GLOBALGENES.ORG/CORPORATE-ALLIANCE

GLOBAL GENESRARE CORPORATE ALLIANCE MEMBERSHIP & BENEFITS

2020

The RARE Corporate Alliance is a coalition of rare disease industry stakeholders committed to collaboration between industry and patient communities. The RARE Corporate Alliance actively engages and evolves with the needs of the rare disease community.

As a member, you will contribute to growing and producing programs and initiatives that strive to CONNECT, EMPOWER, and INSPIRE. The RARE Corporate Alliance focuses efforts to:

• Actively CONNECT the patient community with those focused on their specific needs, aiding them in finding diagnosis, catalyzing research, discovering drugs and developing treatments and therapies that will enhance their lives.

• EMPOWER advocates by equipping them with knowledge, resources and support as they seek to address and overcome the challenges of rare disease.

• INSPIRE the rare disease community to continue working to improve health and expedite access to effective therapies for all rare disease patients.

MORE INFORMATIONRARE Corporate Alliance Membership: kathyo@globalgenes.org

INTERNATIONALCOMPANIES

47%

MEMBERS66%

29%

5%

Diagnostic, Research, Tech, Service Providers

Other

Biopharmaceutical

Why Join?Join more than 80 rare disease industry stakeholders in supporting patient education, community building and improved access to approved rare disease treatments. In addition to the meaningful work you will support, you will be provided a variety of benefits including networking and brand awareness.

Promotion on RARE CorporateAlliance Materials

• Logo on webpage and materials• Recognition at select meetings and events

• Mention with company handle at time of joining• Mention with company handle for significant membership anniversariesSocial Media Mention

• Opportunity to be highlighted in a Global Genes newsletter or community highlightNewsletter Member Spotlight

• Nominate one (1) speaker with expertise on topics of interest to patient and advocate communities to be added to the Global Genes Speakers BureauGlobal Genes Speakers Bureau

• During the annual in-person member meeting, Global Genes will open the floor to suggestions for strategic focus and work group opportunities

Inform the RARE Corporate Alliance Annual Strategic Agenda

• Opportunity to be called upon by Global Genes to be a resource for educational tools, community resources, and programing as applicable

Educational Development Advisor Opportunity

• Members receive early, preferred access to sponsorships and opportunities• Members will be informed of sponsorship opportunities a minimum of 30 days

before non-members• Reduced rates on registration fees and exhibitor booth fees at signature events

Preferred Access to Sponsorships and Opportunities

Rare Community Networking Opportunities

• Join the RARE Portal to connect with RARE Foundation Alliance members, patients, advocates and caregivers in disease specific areas

• Receptions at Global Genes events

Community Education Development

• Members have opportunities to support programs and provide funding to further educate the rare disease community

• If a press release is issued on the wire, it will be pulled into the RARE Daily feed• Clinical trials that are registered at clinicaltrials.gov and associated with a

particular disease will be automatically pulled into the RARE List

Network Sharing of Patient-Related Corporate News and Announcements

BENEFITS INCLUDES

MEMBERSHIP LEVELS

ORGANIZATION TYPE ORGANIZATION SIZE COST

Biotech/Pharmaceutical Company

Firm/Specialty Pharma/Pharmacy/PBM/Labs/CRO

Trade Organization

Research & Development with Fewer Than 20 Employees $5,000

Research & Development with 20+ Employees $10,000

Clinical $15,000

Commerical with 2 or FewerApproved Therapies $20,000

Commercial with 3+ Approved Therapies $25,000

Independent Consultant $1,000

Fewer than 10 Employees $5,000

$10,00010 – 25 Employees

$15,00025 –100 Employees

100+ Employees $25,000

N/A $10,000

28 Argonaut, Suite 150

Aliso Viejo, CA 92656

Phone: (+1) 949-248-RARE (7273)

©Global Genes 2019. All rights reserved.

globalgenes.org@globalgenes

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