6370 LBJ Freeway

Suite 170

Dallas, TX 75240

(972) 620-7600

www.daps.us NOVEMBER 2018

INSIDEspeaker bio 2

thank you 2

8 things caregivers need 3

ntgd donations 4-5

member profile 5

memorials, honors, donations 6

executive director’s message 6

upcoming events 7

daps gems 8

CARING FOR LOVED ONES WITH PARKINSON’S AND

A MENTAL WORKOUT TO BOOST BRAIN HEALTHDAPS Board Member Jared Caplan was our guest speaker at the September General Membership Meeting in Dallas. His presentation focused in part on the goals and values of “mental workouts.”

Anecdotal evidence strongly supports the idea that exercising our brains is just as important as exercising our bodies. To demonstrate this, Jared inserted several fun puzzles at different points during his presentation. The puzzles included optical illusions, brain teasers, and riddles that were pretty challenging. Everyone got into the spirit of trying to be the first to get the right answer.

Jared also spoke about “Live-in Care.” We learned who typically needs it and who typically provides it. This level of care is sometimes provided by spouses or adult children. However, there are times that Certified Nursing Assistants and Home Health Aides might be more appropriate. When considering which option is right for your situation, it is important to ask:

• What can the individual do for themselves?

• What kind of physical care is required?

• What kind of cognitive care is needed?

• Are there any resources available for in-home support or medical equipment?

Some things to keep in mind as you make decisions about live-in care:

• Are there one or more caregivers—family or professional—who are physically and emotionally able to handle the person’s need?

• Are the living arrangements in the home limited, or can they be adapted to accommodate a live-in caregiver?

Thank you, Jared, for your presentation that addressed the decisions, challenges, and resource needs of providing live-in home care.

What do you see? A rabbit or a duck?

NOVEMBERgeneral

membership meeting

Speaker:

Martha Fiddes (See page 2 for speaker bio)

Topic:

Approaches to Mobility & Wellness

Location:

University Park United Methodist Church

Fellowship Hall 4024 Caruth Blvd (at Preston)

Dallas, TX 75225

Monday, November 12

1:00 p.m.

As always, light refreshments will be served.

We look forward to seeing you!

Dedicated to impacting and improving the lives of those affected by

Parkinson’s disease

Executive DirectorMike Miles

Board of DirectorsChad Swank, Ph.D., President

Jo Klein, Vice President Barbara Glass, Secretary

Greg Wood, Treasurer Jim Struble, Advisory Council Liaison

Advisory CouncilSarah Atwood Charlene Noe Ben Casey Sandi Pautler Carlie Dorshaw-Moe Joyce Susman Pat Goukler Barbara Taylor Shirley Hand

Medical Advisory BoardShilpa Chitnis, M.D., Ph.D. Richard B. Dewey, Jr., M.D.

Thomas D. Franklin, Jr., Ph.D. Richard L. Fulbright, Ph.D. Dwight C. German, Ph.D.

Pravin Khemani, M.D. Aashoo Mentreddi, M.D.

Padraig O’Suilleabhain, M.D. Nirav Pavasia, M.D.

Alexander Peralta, M.D. R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

NewsletterJill Dominguez, Managing Editor Pam Michel, Production Editor

The DAPS newsletter is published monthly as an information guide only, and does not serve as legal or

medical advice. We welcome your feedback, contributions or requests. Please send to or contact:

Carrie Marquis 972-620-7600

carrie@daps.us

All submissions must be received by the first of the month preceding publication date

and are subject to editing.

Jared CaplanChris ClausenPatty CookMartha FiddesBentley FosterHarold Kellogg

Mary Ellen MaloneChick MartinFred RansdellMarilyn StewartBob Vlach

NOVEMBER SPEAKER:

Martha Fiddes, PT, GCS, CQM

PAGE 2 • DAPS • NOVEMBER 2018

We appreciate the sponsors for our October General Membership Meeting!

Martha Fiddes PT, GCS, CQM, is Corporate Director of Post-Acute Management Services. She is a physical therapist with over 30 years of experience and is also a Board-Certified Geriatrics Clinical Specialist. She is a certified yoga, Pilates, and Tai chi teacher, as well as a Certified Qigong Master.

Finding qigong to be a powerful healing modality, Martha teaches it to Veterans to help manage PTSD, and at inpatient and outpatient drug rehab centers. She teaches over 50 different continuing education courses for nurses, social workers, and case managers.

Martha is on the Board of Directors for two local non-profit organizations: Dallas Area Parkinsonism Society and Ed-U-CARE.

Martha makes her home in Arlington, Texas. She has two grown children and a cat named Haley. Her hobbies include piano, playing crystal bowls, and gardening. When practicing yoga, Tai chi, and Qigong, Martha prefers doing them outdoors among the trees.

Many thanks also go to our October meeting volunteers!Anna GortanaMarcela Ortiz

Greg RectorHolly Smith

Xanthy SotiriadisAngie Weich

It’s not uncommon for spouses to decide to leave when the other gets sick. I think it could be a matter of “having had it up to here” and then finding out the one you’ve “put up with” for so long now has a condition that will most likely make your life—and theirs—a lot more difficult. Parkinson’s may change the relationship between a married couple. Bonds between a father and son. Between a mother and daughter. Friends. It comes in and subtly takes away the ties that once bound these relationships together.

The PD patient changes.They are physically familiar, but mentally and emotionally, they’re not the same. And the caregiver is left struggling with how to deal with this new role in life: taking care of someone else while taking care of themselves.

If you are a caregiver to anyone, first of all, thank you for your commitment and sacrifice. You might get hit, have to change yet another big girl or big boy diaper, clean up another spill, or wash another naked body, but we (your charges) appreciate you more than we might be able to say or show.

Following are eight little things you can do as a caregiver that will, hopefully, make your role easier:

• Breathe deeply and when you get one free minute, do one thing that puts a smile on your face. Go out to the garden and breathe in the fragrance of a rose. Put on encouraging music. Read a short devotional. Fix a cup of tea. Scream. Screaming is highly underrated.

• Don’t focus on the what-ifs. They’ll defeat you most every time. Do focus on “now.” It may seem like a tremendous struggle at the moment, but things could be worse. Today may be one of the harder days, but when the clock strikes 12, it’s a new day. Something wonderful could be ahead, waiting to happen. Your patient may turn into a pumpkin! Don’t lose hope.

• I f you don’t have one already, get a sense of humor. Without one, you’ll often despair. Find something funny in every day. You need to laugh.

• Get yourself into a support group locally or online. You may not think you need it, but you do. Especially as the road becomes bumpier. And it will get bumpier. Get some support in place now, as it will make things easier to deal with later.

• You need your friends. Don’t alienate them by thinking you can do this by yourself. Accept their invitations to help. Accept an hour off, washing the dishes, picking up some groceries, dropping the kids off at practice, or cooking your family a meal. Give yourself some slack and let your friends feel needed, because if they are offering to help before you have even asked, they may see your need better than you can.

• Try to think ahead. Your loved one’s mental faculties may not be so great anymore. A daily schedule may be useful, with a reminder for doctor’s appointments, visitors, special occasions, etc.

• Don’t beat yourself up. There will be good days and bad days. You may have more bad days now due to your new, unwanted role. And because this admittedly is an unwanted role, you feel like your life has been swallowed up along with the one you’re caring for.

You have thoughts of packing it in. Giving up. Throwing in the towel. Walking away and leaving the patient to fend for himself or herself. You’re tired, weary, spent, worn out. You want it to end and you feel guilty for thinking and feeling the way you do. And it’s OK. It’s normal. You’re caring for the one you’re grieving, while at the same time grieving what you’ve both lost already and what you could very well lose still. It’s OK to be frustrated, to go outside for a reprieve and scream. It’s OK to let the tears flow. Just remember: The one you love is in this fight with you, not against you. They just aren’t able to fight as they once did. Try to remember them as they were 10, 15, or 20 years ago when you laughed together and lived life together.

Also try to remember that if your husband could get out and mow the lawn again, he’d do it in a heartbeat. If the wife you care for could brush her own teeth and tie her own shoes, you’d both be ecstatic. Whatever you’re losing, they are losing as well. They’ve been dreading the days to come with a vengeance.

If they could, the one you are caring for would take this bitter cup from you. However, that cup may one day soon be empty, so enjoy it now while there is still some liquid left, even if sour at times.

Reprinted with permission. ParkinsonsNewsToday.com

*Sherri Woodbridge was diagnosed with Young Onset Parkinson’s disease over 15 years ago. She is an award-winning photographer, blogger, and published author.

NOVEMBER 2018 • DAPS • PAGE 3

8 THINGS CAREGIVERS NEEDby Sherri Woodbridge*

PAGE 4 • DAPS • NOVEMBER 2018

Thank you to all who gave!Don & Marilyn AllenKathryn ArdenJames ArmingtonSarah Atwood in honor of Chad SwankRobin BelcherDonald BennettRichard BennettWendy BennettRichard C BowerMabel BowldenBrian & Laura BoyleTony BrouilletteH U BrownShelley Broyles in honor of Billy RaterDianne BrysonMary Leslie CalcoteJohn & Wanda CallKristina & Carlos CasanovaAnnabelle CatterallPatty CookDebbie CoxPatty CrowKim DagueDon DicksonMadeliene DicksonCarolyn A DobsonRichard DoellingRita DoellingJill DominguezRaul DominguezSarah DominguezSofia Dominguez

Ward & Jo Anne Eastman in recognition of Peak Performers member David SallerJo Anna EvansDan & Lore EveringhamC & E FergusonBentley Foster in honor of Mike Miles & the DAPS staffCarol FranzenCecilio GarciaCarla GaylorBarbara GlassJohn GouldMark & Ellen GrishmanDavid & Kay GrishmanBob & Brenda HaleyLaura Jo HalversonKent HannemanClaudia HardenburgColette Reed HarmonSuzanne Harned in memory of my husband, James M HarnedJames & Kathryn HassePaul & Edna HeadlandAnn HeidgerMartina Hernandez & daughtersAmazon HerveyAmy HiteCathy HollingsworthLarry HughesAnne JordanBill JordanHarold KelloggDorothy Kilpatrick

Jo & Bert KleinGeorge & Deborah KnightFrank & Barbara LaneLeon & Marilyn LevinBarb & Mike MackAnn & Chick MartinPeggy MartinCarol McEachern in memory of Mr. Jim TaylorCathy McEachern in memory of Mr. Jim TaylorWendi Lee Meyer in honor of Barbara MeyerPam Michel in honor of Jill DominguezDonna MilesMike MilesCarlie MoePhillip MooneyhamJoy MooneyhamJean & Jim NeilJames NeitzelMandy Newberg in honor of Sandra NewbergDaniel & Tamra NovakWilliam & Jane OestreichJohn OlssonCarl PeavyLinda PeavyFred RansdellRenea & David Reckner for our dad, JimDorothy Rewerts in memory of Jackie Reis

NOVEMBER 2018 • DAPS • PAGE 5

Wayne RichBonnie RobertsLarry L Roberts, SrRon & Breezy RockLinda RolenCheryl M Salmon in memory of my dad, Ernie MartinEmily SchmehlKay & Mark SchweinfurthHolly ScottStanley ScottAngie ShapiraDoris SosnowskiMarilyn StewartNancy StoweJim & Woo Woo Struble in honor of Jill DominguezWoo Woo & Jim Struble in honor of Larry ChristensenJoyce SusmanMonica & Jeff SusmanLaura SutherlandChad SwankLue TaffNancy TofferSharon Toth in memory of Larry Toth Brenda TruittDennis VerbeekGloria VerbeekBarbara WatersDorothy WattsCindy WeatherallMichele WhiteLarry & Janice WilseyThe Winkelmann Family in honor of Jo Beth Dobbins Greg WoodSally & Robert WoodwardTeri YearganAlphaGraphics Park Cities | North DallasCommunities Foundation of Texas

Your generosity enables DAPS to continue impacting and improving

the lives of those affected by Parkinson’s disease.

IntroducIng:Patty Cook

by Fred Ransdell

DAPS Board Member Jo Klein lives next door to Patty Cook and knew she had a marketing background, so she asked Patty if she would be interested in helping DAPS continue to grow. Although Patty knew very little about Parkinson’s disease, she agreed to volunteer for DAPS and contribute what she could to the success of the organization. Patty joined the DAPS Board of Directors in January 2018.

Shortly thereafter, Patty learned that a friend’s brother had recently been diagnosed with Parkinson’s. This made being a part of DAPS an even more meaningful experience. Patty is eager to broaden awareness of the organization, and to help further DAPS’ mission of impacting and improving the lives of those affected by Parkinson’s disease. She has already done quite a bit for DAPS, including creating a Vizient Community Day marketing brochure and designing a new DAPS donation envelope.

Patty suggests that anyone thinking about volunteering with DAPS should give it serious consideration. DAPS is an organization that genuinely needs and appreciates its volunteers. DAPS is not as well-known as many charitable organizations, but it provides an enormous amount of resources for our community.

Currently, Patty is Managing Director of SHCM, LLC, a healthcare and consumer marketing consulting firm. She has 25+ years of experience in the healthcare, technology, and franchise industries, with undergraduate and master’s degrees in marketing. Her areas of expertise include branding and advertising, integrated communications, digital and traditional media strategy, and public relations.

One of Patty’s proudest accomplishments is being a mentor to young women as they grow in their careers. Hobbies include travel, reading thrillers and historical fiction, and playing with her two French Bulldogs. What most people don’t know about Patty is she has an insatiable curiosity about archaeology and history. If it’s old or has disappeared and there’s some sort of mystery around it, she can’t get enough of it.

Patty’s been married for the past four years to a man who has three sons. Patty’s “family” consists of many long-term friends who’ve been there for her through thick and thin. Her favorite quote is from Lewis Carroll: “If you don’t know where you’re going, any road will get you there.”

Patty is still learning about Parkinson’s, but knowing what DAPS does gives her great hope for those living with the disease.

PAGE 6 • DAPS • NOVEMBER 2018

Good Vibrations

The exercise class was coming to an end. Muscles had been awakened, arms and legs had been stretched, and people were feeling the exhilaration of a good workout. Then, as the exercise continued—at a wind-down, slow-down pace—the instructor asked the group to do two things which surprised me. As everyone continued to exercise, the leader asked them to think of something they were thankful for. It did not have to be something big—maybe an hour or two with the grandchildren or time with a good book. Everyone was given time to think about it. My own perspective shifted, and it seemed to me that

the faces around me took on a glow not seen before that moment of thankful reflection.

Next, as the cool-down exercises continued, the leader asked everyone to think about something that they were looking forward to. Again, it did not have to be big. Maybe it was a bowl of ice cream at the end of the day, a favorite show on TV, or perhaps an approaching vacation. After a few moments of everyone thinking about these things, happy and grateful vibes filled the room.

That mental exercise has stayed with me. There are times when the stress of the day is threatening to overpower all else, but I remember that exercise, and the act of being grateful for things past and excited about things to come fills me with good vibrations. I am reminded that not only is DAPS in the business of providing exercise, speech, and support groups, but we are also in the business of encouraging one another and sharing good vibrations.

I wish you all a Happy Thanksgiving and happy expectations!

Kindest regards,

A message fromMike Miles

Executive Director

In memory of James Ray (Jim) TaylorFrom: Rebecca Descant Eric Hohn Marguerite Le Garrec John Pickrell

In memory of Shirley Ruth BoothFrom: Marla & Michael Boone

In memory of Howell Daby From: Trinity United Methodist Church

In memory of Hedy & Fred ReisbergFrom: Marsha Reisberg Lauterstein

In honor of Leon LevinFrom: Marsha Reisberg Lauterstein

In honor of “Peak Performer” David SallerFrom: Beatriz Carullo John Gibbs Nora Jacobs Vicky & Doug Lattner Harry Longwell The McDavid Family Mike Miles Drew Parham Sue Secker William Silverman Mary Smith Tamysia Tolle

Donation to DAPSFrom: Anonymous individuals at September General Meeting Lieselotte Beene Robin Belcher Ronald Brame Carol Brandle Robert Hursch George Knight Linda Knox, in memory of my brother Paul Salzberger Tom Thumb Good Neighbor Program Vizient DAPS @ Preston Hollow (Dallas) DAPS @ Trinity (Duncanville)

Memorials • Honors • DonationsSeptember 2018

NOVEMBER 2018 • DAPS • PAGE 7

UPCOMING EVENTS

DALLAS HOLIDAY LUNCHEON

Location: University Park United Methodist Church (Activity Center)

Address: 4024 Caruth Blvd, Dallas, TX 75225

Date: Monday, December 3, 2018 (1st Monday)

Time: 12:30 p.m.

Entertainment will be: Variations Choir - Woodrow Wilson HS

RSVP by Thursday, November 29th; $10 per personhttps://daps.us/december2018rsvp

MCKINNEY GENERAL MEMBERSHIP MEETING

Location: St Gabriel the Archangel Church

Address: 110 St Gabriel Way, McKinney, TX 75071

There will be no meetings in November or December.

DUNCANVILLE GENERAL MEMBERSHIP MEETING

Location: Trinity United Methodist Church

Address: 1302 S Clark Rd, Duncanville, TX 75137

Time: 6:00 p.m. (snack supper) 7:00 – 8:00 p.m. (speaker)

Date: Monday, November 26, 2018

Speaker: Nirav Pavasia, M.D.

Topic: Dyskinesia

Call 972-298-4556 for more information.The DAPS office will be closed

Wednesday, Nov. 24 through Friday, Nov 26.

Wishing everyone avery happy Thanksgiving!

Dallas Area Parkinsonism Society 2018 Symposium

Discover treatments & strategies for living well with Parkinson’s disease.

FREE EVENT!DATE: Saturday, November 17, 2018

8:30 a.m. to 2:30 p.m.Doubletree | Richardson

1921 N Central Expy, Richardson, TX 75080Learn about:

• Managing PD• Music Therapy

• Psychological and Emotional Issues with PD• PD Exercise and Physical Therapy

• Non-Motor Symptoms: Treatment and ManagementPlus your choice of 3 breakout sessions:

Newly Diagnosed • Living Well with PD • DBS

Space is limited. Register now!daps.us/KeepMoving2018

972-620-7600

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Dallas, TXPermit No. 3255

Dallas Area Parkinsonism Society6370 LBJ Freeway, Suite 170Dallas, Texas 75240(972) 620-7600

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disclaimer: The contents or opinions expressed in this newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff. Please consult your personal physician regarding your individual medical problems.

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