Clinical Trials: Poll Data of Minority Populations
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Clinical Trials: Poll Data of Minority Populations National Public Opinion Poll July 2013
Transcript of Clinical Trials: Poll Data of Minority Populations
Clinical Trials: Poll Data
of Minority Populations
National Public Opinion Poll July 2013
The Clinical Trials poll was conducted online in May
2013 by Zogby Analytics for Research!America. Sample
sizes and theoretical sampling errors are as follows:
• African-American: sample size, 403; margin of
error, +/-5%
• Asian: sample size, 300; margin of error, +/- 5.7%
• Hispanic: sample size, 406; margin of error, +/- 5%
• Non-Hispanic White: sample size, 684; margin of
error, +/- 3.8%
*Due to rounding, the total may not add to 100 on some slides.
Clinical Trials: Poll Data of
Minority Populations
Sponsors
Support for this poll was provided, in part, by
the following:
Friends of the National
Library of Medicine
Clinical Research Forum
Clinical Trials
Transformation Initiative
Association of Clinical
Research Organizations
How important would the opportunity to improve the health of others be
in your decision to participate as a volunteer in a clinical trial?
Non-Hispanic White
Asian
Hispanic
African-American
49
50
57
62
38
38
30
24
7
5
6
7 3
6
7
6
5 Very important
Somewhat important
Not very important
Not at all important
Not sure
Improving Others’ Health
Important for Participation
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Have you or anyone in your family ever participated in clinical trials?
Asian
African-American
Non-Hispanic White
Hispanic
11
15
15
17
82
76
78
76
7
8
6
7 Yes
No
Not sure
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Most Americans Have Not
Participated in Clinical Trials
How did you hear about clinical trials? (percentage responding that they
had heard of clinical trials through their doctor or health care provider)
African-American
Asian
Non-Hispanic White
Hispanic
17
20
22
22
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
One-Fifth Hear About Clinical
Trials Through Their Doctor
How important would your physician’s recommendation be in your
decision to participate as a volunteer in a clinical trial?
Asian
Non-Hispanic White
African-American
Hispanic
43
45
46
49
37
36
32
32
12
10
9
9
3
4
3
7
7
8
7 Very important
Somewhat important
Not very important
Not at all important
Not sure
Doctor’s Recommendation is
Important for Participation
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Fewer than 10% of Americans participate in clinical trials. Which of the
following do you think is a reason that individuals don’t participate in
clinical trials? (percentage saying lack of trust)
Asian
Hispanic
Non-Hispanic White
African-American
51
52
54
61
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Lack of Trust a Major Barrier to
Participation in Clinical Trials
Would you say that without being told, patients are sometimes included
in clinical trials when they are receiving medical treatment?
Non-Hispanic White
Asian
Hispanic
African-American
27
35
36
41
44
36
39
30
29
29
24
30 Yes
No
Not sure
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Opinions Split on Whether Patients
are Enrolled Without Their Consent
How important would the competence and reputation of people or the
institution conducting the research be in your decision to participate as
a volunteer in a clinical trial?
Hispanic
Asian
Non-Hispanic White
African-American
66
66
72
74
23
23
18
16
4
2
3
2
7
9
7
7 Very important
Somewhat important
Not very important
Not at all important
Not sure
Institutional Reputation is Very
Important for Participation
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
How did you hear about clinical trials? (percentage responding that they
had heard of clinical trials online or through the Internet)
Hispanic
African-American
Non-Hispanic White
Asian
45
50
52
56
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Many Hear About Clinical Trials
Through the Internet
Which organizations listed below would you say has the greatest
responsibility in educating the public about clinical trials?
Non-Hispanic White
Hispanic
Asian
African-American
42
38
36
33
15
24
28
29
5
5
6
5
17
12
13
13
5
5
5
5
17
16
13
16 Doctors and other health care providers
Government
Insurance companies
Pharmaceutical companies
Patient organizations
Not sure
Doctors Should Educate the Public
on Clinical Trials, Americans Say
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
On a scale of 1 to 4, how much do you admire people who volunteer for
clinical trials?
Non-Hispanic White
Hispanic
Asian
African-American
35
42
43
46
42
37
35
31
9
8
9
8
3
4
3
11
10
10
13 4 (a great deal)
3
2
1 (not at all)
Not sure
Americans Admire
Clinical Trial Volunteers
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Do you believe that the health care services you receive are based on
the best and most recent research available?
Non-Hispanic White
Asian
African-American
Hispanic
44
45
46
47
33
30
28
31
23
25
26
22 Yes
No
Not sure
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Less Than Half Believe Health Care
Services Based on Recent Research
Do you believe we are making enough progress in medical research in
the U.S.?
Non-Hispanic White
African-American
Asian
Hispanic
33
43
50
51
54
33
30
29
13
24
20
20 Yes
No
Not sure
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Opinions Split on Whether Medical
Research is Making Enough Progress
Please indicate your willingness to share your personal health
information, assuming that appropriate privacy protections are in place,
so researchers can better understand diseases and develop new ways to
prevent, treat and cure them.
African-American
Non-Hispanic White
Asian
Hispanic
73
75
77
80
12
12
11
8
15
14
12
13 Yes
No
Not sure
Patients Willing to Share Health
Information to Aid Researchers
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Please indicate your willingness to share your personal health
information, assuming that appropriate privacy protections are in place,
to advance medical research.
African-American
Non-Hispanic White
Hispanic
Asian
72
75
76
78
12
10
10
9
15
15
14
13 Yes
No
Not sure
Patients Willing to Share Health
Information to Advance Research
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
On balance, do you think a person receives better medical care if
enrolled in a clinical trial?
African-American
Non-Hispanic White
Asian
Hispanic
26
27
29
37
32
39
34
28
42
34
36
35 Yes
No
Not sure
Source: A Research!America poll of U.S. adults conducted
in partnership with Zogby Analytics in May 2013.
Many Unsure if Clinical Trial
Patients Receive Better Care
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