ARCAGY - Site ARCAGY - GINECO - ARCAGY (Association de ... · Title: Slide 1 Author: Yani Amar...
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Disclosure of interest: None declared Patients and physicians collaborative effort in the gynecological rare cancers network through a web platform. Ms Nuchanard Chiannilkulchai - ARCAGY-GINECO, Paris Dr Anne Floquet - Institut Bergonié, Bordeaux Ms Coralie Marjollet - ARCAGY-GINECO, Paris Ms Pascale Jubelin - IMAGYN, Paris Pr Eric Pujade-Lauraine - Hôtel-Dieu, AP-HP, and on behalf of the GINECO group EPP45-18 Track 3 - Improving patient and family experiences Abstract presented before: N0
Transcript of ARCAGY - Site ARCAGY - GINECO - ARCAGY (Association de ... · Title: Slide 1 Author: Yani Amar...
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Disclosure of interest: None declared
Patients and physicians collaborative effort in the gynecological rare cancers network through a web platform.
Ms Nuchanard Chiannilkulchai - ARCAGY-GINECO, Paris
Dr Anne Floquet - Institut Bergonié, Bordeaux
Ms Coralie Marjollet - ARCAGY-GINECO, Paris
Ms Pascale Jubelin - IMAGYN, Paris
Pr Eric Pujade-Lauraine - Hôtel-Dieu, AP-HP, and on behalf of the GINECO group
EPP45-18
Track 3 - Improving patient and family experiences
Abstract presented before: N0
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• Other non-epithelial tumors
-- Small cell carcinoma
-- Carcinosarcoma
• Epithelial tumors
-- Clear-cell adenocarcinoma
-- Mucinous adenocarcinoma
-- Low grade serous carcinoma
-- Borderline tumors
GYNECOLOGICAL RARE CANCERS
Rare cancers are those with incidence < 6 / 100 000 per year
Annually rare cancer diagnoses in Europe represent about 22% of all cancer cases diagnosed. RARECARE
Incidence of rare and common cancers by site in EU27
Incidence
rate per
100,000
Standard
error
Estimated
incident
cases in
EU27
incidence
distribution
(%)
Female genital tract Common 9,6 0,0 47 779 32
Female genital tract Rare 16,1 0,0 80 669 55
Female genital tract All 29,5 0,0 147 597 100
Breast Common 47,7 0,1 238 471 74
Breast Rare 4,9 0,0 24 415 8
Breast All 64,3 0,1 321 429 100
Rare Ovarian Cancers
• Stromal and sex-cord tumors
(adult, juvenile granulosa cell T,
Sertoli-Leydig cell T, ...)
• Germ-cell tumors (dysgerminoma,
yolk sac tumors, Immature
teratoma, ... )
FRENCH RARE OVARIAN CANCERS NETWORKreferenced by INCa
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Sex cord-stromal
tumor, 972
Germ cell
tumor, 528
Small cell
carcinoma , 41
Carcinosarcoma , 200
Clear cell carcinoma,
430
Mucinous carcinoma,
475
Low-grade serous carcinoma , 135
Borderline tumor, 1631
Other rare tumors, 200
Rare Ovarian Tumors distribution
REFERENCE CENTERS WEBSITEhttp://www.ovaire-rare.org
Secured-access for - experts confirmation on diagnosis and- expert opinion on care management - within reference center multidisciplinary tumor boards
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GYNECO CANCER PATIENTS ADVOCACY GROUP
This work has been supported by INCa and La Ligue Contre le CancerFor any question - contact : [email protected]
Carnet de santé - Health records :• Medical reports • Follow-up after cancer • …
