1. B LANK S LIDE (H IDDEN ) 2 H OMEWORK R EVIEW 3.
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Transcript of 1. B LANK S LIDE (H IDDEN ) 2 H OMEWORK R EVIEW 3.
HOMEWORK REVIEW
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PROJECT LEADERSHIP: CHAPTER 2
PROJECT LEADERSHIP: CHAPTER 2
Rules of the Road:Systems, Laws, and Entitlements
PURPOSE
To learn about:
How policies are made
Important laws and public systems
Making the link between individual advocacy and public policy advocacy
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HOW POLICIES ARE MADE
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GLOSSARY OF TERMS
Appropriation Entitlement Programs Family-Centered Care Laws Legal Mandate Regional Centers Regulations Statutes 8
WHAT IS POLICY?
Policies vs. laws
Everyday examples of policies
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POLICY BREAKDOWNS
Is the problem related to:
Intent or language of the law?
Regulation or ruling that tells how a law is to be implemented?
Implementation of the policy?
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IMPLEMENTING POLICIES
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Policy
Regulation
Implementation
GOVERNMENT POLICY LANDSCAPES
LegislativeFederal: Senate and House of RepresentativesCA State: Senate and Assembly
Executive Federal: Departments and AgenciesCA State: CA State Departments and Agencies
JudicialFederal: Federal CourtsCA State: State Courts
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GOVERNMENT POLICY LANDSCAPES
Local County: Boards of Supervisors, County
Commissions, County Departments
City: City Councils, Departments, Commissions Planning Councils
Agency: Boards, Councils, Departments, Committees
Regional: Councils of Governments13
IMPORTANT LAWS AND PUBLIC SYSTEMS
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This slide is from the Health Care in Transition presentation by Dr. Ann Kuhns, California Children’s Hospital Association
PUBLIC PROGRAMS FOR CHILDREN
Title V CSHCN ProgramsCalifornia Children’s Services (CCS)
MedicaidMedi-Cal
SSI for Children
CHIP/SCHIP Healthy Families Medi-Cal 16
LAWS PERTAINING TO CHILDREN
Section 504
Individuals with Disabilities Education Act (IDEA)
Lanterman Act
Family-School Partnership Act
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IDEA Part C(birth to 3 yrs)
FEDERAL
California Department of Developmental Services
(DDS)
Regional CentersCalifornia Early Start
LANDSCAPELegal Mandates & Agencies Responsible for Services
for Children with Special Health Care Needs
REGIONAL CENTER and CA EARLY START
California Lanterman
Act(3yrs and up)
STATE
LOCAL
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Title V Maternal & Child Health(birth to 21 years)
FEDERAL
California Medical Services Branch (CMS), Dept. of Health Care Services
(DHCS)
California Children’s Services (by county)
LANDSCAPELegal Mandates & Agencies Responsible for Services
for Children with Special Health Care Needs
California Children’s Services
STATE
LOCAL
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Family Feud
MAKING THE CONNECTION:FROM INDIVIDUAL TO PUBLIC POLICY ADVOCACY
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MAPPING OUR SYSTEMS
What services and systems do you or your family members use?
Which of those are services?
Which of those are systems?
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INDIVIDUAL ADVOCACY
Being an individual advocate means working, speaking, writing, andproblem solving; and finding solutions
and resources to ensure you and your family’s needs are met.
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INDIVIDUAL ADVOCACYExamples:
Find information & support Keep records Choose a health plan Find the right primary care physician Practice partnerships Negotiate your coverage/health plan Practice self care 28
PUBLIC POLICY ADVOCACY
Sometimes individual advocacy is not enough.
When programs and the policies that guide them do not support the family-centered care philosophy, you get inspired to make things work better.
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STRATEGIES TO BECOME A PUBLIC POLICY ADVOCATE:
Know the law and its intent. Keep track of opposing arguments. Be familiar with pros and cons of policies. Understand different agendas and establish
common ground. Build a core group of allies and other
advocates. Propose alternate solutions. Provide input on policies. Inform general public about the issue. 31
CHANGING THE SCOPE OF FOCUS
Individual experience is your best tool for becoming a public policy advocate!
Examples of advocacy focus:- Family-centered - Coordinated- Responsive - Culturally competent
- Flexible
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Individual
Public policy regarding individual issue
System-wide approach
PARTNERS AND ALLIES
Find partners to help you!
Possible partners• Primary Care Physicians• Organizations• Parent Groups• Legislators
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BE INFORMED Talk to other families about their experiences.
Get on the mailing list of an advocacy group focused on your issue (or start your own!) Examples:
FVCA to subscribe, email: [email protected]
The California Advocacy Network for Children with Special Health Care Needs (LPFCH) http://www.lpfch.org/programs/cshcn/collaborative.html
Research your issue in the media – look for articles, reports, and statistics.
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TAKING THE NEXT STEP:
Volunteer at an Independent Living Resource Center, Family Resource Center, or other advocacy organization.
Attend a conference or public meeting about an issue of interest to you.
Organize a meeting with some potential allies.
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MAKE A COMMITMENT!
Set specific goals.• Both long-term and short-term• Incremental and overall
Set up a concrete timeline with deadlines.
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Chapter 2 Review
HOMEWORK
Action Planning Template: Allies, Opposition, Laws/Policies, Statistics/Data, and Relevant Reports/Articles boxes
Fill in the blanks: Systems & Services worksheet
Complete some portion of the Make a Commitment worksheet
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EVALUATION
PurposeoTo get feedback on the effectiveness of this training
oTo identify what participants are learning
oTo find areas that can be improved
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