For the Record: Protecting Electronic Health Information

National Academies Press, 1997

public health data

voter data

Mr X: William Weld

genetic data

“expression” data

clinical data

gene expression causes clinical trait

gene expression reacts to clinical trait

independent activity…

if the device is useful enough

and integrated enough, people

will give up rights...willingly.

closed monopoly systems prefer incremental changes.

Text

“tragedy”

global NGO / non profit organization

public good, by private agreement.

“some rights reserved”