John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08

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John Wilbanks & Stephen Friend, Nov 7-8, 2011. Partnering for Cures: Standardized Informed Consent, New York, NY

Transcript of John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08

PORTABLE  LEGAL  CONSENT  

John  Wilbanks  

“one more thing”

what‘s missing?

network effects.

how do we get there?

standards, legal and technical.

start with the patient.

patient-driven data collection.

in the beginning, there was consent.

simple. weak. standardized. open.

simple. weak. standardized. open.

simple. weak. standardized. open.

simple. weak. standardized. open.

http://weconsent.us

@wilbanks jtw@del-fi.org

supported by: Sage Bionetworks

Ewing Marion Kauffman Foundation Lybba.org