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ACDDAdvocateA L A B A M A C O U N C I L O N D E V E L O P M E N T A L D I S A B I L I T I E S
Volume VII Number 3, Fall 2012
in ALABAMA
Autism AwAreness and AcceptAnce
2 A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s
Developmental Disabilityd
T h e F e d e r a l d e F i n i T i o n o F
From the Developmental Disabil-ities Assistance and Bill of Rights Act, 2000 Reauthorization, Public Law 106-402, S. 1809-7(8).
A. The term “developmental disability” means a severe, chronic disability of an individual that is:
•attributabletoamentaland/orphysicalimpairment
•ismanifestedbeforetheindividualattainsage22
•islikelytocontinueindefinitely
•resultsinsubstantialfunctionallimitationsin3ormoreofthefollowing
areasofmajorlifeactivity:
(1) self-care
(2) receptive and expressive language
(3)learning
(4)mobility
(5) self-direction
(6)capacityforindependentliving
(7)economicself-sufficiency
•reflectstheindividual’sneedforacombinationandsequenceofspecial,interdisciplinary,or
generic services, individualized supports, or other forms of assistance that are of lifelong or ex-
tendeddurationandareindividuallyplannedandcoordinated.
B. Infants and young children:
Anindividualfrombirthtoage9,inclusive,whohasasubstantialdevelopmentaldelayorspecific
congenitaloracquiredcondition,maybeconsideredtohaveadevelopmentaldisabilitywithoutmeet-
ing3ormoreofthecriteria(listedabove)...iftheindividual,withoutservicesandsupports,hasahigh
probabilityofmeetingthosecriterialaterinlife.
1T h e A C D D A D v o C A T e F A l l 2 0 1 2
ACDD AdvocateVol.VII,No.3
Fall 2012
The ACDD Advocateispublishedquarterlybythe
Alabama Council on Developmental Disabilities.
Letter from the Governor .................................. 2
Letter from the Council Chair .......................... 3
Letter from the Executive Director ................. 4
BluffParkPromiseHome .................................. 5
Special Connections.......................................... 8
Barbara Newman Leads Conference. ........... 10
George Neal Becomes an Advocate ...............12
AlabamaAutismSociety ................................. 14
SenatorCamWardContinuesAdvocacy ...... 16
BraswellandAssistiveTechnology ............... 18
HousingMarketEvolves .................................22
Veterans, Students Collaborate .....................25
DISCLAIMER:Alldirectquotationsandotherinformationrepresentedthroughinterviewsinthismagazinearetheopinionsofthespeakers,anddonotnecessarilyrepresentthepositionoftheAlabamaCouncilonDevelopmentalDisabilitiesortheAlabamaDepartmentofMentalHealth.
14 Autism Society of Alabama (ASA) works to improve services for persons with Autism Spectrum Disorder through education and advocacy.
25 Veterans, Students Collaborate Partnership to develop customized assistive-technology for veterans with disabilities.
16 Senator Cam Ward State senator continues to work for treatment and insurance reform for Alabama families affected by disabilities.
8 Special Connections Faith community in Alabama reaches out to include people with disabilities.
COUNCIL OFFICE:
RSA Union Building 100 North Union Street P.O.Box301410Montgomery,AL36130-1410(334)242-3973or1(800)232-2158FAX:(334)242-0797Website:www.acdd.org
ACDD STAFF:Elmyra Jones, Executive DirectorSophia D. Whitted,FiscalManager COUNCIL MEMBERS:
Dr. Dave Martin, Chair, Parent AdvocatePeggy Givhan, Department of Senior Services(Designee)Johnna Breland, Parent AdvocateRuth Brewbaker, Parent AdvocateVivian Brown, Self AdvocateSue Berry, DepartmentofHumanResources(Designee)DaLee Chambers, ALSDE – Special Education(Designee)Michael Collins, Self AdvocateWendy Dean, Self AdvocateKaren Driver, Parent AdvocateStefan Eisen, Vice Chair, Parent AdvocateJoe Eversole, Self AdvocateAmy Floyd, Department of Children’s Affairs(Designee)Mitchell Garrett, EpilepsyFoundationEllen Gillespie, AlabamaDisabilitiesAdvocacyProgramCarolyn Greene, Parent AdvocateReginald Guilford, Self AdvocateLinda Hames, Rehabilitation Services (Designee)April Ikner, Self AdvocateCharlie Jordan, Parent AdvocateAcquanetta Knight, DepartmentofMentalHealth(Designee)Walden Lechner, Self AdvocateJacquline Harris, DepartmentofPublicHealth(Designee)David Lowry, Self AdvocateAngela Jones McNeal, Parent AdvocateFrances Murphy, FamilyMemberLatonda Cunningham, AlabamaMedicaidAgency(Designee)Gaylen S. Pugh, LocalAgencyNancy Rhodes, Parent AdvocateSylvia Richey, Self AdvocateGraham Sisson, Governor’sOfficeonDisabilityShelia Smalley, FamilyMemberJoan Smith, Self AdvocateScott Sligh, Parent AdvocateCindy Sweeny, Center for Excellence (Designee)
AL
AB A M A C O U N C I L O
N
DE
VE LO P M E N T A L D I S A B I L I T
I ES
5 Bluff Park Promise Home Church builds residential facility for adults on autism spectrum.
Contents
ACDD Mission StatementTopromoteandsupportindependence,advocacy,productivityandinclusionforAlabamianswithdevelopmental disabilities.
AUTISM AWARENESS& ACCEPTANCEin Alabama
CoverphotoofRSATowerindowntownMobile,withspecialbluelightingforAutismAwarenessMonth,byEdwardFieder.
STaTe oF alabama
Letterfrom the Governor
2 A l A b A m A C o u n C i l o n D e v e l o p m e n T A l D i s A b i l i T i e s
Greetings
InmymostrecentletterintheACDD Advocate, I emphasized the importance
of housing, noting that “no matter where we are in life, we all need a place to
live.Formanyofourmostvulnerable
citizens, safe, affordable housing is a major challenge.” I was writing in
referencetotheCouncil’sverysuccessfulandinclusivecollaborativehousing
databaseprojectentitledALHousingSearch.org.
InthisissuewecontinuetoseethemanywaysthatcaringandconcernedAlabamians
reachouttohelptheirneighbors,includingthemostvulnerableamongus.BluffParkUnited
MethodistChurch,alongwithitsseniorministerReidCrotty,havelongbeenbeaconsof
inspirationandhopetothousandsofworshippersinHoover.Withvisionaryleadership,
generousfinancialdonations,andlotsofvolunteerlabor,BluffParkhasrecentlycompleted
anddedicatedBluffParkPromiseHome,aresidentialfacilityonthechurchgroundsthatwill
be a permanent home to six adults with disabilities. These residents will be welcomed as part of
BluffPark’schurchcommunityandwillliverich,independentlivesinthebeautifulfacility.Bluff
ParkPromiseHomewillbeoperatedbyGlenwood,anationally-recognizedmodelfortreatment
of people with behavior disorders.
IhavealwaysknownthatAlabamaandherpeoplewerecaring,creative,generous,and
enterprising.BluffParkPromiseHomeisasterlingexampleofwhatcanhappenwhenpeople
cometogetherandfigureouthowbesttouseresourcestoreachouttothoseinneed.
Iamverypleasedthatourchurchescontinuetoshowushowbesttoincludeallofour
citizensinourdailylifeandwork.InadditiontoBluffPark,wearealsoabletoreadinthis
issueaboutBriarwoodPresbyterian’sSpecialConnectionsministryanditswonderfuloutreach
efforts.Theseexamplesarejusttwoamongmanygoingonallaroundusthatemphasize
people’s abilities rather than their disabilities. I want to encourage each of us to continue to
workforabetterAlabama,andindoingsotothinkofwaystoincludeallofourcitizensinevery
partofoursociety.
Dave Martin, Council Chair
alabama CounCil on developmenTal diSabiliTieS
Council Chairfrom the
3T h e A C D D A D v o C A T e F A l l 2 0 1 2
Ithasbeen43yearssincethefederallawsuitWyatt v. Stickneywasfiledon
behalfof16-year-oldRickyWyatt.Wyatt,whodiedjustlastyear,wasayoungman
withoutamentalhealthdiagnosisofanysort,whowasbasicallyincarceratedat
BryceHospitalinTuscaloosa.ThelandmarkrulinginfederaljudgeFrankJohnson’s
Montgomerycourtroomestablishedcertainminimumtreatmentrequirements
forpeoplewhowereinstitutionalizedinBryceandPartlowHospitalsinAlabama.Byextension,this
federal law affected all 50 states, and placed Alabama in the forefront of what has become an entire
movementawayfrominstitutionalizationandtowardcommunityliving.
Thismovementhasnotalwaysbeenfast,orsmooth,orpretty,butforthepeoplewhowerelivingin
whatJudgeJohnsonfamouslycalled“warehouseconditions,”movingintothecommunitywasaGod-
send. The Alabama Council on Developmental Disabilities promotes and supports the independence
andinclusionofAlabamianswithdevelopmentaldisabilities,andboththeDepartmentsofMental
HealthandRehabilitationarefocusedonverysimilar,consumer-drivengoals.Whenthelawsuitwas
filedonOctober23,1970,thefar-reachingresultsthatweseetodaywerelargelyunimaginable.
So how do these historical results relate to this issue of the ACDD Advocate? The goal is still to
have an independent life as opposed to one of dependence and institutionalization. The goal is still
personalfreedominthecommunity,andinthisissuewereadaboutsomethingthatismakingthese
idealspossibleinboldnewways:assistivetechnologyanduniversaldesign.
Theinter-relatedstoriesinthisissueshowcasethewaysbuildersandengineersandteachersand
researchersareworkingcloselywithpeoplewithdisabilitiestomakelifemoreinclusiveandopenfor
everyone.Fromthewaywedesignnewconstructionorretro-fitolderhomes,tothecomputerand
wireless devices that operate our living environments, to the innovations we can forge for individual
situations–includingthoseforthemilitaryveteransfeaturedhere–wecanseethatATandUDare
thenaturalevolutionofwhatitmeanstobelivingindependently,andlivinginthecommunity.
Ican’tsaywherewewillbeinanother40years,butit’srewardingtoseehowfarwehavecomeand
howfasttheseinnovationsaremovingusforward.ATandUTaremakingitpossibleformoreand
moreofourcitizenstobeincludedinthehome,intheworkplace,andinthecommunityatlarge.
Thesetechnologiesgiveusallanotherwaytodowhatweshouldallbedoing:seeingpeople’sabilities
rather than their disabilities.
A Letterfrom the
A L A B A M A C O U N C I L O N D E V E L O P M E N T A L D I S A B I L I T I E S
Elmyra Jones, Executive Director
Executive Director
alabama CounCil on developmenTal diSabiliTieS
4 A l A b A m A C o u n C i l o n D e v e l o p m e n T A l D i s A b i l i T i e s
OneofthebestpartsofmyworkasExecutiveDirectorofthe
Councilisseeingthemanygreatprojectsthatwefundthroughour
grant-makingprocess.OvertheyearsIhaveseenthedifferencethese
successful collaborations have made in individual lives and in the lives
of entire communities.
Ontheotherhand,asIworkwithourfamiliesandstakeholdersIstillseethatthereistoo
muchstigmaandtoomuchprejudice–usuallybasedonfearandignorance–towardour
citizenswithdisabilities.Thingshavegottenmuchbetterovertheyears,ofcourse,butthisis
stillabattlethatfamiliesandindividualsarefightingeveryday.OnJune2,PresidentObama
hosted a conference that explored insurance coverage for mental health care and substance
abuse,theimportanceofrecognizingthesignsofmentalillnessinyoungpeople,andimproved
access to services for veterans. The overall goal of the conference was to reduce the stigma of
thesedisabilitiesandtoencouragethosewhoarestrugglingtogethelp.Thisinitselfspeaksto
theprogresswehavemadeasasociety.
Ilikeseeingthingslikethisonanationallevel,butIalsoenjoyseeingwhatourpeopleare
doing right here in Alabama to ensure that we are focusing on people’s abilities rather than
their disabilities. In this issue of the ACDD Advocatewearepleasedtoshowcaseeffortsbytwo
Birmingham-area churches that are doing just that.
BriarwoodPresbyterian’sSpecialConnectionsministryhasawide-rangingprogramof
inclusion for people with disabilities as part of its church life, with a special focus on including
children.Thechurchrecentlyheldaconferencetoshareitsideasandsuccesseswithother
churchesfromacrossthestate.Theconferencewasledbynationally-renownedchurchand
schoolconsultantBarbaraNewman.It’slikearippleeffectwhenthesegroupscometogether
andthentakewhattheyhavelearnedbacktotheirhomechurchandcommunity.
Likewise,BluffParkUnitedMethodistChurchdedicateditsPromiseHomeresidentialfacility
onthesamedayPresidentObamawasholdinghisWhiteHouseconference.Thehomeforsix
adultsontheautismspectrumislocatedonthechurchproperty,andtheresidentsareincluded
ineverythingthechurchdoes,fromworshiptoconcertstosocialevents.Gettingtoknow
peopleforwhotheyare–seeingtheirabilitiesinsteadoftheirdisabilities–isthebestwayto
overcomethefearandignorancethatleadstostigmainthefirstplace.
It’s a slow process, but it’s good to see progress being made on both a national and local level.
ThankstoourCouncilmemberswhoarepartofthegoodfighteveryday.
T h e A C D D A D v o C A T e F A l l 2 0 1 2 5
BluffParkPromiseHome,aresidentialfa-
cilityforsixadultswithdisabilities,was
dedicatedJune9onthecampusofBluff
ParkUnitedMethodistChurchin
Hoover.Thefacility,whichchurch
member Bill Pearson said “will be a
blessingtomanypeopleforyearsto
come,” has been a long time in the
making.
“The idea of some sort of group
home has been around for a while
since we had some nice space on
our church campus that wasn’t being used,” said
BluffPark’sretiringseniorministerReidCrotty.
“Welookedatwaystodosomethingsimilartothis
with other organizations and for various reasons
theyjustdidnotworkout.Butourchurchmem-
bersraisedthemoneyandwehadlotsofvolun-
teerlaborandbuildingskillsunderthecapable
Bluff park promise Home‘We knew it would be a blessing to many people for years to come’
a p r o j e c t o f G l e n w o o d , I n c .
“...our church members raised the money and we had lots of volunteer labor and building skills under the capable leadership of Bradley Word, so what we really needed was to find the right group to operate the home. The church wanted to provide this sort of ministry, but at the same time we did not to own or manage the home.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s6
leadershipofBradleyWord,sowhat
wereallyneededwastofindtheright
group to operate the home. The church
wantedtoprovidethissortofministry,
but at the same time we did not want
to own or manage the home.”
Asafirstbigstep,thechurchcreated
an independent, separate board called
BluffParkUnitedMethodistCommuni-
tyMinistriesFoundationanddonated
thepropertytotheFoundation.The
board then began its search for the
rightmanagementfitandfinallyfound
it right here in Birmingham.
“WeofcourseknewaboutGlenwood
AutismandBehavioralHealthCenter,
and we sought their advice on how to
proceed,” said church member Pear-
son, who is also involved in the lead-
ershipoftheAlabamaAutismSociety.
“Tomakealongstoryshort,itbecame
increasinglyobviousthatthebestpos-
sible group to operate the home was
Glenwood.”
Crottysaidwhentheboardrecom-
mendedthatthefacilitybeoperatedby
Glenwood, the church held meetings
togatherinputandfeedbackfromits
members.
“Itwasextremelypositive,”Crotty
recalls.“Ourmemberstalkedaboutthe
importance of welcoming the residents
aspartofourchurchfamily.Wehave
music programs and all sorts of activ-
ities.Wecanhaveabirthdaypartyfor
aresident.Wecandosomanythings.
While we don’t want to force the res-
idents to join us in our activities, we
welcome them in all that we do, includ-
ingourthreeSundayservices.”
BluffParkUnitedMethodistChurch
has about 2,000 members, and is a
popular site for music concerts be-
causeofthesanctuary’sexcellent
acoustics.
Glenwood a perfect fit“Thiswasagreatopportunityfor
us,” said Lee Yount, President and CEO
ofGlenwood.“Wehadtalkedtothe
church about their hopes for the prop-
ertyandwhenwewereinvitedtoseeit
for ourselves we just realized this was
anincredibleopportunityforusand
formany,manypeopleintheyearsto
come.Reallythishomeisagreatgiftto
Birmingham’sdisabilitycommunity.It
isauniqueopportunityforus.We’ve
neverhadanythinglikethiscomeour
waybefore.”
“Wehaveverywell-plannedresiden-
tial facilities on our Glenwood campus.
But when we go into neighborhoods
to establish a group home, accessi-
bilityandtechnologyareoftenreal
problems,especiallyinolderhomes.
Thishomeisverywellconstructedand
plannedperfectlyforresidentswith
autism or other disabilities. Plus, it has
adefinite‘welcoming’feelingfromthe
church.”
“We of course knew about Glenwood Autism and Behavioral Health Center, and we sought their advice on how to proceed,” said church member Pearson, who is also involved in the leadership of the Alabama Autism Society. “To make a long story short, it became increasingly obvious that the best possible group to operate the home was Glenwood.”
T h e A C D D A D v o C A T e F A l l 2 0 1 2 7
JoeCarter,Glenwood’sVicepresident
of Adult Services, agreed.
“Therearealwayschallengeswhen
yougointoaneighborhoodtoopena
group home or an apartment building.
ButBluffParkisawelcomingplace.
Herethereisalargecommunityready
to embrace the residents, and that in
itself is a unique and wonderful gift.”
Glenwood will operate the
4,000-square foot, six-bedroom, six-
bath home, with a 24-hour onsite man-
ager. In addition to the large private
rooms,thereisalsoadelightfullylarge
sunroomnearthebackofthehouse,
and a screen porch that sweeps across
the entire rear of the home.
The home was also completed with
suggestions from Glenwood based on
its own residential experiences. The
home includes sound-insulated walls,
hardwood floors as opposed to carpet,
lever-action door hardware, adaptable
showers,andavarietyofsafetyand
comfort features.
A model program for other churches“Glenwood is a perfect partner for
this excellent venture,” Pearson said.
“WehopethatPromiseHomecanbea
model program for other areas or other
churches.”
Crottyagreedthattheprojectcould
become a model for other churches.
“Weknowthatotherchurchessome-
whereouttherehavepropertythat
theyarenotusingbutwanttoputto
gooduse.Ifyouhaveanacreofproper-
ty,useitforthegreatergood!Ofcourse,
wewereespeciallyfortunatetofind
Glenwood,sincetheyarethenation-
ally-recognizedexpertsinthisexact
area. But we hope this can become a
model program. It’s a new venture for
usandweareveryexcitedabouthow
it can help our church members learn
andgrow,aswellasthemanylivesthe
homewillenrichastheyearsgoon.”
The home was also completed with sug-gestions from Glenwood based on its own residential experiences. The home in-cludes, sound-insulated walls, hardwood floors as opposed to carpet, lever-action door hardware, adaptable showers, and a variety of safety and comfort features.
In addition to the large private rooms, there is also a delightfully large sun room near the back of the house, and a screen porch that sweeps across the entire rear of the
home.
“We know that other churches somewhere out there have property that they are not using but want to put to good use. If you have an acre of property, use it for the greater good! Of course, we were especially fortunate to find Glenwood, since they are the nationally-recognized experts in this exact area. But we hope this can become a model program. It’s a new venture for us and we are very excited about how it can help our church members learn and grow, as well as the many lives the home will enrich as the years go on.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s8
The Alabama
Council on De-
velopmental Dis-
abilities believes that all
Alabamians – including
those with disabilities
– should be included in
everyaspectoflifeinthe
greatercommunity.To
that end, the ACDD Ad-
vocate has written several
times over the past few
yearsaboutthemany
waysfaithcommunities
in Alabama reach out
to include people with
disabilities. Briarwood
PresbyterianChurchin
Birmingham has been an
exemplaryleaderinthisregard,espe-
ciallythroughitsSpecialConnections
ministry.JoelWallacewasthefounding
directorofthisministryandhisgood
workledhimtoasimilarpositionon
anationalscaleforthePresbyterian
ChurchNorthAmerica.Theministryis
nowdirectedbyJuneCork.
AccordingtoCork,“SpecialConnec-
tionsisaministrytopeopleofallabili-
ties.Ourdesireistoseesocietyandthe
BodyofChristshowequalconcernfor
people with disabilities and their fami-
lies as is shown for others.”
Totranslatethatphilosophyinto
action, Special Con-
nections ministers, in
both word and deed,
both to and alongside
peopletouchedby
disabilityandworks
to include them and
their families in the
lifeofthechurchandthecommunity.
Although Special Connections is based
fromBriarwoodPresbyterianChurch
(PCA) in Birmingham, people involved
inthisministryarefrommanydifferent
churches, denominations, religions or
havenoreligiousaffiliation.Alloppor-
tunitiesareopentoeveryoneinthe
community.
Last month, Special Connections
held a unique training session entitled
“God’sAmazingSpectrum:Including
ALL Children and Youth in our Com-
munities.”Approximatelythreedozen
participants turned out from several
area and regional churches to hear
Barb Newman deliver the inspirational
and informational program. (See relat-
ed story on the conference in this issue.)
“Theconferencewentverywell,”
Corksaid.“Weareespeciallypleased
that representatives came from so
manychurchessincethatitisareal
opportunitytospreadthisimportant
message of inclusion.”
“The purpose of the conference of
course was to help church leaders learn
moreandbetterwaystoincludeevery-
one in their worship services and in the
Special connectionSministry seeks inclusive worship and play
Briarwood Presbyterian Church
June Cork and other conference attendees welcome Barbara Newman to Birmingham
“Special Connections is a ministry to people of all abilities. Our desire is to see society and the Body of Christ show equal concern for people with disabilities and their families as is shown for others.”
T h e A C D D A D v o C A T e F A l l 2 0 1 2 9
largercommunity.Thatisourparticu-
lar focus in Special Connections where
wehaveseveralwaysthatwetrytodo
just that.”
“Theconferencewasopentoany-
one, not just for church leaders or
SundaySchoolteachers.ThewayBarb
presentsitisforeveryonetoaskques-
tionslikethis:‘Whatismyrole,and
how can I include a person with special
needsinourchurchcommunity?’We
wantourchildrenandyouthandadults
tobeembracedbythechurchinstead
of being compartmentalized. We be-
lieve that everyoneispartofthebody,
and that everyone is created in God’s
image. We all have our strengths and
weaknessesandwealllookthesame
in that respect. So people with special
needs or disabilities should not be set
aside. We need to include their gifts as
partofthelargerbody.AtBriarwood
andmanyotherchurchesthatIknow
about,wetrytolookatabilityinstead
ofdisability.Weallhaveskills.Wehave
one child here who is a great artist, and
ayoungadultwhocansingallthevers-
esofhundredsofhymnsandpraise
songs and is a great lover of music
-- just a range of talent and abilities as
diverse as the individuals themselves.
And that was what Barbara came to
helpusdo–findwaystoincludethose
talents and those individuals.”
CorksaidNewman’spresentation
wasdynamiconmanylevels.
“Barbara was just great,” she said.
“Notonlyissheawealthofinforma-
tionbutwhenshewalksintotheroom
youfeelthatyou’veknownherallyour
life. She has such wisdom and com-
passionandsuchawonderfuldiversity
ofknowledgeshewantsyoutoknow.
Sheisgreat.Everyonetherewastrans-
formedinapositiveway.”
In addition to sharing its experiences
withotherchurches,Briarwoodalready
hasaterrificprogramofinclusion
throughouttheyear.
AtSundayworshipservices,Briar-
wood has two rooms – one has older
teensandyoungadultsandanother
roomisforyoungerchildren.Depend-
ingontheperson,thechildmaybein
the worship service until the preaching
beginsandthentheyretiretotheirdes-
ignated rooms.
“Fortheyoungerpeopleit’slikea
playtime,butwealsoworkonsocial
skills,”Corksaid.“Nineofourchil-
drenrightnowareinatypicalSunday
Schoolclasswiththeir‘ATeam’bud-
dies,whoarethehighschoolkidswho
wetraintoworkwiththeyouth.Most
oftheseyoungerchildrenareonthe
autism spectrum but some have Down
syndromeaswell.Forthosethataren’t
quiteready,ourroomisafallbacksafe-
tynettheycanalwayscometo.Andin
both rooms we have praise and wor-
shiplessonsaswellasplayandsocial
skillsdevelopment.”
Briarwood also has a mother’s group
thatenjoysfellowshipandtimeto-
gether, respite care, social outings,
fieldtrips,familyservices,aswellasits
CampBriarwoodforyouthandadults.
For more information on Briarwood’s
rangeofprograms,andtofindout
howyouandyourfamilycanbecome
involved, visit the Special Connections
website at www.briarwood.org/minis-
tries/special-connections. You can also
contactJuneCorkdirectlythroughthis
website.
“The conference was open to anyone, not just for church leaders or Sunday School teachers. The way Barb presents it is for everyone to ask questions like this: ‘What is my role, and how can I include a person with special needs in our church community?’ We want our children and youth and adults to be embraced by the church instead of being compartmentalized. We believe that everyone is part of the body, and that everyone is created in God’s image. We all have our strengths and weaknesses and we all look the same in that respect. So people with special needs or disabilities should not be set aside. We need to include their gifts as part of the larger body. At Briarwood and many other churches that I know about, we try to look at ability instead of disability. We all have skills. We have one child here who is a great artist, and a young adult who can sing all the verses of hundreds of hymns and praise songs and is a great lover of music -- just a range of talent and abilities as diverse as the individuals themselves. And that was what Barbara came to help us do – find ways to include those talents and those individuals.”
For more information on Briarwood’s range of programs, and to find out how you and your family can become involved, visit the Special Connections website at www.briarwood.org/ministries/special-connections. You can also contact June Cork directly through this website.
BarbaraJNewman is a well-
knownchurchandschool
consultant associated with the
CLCNetwork(www.clcnetwork.org).
Sheistheauthorof“HelpingKidsIn-
cludeKidswithDisabilities,”“Autism
andYourChurch,”and“BodyBuilding:
Devotions to Celebrate Inclusive Com-
munity,”amongseveralotherworks
and curricula. In addition to writing
andspeaking,Barbenjoysworkingin
her classroom at Zeeland Christian
School.
“IgrewupinMichigananddidall
myschoolingthere,”Newmansaid.“I
had several sisters who were in educa-
tion, and I wanted to be different, so
in college I chose to major in Special
Educationprettymuchatrandom.Of
course, now I realize that was God’s
designformylife.”
Newman began her career teaching
students with Intellectual Disabilities
in both schools and churches and
eventuallybuiltarelationshipwiththe
CLCNetworkaswellasZeelandSchool
(inZeeland,Michigan).
“We launched the Zeeland School in
1989toworkwithchildrenandyoung
peoplewithautism,Downsyndrome,
andreallyanyphysicalorintellectual
disabilities,” she said. “It was one of the
firstinclusionprogramsintheentire
country.Ibasedmyvisionon1Corin-
thians12:12:Just as a body, though one,
has many parts, but all its many parts
form one body, so it is with Christ. For
we were all baptized by one Spirit so
as to form one body. Iguessyou’dsay
thatsincetherewerenotmanymodels
ofinclusionbackthen,wejustsortof
madeitup!”
The school grew and flourished and
drew visitors from around the world.
It was a new concept to have inclusive
rather than segregated classrooms.
“This all had a huge impact on the
skilllevelofteachersinourbuilding
as well as on the students themselves,”
Newmanremembers.“Thedaywe
started inclusion it was no longer all
aboutmoneyandcuteclothes–the
students clamored to sit next to some-
onewithadisability.It’shardtoexplain
buttheybecametherockstars.Inclu-
sion just turned our social structure
aroundinagreatway.”
Newmanwasatleastpartiallymoti-
vatedtofigurethisoutbecauseshesaw
Barbara NewmanBarbara Newman leads conference on inclusion at Birmingham’s Briarwood
The school grew and flourished and drew visitors from around the world. It was a new concept to have inclusive rather than segregated classrooms.
“This all had a huge impact on the skill level of teachers in our building as well as on the students themselves,” Newman remembers. “The day we started inclusion it was no longer all about money and cute clothes – the students clamored to sit next to someone with a disability. It’s hard to explain but they became the rock stars. Inclusion just turned our social structure around in a great way.”
8
7
T h e A C D D A D v o C A T e F A l l 2 0 1 2 11
kidswithdisabilitiesessentiallygetting
kickedoutofchurchservices.
“Because of that, I wanted our best
practices from the school to also be
inchurch.Thereareobviouslylotsof
similarities.Myfirstbookonthissub-
ject came out in 2001 and I am glad
toseethatnowtherearelotsofbooks
trending toward including people with
autism in church.”
“It’s more important now than ever
tofindchurchesthetoolstosay‘Yes!
You are welcome here.’ There were just
somanyterriblestoriesIwashearing.
Churches said the problem was that
theydidn’tknowhowtoincludeevery-
one. That launched the ideas and the
speakingpartofmycareer,sonowI’ve
beenrunningaroundcountryfor20
yearsspreadingthismessage.ButIal-
wayscontinuetomanageaclassroom
oraprograminadditiontospeaking.
If I’m not in the classroom I will stop
learning.”
In her presentation at Briarwood
Newman had the room decorated in
greenandpink.
“It’s the puzzle pieces,” she said.
“Weareallacombinationofpinkand
green. Green is for the areas of gifting,
andpinkisforourhotspots,orweak-
nesses. The bad thing is that all too
oftenwhenweareworkingwithpeople
withdisabilitiestheyareseenasall
pink.Butthat’snotright!Godhasgiv-
en gifts to all people in his image, and
everyoneisacombinationofpinkand
green.”
“JustasitsaysinCorinthiansthat
Godhasarrangedthepartsofthebody,
it’s clear to me that God has arranged
our puzzle pieces. That concept is cen-
tral to me.”
Newmansaidinherworkwith
churchesthemostcommonmistake
sheseesiswhentheytrytostartamin-
istryfortwoorthreedistinctmembers
of the congregation.
“Thisisahugemistake,”shesaid.
“Foronething,itisnotaministryfor
a person or persons – it needs to be a
ministrywith people – we are all to-
gether, we are with one another.”
“HereisthewayIseeit:ifit’strue
that God arranged the person and then
thechurchsendsthepersonawayI
ask–wholoses?Theansweristhatev-
eryoneloses.Thechurchlosesthegift
that individual brings. Our role must
be to create spaces of welcome for ev-
eryone.”
To learn more about Newman’s work,
and especially to access the tools she
and the CLC Network have developed to
help facilitate school and church inclu-
sion that really works, visit the CLC Net-
work website at www.clcnetwork.org
8
7Newman said in her work
with churches the most common mistake she sees is when they try to start a ministry for two or three distinct members of the congregation.
“This is a huge mistake,” she said. “For one thing, it is not a ministry for a person or persons – it needs to be a ministry with people – we are all together, we are with one another.”
“Here is the way I see it: if it’s true that God arranged the person and then the church sends the person away I ask – who loses? The answer is that everyone loses. The church loses the gift that individual brings. Our role must be to create spaces of welcome for everyone.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n T A l D i s A b i l i T i e s12
AstheDirectoroftheOfficeof
Self-AdvocacyServicesinAla-
bama’sDepartmentofMental
Health,GeorgeNealisresponsiblefor
providing leadership to individuals
with intellectual disabilities to pro-
mote being active and participating in
governmental and civic activities. Neal
came to the Department following his
tenure as president of People First of
Alabama,anotheradvocacygroupfor
people with disabilities. Neal is certain-
lyarolemodelforself-advocates,yet
theroledidnotcometohimnaturally.
“I grew up in Birmingham and grad-
uatedfromBerryHighSchoolin1987,”
Nealsaid.“Ineverreallyhadaname
puttomydiagnosis,butIhadsome
sortofseriouslearningdisability.My
classes were all in what was then called
Special Education, and lots of the stu-
dents there called me stupid, retarded,
all of that. It was upsetting as I grew up,
but as I got older I learned to handle
thehecklers.”
A huge
part of
learning
to “handle
it” came
from Neal’s
mother
and grand-
mother,
both of
whom
taught him
through ex-
ample what it meant to be an advocate.
“Ineverknewwhatanadvocatewas
until I became one,” Neal said. “But I
alwayshadalotoffamilysupport.My
motherandgrandmotherwerealways
tellingmetostickupformyself.Inever
knewuntillaterthatmygrandmother
advocatedformewithmymother,con-
vincing her to let me learn to drive a car
andgetmylicense.Shetoldmymom
I’d be handicapped if I didn’t learn, and
so she taught me how to drive.”
Neal got his drivers’ license in 1988
andinMarchof1989gothisfirstjob,
workinginsupportedemploymentat
AncoClutchandBrakeinFairfield.
“Itwashardanddirtyworkremoving
clutch covers and pushing out the riv-
ets,” Neal recalled. “I had a job coach
which was a good thing for me. After a
coupleofyearsIgotadifferentjobin
amailroominIrondale,andjustkind
ofmovedintodifferentjobsingrocery
stores and retail establishments.”
A turning point for Neal came when
SusanEllisoftheArcofShelbyCounty
helpedNeallandajobatBaptistHos-
pitalinShelbyCounty,becauseitwas
therethatNealfirstencounteredPeo-
ple First of Alabama.
“This was in about 2001, when some
of our members went to a state con-
ventionandcamebackandstartedour
local chapter,” Neal said. “From that
organizationIlearnedaboutmyrights
andreallysawpeopleadvocatingfor
me. I became a local vice president but
wanted to become even more involved
so I became a board member of the
stateorganization.Tomysurprise,I
wasaskedtorunforpresidentofthe
state People First organization in 2004
and was elected.”
Neal described the experience as
“overwhelming.”
“Thatopportunityopenedupa
whole new world for me,” he said. “I
From People First to Self-Advocacy Services—
grows into advocate role
George NealGeorge Neal
“Being an advocate and a self-advocate really matters because if you don’t stick up for yourself and your peers, you will never get what you need,” Neal stated. “People who cannot speak for themselves have the same needs as everyone else. I know that if I wasn’t an advocate, if I hadn’t had these many great opportunities, I’d be sitting at home watching TV right now.”
T h e A C D D A D v o C A T e F A l l 2 0 1 2 13
keptlearning.IwenttoWashington
D.C. and lobbied the Senate staff and
toldthemwhythedisabilitymovement
was so important. While I was serving
mysecondtermaspresidentIwasable
toapplyforthejobIaminnow.When
theycalledandtoldmeIhadthejob
Iwasinmycar.Iaboutdroveoffthe
road.Icouldnotbelieveit!Itwasthe
greatest thing that had ever happened
to me.”
WorkingundersupervisorByron
White, Neal has been visiting with
people from Partlow, educating them
abouttheimportanceofworkfor
self-esteem, and the real power that
cancomefromlivingonyourownand
havingyourownmoney.
“My self-esteem over the past few years has gone from zero to just feeling great about life,” he said. “My work at Anco was hard and dirty but I kept pushing myself with the help of my job coach. I kept on working and moved up and look at me now. I have a great job, I’ve learned to use a computer, and I have a car with a GPS that I have learned to use. I have my own place in Prattville. I love to travel to see and help people around the state. The world is my office.”
George Neal and Scott Renner
“Being an advocate and a self-advo-
catereallymattersbecauseifyoudon’t
stickupforyourselfandyourpeers,
youwillnevergetwhatyouneed,”Neal
stated.“Peoplewhocannotspeakfor
themselves have the same needs as
everyoneelse.IknowthatifIwasn’tan
advocate,ifIhadn’thadthesemany
great opportunities, I’d be sitting at
home watching TV right now.”
“Myself-esteemoverthepastfew
yearshasgonefromzerotojustfeeling
greataboutlife,”hesaid.“Mywork
atAncowashardanddirtybutIkept
pushingmyselfwiththehelpofmyjob
coach.Ikeptonworkingandmoved
upandlookatmenow.Ihaveagreat
job, I’ve learned to use a computer,
and I have a car with a GPS that I have
learnedtouse.Ihavemyownplace
in Prattville. I love to travel to see and
help people around the state. The
worldismyoffice.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s14
According to its mission statement,
theAutismSocietyofAlabama
(ASA)workstoimproveservicesfor
persons with Autism Spectrum Disorder
(ASD) and their families through education
andadvocacy.ASAmaintains35Network
Support Group across the state. These Net-
workGroupsareoftenledbylocalparents
At a recent event Anna McConnell, Alabama's Autism Coordinator met with the Autism Society of Alabama staff L to R: Autism Coordinator Anna McConnell, Policy and Program Advisor Bama Hager, Community and Program Advisor Angel Loewen, Community and Program Advisor North Alabama Debbie Bumbika, Executive Director Melanie Jones and Fundraising and Events Manager Lauren Reid. Bama Hager and Debbie Bumbika are parents of children who have autism. Bama works part time in the Birmingham office and Debbie works part time in the Huntsville office.
Alabama Autism Societyworks for improved services, awareness
and are resources in dozens of towns and
cities for families living with ASD in the area.
ASAcontinuallyworksonstatewideaware-
ness activities. ASA collaborates with numer-
ous organizations, state
agencies and service pro-
viders to improve the lives
of Alabama families living
withASD.Additionally,
ASA coordinates confer-
ences for parents, teach-
ers and providers, and
supports families with
familycampsandfamily
enrichment activities around the state.
Two main areas of focus for ASA efforts are
continued expansion of insurance coverage
forASDtherapyandexpansionofadultjob
Hager said many Alabama families are financially ruined by ASD. Families are making decisions about foregoing basic needs to pay thousands of dollars per month for recommended ASD therapies. Many families experience great stress paying for ASD therapies. If parents forego therapy, they experience distress because they feel they are not able to provide the therapies prescribed for their child.
T h e A C D D A D v o C A T e F A l l 2 0 1 2 15
CDC reports increased prevalence of parent-reported autism cases
The prevalence of parent-reported cases of autism is
significantly higher now than it was just five years ago,
according to new data from the Centers for Disease Con-
trol and Prevention in Atlanta.
From 2011 to 2012, 1 in 50 school-age children had a
diagnosed autism spectrum disorder according to their
parents – up from 1 in 86 in 2007.
“[This] study provides growing evidence that [the] U.S. is underestimating the prev-
alence of autism spectrum disorder,” said Michael Rosanoff, associate director of public
health research and scientific review at the non-profit Autism Speaks. Rosanoff did not
work on the new report, but he had reviewed it.
The new figures came from the 2011 to 2012 National Survey of Children’s Health, a
national telephone survey conducted by the CDC. In this most recent survey, parents
reported that two percent of six - 17-year-olds had a diagnosis for an autism spectrum
disorder, which is higher than the 2007 estimate of 1.16 percent.
Overall, the increase was greater for boys than for girls, and among 14- to 17-year-olds
than in younger children.
The report’s authors largely attribute the change to doctors identifying the disorder
more often now than they did just a few years earlier.
“Much of the prevalence increase from 2007 to 2011 [to] 2012 for school-aged children
was the result of diagnoses of children with previously unrecognized ASD,” they wrote.
Last year, the CDC revised its go-to estimate of the prevalence of autism in the U.S.,
saying it now affects 1 in 88 children, up from 1 in 150 in 2002. That is the estimate most
widely used by health care providers, public health officials and media outlets when
quantifying the prevalence of autism in the U.S., and came from the CDC’s Autism and
Developmental Disabilities Monitoring Network, which collected data from health and
special education records of eight-year-olds living in 14 communities across the country
in 2008.
Because the two estimates used different approaches to identify cases, they are not
directly comparable, but Rosanoff believes the new parental-report data suggests that “1
in 88” figure is low.
Getting a clearer picture of autism’s true prevalence will help researchers set a bench-
mark that allows them to better understand if the disorder is simply being identified
more by doctors; if actual risk has increased – or both
training, job coaching and educational
opportunities.
AccordingtoBamaHager,ADAPolicy
Advisorandparentofa13-year-old
son who has autism, insurance reform
isgreatlyneededinAlabama,which
iswhytheorganizationendorsedlast
year’sRileyWardAct,sponsoredby
State Senator Cam Ward (see related
story in this issue).
“Although the recommended treat-
mentforASDusuallyincludesspeech
therapy,occupationaltherapy,behav-
iortherapy,andsocialskillstraining,
minimaltherapyiscoveredbyinsur-
ance,”Hagersaid.“Familiesareoften
allowed30combinedspeechtherapy
andoccupationaltherapysessions
duringtheyear.Familiesoftenex-
haustthose30sessionsinthreetosix
months. The rest of the recommended
therapiesarepaidoutofpocketbyAla-
bama families.”
HagersaidmanyAlabamafamilies
arefinanciallyruinedbyASD.Families
aremakingdecisionsaboutforegoing
basicneedstopaythousandsofdol-
lars per month for recommended ASD
therapies.Manyfamiliesexperience
greatstresspayingforASDtherapies.
Ifparentsforegotherapy,theyexperi-
encedistressbecausetheyfeeltheyare
not able to provide the therapies pre-
scribed for their child.
“I hope and expect that private and
public insurance will continue to ex-
pand coverage for ASD therapies in
ourstateandotherstates,”Hagersaid.
“ASAwillcontinuetoworkwithfam-
ilies, businesses and government to
request expansion of ASD coverage.”
Another area of focus for ASA is job
training, job coaching and educational
opportunities for adults with ASD. The
prevalence rate for ASD is 1 in 88 chil-
dren born in the United States.
“Oursocietyshouldplanforadult-
hood for thousands of Alabama citi-
zenslivingwithASD,”Hagerconclud-
ed. “There are too few job training and
job coaching programs for adults with
ASD. We need more programs that sup-
port adults with ASD in jobs.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s16
Cam Ward
For those on the autism spectrum—
continues to work for treatment and insurance reform
Ashedidlastyear,AlabamaStateSenator
Cam Ward (R-Alabaster) has introduced a
bill to address the broad topic of autism
treatmentandreform.Hislatesteffortseeksto
establisharegulatoryboardforappliedbehavior
analyst(ABA)professionalsinAlabama.
“This legislative session offers a lot of opportuni-
tiesfortheautismcommunityinAlabama,”Ward
said.“OnebillbeingconsideredbytheLegislature
wouldestablisharegulatoryboardforbehavior
analystprofessionalsinAlabama.Comingonthe
heelsoftheRileyWardActwhichwassignedinto
lawlastsession,thisbillwillmakeiteasierforABA
therapytobeofferedtothoseontheAutismSpec-
trum in Alabama.”
Inlastyear’ssession,
Ward sponsored and
passedTheAlabamaRiley
Ward Autism Insurance
Reform Act of 2012. Ward’s
daughterRiley,whoison
the autism spectrum, gave
the act its name. Accord-
ingtotheAutismSociety
of Alabama, the bill “in-
cludesanofferingbyprivateinsurersinAlabama
toofferemployerstheopportunitytopurchase
coverageforemployees’familymembers’ASD
therapiesincludingABAtherapy.Theofferingby
“This legislative session offers a lot of opportunities for the autism community in Alabama,” Ward said. “One bill being considered by the Legislature would establish a regulatory board for behavior analyst professionals in Alabama. Coming on the heels of the Riley Ward Act which was signed into law last session, this bill will make it easier for ABA therapy to be offered to those on the Autism Spectrum in Alabama.”
SenAtor
17T h e A C D D A D v o C A T e F A l l 2 0 1 2
Under the new proposal, which was
craftedbytheinsuranceindustry,Ala-
bamafamiliesarenotguaranteedany-
thing.”But Ward said it was a step in the
right direction.
“While the bill was not perfect, it is
another step down the road to provid-
ing adequate insurance coverage to
those on the autism spectrum,” Ward
said.“Thisbillwillgiveemployersthe
opportunitytoofferinsurancecover-
agefortheiremployeesthatisunprece-
dentedinAlabamatoday.”
Ward said his new bill will add to the
progressachievedthroughlastyear’s
legislative success. “In addition to
increasingtheavailabilityofservices,
thisnewbillwillalsomakeiteasierfor
insurance providers to cover these ABA
therapiesthatsomanypeopleinour
state need.”
Cam Ward
Ward’sbillisnottheonlyoneinthe
current legislative session that address-
es autism awareness.
“Anothermeasuremakingitsway
through the legislative process is a bill
that will allow individuals who have an
autism diagnosis to have their diagno-
sis listed on their driver’s license should
theysowish,”Wardsaid.“Thisbill,
sponsoredbySenatorArthurOrr,will
makesurethatpublicsafetyofficials
are aware of an individual’s diagnosis
shouldtheyencountersomeoneon
thespectrumduringtheirlineofwork.
Thiswillbeapublicsafetybenefitfor
manyonthespectrum.Thesetwobills
are coming up for votes at a time when
the nation celebrates Autism Aware-
nessMonth.Icannotthinkofabetter
time to bring attention to these two
important bills.”
private insurers includes coverage of
AppliedBehaviorAnalysisBehavior
Therapyuptoanannualmaximum
benefitcostof$36,000peryearfora
childnineyearsoldandyoungerwho
has been diagnosed with ASD. The
legislation coincided with a Blue Cross
and Blue Shield decision to triple the
amount of Speech and Occupational
Therapies covered for children with
Autism Spectrum Disorder (ASD) for
familiescoveredbyunderwrittenor
state regulated insurance policies.”
AppliedBehaviorAnalysisisdefined
as“ascientificallyvalidatedapproach
to understanding behavior and how it
isaffectedbytheenvironment.”(The
ACDD Advocate provided a thorough
examinationofbehavioranalysisinan
actual autism treatment environment
in its Winter 2012 issue. This and other
backissuesareavailableatwww.acdd.
org.)
Lastyear’sbillwasheartilyendorsed
bytheAutismSocietyofAlabama.
Butnoteveryonewaspleasedwith
theRileyWardAct’sfinalimpact.Ac-
cording to a press release from Autism
Speaks,thecountry’slargestautismad-
vocacyorganization,thebillfellshort
of meaningful reform.
“The problem with this new proposal
is that it doesn’t require coverage but
requiresonlythatinsurers‘offer’the
benefit,meaningthecostwillnotbe
spread over the entire insurance pool.
SenAtor“Another measure making its way through the legislative process is a bill that will allow individuals who have an autism diagnosis to have their diagnosis listed on their driver’s license should they so wish,” Ward said. “This bill, sponsored by Senator Arthur Orr, will make sure that public safety officials are aware of an individual’s diagnosis should they encounter someone on the spectrum during their line of work. This will be a public safety benefit for many on the spectrum. These two bills are coming up for votes at a time when the nation celebrates Autism Awareness Month.“
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s18
Kevin Braswell was born in Birming-
hamandgrewupMobile.Asastudent
atAuburnUniversity,hedeveloped
intoaself-described“techieguy.”Hebegan
his professional career in Information Tech-
nologyatAccenture,wherehedeveloped
software.
“Asdomanypeople,Ireachedapointinmy
careerwhereIdecidedIwantedtoworkon
myown.Ialsowantedtocontinuetousemy
technologyskills,”Braswellsaid.“Ibecame
interestedinsmarthometechnologywhere
youcancontrolvarioussystems,suchas
lighting,security,andHVACfromatouchpad
or panel.”
Asachild,Braswellhadastrokeandspent
time in rehabilitation since he experienced
moderateparalysis.Ofcourse,backthen
therewerenoAssistiveTechnologydeviceson
themarket.Aftersufferingasecondstrokea
fewyearsago,Braswellwasabletotakeare-
newedlookatsmarthometechnology.
“Atthispoint,Itookastepbackand
thoughtthatmaybeIcouldre-purposesome
ofthesmarthomeequipmentinmyhouse,”
hesaid.“AtheartIwasstillatechieguy,butI
Braswell implements Assistive Technology in residential settings
Part of Alabama’s Universal Design revolution—
T h e A C D D A D v o C A T e F A l l 2 0 1 2 19
alsoknewdeepdownthatalotofpeo-
plecouldbenefitfromthistechnology.
So now I customize equipment to meet
variousAssistiveTechnologyneeds.It
isagreatfitforme.Ihavesortofbeen
in the shoes of people with various dis-
abilitiessoIknowhowmuchfreedom
can be won through the often-simple
applicationsofAssistiveTechnology.
From there, Smart Care was born.”
Auburn resident Eric Peebles is one
ofmanypeoplewhohavebenefitted
from Braswell’s innovative Smart Care
designs. (See sidebar on Peebles in this
issue.)
“TheiPhoneisEric’s‘go-to’device
sowefirstfashionedamountthatpo-
sitioned his iPhone on his power chair
sothatEriccouldeasilyuseit.The
iPhone runs an application, software
that controls his environment. We have
installed eight lights, a programma-
ble thermostat, and a motorized door
lockthatinterfaceswithhisautomatic
door opener. For example, when Eric is
readytoleavehishomefortheday,he
can push a button on his iPhone that
isprogrammedfor‘GOODBYE.’The
systemwillthenunlockthedeadbolt,
open his door, set the thermostat to
the desired level, turn off the lights and
the television. Once Eric is outside, the
systemautomaticallyclosesandlocks
his door. With Smart Care, we can build
unlimited automated programs. For
instance, Eric was worried about high
utilitybillsbecausehehashadcaregiv-
ers leave the window open with the air
conditioning on. We programmed Eric’s
SmartCaresystemsothatifawindow
or door is open for a certain period of
time,thesystemwillturnofftheHVAC.
TheSmartCaresystemhasgreatly
reduced Eric’s power bill. The possibili-
ties are endless.”
Braswell has integrated Eric’s Smart
Caresystemwithhistelevisionand
DVDplayersothathecanalsocontrol
that equipment with his iPhone.
“Standard remote controls can be
challenging for someone with a dis-
abilitybecausetheyrequirelineof
sight.Forinstance,itcanbedifficult
for someone in a power chair to point
aremotedirectlyatatelevision.Smart
Care, however, does not require line
of sight. Instead, it uses a home net-
workandinfraredemitterssothatthe
television(oranyAVequipment)can
becontrolledfromanyroominthe
house. With Smart Care, a person can
also turn off the den television from
thebedroomusingaGOODNIGHTor
ALL OFF command. With that same
command,thesystemcanalsobepro-
grammed to turn off the lights, adjust
thethermostat,orlockthedoors.We
can also add cameras so that when the
doorbell rings, the person at the front
door can be viewed. What we did in
Eric’s case was to customize Smart Care
tomeetEric’sspecificgoals.Thatis
what AT is all about.”
BraswellrecentlyreceivedanACDD
grant to promote awareness of AT and
Universal Design in Alabama. The grant
hastwocomponents:UniversalDesign
andSmartHometechnology.
“A central goal is to create awareness
through an educational campaign. The
grantwillallowustounitestakeholders
such as Independent Living Resource
Centers and other organizations that
focus on assisting people with disabil-
ities with members of the Alabama
housingindustry,topromotetheben-
efitsofUDandAT.Theultimategoal
of educating our landlords and home-
builders is to produce housing units for
people with disabilities. The coalition
couldcreateahousingcertification
thatmeetscertaincriterialikeLEED
(LeadershipinEnergyandEnviron-
mentalDesign),whichisavoluntary,
consensus-based,market-drivenpro-
gramthatprovidesthird-partyverifica-
tion of green buildings.”
“Wewanttoestablishguidelineslike
LEED for accessible and smart homes.
Thistypeofcertificationshouldleadto
a‘stampofapproval’sothatsomeone
withadisabilitycouldeasilysearch
for a home or apartment that meets
their needs. We hope to develop a
searchterminMultipleListingService
(“MLS”)and,ofcourse,wewantto
leverage the Council’s excellent AL-
HousingSearch.org program.”
“With universal design and smart
hometechnology,independentliving
forpeoplewithdisabilitiesisdefinitely
achievable. At Smart Solutions, our
mottoissimple:SmartHomes,Smarter
Living.”
“The iPhone is Eric’s ‘go-to’ device so we first fashioned a mount that would hold his iPhone on his power chair and make it accessible by his remote. The phone runs an application, which is software that can control his home environment. We have wired seven or eight lights, a thermostat control, automated door locks, and interfaced the app with his door opener. For example, if Eric is ready to go and leave for the day, he can run the app on his iPhone that is programmed for ‘GOODBYE.’ This app will then unlock the deadbolts, set the thermostat, and turn off the lights and the television.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s20
Eric Peebles is a believer in Smart
Hometechnology.Peebles,who
has severe disabilities to go
alongwitharesilientspirit,recently
workedwithKevinBraswellandSmart
Care to upgrade his Auburn condo-
miniumwithsmarthometechnology.
“Smarthometechnologyingeneral
isgoodforpeoplewithsignificantdis-
abilitieslikemyselfbecauseitleadsto
greater independence,” Peebles said.
“As a result of the innovations we made
inmyhome,Iamnowwithoutacare-
giverforfourtosixhoursadaybecause
Icanusethetechnologytocontrol
muchofmyownenvironment.Just
to be able to go outside and turn the
lightsonandoffbymyselfisamajor
seachangeinmyhomeenvironment.”
Peebles said that in addition to the
greater freedom and independence
Eric Peebles is living proof—
provides quality of life, cost controls
Smart Home Technology
thesmarthomeprovides,theremay
be other advantages to the emerging
technology.
“Fromapolicyperspective,Ithink
that in the long run this could save
healthcareprogramsalotofmoney,”
hesaid.“IhadknownKevinasaven-
dor from our AlaTec conference and
webegantalking.Theyoungkidswho
workformemightsometimeleavea
windowopenandrunupmypower
bill,somethinglikethat.Sothereare
simple, practical reasons for this. But
weagreedthatweshouldtrytoturn
this into more than just installing a
dooropener.Iknewthiswouldhavea
large up-front expense, but I am willing
totakethatriskbecausemytheoryis
all about providing a positive model for
people with disabilities. If this could
helppeoplestayintheenvironmentof
“Smart home technology in general is good for people with significant disabilities like myself because it leads to greater independence,” Peebles said. “As a result of the innovations we made in my home, I am now without a caregiver for four to six hours a day because I can use the technology to control much of my own environment. Just to be able to go outside and turn the lights on and off by myself is a major sea change in my home environment.”
Smart Home Technology
T h e A C D D A D v o C A T e F A l l 2 0 1 2 21
their choice for longer than it otherwise might, this
is good. This is a game changer.”
Peebles said most programs for people with dis-
abilitiesacrossthecountryallowtheintegration
ofITintothemarketandhome.Hewantstosee
more of that.
“Ifwecangetthemedicalcommunitytobuy
into this and help support people with disabilities
tofrontthatone-timecost,itmayverywellpay
foritselfinthelongrun.Oncethetechnologyis
inplace,it’stheretostay.Theexpensegoesaway
and the supports remain in place. Fewer care-
giverhourswilladdupovertheyears.Andthis
isn’tjustforpeoplewithdisabilities.Thiskindof
technologycouldalsohelppeopletoageinplace.
Itimpprovesqualityoflifeformanydifferentpop-
ulations.”
Peeblesexperiencesthatqualityeveryday.
“WhenKevinandIhadmostoftheprogramin
placeandhewaspreparingtocomebackthenext
weekandfine-tuneeverything,Isenthimatext.I
hadopenedupmydoor,goneoutontomyporch,
andreadthemorningnewspaperonmyiPhoneall
bymyself.Littlethingslikethatmatter.It’sabout
qualityoflife.”
“If we can get the medical community to buy into this and help support people with disabilities to front that one-time cost, it may very well pay for itself in the long run. Once the technology is in place, it’s there to stay. The expense goes away and the supports remain in place. Fewer caregiver hours will add up over the years. And this isn’t just for people with disabilities. This kind of technology could also help people to age in place. It impproves quality of life for many different populations.”
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s22
Using the Huntsville area as an example—
Thefutureofthehousingmarket,
both in new construction and
intheremodelingindustry,is
moving toward a focus on universal
design and aging in place. The concept
of “universal design” is the adaptation
of a house design to existing and future
physicalneedssotheownerscanlive
there as long as possible. Another term
used with universal design, is “aging in
place.”
Housing market evolves with aging population
ByJohnAllen
These features must be considered
bybuildersanddevelopers,especially
astheBabyBoomergenerationbegins
toimpactthismarketsegmentwitha
desireforthesefeatures.Itmaycome
asnosurprisethatBabyBoomershave
foundtheHuntsvilleareaanattractive
placetolive,butitappearstheyare
alsofindingitagoodplacetoretire.
Boomers are a substantial segment of
theareamarket,andtheyarecontinu-
ing to reinvest in older subdivisions
wheretheyraisedtheirchildrenand
further contributing to the area growth.
TheHuntsvillejobmarketoftenpro-
videstheconnection,bringingmany
Boomers to the area, and some retirees
fromthemilitary.Manywhoworked
at the Arsenal, but relocated, often
return and others locate here to follow
childrenemployedinthearea’sstrong
technologyindustry,orjusttobecloser
to grandchildren.
Knowingthattheprocessofaging
is continual, and that the cost of long-
termcareisstaggering,manycost
effective options exist that can be im-
plemented into new construction or a
remodeling project that will allow aging
inplace.Specifically,withaveragecosts
of long-term care in the average range
of$5000-$7500permonth,areturnon
investment can be calculated rather
easilytoanswerthequestionofim-
plementing these features up front in
thebuildingprocess.Typicalfeatures
include light automation, in-house au-
dioandvideo,accessiblecabinetryand
bathrooms,accessibleentrypoints,
hardsurfacefloorsystems,in-house
vacuums, and even appliance selec-
tions. If a person opts to “age in place”
byremodelinghisorherhouseinstead
of new construction, popular options
include creating accessible bathrooms
andkitchens,andaddinganaccessible
masterbedroom/bathonthemain
level. All of these options should be
investigatedwithaneyeonthebudget
andaneyeonthefuture.
Manypeoplearealsomakingtheir
homesmoreenergyefficientasthe
costofenergycontinuestoriseasan-
otheroften-overlookedaginginplace
feature.Manydounderstandthecor-
relation between the opportunities that
greenbuildingyieldtheconsumerin
energyandresourceefficiencyinares-
idence.Theyknowthatgreenbuilding
is an investment up front and does cost
additionalmoney,butthepayoutover
the long term is acceptable for that
investment.Optionssuchasenergy
efficientHVACsystems,superiorin-
sulationsystems,andenergyefficient
water heating and lighting all contrib-
utesignificantlytoalowerutilitybillin
the future.
Currently,therearemanyuniversal
design features in existing choices that
canbemadeinthemarketplacetoday.
For instance, the simple choice of lever
handle sets versus round or oblong
handlesetsisaneasychoiceforacces-
sibility.Otherchoicesexistinlighting
fixtureselectionsaswellaslighting
John Allen, president of Southern Construction & Design, Inc.
Knowing that the process of aging is continual, and that the cost of long-term care is staggering, many cost effective options exist that can be implemented into new construction or a remodeling project that will allow aging in place. Specifically, with average costs of long-term care in the average range of $5000-$7500 per month, a return on investment can be calculated rather easily to answer the question of implementing these features up front in the building process.
T h e A C D D A D v o C A T e F A l l 2 0 1 2 23
locations. Areas such as counter-
topsinthekitchenandlaundry
needtobetargetedwithspecific
tasklightingwithunder-cabinet
lightingfixturesorspotlighting.
The proliferation of touchless bath
andkitchenplumbingfixturesis
a great example of off-the-shelf
technologyavailablethatcanim-
mediatelybringlevelsofuniversal
designintoanyprojectnewor
remodel.
The National Association of
HomeBuildershasaneducational
designation available for profes-
sionalsintheindustry.Thisisthe
CertifiedAginginPlace(CAPS)
designationandisathree-day
training course in aging in place
and universal design implemen-
tation. Local experts that have
achieved this designation can
be found at www.nahb.orgorby
callingtheHuntsvilleMadison
CountyBuildersAssociationat
256-533-2602.Theseprofession-
alscanassistyoufromdesignto
selectionoffeaturesforyournext
home project.
John Allen, president of Southern Construction & Design, Inc., has been building cus-tom homes and providing remodeling services to the Huntsville/Madison County area for over 15 years. SCD has been awarded 13 statewide awards in the Alabama Remodeling Excellence Awards program, and in April of 2011, won the National Universal Design Ac-cessibility Award from United Cerebral Palsy. In August of 2011, SCD received the Building/Construction/Development Award from the Tennessee Valley Green U Festival. Mr. Allen is an Alabama licensed residential homebuilder, a Graduate Master Builder (GMB), Certi-fied Graduate Remodeler (C.G.R.), a Certified Aging in Place Specialist (C.A.P.S.), Certified Green Professional (C.G.P.), and NAHB National Green Building Verifier. He is also a li-censed professional engineer (P.E.) in the State of Alabama.
Side mounted motion sensing flush operators
Sensor operated plumbing faucets
Hands-Free Devices
New Building TechnologiesAppliances/Cabinetry
New Building TechnologiesPlumbing
Front Mounted Controls
Range Top, Induction
Surface
DrawerDishwasher
DrawerMicrowave
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s24
New Building Technologies (Continued)
Upper Cabinet adjustable height technology
Accessible Storage
• Manifold Plumbing
Systems
• PEX Piping - ‘Freeze’
Proof
• Instant Fixture
Water Control
• Flush Mount
Exterior Faucets
Walk In Tub/Shower
Video Surveillance
Infrared, 0 lux, DVR recordable, Internet accessible, Stream to mobile devices, iPhone, iPad, etc.
T h e A C D D A D v o C A T e F A l l 2 0 1 2 25
Goal is Universal Design and service to others—
By Dr. Doris Hill
develop customized assistive-technology
Veterans, students collaborate,
assistive technology (at) is defined as “any item or piece of equipment
or product system acquired commercially, off the shelf, modified, or
customized, and used to increase, maintain, or improve functional
capability for an individual with disabilities” that enhance an individual’s ability
to perform everyday life activities. Unfortunately, at devices are not always
designed and developed using an individualized, holistic, psychosocial approach.
for the past four years, the department of Special education, rehabilitation, &
counseling’s center for disability research and Service at auburn University has
collaborated with the department of Industrial and Graphic design to generate
conceptual solutions to the needs of those with disabilities in the areas of
employment, education, independent living, recreation, and transportation.
These efforts meet the needs of the individual with
adisabilitybyprovidingacollaborativeinterfacebe-
tween researcher, rehabilitation student, designer, and
thepersonwithadisability.Theparticipantsinthis
year’suniquecollaborationareUnitedStatesmilitary
veterans with disabilities. The products generated this
yeararefundedthroughtheAuburnUniversityIntra-
muralGrantProgram(AUIGP),enablingmanyofthe
concepts to be brought to completion. Participants
were recruited through various organizations, such as
theArmyWoundedWarriorprogram,Veteran’s
Affairs Prosthetics Unit, and the Warm Spring
Rehabilitation Center. Six participants were
screenedbasedondisability,challengesand
opportunitiesfornewAT.Participant’smilitary
servicerangedfromtwotoover21years.All
participantsmadeitclearthattheyaremotivat-
ed to provide service to other veterans through
their participation in the project.
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s26
Identifying the ChallengesAt the start of the project, under the
supervisionoffacultymembersJerrod
Windham,ScottRennerandDorisHill,
eachgroupidentifiedthreespecific
challenges (opportunities) to address.
Theteamsmetagaintwoweekslaterto
address these challenges and present
possible solutions. Following are some
of the ideas and products that were
earmarkedforprototypedevelopment.
1. Earl DanielsisanArmyveteran
with21yearsofmilitaryservice,
losthisrightlegbelowtheknee
inamotorcycleaccidentandhas
been using a prosthetic for three
years.Earlstillserveshiscountry
asacivilianArmyTrafficSafety
Program instructor. Challenges
for Earl included limited range of
mobilityintheprosthetic,which
restrictshispropermotorcycle
riding position. In addition, when
he is in the riding position on the
motorcycle,thebackofthepros-
thetic will pinch his leg, cutting off
circulationandpinchingtheskin.
2. Andrew Wiessenberger is an
Armyveteranwhoservedasa
combat engineer and medic, and
hadbeenqualifiedasacombat
lifesaver.Hisdeploymentsinclud-
ed service during the Gulf War,
Afghanistan, and three tours in
Iraq.HewasinvolvedinsixIED
explosions during his tours and is
a wheelchair user with injuries to
his spine and legs as well as a trau-
maticbraininjury.Heexpresseda
desiretostartanon-profitforvet-
erans living alone. Andrew would
benefitfromastand-upassist,
andbelievesthistypeofdevice
would help others with limited
strength move to a standing posi-
tionindependently.Healsonoted
that the control panel for the chair
obstructshisabilitytonavigate
sinceitsticksout,limitinghis
abilitytogetclosetoadesk,and
requireshimtopullthestickall
thewayback,whichisuncom-
fortable.Andrewenjoysfishing,
hunting, and shopping, but his
chairhasnoframe,basket,orbag
fortransportingitems.Hewould
likeauniversalcarrierthatcould
befoldedandputawaywhennot
in use to save space.
3. Henry Harris,alsoknownas
“Sonny,”isaVietnamveteranwho
usesabelow-the-kneeprosthetic
as well as a wheelchair to navigate
throughhisdailylifesincelosing
hisleg.Heexperiencesbalance
issues,butsayshe“keepstrying”
so that he won’t lose his other leg.
Hesaidhewouldlikealighter
temporarylegtogetaroundfor
short periods of time at home.
Whileinhischair,Henryoftenhas
difficultyreachingitems,plugging
and unplugging electrical cords,
getting mail from the mailbox, and
pickingupdroppeditems.Hehas
difficultynavigatinghillswithhis
currentchair.Headmitsthechair
he uses is a less expensive version,
butwouldlikeATtomakeupfor
some of the more expensive fea-
tures included in other chairs.
4. Marshall Nelson,alsoknownas
“Mac,”isaVietnamveteranwho
stepped on a land mine in 1967,
resulting in the loss of his left leg
belowtheknee.Hesincegraduat-
ed from Auburn and retired from
USDepartmentofAgriculture.He
hasusedaprostheticfor40years.
Helikestofishandhunt,andwill
oftencarryheavyitems,witha
resultingsorekneeatthebaseof
theprosthetic.Heusesa“regular”
hotel room when he travels, but
said a portable accessible travel
bar would help him navigate the
shower when traveling.
5. Robert StrappisaNavyveteran.
Hisrightlegwasamputatedseven
yearsagoandheusesaprosthetic
aswellasawheelchair.Heis6’2”
inchestallandfindsmostcrutch-
es do not support his large frame
when navigating on his prosthetic
leg.Hewouldlikeacustomized
crutch-likedeviceforbalanceso
that he can have his hands free
forotheractivities(e.g.,makinga
sandwich, getting something out
of a cabinet).
6. Jesse Upshawisa70-year-old
Vietnam-era veteran with a career
ofpublicservice.Hehasadegen-
erativeInclusiveBodyMyositis
(IBM)oftendiagnosedasALS
whenfirstacquired.TheNational
InstituteofHealthiscurrently
conductingastudytodetermine
whether this disease is higher in
militarypopulations.Becauseof
the degenerative nature of the dis-
ease,supportsforJesseatvarious
stageswouldbebeneficial.He
needstheabilitytoaccesshisown
technologyandbeabletoutilize
personal items and electronic de-
vicesfordailyliving.
Prototype DevelopmentEquipment for this part of the pro-
cess included visual concept drawings
andresearchoftheexistingmarketbe-
forethemovetowardprototypedevel-
opment. For some individuals, the pro-
cessoffindingexistingATandlearning
howtouseexistingtechnologybecame
as important as developing something
new.Betweenthefirstandsecond
meeting, three to four hours were spent
teaching several veterans how to access
and use existing voice recognition soft-
wareandtoolscurrentlyavailableto
increase independence.
Twoweeksaftertheinitialmeeting,
the six collaboration teams met to pres-
ent, discuss, and narrow down poten-
tial AT devices for further development.
Projected development timelines were
considered in the selection process,
with less expensive, short timeline
items given weighted consideration,
due to funding constraints and the de-
sire to provide the AT device at the end
of the project. Other ideas were identi-
fiedtopursuebeyondthecollaboration
27T h e A C D D A D v o C A T e F A l l 2 0 1 2
studiotimeframeoffivemonths,with
continued input from the veterans.
1. Earl. For Earl Daniels, consider-
ationofhisuseofamotorcycle
drove the innovations of this team.
The team focused on addressing
thesocketfortheprostheticand
attachment to the residual limb
as well as redesign of the foot peg
forthemotorcycle.Aprototype
inflatable sleeve and flexible edge
forthebackoftheprostheticwere
developed for the mid-project
presentations. Earl donated extra
prosthetic parts to the project in
order to assist the research project
and to help other veterans.
1. Andrew. The team focused on an
assist to move from the chair to
astandingposition.Theythen
lookedataleverattachmentfor
the footrest, since Andrew found
kickingupthefootrestannoying
andinefficient,asitwouldoften
fallbackdownandcreateasafety
riskasheattemptedtostand.He
also found that the control panel
wouldgetinthewaywhenhe
tried to maneuver under a table.
Theteamlookedatadaptingthe
holder for the control panel so
that he could stow it to the side
when maneuvering under a table.
Aprototypelaptraywasalsode-
velopedandtestedbyAndrew.He
indicated that the device would
workwellandsuggestedafewre-
finementssuchasaleveling“leg”
to rest on his exiting wheelchair
arm to stabilize and level the writ-
ing surface.
1. Sonny.Henry“Sonny”Harrisand
histeamidentifiedbathroom
assist bars, and several versions
of wall plug adapters to assist in
removing plugs from the wall.
Duringtheprototypephase,sev-
eral “grip” attachments were test-
ed.TheVelcroTMcompanydo-
natedsomefireproofVelcrostrips
foruseinprototypedevelopment,
enhancing the collaborative na-
ture of the project.
1. Mac.ForMarshall“Mac”Nelson,
the focus was on hunting and lei-
sure time. These included an all
terrain cart or carrier for hunting.
Theyalsowereinterestedinapor-
table grab bar for traveling since
Macdoesnotrequestaccessible
accommodations when traveling.
PrototypesforMacfocusedona
moveable portable transfer tub
attachment to facilitate move-
ment from floor to inside the tub.
Input from other veterans present
includedmakingthefinalprod-
uct more universal so that those
withabilitytoresttheirweight
on the residual limb could do so,
while those who needed to sit and
transfer could use the device as
well. Incorporating universal fea-
tures and thoughts regarding the
balance and motor issues of aging
individuals was inherent in the
design process.
1. Robert. Challenges included those
encounteredbytheveteran,as
wellasthoseencounteredbyhis
spouse as she assisted him in his
dailyroutine.ForRobert,awalk-
er without wheels that was high
enoughtoprovidestabilitywith-
out leaning over was an important
goal. Another idea involved a
backpackcarrierdevicetocarry
his lightweight but cumbersome
walker,whichoftenmadeitdiffi-
cult to push the wheelchair while
carrying.Thebottomofafour-
prong aluminum cane was adapt-
ed to a set of existing crutches to
constructa“hybrid”devicetoen-
hancebalanceandstabilityaswell
asincreasetheheightofthefinal
device.
1. Jesse.Mr.Upshawoftenspends
some time alone in his house
duringtheday,withsomeofthat
time spent in his bed. The team
lookedatATtoprovidechoices
whileinbed,bydevelopingade-
vicewithapinchingmouthstick
to operate his electronic devices.
ATfacultyalsospenttimewithJes-
se outside the collaboration studio
to familiarize him with existing
devices that could serve as AT as
hisneedschanged.ATprototypes
for the mid-collaboration presen-
tations included a switch activated
bythewheelsofhischair,aswell
asquickreleasemouthsticks
andadockingdeviceforvarious
mouthstickattachments.
Equipment for this part of
the process included visual
concept drawings and research
of the existing market
before the move toward
prototype development.
For some individuals, the
process of finding existing
AT and learning how to use
existing technology became
as important as developing
something new. Between the
first and second meeting,
three to four hours were spent
teaching several veterans
how to access and use existing
voice recognition software and
tools currently available to
increase independence.
A l A b A m A C o u n C i l 0 n D e v e l o p m e n t A l D i s A b i l i t i e s28
T h e A C D D A D v o C A T e F A l l 2 0 1 2 29
Impact of the AT Collaboration Model
Participants included spouses and
caregivers, which was a new addition
to the collaboration model. All par-
ticipantswereactivelyinvolvedinthe
discussionfromthefirstintroduction
totheiruniversityteamofrehabilita-
tion and industrial design students.
The focus and perspective of the par-
ticipants and student veterans was a
little different than past sessions. These
participants, while open about the na-
tureandscopeoftheirdisabilityand
oftheirservicetonation,werequick
tostatethattheywantedtohelpother
veterans and found that to be a critical-
lyimportantpartoftheirparticipation.
The project teams dedicated time and knowledge to the project. Their energy and attitude made the project a success.
Group and Participant Industrial Design Students Rehab Student(s)Group 1Earl Daniels
Jonathan DunnRyan Freeman
Brian DaileyRyan Marcoupolos
Group 2Andrew Weissenberger
Tianyu CuiChristopher WilliamsMarcus Crawford
Samantha Holland
Group 3Henry Harris
Zhe MeiYing Su
Duane Kirk
Group 4Marshall Nelson
Nathan KinneyKai Selvon
Emily Merriman
Group 5Jesse Upshaw
Alex SzczepaniakPatrick West
Angela Moorer
Group 6Robert Strapp
Emmie MayneHailong Piao
Jared Rehm
Iftheypersonallygainedfromthe
collaboration that would be great, but
just as important was that it might help
otherveterans.Theyvaluedthatidea
highly,inthespiritofservicetoothers
andthetrainingtheyreceivedwhile
servingtheircountry.Theideaofmak-
ing a difference through participation
inthis“livinglaboratory”andcontinu-
ing a tradition of service to others was a
strong theme. All participants thought
abouthowtomakethedevicesappli-
cable to other populations of veterans
through universal design.
With the number of veterans with
disabilitiesgrowingexponentially,and
reductions in force pending, innovative
programstosupportveteransasthey
transitionfromthemilitary,including
those new to their disabilities, is im-
portantwork.Inthismodel,thevet-
eran is an integral part of the research
and design process. The interaction
with students and communication with
otherveteransgreatlyenhancedthe
project. The value and importance of
the collaborative effort is worthwhile
notonlyfromatechnologystandpoint
butbecauseitisinkeepinginthetra-
ditionofteamworkcentraltomilitary
training. This collaboration effort is
alsoinkeepingwiththetraditionof
“MissionFirst,PeopleAlways,”and
these veterans and their student teams
lived this ethos through the entire AT
Design process.
The following organizations and people gave their commitment and support to the research project and deserve acknowledgement.
Joellen Sefton- Auburn University Department of Kinesiology
Michael Oviedo, prosthetist, Central Alabama Veteran’s Healthcare System,
Jackie Collins (works with Mike Oviedo in CAVHS)
LTC Veronica Kouassi, Warrior Transition Battalion Commander
CSM Thomas LaGare, Warrior Transition Battalion Command Sergeant Major
Hakim Muhammad, Alabama Wounded Warrior Coordinator
Alabama Council on Developmental DisabilitiesRSA Union Building 100 North Union Street P.O.Box301410Montgomery,AL36130-1410
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