Who are we ?Who are we ?

• VISION – high quality, patient-centred equitable healthcare throughout the EU

• MISSION – to present a strong and united patients’ voice 150 MILLION PATIENTS, almost 50 members

• GOALS• Equal Access• Patient Involvement• Patients’ perspective• Sustainable patient organisations• Patient Unity

ObjectivesObjectives

• Building capacity• Strengthening our policy impact• Harnessing patients’ own evidence• Extending our membership• Developing communications and

partnerships• Diversifying the funding base

• CONSOLIDATION AND GROWTH• ECONOMIC and SOCIAL CRISIS

Achievements 2009/2010Achievements 2009/2010

EQUAL ACCESS FOR PATIENTS• EPF Seminar on Health

Technology Assessment and Annual General Meeting

• Major policy themes• Patients Rights in Cross

Border Health Care• Patient Safety• Pharma Package• E-health / Telemedicine• Clinical Trials• Medical Devices

Achievements Achievements

2009/2010 2009/2010 PATIENT INVOLVEMENT

• “VALUE +” on the meaningful involvement of patients in EU health projects• 3 core deliverables widely

distributed, translations• Landmark conference under

the Swedish Presidency, Gothenburg December 2010

• Ongoing success – DG RESEARCH, IMI

• EPF representation in major EU level health Forums, Consultative Committees and Working Groups doubled in the last year

Achievements Achievements

2009/2010 2009/2010 PATIENT INVOLVEMENT

• Leadership of a parallel session on Cohesion Policy / Structural Funds at the Open Health Forum, June 2010

• Positions EPF at heart of campaign work to ensure Health ( + patients) is a key feature in current and future programming

• Enhanced credibility – SANCO and fellow stakeholders

• Concrete application – Value+ products / resource for patients

AchievementsAchievements 2009/20102009/2010

PATIENTS’ PERSPECTIVE • EPF Manifesto “150 Million Reasons to act” campaign-

outreach work with/by our members• EPF – speaker ,chair or moderator in over 50 EU health

meetings each year - ensuring or safeguarding the patients’ perspective

• Active support 120 MEPs - all EP Groupings - close relationship with key rapporteurs on main health dossiers

• Continued strong input in European Medicines Agency• Continued alliance building with health professionals and

other health stakeholders

AchievementsAchievements 2009/10 2009/10

SUSTAINABLE PATIENTS ORGANISATIONS• Significant political work on core funding from the

European Commission • Diversification is key – new EU projects, new

corporate partners – pharma, MD, IT, Foundation funding

• Membership Guide and Review of EPF by members• Regional Advocacy Seminar in Sofia – 50 patient

leaders from Bulgaria and neighbouring countries • This Regional Advocacy Seminar focus – young

patients – development of a youth strategy

AchievementsAchievements 2009/10 2009/10

PATIENT UNITY• Extension of the membership to 44 Members – 6

more expressions of interest• Focused work where no national platform e.g

Portugal• Policy Advisory Group – operational – key resource• Strong relationship with allies - European Cancer

Patient Coalition, IAPO

CommunicationsCommunications

• New Website Launch – February 2010

• Accessibility – Approved by HON• Content Management

System• Social Media Strategy

• ePlatform for young patient leaders ?• YouTube – in house and

external videos

• New Look EPF Mailing – based on members’ review

Maintaining MomentumMaintaining Momentum• Patients Rights in Cross Border Healthcare• Next Milestone – Belgian Presidency Event 1

December, eve of Second EP Reading• Pharmaceutical Package• Information to patients remains controversial

dossier -some inroads,• Pharmacovigilance and anti-counterfeiting-

adoption imminent – need to explore next steps – PI in transposition

• Clinical Trials Directive• Health Technology Assessment• eHealth• Health Inequalities – Health Literacy

New Policy DossiersNew Policy Dossiers

• Needs and rights of Older Patients• Adherence to medicines / concordance• Personalized Medicines• Medical Devices• Non – Discrimination legislation• Bridging prevention and chronic disease

management• Moving forward with conclusions from

this meeting - Youth strategy

New Project DossiersNew Project Dossiers• eHealth Governance and Thematic Network• Chain of Trust – building confidence and

acceptance in telemedicine solutions• Interquality – Maintaing quality and sustainability

of health care systems• Joint Action on Patient Safety and Quality of Care• IMI project consortium – education and

communciation of pharmaceutical research to patients

• FP7 project on communicating health research to patients

Milestones in 2011Milestones in 2011

• Annual General Meeting (Spring) capacity building and open space for members’ networking, Brussels

• Regional Advocacy Seminar in Romania – Focus – collaboration with Health care Professionals

• Meeting the needs of older patients – Polish EU Presidency Conference – second semester

• Policy Advisory Group and Patient Evidence Base Workshops

2014-20202014-2020

Next EU Programming PeriodMajor focus – meaningful patient involvement• New EU Public Health Programme• 8th Framework Programme on Research

and Development ( health component)• Cohesion Policy and Structural Funds• Health in All Policies

2011 – development of campaign strategy and partnerships

Key messagesKey messages

• EPF is making a measurable difference

• Our strengths - our members’ expertise, experience

and solidarity - our uniquely patients’ perspective- our commitment to partnership• We value your participation in this

seminar and look forward to an ongoing collaboration

• The young patient’s voice in EPF