiology of ADHD is unknown but research does support that there is a genetic component to the disease. Treatment usually consists of both a behavioral component and pharmacologic therapy. The pharmacologic therapy available to treat ADHD is generally stimulant medication which is prescribed as a controlled substance. The psychosocial treatment recommended involves trained therapists able to engage the whole family and the school in the therapy. Most children will require therapy for an unlimited amount of time, perhaps a lifetime.

Despite the large number of children affected with this disorder, very little is known about the effectiveness of recommended therapies long term. For example, when children are receiving therapy, drug or behavioral, are their ADHD symptoms improved or resolved? In addition, given the availability of newer and more medications to treat ADHD, very little is known about adverse events for medications or even for behavioral therapy.

The Agency for Healthcare Quality and Research (AHRQ) has identified significant research gaps for children with ADHD. Below is one focused area identifying a research gap.

RESEARCH QUESTION

For people ages 6 years or older with ADHD, what are the comparative long-term outcomes (a year or more from diagnosis), both beneficial and adverse, for the available psychosocial and pharmacological treatments?

*Outcomes:

ADHD symptoms, change in symptoms

Treatment adherence Adverse events: 1) to drug therapy, 2) to psychosocial therapy

Functioning: social, emotional, executive functioning/regulation, overall “global” functioning

Academic performance Parent competence

Population Intervention Comparison Outcomes Time Setting

Age ≥ 6 years

Diagnosed with ADHD

Psychosocial and pharmacological treatments

? Outcomes for children and parents*

Months/ Years

Private clinic,

community

clinic, school,

home

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Case Study #3

Attention Deficit Hyperactivity Disorder

CHALLENGES

How would you design a study to fill this research gap? (Presume current practice involves use of an

electronic medical record)

Who would you involve as stakeholders in this process?

And, how would you involve them?

Do the outcomes identified above represent outcomes important to stakeholders?

How will the research study capture the relevant outcomes? (office, school, home)

LIST OF PARTICIPANTS

First Name Last Name Institution / Organization Primary Field (noted in registration)

Sheikh Iqbal Ahamed Marquette University mHealth

Nadia Ahmad Medical College of Wisconsin Social Psychology

Dorothy Cheung Medical College of Wisconsin CER - Comparative Effectiveness Research

Ron Cisler University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Maureen Collins Children's Hospital of Wisconsin CER - Comparative Effectiveness Research

Mia DeFino Community Member Pharmacology / Science Research, Community

John Gordon Medical College of Wisconsin Pediatrics

Jo Ann Gray-Murray Medical College of Wisconsin CEnR - Community Engagement in Research

Sheri Johnson Medical College of Wisconsin CEnR - Community Engagement in Research

Michele Leininger Medical College of Wisconsin CEnR - Community Engagement in Research

Edward Minter Medical College of Wisconsin Translational Research Units Administration

Samantha Perry Racine Kenosha Community Action Agency Public Health

Kathleen Pritchard Planning Council CEnR - Community Engagement in Research

John Rakowski Medical College of Wisconsin CEnR - Community Engagement in Research

Paula Rhyner University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Robert Rohloff Children's Hospital of Wisconsin Primary Care

Sharon Schulz Racine Kenosha Community Action Agency Human Services

Pippa Simpson Medical College of Wisconsin CER - Comparative Effectiveness Research

David Whelan Children's Hospital of Wisconsin Child Welfare

Kaija Zusevics Medical College of Wisconsin Public and Community Health

20

Case Study #4

Working with Veterans’ Organizations to Improve Blood Pressure

BACKGROUND

Hypertension (HTN) is a major risk factor for cardiovascular disease, disability and death. Getting blood pressure (BP) to goal levels reduces this risk. While BP control in the Veterans Health Administration (VHA) compares favorably to that achieved in other medical settings, many veterans have suboptimal control. Based on prior work suggesting that community and peer support can improve chronic disease self-management, we partnered with veterans’ service organizations (VSO) to carry out an intervention focused on improving HTN-related health behaviors.

OBJECTIVES

We addressed three objectives. First, we formed a partnership among VHA clinicians, VSO members, and academicians. Second, we used a randomized controlled trial (RCT) to test whether veterans participating in an intervention based on peer-delivered health education would have better self-management practices and BP control than veterans who were exposed to similar content through didactic presentations by healthcare professionals. Finally, evaluated our intervention process to identify key barriers and facilitators of success.

METHODS

Our project had three components. First, we worked with four key VSO in Wisconsin—the American Legion, Veterans of Foreign Wars, Vietnam Veterans of America, and the National Association of Black Veterans—to refine our proposed approach. The VSOs endorsed the final project and designated senior members to serve on an advisory board.

The RCT compared a peer-led (PL) intervention to a series of educational seminars (ES). At all participating posts, volunteer members encouraged the use of self-monitoring equipment. We trained individuals from each PL post to deliver monthly health-focused presentations, encourage health promotion activities, and maintain a post “health corner.” At ES posts, study clinicians delivered seminars addressing similar topics. We recruited members with hypertension to participate in a study comparing the interventions. Before we randomized the posts, we measured study participants’ BP and weight and surveyed them regarding health-related knowledge, attitudes, and behaviors. We repeated these measures at 6 and 12 months. Our primary endpoint was change in systolic BP. Our analysis accounted for clustering.

FINDINGS

We reached 182 of the 199 posts located in SE WI. Of these 111 accepted a visit in which we presented the project idea and invited their participation; 59 accepted but one dropped out when the potential PL declined to fill that role. We enrolled 404 veterans from 58 posts for the evaluation project. Systolic BP improved significantly in both groups; improvement was similar in PL and ES posts. Obese members of PL posts lost 4 pounds, while similar ES post members gained 1 pound (p < 0.01). Diastolic BP, healthcare engagement, and social support improved in both PL and ES posts. PL posts were more likely than ES posts to self-monitor blood pressure and report improved overall health. Physical activity increased in PL posts, by 90 minutes of walking a week, but was not significantly higher in ES posts.

21

Case Study #4

Working with Veterans’ Organizations to Improve Blood Pressure

STATUS

We have firmly established our relationship with these VSOs, engaging over 100 veterans across 58 posts as intervention partners and working with them to devise new programs. Many of the individual post members, particularly the former peer leaders, have developed close relationships to project staff. We continue to send monthly informational mailings to the peer leaders at participating posts. We continue to work with veterans organizations on other research projects. Currently we are funded to work with the American Legion to try to increase the use of the VA's electronic personal health record/patient portal known as My HealtheVET. We are working with a number of posts on an effort to deliver a peer-led version of the VA's weight management program, MOVE!, at these sites, overcoming several perceived barriers to participation in MOVE!, including the 9-5 schedule, inconvenience of coming to a VA facility for something that requires relatively frequent contacts. The need for CER may be less than obvious to the community when there is a lot of face validity to an intervention.

CHALLENGES

When one works with community groups, the community members become a member of the research team to a much greater extent than in traditional CER.

Engaging all members of a community likely enhances the appeal of an intervention to that community, but it may cause you to include people who obscure the impact of the intervention.

The need for CER may be less than obvious to the community when there is a lot of face validity to an intervention.

First Name Last Name Institution / Organization Primary Field (noted in registration)

Trish Barribeau Children's Hospital of Wisconsin Grant Writing

Ann Christiansen Medical College of Wisconsin CER - Comparative Effectiveness Research

Carlos De la Pena Medical College of Wisconsin CEnR - Community Engagement in Research

Elaine Drew Medical College of Wisconsin CEnR - Community Engagement in Research

Chukuka Enwemeka University of Wisconsin-Milwaukee Photolaser

David Frazer University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Teresa Johnson University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Marcellus Merritt University of Wisconsin-Milwaukee Health Psychology, Behavioral Medicine

Meridith Mueller Medical College of Wisconsin CEnR - Community Engagement in Research

Patricia Najera University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Young Oh Medical College of Wisconsin CER - Comparative Effectiveness Research

Annette Paul Aurora BayCare Medical Center Clinical Research

Jean Pirkey ProHealth Care Community Outreach Nursing

Rachel Schiffman University of Wisconsin-Milwaukee CEnR - Community Engagement in Research

Cindy Walker University of Wisconsin-Milwaukee Psychometrics

Marianne Weiss Marquette University CER - Comparative Effectiveness Research

Marie Wolff Medical College of Wisconsin CEnR - Community Engagement in Research

LIST OF PARTICIPANTS

22

Conference Participant Directory

Roohi Abdulla Medical College of Wisconsin RAbdulla@mcw.edu Interests: Obesity, Nutrition

Sheikh Iqbal Ahamed Marquette University sheikh.ahamed@mu.edu Interests: Mobile Computing, Smart Phone, Ubiquitous Computing, Security, Privacy

Nadia Ahmad Medical College of Wisconsin nahmad@mcw.edu Interests: Empathy, Pain Treatment, Caregiving

Syed Ahmed Medical College of Wisconsin sahmed@mcw.edu Interests: Community Engagement

Gil Almeida

University of Wisconsin-Milwaukee gillucioalmeida@gmail.com Interests: Physical Therapy, Kinesiology

Ann Bachrach Agape Community Center abachrach@agape-center.org Interests: Health Care for the Under or Uninsured

Trish Barribeau Children's Hospital of Wisconsin trish@mcw.edu

Jim Bartos Silver Spring Neighborhood Center jbartos@ssnc-milw.org

Elizabeth Bedwell Children's Hospital of Wisconsin ebedwell@chw.org Interests: Clinical Research, Clinical Effectiveness Research, Health Economics

Scott Belanger Medical College of Wisconsin sbelanger@mcw.edu

Rebecca Bernstein Medical College of Wisconsin rbernstein@mcw.edu Interests: Homelessness, Health Insurance, Chronic Disease Management

Sanjib Bhattacharyya City of Milwaukee Health Department sbhatt@milwaukee.gov Interests: Public Health, Applied Research, Laboratory Systems Improvement

Terry Brandenburg Medical College of Wisconsin tbrandenburg@mcw.edu

Andrea Brown Medical College of Wisconsin andreabrown@mcw.edu Interests: Cancer Research

Dorothy Cheung Medical College of Wisconsin dcheung@mcw.edu Interests: Pediatric Asthma

Ann Christiansen Medical College of Wisconsin achristi@mcw.edu Interests: Translation of Research into Public Health Practice

Ron Cisler University of Wisconsin - Milwaukee rac@uwm.edu

Maureen Collins Children's Hospital of Wisconsin mmcollins@chw.org Interests: Pediatric, Outcomes Measures, Outcomes Studies, Quality Improvement

Carlos De la Pena Medical College of Wisconsin cdelapena@mcw.edu Interests: Community Engagement, Volunteer Services, Public Responsibility in Medicine and Research, Program Administration

Mary Lou DeFino mlou2600@gmail.com Interests: Community Building, Sustainability

Mia DeFino mcdefino@gmail.com Interests: Rare Diseases, Clinical Trials, Community Education in Research, Personalized Medicine, Genomics and Ethics

Melissa DeNomie Medical College of Wisconsin mdenomie@mcw.edu

Michelle DiPaolo University of Wisconsin - Milwaukee mdipaolo@uwm.edu Interests: Cardiovascular, Psychoneuroimmunology, Stress, Coping, Exercise

Elaine Drew Medical College of Wisconsin edrew@mcw.edu Interests: Vulnerable Populations, Safety Net, Health Disparities

Katherine Durben Marquette University katherine.durben@marquette.edu

Christina Eldredge Medical College of Wisconsin celdredge@mcw.edu Interests: Health Information Exchange Mobile Health

Christina Ellis Medical College of Wisconsin cellis@mcw.edu

Chukuka Enwemeka University of Wisconsin - Milwaukee enwemeka@uwm.edu

Tonya Evans Community Action Agency tevans@rkcaa.org Interests: Community, Public, Health, Birth, Outcomes, African American

Michael Farrell Medical College of Wisconsin mfarrell@mcw.edu Interests: Communication, Social and Behavioral Research, Genetics, Patient Education, Screening

Erin Folstad Marquette University erin.folstad@marquette.edu Interests: Community, Partnerships, Collaboration, Networking, Development

Zeno Franco Medical College of Wisconsin zfranco@mcw.edu Interests: Disasters, Social Network Analysis, Community Engaged Research, Outcomes

David Frazer University of Wisconsin - Milwaukee dfrazer@wisc.edu Interests: dissemination, community-driven research, equitable partnerships

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Conference Participant Directory

Tifany Frazer Medical College of Wisconsin tfrazer@mcw.edu Interests: Global Health, Health Disparities, Health Equity

Daniel Fuhrmann University of Wisconsin - Milwaukee fuhrmann@uwm.edu Interests: Cost-Effectiveness, Cost-Utility, Health Policy, Statistical Programming

John Gordon Medical College of Wisconsin jgordon@mcw.edu Interests: Complex Care, Care Coordination, Children with Special Health Care Needs, Pediatric Critical Care

Jo Ann Gray-Murray Medical College of Wisconsin mitphd@wi.rr.com Interests: Indigenous Knowledge/Expertise in Community Planning

Shari Hagedorn Medical College of Wisconsin scrome@mcw.edu

Arthur Hefti Marquette University arthur.hefti@marquette.edu Interests: Periodontal Disease, Caries, Examiner Calibration

Morgan Hodge University of Wisconsin - Milwaukee mhhodge@uwm.edu

Jeana Holt University of Wisconsin - Milwaukee jmholt@uwm.edu Interests: Vulnerable Populations, Safety Net, Health Disparities

Jeanne Hossenlopp Marquette University jeanne.hossenlopp@marquette.edu

Sarah Johaningsmeir Medical College of Wisconsin sjohanin@mcw.edu Interest: Care Coordination, Special Health Care Needs, Adult Education, Pediatric

Sheri Johnson Medical College of Wisconsin sxjohnso@mcw.edu Interest: Pediatrics, Racial/Ethnic Health Disparities, Community Based Participatory Research

Teresa Johnson University of Wisconsin - Milwaukee tsj@uwm.edu Interest: Healthy Birth Outcomes, Breastfeeding, Infant Mortality, Health Disparities

Cynthia Kay Medical College of Wisconsin ckay@mcw.edu

Anne Kissack Medical College of Wisconsin akissack@mcw.edu

Theodore Kotchen Medical College of Wisconsin tkotchen@mcw.edu Interest: Hypertension, Clinical Trials, Epidemiology, Nutrition

Joanne Lagatta Medical College of Wisconsin jlagatta@mcw.edu Interest: Neonatology, Epidemiology

Michele Leininger Medical College of Wisconsin mleining@mcw.edu

Gina Lukaszewicz University of Wisconsin - Milwaukee lukaszew@uwm.edu

Kathleen Marquardt Medical College of Wisconsin kmarquardt@mcw.edu Interest: Observational Research; BMT; Clinical Trials; Outcome Research

Angela Mauz Medical College of Wisconsin amauz@mcw.edu

Marcellus Merritt University of Wisconsin - Milwaukee merrittm@uwm.edu Interest: Stress Physiology, Stress Management, Hypertension Control

John Meurer Medical College of Wisconsin jmeurer@mcw.edu

Edward Minter Medical College of Wisconsin eminter@mcw.edu Interest: Community TRU, Community-Based Research Networks Administration

George Morris Aurora Health Care george.morris@aurora.org Interest: Infant Mortality, Literacy, Obesity, EOL

Jeffrey Morzinski Medical College of Wisconsin jmorzins@mcw.edu Interest: Patient-Centered Medical Home, Community Health Volunteer, Primary Care Transitions

Patricia Najera University of Wisconsin - Milwaukee ptnajera@uwm.edu Interest: University, Community, Engagements, Scholarship, Boundary Spanner

David Nelson Medical College of Wisconsin danelson@mcw.edu Interest: Community-Engagement, Healthy Eating and Active Living, Health Literacy

Young Oh Medical College of Wisconsin yoh@mcw.edu Interest: Colon Cancer

Julie Panepinto Medical College of Wisconsin jpanepin@mcw.edu Interest: Health-Related Quality of Life, Patient Reported Outcomes, Health Care Systems

Annette Paul Aurora BayCare Medical Center annette.paul@aurorabaycare.com Interest: CBPR, Rural Health

Kim Pemble Wisconsin Health Information Exchange kpemble@whie.org Interest: HIT, HIE, Analytics, Accountable Care, Electronic Health Records

24

Conference Participant Directory

Samantha Perry Racine Kenosha Community Action Agency, Inc. sperry@rkcaa.org

Jean Pirkey ProHealth Care jean.pirkey@phci.org Interest: Chronic Disease Management, Prevention, Uninsured, Diabetes

Kathleen Pritchard Planning Council for Health and Human Services kpritchard@planningcouncil.org Interest: Health, Human Services, Public Policy, Evaluation, Outcome Measurement

John Rakowski Medical College of Wisconsin jrakowski@mcw.edu Interest: Youth Violence Prevention, Community Capacity Building, Asset-Based Community Development, Protective Factors, Advocacy

Kourosh Ravvaz University of Wisconsin - Milwaukee kravvaz@uwm.edu

Paula Rhyner University of Wisconsin - Milwaukee prhyner@uwm.edu Interest: Health Sciences

Robert Rohloff Children's Hospital of Wisconsin rrohloff@chw.org

Marie Sandy University of Wisconsin - Milwaukee sandym@uwm.edu Interest: Community-Based Research, Community-Academic Partnerships, Poverty, Homelessness, Food Security

Rachel Schiffman University of Wisconsin - Milwaukee schiffma@uwm.edu Interest: Individual/Family Self-Management, Transitions of Care, Parent/Child Health

Sharon Schulz Racine Kenosha Community Action Agency, Inc. sschulz@rkcaa.org Interests: Child Health Issues, Infant Mortality, Family

Nuananong Seal University of Wisconsin - Milwaukee nseal@uwm.edu Interest: Obesity, Breast Feeding, Health Promotion, Nutrition, Exercise, Smoking

Tony Shields United Neighborhood Centers of Milwaukee tshields@uncom-milw.org Interest: Community Engagement

Christopher Simenz Marquette University christopher.simenz@marquette.edu Interest: Community, Obesity, Wellness, Capacity, Behavior

Pippa Simpson Medical College of Wisconsin cfeltz@mcw.edu

Michelle Smith-Beckley Medical College of Wisconsin smithbeckley@mcw.edu

Kimberly Strong Medical College of Wisconsin kstrong@mcw.edu Interest: Empirical Bioethics, Genetic Testing, Genomics, Qualitative Research

Cindy Walker University of Wisconsin - Milwaukee cmwalker@uwm.edu Interest: Evaluation, Research Design, Statistics, Research Methods, Item Response Theory

Marianne Weiss Marquette University marianne.weiss@marquette.edu Interest: Hospital Discharge, Readmission, Discharge Transition, Hospital Staffing

David Whelan Children's Hospital of Wisconsin david.whelan@cssw.org Interest: Improving the Health of Children

Jeff Whittle Zablocki VA Medical Center jeffrey.whittle@va.gov Interest: Hypertension, Obesity, Chronic Disease, Randomized Controlled Trials, Self Management

Dwight Williamson COA Youth and Family Centers dwilliamson@coa-yfc.org Interest: Prevention, Wellness, Physical Activity, Nutrition

Tracy Wilson Medical College of Wisconsin trwilson@mcw.edu

Marie Wolff Medical College of Wisconsin mwolff@mcw.edu Interest: Access to Primary and Specialty Healthcare for Underserved

Fouza Yusuf Medical College of Wisconsin fyusuf@mcw.edu

Kaija Zusevics Medical College of Wisconsin kzusevic@mcw.edu Interest: Genomics and Ethics

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Conference Sponsorship

This workshop is supported by the National Center for Research Resources and the National Center for Advancing

Translational Sciences, National Institutes of Health, through Grant Number 8UL1TR000055. Its contents are solely

the responsibility of the authors and do not necessarily represent the official views of the NIH.

This workshop is funded in part by the Advancing a Healthier Wisconsin Research and Education Program Fund, a

component of the Advancing a Healthier Wisconsin endowment at the Medical College of Wisconsin.

This workshop is also funded in part by the University of Wisconsin-Milwaukee College of Nursing.

30

Clinical & Translational Science Institute Medical College of Wisconsin 8701 Watertown Plank Road, Suite H2800 ǀ Milwaukee, WI 53226 Phone: (414) 955-8200 ǀ Fax: (414) 955-6554 Email: ctsi@mcw.edu ǀ Website: ctsi.mcw.edu