Care Finder's Gameplan

P R O C E S S B O O K - D E S I G N F O R H E A LT H

H u g o P i l a t e - Fa l l ‘ 1 1

T A B L E o f C O N T E N T S

Introduction

Re-Framing Healthcare

End of Life Care Research

CAREFINDER’S GAMEPLAN

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I . I N T R O D U C T I O N

The premise of this project is to support a more preventive mindset when thinking of healthcare. What if healthcare was about keeping us healthier rather than less un-healthy? Though this may sound more like a «glass half full, half empty» situation, such a mindset would help address many rampant lifestyle-related medical conditions such as obesity, certain heart diseases.

This notion is one of the pillars of Traditional Chinese Medicine which embraces a wholistic understanding of well being both psychological and biological. Applying it to occidental culture would bring many benefits for the patients, doctors, but also the government in better care quality and distri-bution at reduced cost.

I I . R E - F R A M I N G H E A LT H C A R E

Re-Framing Healthcare is perhaps a commendable intention but also a foolish one for a single student. This is why I decided to dive right into very specific topics and notions as to ground myself and then start poking around.

I’d like to make an aside about when first introduced to the subject, I really was dedicating only half of my attention to the teacher. The other one was absorbed by the set up of the classroom space. I was in a class with «grad» students, in THE-MOST-HIGH-TECH room I had seen in a while. I was ima-gining for them what they would end up coming up with as «grad» students. I dreamt of intricate systems, supported by grounded business plans. But when I would leave my day dreams, two giant television screens linked to one another, cameras to take photos of the board and directly uploading it to a URL would be there to welcome me, and divert me from the teacher’s words.

D I R E C T I O N SA variety of products will be produced using (experimental composite, woven...) materials to help decrease preventable diseases such as cardiovascular problems through the various effects of the plants.

Asthma may not be a deadly condition but it is a very present issue, especially in poorer communities and industrial areas . Asthma is known for significantly weakening the immune system ma-king a pathway for more dangerous even less affordable conditions.

Terminal condition is not a disease but again, a condition, a state, therefore it has often been overloo-ked and cost a lot of money for the person receiving care and the organi-zation providing it.

Primary care already takes place in many enviornments however it is still causing a lot of emergency room visits when they could perhaps be avoided.

How to re-design heavier equipment used in the medical world to make it more accessible on a geographical and social standpoint?

D I R E C T I O N S

Terminal condition is only the tip of the iceberg but the biggest problem is that it has yet to be addressed as a poor living condition , how to design for terminal care preventively?

Re-design a family of everyday life products to make alternative medicine a more conventional practice thus offering a new lifestyle as an innovative way to help prevent chronic diseases .

I I I . E N D O F L I F E R E S E A R C H

The research phase was at first a bit hard to dive into considering how vast the subject is. I decided to tackle it from a few different angles so that if I felt like I was starting to get tangled up with one, I would be able to switch to a different gear and move on.

These «angles» included: death in popular culture, care-giver stories, loved-ones testimonies, medical staff’s inputs. For each I tried to identify, possible patterns: trends, needs and recurring themes such as communication.

I then re-arranged all the information based on four main categories: CARE, RESSOURCES, STAKEHOLDERS, ENVIORNMENT.

My relationship to death but also myself, changed a lot over this process. I have discovered a greater peace of mind (after a few rough patches). None-theless I do not regret even one bit having taken on this endeavor. One thing I would’ve changed however would have been to do it as a small team as to have many different inputs and ways to approach it. I started doing that through a facebook group. I included the results later on in the book.

S T O R I E S A N D T E S T I M O N I E S

Malena Hinze, Volunteer Coordinator, Email Interview

What is your name? – Malena Hinze, Volunteer Manager

How long have you been working in this hospice for? – 4 yrs

What makes you happy during your work days? – When I hear stories about how our hospice patients and their families benefitted from the additional support our teams provided.

What are things that will brighten your day? – When I hear a patient’s pain is now under control because he/she is on hospice or a family member is relived from some care-giving duties now that our home health aides are helping out. Also, when a volunteer lends emotional support to apatient and strengthens their support network.

Patients make you smile? – All of them.

What is the worst thing that can happen in a day? – Patient dies alone.

Have you over time started recognizing «types» of patients and «types» of families? - Yes The prepared ones, the ones alone? Family dynamics range from functional to dysfunctional and from denial to acceptance in terms of grief.

Can you tell me about one of them? – one hospice patient was a 45 year old male who had a wife and two teenage children. The wife was devas-tated and the teenage children were in severe denial. They did not want to choose a mortuary and the children refused to say goodbye. The wife could not even ask him about the financial issues she would need to deal with. He passed away and the family spent weeks not talking about it. Our bereavement counselor made visit and tried to get them to open up and process their feelings.

Perhaps the ones that are easiest or most pleasant to help? The easiest families are those that communicate openly and are emotionally stable and have strong supportsystems.

Do patients bring a lot of things with them? What do they bring in?When patients enter nursing facilities because their care is too much for families to handle they usually bring some pictures, clothes and a few special treasures.

How do you adapt a space to their needs? – Patients at home often use the living room as their space because we often order them hospital beds

and they have oxygen tanks. This can be difficult for families because the disease process can be difficult to witness.

Who brings patients to your hospice? – hospice patients are referred by Doctors and social workers at hospitals and nursing facilities /assisted living facilities..Is it usually their families or often times just other medical staff? – 5% of referrals are direct contact from families.

How long is the average stay? – 45 days

I read in my research some patients will stay for two days sometimes before dying, especially if submitted after un-conclusive ICU care. – Medi-cal Professionals often find it difficult to have the end of life discussion that results in hospice care and families find it difficult to accept. Therefore, hospice referrals are often made very late.

How would you describe your relationship to patients? How would you describe your relationship to their families? – As volunteer manager, my relationship to patients is limited. I offer the volunteer program tothem and their families and during that discussion I gather information about their life to give to a volunteer. I ask questions about their passions, hobbies, occupation, religion and family. Patients and families enjoy sha-ring this information.

How would you describe your relationship to other parts of the staff? – very good, we all support each other.

Do you feel there is good enough communication? – yes, our office is excellent with communication. We have a call every morning to review what happened overnight and all nurses have blackberries and receive emails throughout the day. In addition, social workers always give me information needed for volunteers.

How would you improve, or what do you think could improve care giving? – For home hospice patients - affordable outsourced care giving for families that are overwhelmed. (hospice staff makes weekly visits, but families often need someone to be in the home helping with the day to day care)

Is there anything you wish was made available to you, or that could be made available to the patients? – no.

Thank you very much!

C A R E O B S E R V A T I O N S

Technology vs. Death:

Technology can now keep anyone alive. That brings up new matters of ethics, and requires more, earlier communication about personal preferences.

«Facing Death» PBS Frontline

Cultural Implications:

«Ethnic groups have different values about using treatment or artificial nutrition with a feeding tube, trusting physicians,and participating in decisions.»

Cultural Diversity by Sharon Valente

Internet of Things:

making objects communicate and analyze data on the spot has improved many fields, yet its benefits still haven’t fully impacted the medical care system as well as they could.

IBM, Smarter Planet

Biological Fab-labs:

«Biohackers» are starting to have access to much more technology, this has been a way for people to try new things, in more experi-mental scales.

Wired Magazine, Genome at home

The Values of Health Care:

«When did a doctor more become more than a trusted and learned friend?»«A doctor’s mission should be not just to prevent death, but also to improve the quality of life»

Patch Adams 1998

Design and Tailoring Care:

This project emphasized creating a product that could be adapted to various users while keeping a constant format.

Fuseproject, Verbien/Augen Optics

Dignified Death:

Jack Kevorkian was known for advocating dignified death, and «helping» patients proceed with euthenasia.

Jack Kevorkian (May 26, 1928 – June 3, 2011)

Expanding Palliative Care Practice:

palliative care is important because of aging populations, increase of new lifestyle diseases and the cost of medical care.

Wolrd Health Organization, Palliative Care for Older People - 2010

Traditional Chinese Medicine:

This nedicine offers a mirrored version of occidental values where the objective is to remain healthy rather than only intervening when unhealthy.

Wikipedia

S T A K E H O L D E R O B S E R V A T I O N S

Misery-Free:

Worked 20 years as a volunteer in a hospice. «It took the misery out of dying.» Now she receives home care and lives on a day to day basis.

Kathleen, Patient , Youtube Footage

«Stay Hungry, stay foolish»:

Jobs advocates facing death and using that fact as a way to dissolve inhibitions and fears in our daily lives, since, we have «nothing to lose.» He also mentions «getting his affairs ‘in order» after his first medical life-threat.

Steve Jobs, Patient, Stanford Commencement Speech

Preparation:

«It’s so important to know what your choices are before you are approached with the situation, to know what is important to you, what is important to your family, what is important about symptom management, and writing it. Not necessarilly in a post form, just putting it down on paper.»

«I sat with my husband seven years ago and we discussed it, and though I have been in hospice for the past twenty years, I was amazed on how what I thought he wanted and what he did want.

Pamela Brown, Hospice Educator & CounselorOnline Documentary

Young Terminal Patients:

Greatly appreciates not being approached as a condition but instead as a person, with a condition. Due to an early diagnosis at age 44, he was able to «avoid» a time of crisis.

Jim Windhorst, Patient , Youtube Footage

Social Media:

Chris describes having multiple overlapping conditions due to a weak immune system and enjoying his neighbor’s visit. He seems to use media as a source of moral support and a sort of self-induced therapy.

Chris, Patient , Youtube Footage

Caregivers’ health:

«More than 2.5 million family caregivers suffer from depression, stress and rapidly declining health, often putting the needs of loved ones before their own, 69% Less time spent with family and friends, 51% Now taking more medications.»

Janet Kornblum, USA TODAY , caregivers the ‘downward spiral’

Hope:

«Le truc c’est que maman n’est pas passée par la case soins palliatifs. Moi; jusqu’au matin de la veille de sa mort, j’y croyais. Même si l’espèce de gros connard de chef des soins intensifs essayait extrêmement mala-droitement et inefficacement de nous prévenir depuis une dizaine de jours : «Vous savez, on n’est pas des dieux !» (sans déconner !?).»

Mary, shared her experience with her mother’s death. She brings up a few different points which all seem to revolve around communication. For one, she had a pour experience wiht doctors nit being «clear enough» and saying «we are not gods mam...». She also talks about not being able to talk about it with her dying mother and ignoring the situation until the day before her mother’s death.

Mary, Loved One, Email Interview

Unequal Distribution:

«[...] Where and how they die — at home with their family or sedated in an ICU with a tube down their throat — may not be based on their final preferences and wishes, care patterns, and even the financial incentives and number of beds in the hospital.»

Geography is Destiny, Joanne Kenen

Medical Equipment:

Worked about 20 years as a volunteer in a hospice, she says «it took the misery out of dying» for her.Now she receives home care and lives on a day to day basis. She is actually getting ready for a dinner she will go to that night.

Youtube Footage

Mobility:

Certain patients have limited bodily mobility due to their physical weakness, or the equipment they must carry, but they also often need to travel from hospital to hospital or city to city due to exams. The logistics behind such travels can be very limiting.

Personal observation

Paperwork:

Greatly appreciates not being approached as a condition but instead as a person, with a condition. Due to an early diagnosis at age 44, he was able to «avoid» a time of crisis.

Patch Adams 1998

Cost of Care:

Palliative care in general generate great amounts of savings, «Amongst those who died, the adjusted net savings were higher, $4,908 per admission, and $374 per day».

Wolrd Health Organization, Palliative Care for Older People - 2010

R E S S O U R C E S O B S E R V A T I O N S

Time:

Time is made scarce by patient treatments, it can also cloud our judgement when in fear of «all the time spent fighting this» when is seen as an investment, but it also often dictates the patient-doctor relationship.

«Facing Death» PBS Frontline Nov. 23 2010

Home :

«Most studies have found that around 75% of respondents would prefer to die at home.» This seems to be due for many to the «life» that remains there and the sense of belonging which isn’t as available in more clinical facilities.

Wolrd Health Organization, Solid Facts

(Hidden) Meanings of Space:

«Diana Anderson’s qualitiative study revealsthat a desire to choose levels of privacy andcontrol their environment characterisespatient and family preferences in the design ofpalliative care units.»

One of the key insights is that if patients «prefer shared accommodations for the benefit of social interaction and a constant reminder that another person may be experiencing similar events, family membersoften prefer private accommodations so that they may grieve and show emotion without others aroundJim Windhorst,» This speaks on different level not just about commu-nication but «bonding in a more general sense. Many patients and loved ones, towards the end, have trouble bonding and relating.

The other interesting insight is the unexpected meanings attributed to certain rooms more related to death.

Youtube Footage

The Illusion of Aging:

An experiment from showed that the psyche may have an unexpected influence on the human body and its aging.

«The men stayed in a place done up to look like it was 1959. All magazines, newspapers, films and TV and radio programs dated from that year, and there were daily activities such as discussions of 1959 current affairs, held as though it was the present. [...]«The changes in the experimental group compared to the control group were signifi-cant, however.They showed greater improvement on joint flexibility, finger length (their arthritis diminished and they were able to straighten their fingers more) and manual dexterity. On intelligence tests, 63 percent of the experimental group improved their scores, compared to only 44 percent of the control group.The experimental group also showed better improvements in height, weight, gait, and posture. They also looked noticeably youn-ger after the study, compared to the control group, according to impartial observers looking at photos.»

This observation is difficult to incorporate into a specific product but has a lot to say about the effect of a «manufactured ecosys-tem» like a room and the equipment in it.

Counterclockwise, Ellen Langer, Book Review

E N V I R O N M E N T O B S E R V A T I O N S

D E A T H I N P O P U L A R C U LT U R E

This was a mini-croudsourcing experiment where friends and relatives were asked through Facebook to share with different instances of death in popular culture that they came accross or remembered.

In the facing page are the links posted and an exerpt about it or com-ments left with the links.

Incendies is about identity and the links between the past and the pre-sent. One half of the film’s dual narrative structure is the present day story about Jeanne (Mélissa Désormeaux-Poulin) attempting to learn the truth about her recently deceased mother’s background. The second narrative strand in Incendies is about Jeanne’s mother, Nawal Marwan (Lubna Azabal), and her experiences as a young woman living in an unnamed Middle Eastern country during a time of violent conflict.

Youen Ché

«I just finished reading a book The name of the rose. Now I feel empty, the strong tension that I felt has gone. This story ended showing the ‘emptiness’ of lives. There must have been a lot of people in the history, the people who lived lives like us but who died. Their lives must have many pieces of stories from their birth to the death.»

A Jung Lim

«At The Coffin Academy customers are able to experience death without the actual dying part. They write goodbye letters, attend their own funeral, and lie in a closed wooden casket for 10 claustraphobic minutes. «Afterward, you feel refreshed. You’re ready to start your life all over again, this time with a clean slate.» »

Shani Pak

«Don’t know why this didn’t hit sooner, probably because the primary focus is more on the dysfunctional family than death, and prob because it’s more post-mortem focused... but death as a theme is pervasive (pre and post mortem) constantly in the show. An entertaining + recom-mended watch.» «The show focuses on human mortality and the lives of those who deal with it on a daily basis.»

Shani Pak

«Death Bear is 7-foot-tall character created by New York performance artist Nate Hill. Itv will take things from you that trigger painful memories and stow them away allowing you to move on with your life. Give him an ex’s clothes, old photos, mementos, letters, etc. Death Bear is here to assist you in your time of tragedy, heartbreak and loss.»

Thomas Zenteno

In The Savages, «A sister and brother face the realities of familial responsibility as they begin to care for their ailing father.»

This movie displayed quite efficiently the intricacies of parent-child relationships and how, though many times those relationships may not be ideal, family and loved ones are given a lot of responsability with their dying parents.

Shani Pak

«Departures, a japanese movie, talks about a new undertaker per-forming a cleansing ritual to the dead. It touches on many things: the segregation the society had on the ‘unclean’ undertakers, the hidden liveness of a corpse, and all the little things about death.»

Darren Yeo

R E S E A R C H T A K E A W A Y S

The research helped bring a lot of valuable points to the surface. After making a list of all the interesting «points» to keep in mind, they were re-organized into more succinct categories. However, the overarching theme remained «commu-nication.»

COMMUNICATION

clear wishes are hard to formulate, especially at the end of life

there could be facilitated communication amongst the medical staff and the other patient caregivers

there are difficulties communicating and bonding between patients and loved ones towards the end

there needs to be facilitated communicaion between the medical staff and the patient and their family

COMFORT

it is often hard and uncomfortable for loved ones to face the fact that a person they care about is dying

most patients prefer dying at home

many patients and loved ones exhibit difficulties making the first step

there is strong sense of loneliness more or less present based on the dying patient.

I V . T H E C A R E F I N D E R ’ S G A M E P L A N

The CAREFINDER’s GAMEPLAN is intended to provide an overall view to the user of what needs to be done as to fulfill their wishes. It reverses the paradigm of «fill in the blank» healthcare measure-preparation by making the carefinder state the patient’s wishes and build a network around this or these wishes as to be able to obtain what they have set forth to do.

F R A M I N G T H E P R O J E C T

After having the assumption that com-munication was at the heart of this issue confirmed, the project geared itself towards created some sort of common ground, a common body of information for people to interact through.

The other point to come accross though was that better preparation needed to be advocated, last minute measures are a nightmare for everyone, and add a uncon-ceivable amount of stress on the loved ones after the patient dies.

On the side, I tried to play with quick illustrations which often helps me visualize what bias I may have, or what my unders-tanding of the situation might be.

Here I realized that 1. We are not alone as we die, and that should be stressed in the project, but also 2. You can always jump and enjoy the swim while it lasts...

These two points were brought up by this sort of automated, instinctive illustrative ideating

M Y H O M E , M Y R U L E S

At first, the project took form as a «prefe-rence piece» which had three main func-tions: record preferences, communicate them and ultimately how to design «care units» that could take those preferences into consideration.

W O U L D Y O U R A T H E R . . .

This brought up the following decision: which function to focus on? Decision making and recording or how the preferences affect the space a patient ends up inhabiting?

The decision was to focus on clarifying the process of stipulating preferences and then distributing them rahter than adrres-sing the hypothetical yet more poetic function through which the patient can a adapt a space based on their preferences.

formulate clear wishes

obtain the best suited treatment possible

provide tools to help face death

B I G P I C T U R E S C E N A R I O

Anthony is 52, he has three young (mid-20’s) children who are still in college two in other states, one is abroad for a year, a wife, and has been living a healthy life.

1. A year ago, he was contacted by a friend who asked him if he had thought about what his plans were in case he were to be diagnosed with a terminal illness. For a month or so he pushed away the idea but after a while it grew in him so he mentioned him to his family.

2. His daughter at the time had just been contacted by an awareness campaign on her twitter / facebook account after she received her acceptance letter to college. She told them about a preventive care being offered this “quality of life thing for people dying.”

Turns out it was a preventive service which would help those affected by ones terminal illness receive the best HOLISTIC TREATMENT CONDITIONS possible (coordinated specialists - better access of alternative medicines), help formulate CLEAR WISHES and overall clear communication between the various stake holders, and help FACE DEATH in various ways.

3.He decided to do it. It asked him a few informations about him. He was ready to go on and pressed next. He reached the “home page” there he found what could be considered to be a table of contents listing everything he should do to reach completion. It was a lot. Then a window appeared and asked him if he wanted to be guided through the

process, for a better more comfortable experience. Apparently the feature would be able to be activated or deactivated at any point during the process. He clicked yes. This led him to the same table of contents, the page now had three tabs: my finances, my judicial, my treatments, me, my contacts each with a completion bar under them. He could consult everyone of them but not change any info. An arrow, apparently indicating “next” was blinking in the corner. He clicked it and was asked where he was, how many people were present, and what subject, and what sub header he wanted to talk about. He just picked finances in general and mentioned he was alone but then he asked his wife to come over and changed the setting to two people and set her setting to total intimacy. He then was offered different activities to start talking about the sub-ject. He could also just start talking and press record.

They talked for a little while about their financial situation. At some point there seemed to be a bit of tension and the device rang offering assistance in the communication since it had recognized the

Then they more or less left it aside.

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That was two years ago.Now, yesterday as a matter of fact, his life changed. He had been having some strange feeling for a week or so. Not so different from flu symptoms like fatigue, but they seemed to be persisting, plus he was starting to bruise from time to time for no apparent reason.

4. He uploaded a couple of photos of his bruises along with a blood sample onto the service platform and forwarded it to the platform. A doctor in his area answered him, asking if they could meet the next day.That’s when he found out, he had just been diagnosed with AML or Acute myelogenous leukemia. A non-curable condition.That was yesterday.

5. Today, he is still under the weather, but things are looking up. He looked for that “thing” he had done a while back.

6. A few days later he met with his closest friends and wife, to update the document, now that it was more realistic. He was able to start planning ahead, decide how far he was willing to go, and think about it “rationally”.

7. Two years later.Everyone knows Anthony is very close to death. He’s had many rough patches throughout the past years. He’s had: Some chemotherapy, some radiations, until he decided he just wanted to improve his quality of life for his past years. With mild chemo, but mostly alter-native treatments, he was able to focus on

his family, and spend time with his close friends even travel, only once though while staying in direct contact with his physi-cians around the world.

Financially, it is not idyllic, but he saved his healthcare insurance enough money expenditures that they provided him with “quality of life grants” that he used to make sure his children would finish college comfortably, but really they were just to be invested in whatever mattered to him, or benefitted his quality of life.

8. Now that hehas passed away, his family is having trouble dealing with his depar-ture. It’s never easy. Nonetheless, knowing that he left in the best possible conditions, and that they had an active part in it most definitely helps.

Who would’ve thought they’d keep accu-mulating so many happy memories with him even AFTER he had been diagnosed!

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E X I S T I N G P R O D U C T S

communal informational organizational kits

After fleshing out the scenario, the next step was to wonder where this «tool» was to be used. This brought up the idea of creating «activities» that would embrace the surroundings as a way to facilitate communication.

F U N C T I O N F O L L O W S C O N T E X T

It got to a point where graffiti and the situationists were just around the corner. This little experiment was refreshing and exiting. It also made a new angle appear: «comfort zones».

O B S E R V I N G C O M F O R T Z O N E S

The progression of the current project reminded me of some «field research» I did back in Paris with some friends. We went around asking people about «jealousy». We had tried that in order to try creating ephemeral comfort zones in which pleople could talk about very personal stories to complete strangers (us).

At first we were hauling around chairs and podiums to try to create «comfort zones», but in the end we realized the mere phrasing of the questions was what made the difference. With that in mind, I decided to create a similar non-intrusive yet effective tool to plan one’s death.

F O R M A T F O L L O W S F U N C T I O N

I started playing with tthe idea of the card but also the card as a page, as a bookmark, the page as a wholistic part of paper filing.

T H E D E C K

In parallel, I started developing the engi-neering of the project, the way the carefin-der could travel through the; and above all what speccifically it offers as help.

Dundam, qui desto et voluptatat eosse conse nupore erum et reicietur, nos parup-tis des doloritiam renis

Dundam, qui desto et voluptatat eosse conse nupore erum et reicietur, nos parup-tis des doloritiam renis

tips

ressources

activity

stake holder

solution / decision

problem

B R A N D I N G T H E D E C K : R E F E R E N C E

Non-clinical Structured Non-obstrusive

B R A N D I N G T H E D E C K : N A M I N G

Naming was the challenge of the term, over the course of two weeks I named three or four of my projects trying a different «feel» behind the naming. In this case I started with a list of words, but only really focused once I started the visual development on something straight forward or «structured».

THE INFORMEDEND OF LIFE CAREFINDER

THE INFORMED CAREFINDER’SROADMAP

THE INFORMED CAREFINDER’S

THE INFORMED CAREFINDER’S

PLANNER

PLANNER

THE INFORMED END OF LIFE CAREFINDER

BLUEPRINT-ADVISOR-ROADMAP

SiteSite

nunu nu

tact

tact

tacttact

ftact

tipsCHOICEreview

situation action

activityressources

B R A N D I N G T H E D E C K : I C O N S

The visual development for this project was pretty hard. The key words were: non-clnical, structures, and calm. In order to obtain that I played with seemingly playful yet straight lines projected onto a variety of colors to create my symbols.

B R A N D I N G T H E D E C K : S Y S T E M

Pre-Service Post-ServiceService

Share

Introduction to Service

Steps

Assistance Tips

SituationO ptionD ecision Review

Tips

Activities Ressources

Ressources

Stories

Online Ressources

S E R V I C E M A P

Experts

Ressources

TipsActivities

Assistance

Stories Online Ressources

ShareIntroduction to Service Discover O�cialize Distribute

Res

T h e S t r e a m l i n e d S t o r y b o a r d

1. Hear about it.

2. Check it out online, order a copy.

3. Try it out on your own.

T H E F I N A L S T O R Y B O R A D

4. When you get sick and remember the plan.

5. You can rapidly sit down with your family and address the issues.

6. So that you have the best possible quality of life in your last days.

T H E F I N A L P L A N

T H E C O N T E N T S

The Fold-out

The fold-out is a framework which one can ollow to help them plan their death accor-dingly. It also gives a list of documents to be filled out.

The Cards

The cards all provide assistance to address loved ones and explore possible decision making tactics

The Interface

Links the user to a world of information and help. This interface is designed the help and support the user in their planning in the least intrusie manner possible.

Carefinder’s gameplanwhich options are available.

Once a clearer idea has been shaped, the information can be drafted into the Carefinder’s Gameplan sample forms.

These forms can then be shared with experts to get clear insights on any better way to make sure the decisions will be respected.

Carefinder’s Gameplanforms.

Explore

1

Transfer

2

Review

3 4

When starting to plan end of life care, it is important to take some time to think of what the person receiving the care, you, or your loved one, would like to have happen. Write down anything that comes up, and any decisions that seem to be a given. The online resources are meant to show how others have addressed the issues, if anyone else has made similar decisions and how they did. Then go back to the list in progress and review it using what you have just read.

Living Will: a legal document in which you state your wishes about certain kinds of medical treatments and life-prolonging procedures.

Durable Power of Attorney for Finances: A legal document that gives someone authority to manage your financial affairs if you become incapacitated.

Durable Power of Attorney for Healthcare: A legal document that you can use to give someone permission to make medical deci-sions for you if you are unable to make those decisions yourself.

Power of Attorney: A document that gives another person legal authority to act on your behalf.

Durable Power of Attorney: A power of attorney that remains in effect if the principal becomes incapacitated.

Will: a document in which you specify what is to be done with your property when you die and name your executor.

Living Trust: an excellent way to avoid the cost and hassle of probate because the property you transfer into the trust during

-ciaries after you die, without court involve-ment.

Once your ideas were mapped out and Care-

finder’s Gameplan sample forms. This should also be done as a group, if possible, as to make sure the information is clearly unders-tood by all parties. There are seven forms to

Durable Power of Attorney, Durable Power of Attorney for Finances, Will, Living Trust.

mail copies of them to the concerned parties

It is recommended to keep the originals and to regularly read over them as to conduct any updates needed.

The Carefinder’s Gameplan sample forms, once completed, it is advised to have them reviewed by a third party. They can be shared by mail or email (by scanning them) using the contacts made available on the Carefinder’s Gameplan website.

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Submission Checklist





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Protocol Help

Comfort Help

Organizational Help

Open-minded Help

Release some stress by choosing a topic of discussion that seems

frustrating, and sing about it for 30 seconds or more.

Sing it out

U S E R S C E N A R I O

1. Receive the package in the mail.

2. Skim through it.

3. Build an agenda of relevant ressources online.

4. Brainstorm on your own.

5. Brainstorm in a group, involving your family, even if you are out of state in college.

T H E I N T E R F A C E

1. HOME SCREEN

Introduces the different formats, and lays out a table of contents for the interface

2. PERSONAL RESSOURCES AGENDA

Collect over time a series of contacts in you area who you can count on.

3. PROGRESS SUMMARY

provides a simple tool to visualize one’s progression with their Game Plan and how far they may be from finishing.

D E S I G N I N G « A C T I V I T I E S »

Here are some examples of the final activi-ties offered, they allude to various ways of facing and talking about death and topics related to it.

I wish I could’ve gotten feedback about these cards from therapists and proffessio-nals in order to make them more effective.

Opposite is an example of the brainstor-ming that went on to create this project.







Care Finder's Gameplan

Documents

Transcript of Care Finder's Gameplan