CAPACITY BUILDING FOR RESEARCH IN RESOURCE-LIMITED SETTINGS:

THE MOTHER-CHILD LINK FOR SHARING

KNOWLEDGE, SKILLS AND TOOLS

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Jai K Das

Maternal Mortality-287 000 maternal deaths in 2010

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Global Under-Five Mortality – 6.9 million children died in 2011

Maternal health needs more research

All types of research is needed to improve outcomes in maternal and neonatal health

Developing country populations are under-represented in medical research, where impact would be greatest

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Contributions 5

Sumathipala A, Siribaddana S, Patel V. Under-representation of developing countries in the research literature: ethical issues arising from a survey of five leading medical journals. BMC Medical Ethics. 2004;5(1):5.Keiser J, Utzinger Jr, Tanner M, Singer BH. Representation of authors and editors from countries with different human development indexes in the leading literature on tropical medicine: survey of current evidence. BMJ: British Medical Journal. 2004;328(7450):1229.

Too little research because there are low levels of access to tools, support, training and knowledge

This could be addressed by clever sharing and active collaboration

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Bridging Gaps- Global Health Network

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• The Global Health Network is transforming research by sharing methods and knowledge

• It is a collection of 20 connected research communities – like an online science park

• Over 140,000 visits, from 172 countries (including most low- and middle-income countries)

• Mother Child link is a member• Applications to support research: such as e-learning and SiteFinder

The Global Health Network.orgsupporting research through sharing methods and knowledge

Goals & Vision

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• STANDARDISATION• DISSEMINATION OF KNOWLEDGE• PROVIDE ACCESS• BETTER RESEARCH PRACTICES• ACCESS TO KNOWLEDGE &

INFORMATION• ENABLE DATA SHARING• PEER SUPPORT & NETWORKING

LATEST NEWS RESOURCES COMMUNITY

Community Activity Groups Workspace Bookmarks Blogs

LINK REGISTRY SITE FINDER

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Browse by Target Population Newborn and Infants Child Health Adolescent Health Maternal/Fetal health during

pregnancy Labour and Delivery Care Postnatal Care Post Menoposal Care Extended Family

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Browse by Resource Type Trial Design Guidelines Sample forms & templates Clinical Trial Laboratories Data Management and

Statistics Checklists Registry of Studies Health Inequality Evidence Based Systematic

Reviews Latest Publications Reports Study Protocols

Categorized Resources

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Workspace

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Bookmarks

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Blogs

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Members

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Discussion

The Link Registry is a global register of specimens that others can access for their own research purposes

No collection of samples is too small

Please list you bio-specimens here so that further knowledge can be gained from them

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Searchable database of pregnancy and birth cohort studies from around the world

GOAL: promote collaboration by sharing

information on participant population, bio-specimens and data

For future studies, only brief information is collected as this is not a clinical trials registration site

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You can also search for a study which is seeking sites to work with.

Those seeking sites will list the important details of their study and you can contact them via the website.

Site Finder:

It is free for both sites and collaborators to join SiteFinder

Registering takes only one or two minutes

IMPORTANTLY: Improves equity of access to research in

developing countries Brings together funders and new research

sites.

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Mother Child Link could increase research in resource limited setting because…

It is a neutral, democratic and trusted space ….so people will SHARE knowledge and methods

Harnessing digital technology that is being exploitedBy researchers for researchersCreates a community of practice in increase equity in access to research

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Acknowledgements: Funding:Zulfi BhuttaTrudie LangJeremy FarrarKevin MarshRosanna PeelingTamzin FurtadoFrancois van LoggerenbergLiam BoggsNicola McHughSam FranzenClare Rowsome Please visit:

www.motherchildlink.org